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WHO: Kristy Kuncaitis, Innovation Lab Director LOVES: MAKE UP FOR EVER Aqua Rouge in Rosewood a€?On my wedding day, the last thing I want to worry about is retouching my lipstick! LOVES: Urban Decay All Nighter Long-Lasting Makeup Setting Spray a€?For an entire day of wearing a full face of makeup, I always look to the Urban Decay All Nighter Long-Lasting Makeup Setting Spray to make sure it all stays intacta€”even through rough weather and tender emotional conditions.
Kat Von D Tattoo Liner a€?This eyeliner is the best when it comes to precision, color, and staying power. LOVES: NARS Lip Gloss in Angelika a€?My everyday lip color is always sort of a neutral pink, but for my evening wedding coming up, I picked this bright and fun NARS Lip Gloss in Angelika for an extra-girly and romantic look. New York, NY New, Get Introduced parties and get togethers Connecting New York City singles. New York City (or NYC) -- officially, "City of New York," and affectionately known as "The Big Apple" -- is the largest city of the state of New York and in the United States, and by many measures, one of the most important cities in the world. New York is also the location of what was, according to many experts, the most devastating act of terrorism in modern history: the September 11, 2001 attack that utterly destroyed the twin towers of the World Trade Center and several surrounding buildings.
New York has had a reputation as a crime-ridden city, partly due to the hundreds of TV and cinematic crime dramas set in it. The current mayor of New York City is Michael Bloomberg, elected in 2001 on the Republican ticket.
Although New York's harbour was first discovered by Giovanni da Verrazano during his expedition of 1524, the history of New York City properly begins with the Dutch settlement of 1624. In 1664, British ships captured the city, with minimal resistance: the governor at the time, Peter Stuyvesant, was unpopular with the residents of the city. Several battles were fought in New York during the Revolutionary War; the British defeated George Washington's troops, and held the city until the war ended. New York was briefly the capital of the new United States of America, in 1789 and 1790, and George Washington was inaugurated as President in New York, then the nation's second largest city. The building of the Erie Canal, in the 1820s, helped the city grow further by increasing river traffic upstate and to the west.
The modern city of New York -- the five boroughs -- was created in 1898, as the merger of the cities of New York (then Manhattan and the Bronx) and Brooklyn with the largely rural areas of Queens and Staten Island.
The building of the New York subway, as the separate IRT and BMT systems, and the later IND, was a later force for population growth and development. The world-famous Grand Central Terminal[?] opened as the world's largest train station on February 1, 1913. As of the census of 2000, there are 8,008,278 people, 3,021,588 households, and 1,852,233 families residing in the city. The median income for a household in the city is $38,293, and the median income for a family is $41,887. I invite people using message boards saying that I prefer my guests to be 30 - 50 years old but everyone is welcome. A Moebius Syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. Thankfully, I know the MAKE UP FOR EVER Aqua Rouge line will last fromA saying our vows to cutting the cake.a€”and beyond.
The city is probably the world's most important financial center, and one of the most important cultural centers of the Western world. Each borough elects a Borough President, but under the current city charter, the Borough President's powers are limited--he or she has a small discretionary budget to spend on projects within the borough. The population of the City of New York is more than eight million (2000 US Census), with the population of the entire metropolitan area at around 20 million.
Residents generally refer to New York City (or just Manhattan) as "New York" or "the city".
In fact, the city has a high crime rate compared to the United States of America at large, but a relatively low rate compared to other North American cities. Bloomberg had come to prominence as an expert on Wall Street, which had brought him great wealth, but the mayoralty is his first political office.
His bid for United States Senator from New York State was aborted by treatment for cancer and controversy over his affair with Judith Nathan.
That town, at the southern tip of Manhattan, was called New Amsterdam (Nieuw Amsterdam), and was the main city of the Dutch colony of New Netherlands. The British renamed the colony New York, after James II of England, who sponsored the takeover and who was at that time the Duke of York. Patrick's Day was celebrated in New York City for the first time at the Crown and Thistle Tavern on March 17, 1756. By 1835 Manhattan overtook Philadelphia as the most populous city and established itself as the financial and mercantile capital of the western hemisphere. The song gave its name to a film directed by Martin Scorsese (see New York, New York (film)[?]). Most people with Moebius Syndrome are born with complete facial paralysis and can't close their eyes or show facial expressions.
The United Nations headquarters is in New York City, giving some credence to the city's self-designation as "capital of the world". In addition, New York has been growing safer for most of the last decade--FBI data indicate that the murder rate in 2000 was the lowest since 1967.
Bloomberg had been a Democrat until only a short time earlier, but switched to the Republican Party to run for mayor, in order to avoid a crowded Democratic primary. He handled the aftermath of the World Trade Center disaster well, providing much-needed leadership, and greatly increased his popularity. The Dutch origins can still be seen in many names in New York City, such as Brooklyn (from Breukelen), Harlem (from Haarlem), The Bronx (from Pieter Bronck) and Staten Island. The city grew northward, and remained the largest and most important city in the colony of New York. This holiday has since become a yearly city-wide celebration that is famous around the world as the St.
A nearly pure form of capitalism created a large upper-middle and upper class, but its need for manpower encouraged immigration on an unprecedented scale, with mixed results.
This year’s theme: “Cotton Sacks and Freedom Quilt Narratives” substantiates the viability of the sweat equity investment made through labor and cultural contributions by Cotton Pickers and other Plantation Workers. Holiday Party, Office Party, Christmas Party, Divorce Party, Cast Party, Many Types Of Events And Parties. The island of Manhattan was in some measure self-selected as a future metropolis by its extraordinary natural harbor formed by New York Bay (actually an arm of the Atlantic Ocean), the East River (actually a tidal strait) and the Hudson River, all of which are confluent at the southern tip, from which all later development spread.
The famed melting pot was brought into being, from which multitudes have since arisen in the successful pursuit of the "American Dream". The following evening, Friday November 13, the “Cotton Pickers Ball” shall be held at 7:00pm, in da’ House of Khafre, located at 300 Main Street, Indianola.
Respiratory problems, speech and swallowing disorders, visual impairments, sensory integration dysfunction, sleep disorders and weak upper body strength may also be present. Have The Jellin Girls Introduce You To Other Great People In New York City's Top Night Clubs. Also of prime importance was the presence of deep fresh water aquifers near the southern tip, especially the Collect Pond[?]. But countless others failed to rise, or entire generations were forced to plough themselves under for their children or grandchildren to rise. All are encouraged to attend both events in costume attire worn in the cotton fields, such as “overalls and straw hats, etc.”The 1st Annual Historical Narrative Competition enhances this year’s Symposium. A People with Moebius Syndrome are of normal intelligence, although their lack of facial expression is often taken to be due to dullness or unfriendliness.It is estimated that there are only between 5,000 to 10,000 cases of Moebius syndrome worldwide. Holiday Party, Office Party, Christmas Party, Divorce Party, Cast Party, Many Types Of Events And N.Y. In the mid-1800s these antipodes could be found in the fabulously rich stretches of lower Broadway (wealth that would later take up residence on Fifth Avenue[?]) and the almost unbelievably squalid enclave of Five Points (abject poverty later to take up residence in the Lower East Side[?]). Mississippi Delta high school seniors and MVSU students will compete for a trophy and gift card provided by Khafre, Inc and Lost Pizza, Company.
All projects must be delivered to the MVSU Social Sciences office “T” by 5:00pm November 5th, (or call organizers to arrange for pick up).
A  Due to the format of the B of A email, and the copious amounts of "filler" statements they use; the series is a bit difficult to follow. A "There is no substitute for a loving, supportive family A­ whether that family is biological, or our worldwide Moebius Family. A  I usually write correspondence to fit the lowest common denominator, but how low can one go?A  Although I'm willing to bet that if I reverted to primal grunts, and what could be considered a primitive, yet well understood gesture even in our modern world; that someone on the other side of the Banking Center counter might have their mind bulb flash, if only momentarily.
The Best Singles events in New York City Now internet Audio Personals Help Make Connections 24 hrs A Day! We encourage you to proudly wear purple, and do some of your own research to educate yourself and others about Moebius Syndrome. We appreciate your support and look forward to the biggest Moebius Syndrome Awareness day ever!A Click here to download a pdf copy of the press release. Professor, Public Policy, MVSU; Dr Alpha Diarra, National Cotton Spokesman of Mali, West Africa.
Just click here to order directly from Fresh Printz, the official provider of MSAD clothing.
24th, make sure to wear your shirt with pride, telling everyone you know about Moebius and the special day honoring those with the condition. This was the day our lives were put on course -part of the same journey, with Paul Mobius as the Pilot, we the passengers.The realization that word around Moebius Syndrome has spread brings a smile upon my face.
I have a few of my portion of the email, as I cut and pasted it into my regular email service; don't know how they lost theirs. Local storyteller Helen Sims will pay tribute to “the Spirit of Mama Lula.” Hollandale folk artist Dorothy Hoskins will showcase recent multi-media work on Cotton Pickin’ and Sharecropping in the American South.
They relate to the Merlin Teller, and how a fully paid balance of mine is being carried on their books as an outstanding balance on their system for months after I paid the account in full, probably sometime in October of 2007. The diagnoses were dreadful, parents were sent home without any hope, advice or information.
I was repeatedlyA  told this same information by various B of AA  staff that I spoke with in person, numerous times, in various locations, but I did not record the conversations and wish that I had.
Who could survive against these odds?What was left for parents to hold onto but Prayer, love and a Godly miracle!
When first asked how and why they would do that; as it didn't sound logical or legal to me, I was informed by more than one staff person at more than one branch that it was expected to be carried for 16 to 19 Additional months!A  That is some kind of accounting system.
With the help of family, friends, and groups connected to the family, you can now raise the awareness around Moebius Syndrome. Put your talents, your compassion, your knowledge, and your experience out there in a way that can benefit others.
A  That didn't sound accurate, as I was able to access the information on both the old 3732 account AND the new account until approximately January of 2008, and the phone rep I spoke who made arrangements for a balance transfer from another VISA Account I have at another bank for me on either April 3 or 4, 2008, said he would have copies of those 3732 statements mailed to me that day, at no charge to me.A  (I have received an envelope at my P. In hindsight, any challenge or disability to me means loving that person unconditionally, so let us step up and spread the awareness. Our appeal is simple a€“ in support of those living with Moebius Syndrome, wear purple on 24 January and share your knowledge about this disorder. The University is driven by its commitment to excellence in teaching, learning, service, and research--a commitment resulting in a learner-centered environment that prepares critical thinkers, exceptional communicators, and service-oriented, engaged, and productive citizens. Box from B of A; I'll expect the contents are the account statements, but won't know for certain until they are forwarded to me. MVSU is fundamentally committed to positively affecting the quality of life and creating extraordinary educational opportunities for the Mississippi Delta and beyond. KHAFRE, Inc. 24 January is now also a day of Celebration in the Life of those living with Moebius Syndrome. Thank you to all who have made this day possible and for giving our children a new meaning to life.- Kay Von WillinghMoebius Syndrome Awareness Day (MSAD) is important to me for many reasons.
Like many of the other families, we learned of a new syndrome that day that very few had ever heard of. I remember the call from my sister, Stacey, telling me Dakotah was born and that something was wrong. Honoring the legacy of  “grandmamma-nem” in a university setting gives artistic and academic license to the pursuit of gaining more scholarship and international acceptance, of the contributions and sweat equity made by the people who picked cotton throughout the American South,” said Professor C.Sade Turnipseed, Executive Director of Khafre, Inc. A  Bank of America?A  I'm almost on their side for this particular incident; as I know that avoiding lawsuits and payouts is high on their priority list. As part of Khafre, Inc’s historic preservation efforts, a permanent marker will be placed on the MVSU campus in honor of cotton pickers from the Mississippi Delta, and those who worked the repurposed cotton plantation for higher learning, MVSU.The Symposium is free admission. Unless some staffer slipped up, yapped out my private account activity, and didn't take time to note it in my file.
Thankfully, I found the Many Faces of Moebius Syndrome and Moebius Syndrome Foundation websites. The websites have brought many families together through love, support and sharing of personal knowledge and experiences, however, with very little information available to families otherwise this day is important, and much needed, to give a voice to the syndrome and the families who live it each and every day. My hope is that Moebius Syndrome Awareness Day will bring awareness and understanding every day. Khafre, Inc is all about building monumental programs that allow reflection, reconnection, and renewal.


My hope is that Moebius Syndrome Awareness Day will bring awareness and understanding to those around them, and within the medical community as well.- Andrea (Sweetwood) SmithWhen I was asked what MSAD means to me. This year’s theme: “Cotton Sacks and Freedom Quilt Narratives” will stimulate a day of discussion about historic preservation, leading-edge research, innovative practices, and foundational values.
I immediately think about Caleb and all the children whom I've been introduced to through Facebook connections.
The agency and resistance of these narratives will also reflect on the subtle and continuing impact of cotton on life in the Delta and throughout the South. I think of my friend Tim Smith, who has been informing masses of people about Moebius Syndrome for years. The one-day event concludes with a good old fashion “black-tie” (or period-piece costume) “Cotton-Pickers’ Ball and Ancestral Celebration” at da’ House of Khafre located at 300 Main St. MSAD 2011 meant (to me) that a common goal within the Moebius community had finally been met. God bless!- David MoffittThe media have made a number of illnesses well known to the public such as cancer, mental health illnesses like Bipolar Disorder and Schizophrenia and that is just to name a few. Though in most cases Moebius Syndrome isn't life threatening it is still a syndrome that affects people all around the world emotionally and physically.Every day people usually have no clue what Moebius Syndrome is, so sufferers with severe facial paralysis sometimes will get looked at strangely while innocently walking down the street, going about their day.
Often teenagers in high school will get bullied because having Moebius Syndrome makes them look different from others. This can have a serious affect on people, making them feel even more anxious about their appearance.
Julianne Malveaux; and, introduction by award-winning poet Chinaka Hodge the volume offers a balanced view of what our children face day-to-day, on the streets of America.
It is hard when others dona€™t understand the syndrome; they might assume a sufferer is moody or unfriendly by the appearance of their face when this is not the case. Over two hundred years ago, the Akan Nation (West Africa) established the Adinkra Symbols to visually communicate a system of living for African people to observe and learn. Most of the time it is really hard to let people in because it can be awkward breaking the ice, not knowing quite how to explain yourself to other people so that they can get a better understanding of the syndrome.
Amazingly, just as with other inspired and spiritual writings, drawings, etc., the symbols are beautiful design concepts with meanings still relevant today.
And when you do explain yourself to someone you have to explain yourself to someone else and this can be tiring.Having a Moebius Syndrome Awareness day will benefit the public so much, its not a common syndrome so putting it out there to the world will just make people with the syndromes life a little easier.
That way the world is educated and familiar with it and hopefully they will be able to recognize someone with Moebius Syndrome. Hopefully they will be able to realize that people with Moebius Syndrome and perfectly intelligent and intellectual, and that they lead normal lives.
They bring clarity and resolve to the question, “What do we (the village) have to do to show support and love for each other and ultimately save ourselves and one another?” The experiences of today’s youth culture demonstrate a fundamental disconnect, to most people of previous generations. This will also benefit Doctors who will be able to diagnose new born babies and infants quicker.Having an awareness day will also be great for people with the syndrome who are unaware that there is a Moebius Syndrome website and group on Facebook that they can go to if they need some support.
The young writers selected for this publication masterfully describe the challenge in dealing with today’s world. This can be a very positive experience as they can interact and meet up with others with the syndrome; this can help people feel less isolated.
Finally the more people that know about the syndrome the better it will be to find what causes Moebius Syndrome as this has been yet to be discovered.- Loriana Sofia FirthI was surprised by how much Jasper got out of MSAD.
As a confident, bright and outgoing kid I have always felt that he just took the condition in his stride. Because, it offers tribute to the “original” mother and her instinctual knowing of the spiritual paths that her children (all children) must take to find their way out of harm's way. Whilst I believe in spreading awareness, i never realized the impact having a MSAD would have on Jasper personally. Revealed, in this collection of writings are a wonderful array of short stories, poems and proverbs that present a familial insight born by the great liberator of liberators, Harriet Tubman!
The pride in his face from being the MFMS poster boy for the day was incredible- it dawned on me then that MSAD was important for him because it gave him the opportunity to celebrate who he is BECAUSE of Moebius syndrome not despite it. I have always tried to ensure that Jasper never feels as though he is deficient or that he needs 'fixing', MSAD helped to consolidate this.'- Lauren BroadhurstA few months ago I was watching an old episode of ER where a young boy with Down Syndrome is brought into the emergency room.
Immediately the TV doctor makes a decision on how his patient should be treated after considering a few risk factors involved in having Down Syndrome. It's mostly likely that if the situation were real the doctor wouldn't even know what Moebius Syndrome is, never mind knowing how to treat someone with it. I believe not only could a Moebius Syndrome Awareness Day teach doctors how to treat those with Moebius medically, it would teach others how to treat those affected by Moebius socially as well.- Gavin FoucheThe 1st Annual Moebius Syndrome Awareness Day was an invaluable day for our family. I believe that with the HUGE effort of the entire Moebius Syndrome community, MSAD allowed us to educate countless people across the world, including our family and friends that were unaware of exactly what Zaydena€™s diagnosis meant.
By Writers of the 21st Century is an affiliate of Young Publishers Network (YPN) and Khafre, Inc a 501(c)(3) organization working in the Mississippi Delta to improve the welfare and healthy living environments of children in America and around the world.### Thank You Mr. Parents, relatives, friends and fellow Moebians made MSAD 2011 a huge success through their hard work and creativity.
Born in a cabin on a cotton plantation outside Berclair, Mississippi in 1925, his entire life, much like the lives of so many others from the Mississippi Delta, was spent in service to others.
Leta€™s make January 24, 2012 known throughout the world so parents and health care providers can make informed decisions when a diagnosis of Moebius Syndrome is made.- Holly WilliamsA  What does Moebius Syndrome mean to me?
Unfortunately, for most of his contemporaries (colleagues, family of friends) they never received the accolades, appreciation, or respect for their life-long work as cotton-pickers in the American South. When I was younger, it was no fun to have other kids my age stare at me, or make fun of me (it's really no fun to have that happen to you as an adult either).
Please do your employer a favor, and provide me with the written documentation that I have repeatedly requested.A  Thanks for your cooperation.
At the same time, having Moebius Syndrome has allowed me to get to know some wonderful people, people whom I never would have known otherwisea€”of course I speak of the Moebius Community. And I think having to overcome the obstacles that I and all of us face, has made me tougher, a bit more resilient, than I would have been otherwise. David Matthews, MS Congressman Bennie Thompson, MS Senator Thad Cochran, National Parks Director Dr Jon Jarvis, Mr. Theodore Turnipseed, Sr., and millions of others understand the importance of sharing, and erecting a statue and National Park dedicated to the countless field workers of the American South. Though unrecognized and unappreciated, these people worked from sun up to sun down tilling, planting, chopping, picking and spinning cotton, in the blazing hot sun … This and many other horrifying conditions of the historic Mississippi Delta evoked the music we call “the Blues.”On May 21, 2014, during the last year of his life Mr.
King accepted our call to become the “Honorary Chair” of Khafre, Inc, a Mississippi-based 501(3) not-for-profit organization. We understand achieving despite obstacles, we understand climbing mountains, striving, trying. Maya Angelou as the Honorary Chair of the Cotton Pickers of America and the Sharecroppers Interpretive Center project.
But the entire Moebius community and what it achieves daily showsa€”life sure is worth living.- Kevin Smant___________________________________________________________________________________________________________A Please consider joining us on Facebook using the icon above. The plan is to build a thirty-foot high monument on twenty acres of cotton land along Highway 61, just outside the historic Black town Mound Bayou, MS. Each time we get a new "Like" we are spreading awareness about moebius syndrome one step further. This is a historically rare opportunity to transform many lives in the Delta and engage conversations about race and social inequities in America. As we become better known people start to see us for our commonalities not our differences. Sade Turnipseed is the Executive Director of Khafre, Inc and teaches American History at Mississippi Valley State University, in Itta Bena, the birthplace of Mr. More doors are opened for us and we are able to do more towards our mission goal of "Creating a better tomorrow for ourselves and our children through education and public awareness!" We have to keep going and growing. Stockton: Please forward this email to someone up the ladder who can provide WRITTEN confirmation and information on who requested, and was provided, information on my Visa Card ending in 3732, activity in July or August of 2007. This year’s theme: “Cotton Sacks and Freedom Quilts Narratives” will stimulate a day of discussion about historic preservation, leading-edge research, innovative practices, and foundational values. For Moebius Syndrome Awareness Day 2012 we reached out to other rare disease groups and told them about our Awareness Day. Essentially saying, a€?How can we help?a€?Many Rare Disease Groups have their own Awareness Days. No one has ever “officially” said “thank you” to the people in the American South, who literally tilled the way to the economic greatness for many countries and regions around the world. Somewhere along the way the respect and honor for their hard-earned sweat-equity investment in the wealth of others was lost and buried in the bloodstained, tear-soaked soils of the American South. Moebius Syndrome Awareness Day and the Many Faces of Moebius Syndrome would not have become successful without the support and friendship of NORD, Rare Connect, The Global Genes Project, and many other Rare Disease groups around the world.
Something “monumental,” needs to happen…like a National Park named the “Cotton Pickers of America Monument and Sharecroppers Interpretive Center” along the Blues Highway 61.
The Global Genes Project will be working with local businesses schools, sports teams, places of worship, parent advocates, etc.
Once the Monument is installed, the organizers’ plan is to turn it over to the federal government for the protection and honor that only this country can provide. It shall serve as a permanent reminder and ever-present sign of respect for those whose hope for a brighter day wore thin, while working from kin to kain’t (can’t see in the morning to can’t see at night).The world must be reminded of the work ethic held by the people in the South…in most instances it was an honorable legacy … the tragedy is they were never properly compensated, nor thanked. The jean ribbon has become a unifying symbol for hope in the RARE disease community and building awareness is easy! King, (aka: The King of the Blues) will join the effort to build a National Monument in the Mississippi Delta.
Rose, Good afternoon and thank you for contacting Bank of America in regards to account documentation. Project team members are currently building the tools for a much needed program called 'RARE Meet Up's'. We are currently looking for rare disease advocates to contact us if they are interested in participating in a 'RARE Meet Up' group in their local area. King understands, as do all members of the Khafre, Inc family, that a healing will come through recognition and a true recounting of the history of cotton and its impact in the South.In September, 2009, Khafre, Inc, based in Indianola, Mississippi, embarked upon a journey designed to thank the sons and daughters of the South who helped, albeit it without accolades, fanfare, or even recognition, build the cotton empire that fueled the American economy for nearly two centuries. The impetus for the project: Cotton Pickers of America and Sharecroppers Interpretative Center (hereafter referred to as the Cotton Pickers Monument Complex) is the need to thank those who toiled in the Delta soil for generations without the pay, appreciation, or the dignity they deserved. The Cotton Pickers Monument Complex would not only help heal wounds that have festered for decades, but would also help to empower the generations of family members who have been negatively impacted by this unfortunate era in American history. We will continue through 2012 with the goal of connecting 7000 RARE families with 7,000 new champions for the cause. This is truly a historic endeavor that has the rare opportunity of actually transforming lives, communities, and the conversations about race in America and throughout the world.           These deeply held convictions of education and empowerment are keys to improving the quality of life for all within the Delta. They have helped to catapult Khafre into numerous projects, which are all connected to the vision and mission of this value-driven and movement-oriented organization that is designed to provide historical, health related, and cultural education and outreach to the communities of the Mississippi Delta. Khafre has already helped young people successfully publish literature, prepare for careers in the television and radio broadcast industry, produce staged events and engage in healthy behaviors through diet and exercise, all with the assistance of grant dollars and strategic partnerships.The crowning work of Khafre remains the Cotton Pickers Monument Complex, a dream, which is coming closer to fruition, day by day, because of the unprecedented support of Mr. And Global Genes Project team members wish The Many Faces of Moebius Syndrome much success on your awareness day on January 24, 2012!
We have also received Congressional acknowledgment and endorsement from United States Congressmen, Bennie Thompson and Danny Davis, official endorsements from United States Senators, Thad Cochran and Roger Wicker, and expressed support from Dr John Jarvis, National Parks Director. Carroll Van West and Rebecca Conard from Middle Tennessee State University’s History Department, along with the ongoing partnership with Mississippi Valley State University, has proven a significant benefit to our overall project. We are now ready to raise the $26 million dollars to make the Cotton Pickers Monument complex a reality. 28 in other years) the world celebrates Rare Disease Day, to promote awareness of rare diseases as a public health challenge that cannot be ignored. Rare Disease Day 2011 touched minds, hearts and souls across the nation and 2012 that momentum continues. Advocacy days, like Rare Disease and the Moebius Syndrome Awareness Day, are key components to spreading messages of awareness, advocacy, and hope both within the community and to the public. We look forward to hearing from you and to welcoming your partnership in the building of this long overdue and much needed monument.It is time!Most sincerely,C. NORD is a unique federation of voluntary health organizations dedicated to helping people with rare a€?orphana€? diseases and assisting the organizations that serve them.
NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. The goal is to obtain as much first-hand information as possible relating to the development of America’s Cotton Kingdom (aka the Delta).In the aftermaths of completing the academic study for a Doctorate in Public History at Middle Tennessee State University (MTSU), Professor C. Since 1983, NORD has worked closely with our patient organization members, which now number over 160. Turnipseed’s theory that perceptions of sharecropping, tenant farming, etc, will be altered in ways that are beneficial to the legacy of the American South when the memory of elders are shared. The monument site is envisioned to become a National Park; and thereby “the place” for memory and community sharing in the Mississippi Delta, for educational, economic development, and international tourism purposes.
Senate adopted by unanimous consent a resolution designating February 28, 2011, Rare Disease Day across the U.S.
Thanks to an amazing grassroots campaign, proclamations were obtained in 48 states and similar documents were obtained in the two other states.


King and former honorary chair Dr Maya Angelou who are determined to improve the legacy and social-economic status of Mississippi Delta residents. Other successes this past year were obtaining more than 860 partners and ambassadors who represent patients and their families, patient organizations, government entities, medical or other professional societies, or companies that support the theme of the day. These individuals and organizations contributed to a media and social media blitz where stories, pictures, and videos were shared. The purpose of the organization is to provide educational, lifestyle and cultural programs, build monuments and memorials to honor, celebrate, and recognize the rich and complex history of the Mississippi Delta and to positively impact the quality of life of those living in the Delta, especially the disproportionately poor African American community. Rare Disease Day was also an opportunity to promote the Rare Disease Congressional Caucus that will help focus attention on rare diseases and related needs, such as research. Every story that was shared, press release posted, or pin worn was an opportunity to raise awareness and teach others. We will rely on the mobilizing capacity of our advocates and networks across the country as we truly cannot do it alone. NORD wishes The Many Faces of Moebius Syndrome and it's partners the best of luck on your awareness day; all of us together have an opportunity to unite our voices for the common themes of awareness, education, research, and hope! There is no documented official acknowledgment of the people who tilled the path to America’s greatness.
Somewhere along the way buried in the tear-soaked soils of the American South, the respect and honor for their hard-earned investment was lost. The Cotton Pickers of America Monument, Sharecroppers Interpretive Center, and Cotton Kingdom Trail make the case for building a National Park that offers a small token of appreciation for their tireless uncompensated work. August 8 2015 Official 2015 Moebius Syndrome Awareness Day Page Our 2014-2015 Moebiuis Syndrome Family Holiday HeroesGallery 2 Moebius Syndrome Awareness Day 2015 Video Gallery Smiling with our Hearts upon the World!
Sade Turnipseed is the founder of Khafre, Inc., which has developed the Cotton Pickers of America Monument, the Sharecroppers Interpretive Center, and the Cotton Kingdom Historical Trail, among many other projects.
King Museum and Delta Interpretive Center in Indianola and the former cultural arts director for the Mississippi Action for Community Education--MACE (producers of the MS Delta Blues and Heritage Festival) in Greenville.
Turnipseed is the recipient of several community service and arts advocacy awards, and she was an independent candidate for mayor of the city of Indianola in 2013.
For the past eight years Turnipseed was the host of “Delta Renaissance,” a cultural arts talk show focusing on the arts, education, and political issues in the Mississippi Delta. Most people with Moebius Syndrome are born with complete facial paralysis and can't close their eyes or show facial expressions.
Winter Building Wednesday, June 18: Former Secretary of State Dick Molpus talks about his experience during the Philadelphia civil rights murders of 1964. A "There is no substitute for a loving, supportive family A­ whether that family is biological, or our worldwide Moebius Family. Wednesday, July 2: Filmmaker Wilma Mosley-Clopton will show and discuss her new film, "Did Johnny Come Marching Home?" about people of African descent who fought to free themselves in the Civil War.
Wednesday, September 25: Author Robert Blade will talk about his book, "Tupelo Man," a biography of George McLean. I whole-heartedly agree with the editor that the African American community has proven to the world an uncanny, though unreciprocated, ability to be forgiving of past deeds of injustice, brutality and cruelty at the voting polls, and socially in their community service groups, churches and everyday lives. This point should not be lost on the fact that many of those injustices happened here, in Indianola, Mississippi, to some amazingly strong and resilient individuals like Fannie Lou Hamer and all those who came before her.
But, I can’t help but wonder why the White community isn’t reciprocating and showing the same confidence and trust in racial relations?As Smith indicates, the incumbent received “between 32 and 37% of the votes in the three wards with large Black majorities, despite going up against two black opponents, with strong followings. That’s impressive for a white candidate in a city and region with a history of racially divided politics.” I agree. When we examine the voter polls in the wards that are predominately African American, reflected is a general evenness for all candidates, be they Black or White. The same, however, cannot be said about the two wards that reflect the primarily White community.
I submit to you the following:In wards I, and II, which are the two wards with the largest white population of voters, we see results that reflect an uncompromising resistance to acceptance and change.
With an overall total of 952 votes cast: 732 went to the White candidate and 220 for the two Blacks, combined)…check that! Surely, it cannot be left up to one segment of the community, and not the other.I truly wish Smith had stressed this very critical point, instead of throwing shade on the outcome of a campaign I have yet to wage.
I immediately think about Caleb and all the children whom I've been introduced to through Facebook connections. And for the record, as a citizen, it is my right to be afforded the opportunity to run a fair and unbiased race for mayor, without subtle suggestions that it is a waste of my time, as inferred in his editorial.
But, then again maybe he knows more than I about how citizens of wards I and II will ultimately vote. And to also trust that the leaders of this community will look out for their best interest, politically, economically and socially.
For B of A to be carrying its customers former credits and debits on their books for 16 plus months would be an accounting nightmare, in addition to being out of compliance with several Federal Banking Regulations. Please adjust all records statingA A  any balance due on my past and present Visa accounts to reflect the current credit balance only.A  Also, please update day ph.
After all we live in a community that is 84% African American with a poverty rate that is fast approaching 40% and a public school system that is in deplorable condition, both physically and academically, even under the watchful eye of the government, yet there is no outrage…from either the White side, or the Black side of town. And, I have never believed it was necessary to wait until political season to demonstrate my commitment to the people in my community.
If, by chance I am truly embraced by all members of all wards of this city, I believe people will witness an amazing transformation in a relatively short period of time.
It’s “almost” like magic…I predict things will begin to unfold in a substantive way like the neighborhoods will brighten, crime decreases and the impoverished mindset disappears.
And I am passionate enough to find the tools to help remedy the concerns that create stagnation and distrust. Please remember, we are a people who come from a very long tradition of women who made a way out of no way.My overall ambition and hope for this city is to develop a strategic plan that enables a steady stream of culturally enriched projects that insures economic development for the future growth and safety in this city. So programs that not only engage everyone, but present real opportunities for career enhancements and social activities are critical. King Museum that I visualized and administered) Thanks Carver Randle, Sr for that wonderful quote.
I just wish he read my bio, or googled me, before publishing doubts about my abilities for success.
For the past three years, I have been sitting relatively quietly completing the doctorate in history. Now, I am ready to shake up this town with some bold ideas and ever increasing standards for excellence.
I look forward to being a significant force in this community, by helping the White community too recognize the benefits of building relationships that they can trust in leadership positions. We MUST work together to improve our community—by encouraging EVERYONE to clean on our streets, bayou, parks, etc. We have some huge unmet challenges here in Indianola, and how YOU decide to vote On December 10, 2013, is vital to our success. Also, please be sure to come to this year's event in your overalls, or cotton pickin' clothes. The event is the impetus that gave rise to the “Remigration Home from Chicago to Mississippi” cultural movement organized by music promoters Gus Redmond and Robert Terrell.
Legendary blues and gospel performers Otis Clay, Syl Johnson and Marshal Thompson (founder and lead singer of the ChiLites); along with promoter Gus Redmond will lead the way back home to Mississippi in an effort to support the Cotton Pickers of America Monument and Sharecroppers Interpretive Center project in the historical Cotton Kingdom AKA the Mississippi Delta.
Though the Ball is a “Black Tie Affair” Overalls or other “cotton pickin” attire are encouraged and expected.“I am so pleased that we have partnered with Khafre to host an event of this magnitude,” said Dr. When I was younger, it was no fun to have other kids my age stare at me, or make fun of me (it's really no fun to have that happen to you as an adult either).
The discussions and historical presentations will reflect cutting-edge research, innovative practices and foundational values. Additionally, two noted scholars from Mali’s Cotton Manufacturing and Distribution will present via Skype.MVSU participants in the program include Dr.
A  But do note that when I asked him a specific question about them, he couldn't answer it. A  And he didn't volunteer any details on the account maintenance that he appeared to have access to.A A  A A  This message is not flagged.
John Jones, interim provost.As part of the celebration, Khafre plans to erect a permanent marker on the site in honor of cotton pickers from the Mississippi Delta and in commemoration of the significance of this historical event.
If you haven't already done so please click on the image above and like our Facebook page.
This will be a day of stimulating discussion about historic preservation, leading-edge research, innovative practices, and foundational values. The two-day event concludes with a good-old-fashion “black-tie” (or period-piece costume) “Cotton-Pickers’ Ball,” on October 18, 2013. This year Khafre, Inc in conjunction with Mississippi Valley State University shall organize the USA’s premier interdisciplinary professional meeting on cotton, sharecropping, and its cultural significance.
The deadline is September 6, 2013.Plan to join us in Itta Bena, Mississippi!This is your chance to catch up with old friends and colleagues at The Valley, make important new contacts, discuss the latest in cultural management, stay current with research findings in the historic preservation field, and connect with people who share your core values. A Can you please provide me with your 16 digit credit card number so I can review your account? We invite all community-based experts in any field to become a part of the challenge to address issues of: unemployment, entrepreneurship, illiteracy, poor self-esteem, teen pregnancy, obesity, hopelessness, communication skills, journalism and creative writing, etc. Situated on the bayou waterfront at 103 and 105 Main Street, in historic downtown Indianola, da' House is the place where folks come together in the spirit of unity and love for Mississippi Delta culture, particularly its blues, spirituals and teacakes! On the historical Wall of Fame are signatures by musicians from Ghana, Senegal, Nigeria, Norway, Belguim, China, Japan, France, Cameroon, Cote d'Ivoire and Mississippi, of course.
Beginning Friday, June 1, 2012, at 7 pm, the folks at da' House will be carrying on in grand teacake style, until Sunday June 3rd, around midnight. Celebrating da love that is shared all around the world for da Delta music, art and culture. The 2nd Anniversary Celebration is dedicated to Deltas own David Honeyboy Edward, David Lee Durham, David Thompson and Mississippi Slim. These legendary bluesmen have recently joined the ancestors and will be honored by several local artists and civic leaders: Mickey Rogers, Dr.
These artists and many others will perform on da historical Front Porch stage where the legendary bluesman Sam Chatmons music room door is gracefully hinged. The door, the traditional quilts, the African art, the sweet smell of Soul Food and the Delta cotton provide a rural sophistication and ambiance that is reminicient of the culture and folk art once owned and coveted by grandmamma-nem. Indeed, it is "The home for artful giving, music and songs," as Chicago-based Blues promoter Lynn Orman Weiss described da' House on her most recent visit to the Delta.
And, since da' House is located at the epicenter of the Cotton Kingdom, visitors can expect that authentic soothing, and often times healing, Mississippi Delta experience to be dosed up in abundantly royal fashion, every time they come to da' House! Co-owners Robert Terrell and C.Sade Turnipseed extend a personal and heartfelt invitation for everyone to come on out to da House and help celebrate two-years of Delta art, music and culture. She is also the first African-American female president to lead a Mississippi public university.
Since assuming her position on January 1, 2009, she has launched The Valley Renaissance, the institutions five-year strategic plan, which is pictorially depicted by the African Adinkra symbol of a Sankofa a bird that flies with his head facingbackwards as he advances forward without getting off track. Grammy-winning blues musician David "Honeyboy" Edwards, believed to be the oldest surviving Delta bluesman and whose roots stretched back to blues legend Robert Johnson, died early Monday, Aug. Gordon: The minimum payment is 1% of your balance and any finance charges and applicable fees.
Maya Angelou agreed to graciously lend her name to the Cotton Pickers of America Monument and Sharecroppers Interpretive Center project that is in development, in the Mississippi Delta. C.Sade Turnipseed, Founder of the Monument project and Executive Director of Khafre, Inc, recently made the announcement in a community meeting held at da House of Khafre, in Indianola. Our teams collective effort honors the sacrifices made by millions of Americans and purposefully gives dignity back to the legacy of those who spent their entire lives working, tirelessly to build this country.Dr. Smith Reynolds Professor of American Studies at Wake Forest University, joins a long and growing list of American citizens, who have also expressed the desire to support this project and demonstrate their respect and gratitude to every man, woman and child that picked cotton and were never thanked, nor properly compensated as enslaved workers or as sharecroppers, throughout the American south.The Khafre, Inc team is composed of a governing Board of Directors, a Steering Committee, a Board of Advisors and several political and community leaders that include faculty members from the History Department at Middle Tennessee State University (MTSU). The governing Board selected world-renowned monument designer, Ed Dwight, to develop the thirty-foot statue and sculptural park. It offers educational workshops, seminars and conferences for the entire community that celebrate Mississippis culture and its contributions to world history, including music, cuisine, writing, andotherartistic expressions. Turnipseed is also the host of Delta Renaissance, the number one cultural arts television talk show in the Delta, which airs weekly on WABG-TV, WABG-Radio and Delta Fox-10 television networks.Plans are also underway to incorporate the completed work into the National Parks Services, to insure prosperity and proper maintenance of the Monument. The system will not allow the rate to change until the cycle closes and a new cycle starts. To help the Cotton Pickers of America Monument and Sharecroppers Interpretive Center be included as part of the National Parks System, please sign the online petition. To have name(s) of family members included in the Monument, download a Legacy Brick application; both petition and application are available on the Khafre, Inc. Sato returns to the Front Porch Stage solo, on Sunday March 6th, at 6pm, to kick off the Cultural Competency workshop series. These are on-going cultural appreciation classes presented for the first time in the Delta, by Khafre, Inc (a Mississippi-based non-profit organization).Sato, who was born and raised in Japan, will introduce to American audiences his interpretation of Mississippi Delta Blues and perform on one of his traditional instruments called a Samisen.



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