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There was almost always music happening, but not necessarily with her active participation. Dartmouth had a relationship with the Royal College of London and Lindsay spent a semester there. This is where her life starts to resemble five miles of twisting water slide at an amusement park. Also, while she was still in college, she saw a flyer on which a rock (but rootsy, folky) band was looking for a cellist. While she had made strides in breaking free of classical constraints, there was a lot more to be done.
I'd done classical harmony, but that was about looking at the page -- it was like math -- it wasn't about what I heard.
The switch to standing with the cello had its genesis with a 5-song demo CD she'd made when she was with the band in New Hampshire. Another new development during this period was the coordination between playing and singing. Dev Ray, her manager, was part of the recording and believed in the product and what she was doing. Local concertgoers can hear her sing what's real and true on January 9 at The Outpost in the Burbs in Montclair, NJ. Morgellons Disease Awareness -  Artist and Morgellons sufferer, Ayla, journals her experience with the disease   I'd like to introduce myself, I'm Ayla, a 59year old artist and graphic designer who contracted Morgellons in Jan.
Then it hit me between the eyes like that nasty thing that Javier Bardem used in No Country for Old Men. Then, she started studying cello in the fourth grade, and this would be her primary instrument from then on, but she still took piano lessons for 12 years in total. She then spent another semester at Dartmouth and followed that with a summer in San Francisco as a bike messenger.
She'd given it to one of the production professors at Berklee, then figured they were too busy to do anything with it. This was in addition to playing the New Year's Eve Concert for Peace at the Cathedral of St. This CD has been chosen to be played on all American Airlines flights this year and has been named #2 in Music Connection's TOP 25 New Music Critiques Of 2008. As she sings about the protagonist's sad dance around the kitchen, all your old ghosts will come dancing out as well. It's a metaphor for her own life and the world, a hope to preserve what's decent about humanity. This CD has been chosen to be played on all American Airlines flights this year andA  has been named #2 in Music Connection's TOP 25 New Music Critiques Of 2008. Students wore uniforms and a major and minor was required She majored in cello and minored in choral. While there had been the choral experience in early childhood and at Interlochen during high school, singing was pushed far into the background.
Not by pushing harder, but by getting better contact; by putting the weight of your arm into the bow, into the string, and then it comes naturally. She sings about a girl who tries to protect a lighthouse from storms with just seven stones, She wants to protect something sacred to her. I've been moved to create awareness tools that help educate healthcare practitioners and the public about Morgellons Disease (see Awareness Poster) as well as share what I've learned from this experience.Many of the skin photos in the photo galleries are mine. There was this really cool thing, when I started to sing and I hadn't had any lessons -- I could go up or down -- finally it fell into this groove of what felt real and right and natural. For me, it's like, make a sound in your belly and try to not interfere with it on its way out. Like most, I panicked bought a lot of unnecessary products—some toxic, then managed to pull myself back from the brink of actually hurting myself. Maybe if I learned something about jazz, or how to write chords and songs, it would get me where I needed to go. Always wary of doctors, I tried to stay out of that loop but finally caved when my beloved ones pressured me to seek help.
It turned out that, while all the players were top notch, she was tired of hearing regurgitation of standard pieces, tired of accuracy and excellence but with a lack of heart, genuineness and inspiration. A dermatologist gave me Ivermectin which caused a Herxheimer (die-off) reaction and many of the black particles I'd been seeing with a scope surfaced. I studied jazz, songwriting, cello performance in general, ear training and harmony, all that stuff.
This gave me great relief from the discomfort of what felt like fiberglass embedded in my skin. People were always talking about 'one-four-five' [chord progression] -- I had no idea what they were talking about. There were NO fibers visible in my skin in the previous months before taking the medication.
She has great conformation, exceptional movement and is the happiest dog I have ever owned. Her job as a therapy dog for an 83 yr old woman that had is stroke is one she takes very seriously. Within two days of taking the Ivermectin, I watched in horror as fibers started to rise to the surface of my skin.
We continually have Home Health therapists in daily and she greets each of them then quietly goes to her spot to watch everything that goes on. That plus coming off the tail-end of the pharmaceutical seemed to stop all the symptoms of itching, biting and crawling for approximately the next 4 months. She accompanies me into the chicken coop and is great with the chickens as well as with her cat ( yes her cat that she found in a ditch). The only thing that hadn't cleared up was the hyper-sensitivity to my skin which I thought I was stuck with for the rest of my life, an unfortunate consequence of having Morgellons. Had I not been actively using a microscope to look at my skin during this period, I might have presumed I was well. She passed her Herding Instinct testing at 5 months of age and now working on her Canine Good Citizen certification.
The skin however, doesn't lie and told a whole other story for under it's surface, fibers and particles were clearly still present—multitudes of them. Early on, I'd heard about the testing that Pam Crane of Morgellons Focus On Health (site no longer active) was championing and felt that it was probably the way to go. I have owned and worked with many breeds of dogs and Arya is by far one of the most intelligent, willing and trainable.
My only problem with moving forward was a lack of practitioner, as I felt having the best testing in the world wouldn't mean anything unless someone was up to the task of decoding it's contents into a meaningful protocol, sort of like buying a Cadillac that arrives without the key. I wanted to have a conversation with whatever doctor I was going to see and to hear them speak about their philosophy of healthcare. I would totally recommend PATCHWORK SHEPHERDS and have friends now that have bought puppies from here as well and all of them are as wonderful as Arya. Just try to get a physician on the phone before actually making an appointment and you will find it is an impossible task (especially the high-end specialists). She talked about The Great Plains Labs and why the testing used in Functional Medicine is so important for our community.
A He said, "she is really a love," and described her gentleness and cuddling even from the get-go.
She sounded like she knew how to do her job well and was more than capable, indeed she had impressed me as understanding how to approach the disease in a holistic manner that aligned with my own healthcare philosophies. I believe my first words to her were, "Where do I sign the dotted line?" (While focusonhealth has been taken down, here is another radio show with Nancy speaking with Pam.
A She is very playful with her 'brothers' (two older choc labs), but is extremely responsive to me and is my 'watcher.' A No matter where I am, she is A watching over me.
Let me remind you that I felt fine when I first contacted Nancy, but the emerging fibers showed me I was not. A When we settle in the evening to watch a movie, she will quietly peruse the house, coming back to my side after she has checked everything out. Nancy forewarned me that treatment would kick up all the initial symptoms I had when first ill with Morgellons, such as itching and stinging and that I might experience more fatigue with die-off, possibly even get lesions although I hadn't had many lesions previously. Within a week and a half of beginning this new protocol all the discomforts she mentioned came back. Black particles began coming out from the skin, sand-like crystals were suddenly pushing from the scalp, I was itchy and uncomfortable but this time around it was at a much lower volume then at onset. I have experienced some lesions, in the form of 'papercuts' and blood spots appearing on the skin. A If she could, she would hop up on my lap and sit there, just as she did when she was a fuzz-ball pup!
They were tiny and healed quickly. It took close to 3 months for the symptoms of this detox to disappear, lessening with each week. We added in another few products to my protocol fine-tuning the process. Once all my symptoms had abated I was ready to move on to the next step and do a colon cleanse. I used supplements for one month that gently cleansed the colon (Colon Cleanse by DaVinci Labs??). After that, I began with chelation therapy (Chelex by Xymogen) to remove heavy metals. Nancy has taken me through this journey with constant support through email. The fact that she is able to tell me what I can expect and interpret what I am going through is invaluable.
Having gone through the early treatment phases and emerging symptom-free, makes me feel that I did indeed work through something—hopefully clearing biofilm. So where am I right now and what are the changes that happened over these few months of treatment?My skin cleared of many of black particles, although I still have them (my great lament was that I didn't have a camera back when I first got sick, because my skin was so saturated it was alarming!). It was serendipity that brought you all the way over the mountains on Monday so we could get her!Also a couple of short videos if you're interested. A  I learned something from every man I met or exchanged emails with, and Lou taught me a few words in Spanish.A  Ole! I was just getting to the serious stage ofshopping for a black coated GSD to raise for my own pet and protection dogwhen my nephew T.J. BlackJack (Zoey x Drake 2009) is doing fine, being a good boy that loves to be around us (Right now he is under my desk sleeping at my feet). Actually, I feel spry and 10 years younger than my 55 years of age (at the time this was written), an unexpected and very welcome gift. Still, they are here and I am monitoring them carefully. I am convinced of the value of the Great Plains and Metametrix testing. We had many family gattering and other partys and he is always good around people in the house. It just makes sense that one would want to know the particular weaknesses of their body before embarking on a journey of healing. Getting the labwork done and seeing Nancy are the two smartest things I did throughout my ordeal. Morgellons for me is like that impossible teacher I had in my youth.
But it has also left me savoring hard-won battles and set me straight on how to live more in balance.
Therefore, I try not to rail against the unfairness of the experience, but to look at how much I learned and the ways in which it has stretched me as a human being. Yes it has been a miserable teacher, but by it's hand I have been become an attentive student.I wish you all full recovery. AylaWhile I am not comfortable sharing my protocol as it is specific to my lab results, I will outline what I feel are the bare-bones minimum I'd look to take if I were building a protocol. This would be a good probiotic (I use 3 different kinds throughout the day as was indicated by the results of my testing). FOS, according to Nancy can promote yeast growth so I'd stay away from a probiotic that includes it.
We can take a little walk, maybe get our feet wet, and then lie on a blanket and listen to the waves.


When my kid gets around to it she will send you pictures, sorry Ia€™m not the computer savvy one. I'd include a biofilm buster which breaks down the cellular matrix in the gut that inhibits absorption of necessary nutrients.
I used Interfase Plus and Wobenzym at different times (there are different kinds of Wobenzyme.
Thank you again for Morgan, she is a gem, here is her 9 week picture (the ear did come down).
I've used Carlson's liquid D3 which is lipid based, but recently have switched because of assimilation issues with fats to a dry encapsulated D3 (Prothera brand 5,000 I.Us a day). I do the same thing myself, when the mood strikes.A  And how about this for being an "in tune with women" kinda guy?A  A few days after I had ordered myself 2 new green dresses and several in black to add to my collection from a mail order company named Newport News, he sent an email asking:A  "So, what are you wearing right now? Certain of the B's can become depleted when the body is fighting infection, so a good B-complex seems necessary. Also, Mr.
Common Sense and now Clifford Carnicom have written about NAC and it's benefits along with vitamin C in helping quell the symptoms of our condition. I'd look into this as a close friend from the community began taking both high amounts of Vitamin C and NAC and her symptoms disappeared. She was taking 3,000-5,000 mg of C spread throughout the day and 600 mg 2x's a day of NAC both in the morning and at night. She eventually reduced it to 2,000 mg of vitamin C and 600 mg of NAC because the NAC was giving her headaches. The lesser dosage has been fine for keeping her symptoms of crawling, biting and stinging away.
When she went off the protocol symptoms came back and when she again resumed, they went away. I might mention, that my protocol has always called for 1000 mg of vitamin C, three times a day. While I was not on NAC as a separate supplement, it is in another product I take daily ?(Liver Protect by Xymogen). Nancy has stated that the clients she sees that do this first make themselves much worse and take longer to get better. A  For Christ Sake!!A  How about saving the Taxpayers a buck?A  In addition to that $6 million you've already blown by hovering and covering me, and scheduling a proper Face to Base meeting in your office; at my convenience?
If I am going to do this right, I want to know what my baseline toxic load is so I can measure my progress over time.
The results arrived right after I finished my third week of chelation. My total toxic representation was OFF the chart with high levels of antimony, silver, cadmium, tin and magnesium. I have a host of other metals as well, they just were at lower levels than those mentioned above. Once Nancy reviewed my test results and knew how I was responding to the treatment she modified my protocol to include a liver support, and the addition of 3-4 new products that would also help balance me out. I keep an ongoing visual journal using photos which I share with her so she can see any new developments. During chelation I was more tired, needing to take naps and sleep longer on most days.
I also had some tiny red spots appear on the skin without breaking through.Red spots appear on the skin. Based on what was going, on Nancy pulled back on the chelation so that the process is even slower and gentler until my body can adapt. Dramatic, but no drama.A  Short black skirt, or long black dress?A  Heels or boots?A  Camo, or commando?
Using shea butter and coconut oil mixture as a moisturizer seems to draw fibers and black particles from my skin if left on for 3-4 hours.
I think he will excell, and it will be good for the boys to learn how to deal with him (other than play).
We purchased Pruett (black collar male from Zoey x Doc August '08 litter) and were so thrilled with him that we had to get another!
A few weeks later we welcomed Daphne (hot pink collar female from Anna x Doc August '08 litter) into our lives.
Most are not readily apparent unless you really look for them. Hair The Morgellons has moved into my hair. An acupuncturist, pointed out after looking at my hair photos, that there were multiple "hairs" emerging from one follicle. This is probably why my hair feels thicker even though it has been brittle, weak and falling out. He quickly learns new commands and we are currently practicing, "seek", where we will tell him to "sit and stay" and then we go hide his ball and tell him to "seek" and he finds it. Helicobacter pylori, the bacteria I had with high levels the first time I was tested, is completely gone.
There was a new bacteria that showed up on this round of testing that wasn't on the previous. Nancy feels that this is something that could have morphed, or, could have been present all along, but like peeling an onion back, was hidden under layers. She is adding seven new supplements to my protocol to address adrenal support as sleep has become fitful and I feel somehow too 'plugged in.' Fight or flight mode. I'll be taking a prebiotic to address the new bacteria as well as some new products from Xymogen to open detox pathways. She loves to play in the snow!!She has been doing really well in the house, she is a very quick learner. I'm excited to be moving in a new direction. Every time we do a new test, I see the value of this approach.
I know the "puppy stage" lasts for awhile, but if it continues to go as smoothly as it has been going, it will definitely be a breeze. Randomly throwing supplements at the body without being tested, with the hope that something might work, seems a dangerous practice. Until then, as in the end,there is much more to come.A A A  Once Upon a Time, a little mushroom popped through the moss covered ground of the Southeast Alaska Rainforest. She loves to play fetch and she is really good at it, which is surprising to me for her age. She is such a sweet puppy, she is always trying to make friends with all the animals she meets, most which unfortunately haven't been too fond of her.
Not terrible full-blown itchy, just enough to let me know that I was reinfected or maybe this is an allergic flare-up. Miah is starting to be a little friendly, not much, but like I said, Tymber is a persistant little pup and I believe that eventually they will be pals. This episode might have lasted longer than necessary had I immediately washed all my clothes but I got lazy and didn't wash them for a few days. We will be taking her on her second fishing trip tomorrow, which is always very exciting for us. Was not constantly itchy, but found I'd get itchy at odd intervals, sometimes once a day, sometimes not for days at a time and sometimes for a mere few seconds or so.
I am putting a garden in upstate and often have my hands in the soil (without gloves) and have found that I am fine. She loves playing with any kind of plants and grass- we are hoping she grows out of that stage for our landscape's sake! The only itching I've got is from the occasional mosquito bite (and yes, these are real mosquitoes). Anywho, I just wanted to let you know what a great pup she is and how much Tyler and myself enjoy having her. He is everythingA I could have ever hoped for in a German Shepherd and I am really happy that I got him.
Now, instead of direct application of GSE I brush my teeth twice, once with toothpaste and once with a clean brush that has two drops of GSE on it.
Grant, Attorney at Law, Juneau, AK From Wedding Bells to Tales to Tell: The Affidavit of Eric William Swanson, my former spouse AFFIDAVIT OF SHANNON MARIE MCCORMICK, My Former Best Friend THE AFFIDAVIT OF VALERIE BRITTINA ROSE, My daughter, aged 21 THE BEAGLE BRAYS!
Several people in our training class have commented on his lovely conformation as he trots across the room while playing with the other pups. Note that I have been letting my supplements run out in the last few months because I needed a break from taking approx. I wonder if the return to itchiness had something to do with my letting down my guard and not watching my pH.
He's a great dog!A Anyway, hope all is well in your part of the world and that you are enjoying the holiday season. After the first day of swimming, I noticed small circular red blotches appear under the skin of my calves and thought, uh-oh, here comes trouble.
I FINALLY have a microscope again (it was replaced after more than 7 months at the manufacturer!). Although I had some concerns on how Gracie would react, from the first walk that we did on the way home from Patchwork, she has been wonderful. Already they play together, with Gracie laying down so that she is on Argus' level, letting him crawl all over her.
He already knows his name, figured out how to negotiate the step up the deck, and how to run from me when he picks up something I don't want him to have. I had a few breakthrough 'papercut lesions' on the hands which I don't know what to make of. He follows us around from room to room and always sleeps next to us when we are in the room. I do have a crate and have used it but not very much, mostly I just watch him and when I catch that certain look I just take him out and tell him to go potty.
I stopped the Ormus because I wanted to document F-6, which has gotten quite a buzz in the Morgellons community. I still have 1.5 bottles left and intend to take it in a few months feeling I didn't give it a proper shot. For now, I want to concentrate on doing one therapy at a time, so I can really be sure what each does. When I was in shop he would play under my bench and when he was tired he would sleep under my stool.
October 17, 2011: Began using F-6 and have started a new link documenting that experience including photos showing what is emerging from the skin. I'm going to take it slow with this product as I don't want to have any major herxheimer episodes. Caroline Carter, A healthcare worker that has Morgellons and works with ozone therapy (and who made her Morgellons worse with ozone saunas) said she cannot even be around it anymore.
I have since talked with another person that had strong outbreaks from doing an ozone sauna.
Ozone therapy is typically great for cancer, AIDS and herpes, but for this disease might make us worse. There seems to be improvement to the hair which feels stronger and seems to be falling out less. A lot of "debris" is coming up through the skin, fibers, black particles, granules and many more fibers then ever seen before.
HELL'S BELLS: THE TELLS OF THE ELVES RING LOUD AND CLEAR IDENTITY THEFT, MISINFORMATION, AND THE GETTING THE INFAMOUS RUNAROUND Double Entendre and DoubleSpeak, Innuendos and Intimidation, Coercion v Common Sense, Komply (with a K) v Knowledge = DDIICCKK; Who's Gunna Call it a Draw?
He and Gracie had a good time exploring and finding just about every kind of poop there is out there.


A week and a half later I ate some quinoa with my lunch and two hours later had 3 oatmeal cookies (oatmeal, walnuts, carob chips, baking soda, vanilla). Everyone that meets her is in awe of not only her beauty and structure, but even more so of her super sweet and willing disposition.A  I cannot say enough about her.
This forage into complex carbs was unusual for me.While eating the cookies I started to itch. She is very gentle, smart, intelligent, super athletic, and just wants to please and love everyone.A  She loves to crawl into our laps and pretend she is a tiny lap dog. By the third cookie, I was having full-blown symptoms of itching, stinging and biting sensations (no crawling, thank God!).
The fact that it came on with such force and was related to food, makes me think that Morgellons counts among it's causes a hyper-allergic reaction to food. In this case, I don't really know what specific ingredient triggered the reaction.By eliminating carbs again, symptoms quieted down.
A His big brother Jackson and he are the best of buds, they have really bonded into something special! A Also, wea€™d like to thank you for letting us come out and see him when he was a puppy, and for giving us little updates on how he was doing when he was just a lila€™ guy.A  (10lbs when we picked him up to take him home seems little compared to the size he is now! I am noticing flare-ups of the arthritis in my foot which had so improved at the beginning of my treatment (but I kill my feet dancing one night a week, so that could play into this). After working for a vet for more then 10 years my husband had to really talk me into getting a GSD.
The ones I can visually see without a scope are bigger then I've had before but there is no increase in the amount I generally see with my scope in the skin. Will keep you posted of new developments.I've noticed that when it's very hot (93-97 degrees) and my skin is exposed to the air, I have more sensations on my arms. It's not unusual to feel a single pin prick sensation on my left upper arm, often I'll feel the same type of prick mirrored in the same spot on right arm sometime later, as if they were somehow linked.The other day on my bike I felt as if I hot poker were being pressed momentarily to my arm.
When I looked down, there were three distinct tract marks in that spot, about a half, to an inch long that hadn't been there before. She has gone though a basic and advanced off leash obediance class and this comming year brings more fun with tracking and agility classes signed up.
Since having Morgellons, it feels like the skin is no longer a reliable friend but is capable of erratic changes suddenly.
We are now thinking of getting her a little brother and look forward to coming out to visit and meet more parents.
They took about 5 days to disappear.?September 27, 2012 • Live blood microscopyJust posted a new link with photos of my recent session with Rick Panson, a microbiologist and healthy body coach who did a live blood and dried blood microscopy and gave me additional guidance for my health. He is adapting quickly to his new home on Orcas Island, WA A and after 3 days already knows his new name. It's a bird's eye view into the system, giving a fuller, deeper understanding of what's going on  then just looking at lab results—although lab tests have their place! In the next two weeks I get more testing done so will post those results when in. There were many problems with the blood.
We have had him for two days now and he has already learned his name, learned how to come when called, walks great on a leash, has learned the command "gentle" for when he takes things with his mouth, is completely potty trained and sleeps all night long in his crate with no problems.
We are in a seasonal shift and my fingers have had a few tiny papercut lesions since the change began.Started the protocol Oct.
Beginning with one pill a day of capyrilic acid with one pill olive leaf extract and 1 tsp. We have never seen such a loving, well behaved, intelligent puppy before and we feel so lucky that he is now a part of our family.
The L-glutamine is supposed to strengthen the gut lining and prevent leaky gut syndrome caused by the yeast die-off.
Will stay on this for a few days and slowly double the dosage, then determine where to go from there. 16, 2012 Went back to Rick Panson for another live blood analysis and posted the photos under my last blood microscopy.
John and I were so pleased to see the safety measures that you take prior to letting anyone be near or handle any of the puppies.
Because of your loving care for your dogs we now have two of the greatest puppies that anyone could ever ask for in life! I am grateful for the time that we were able to spend with the puppies getting to know each and every one of them. This is encouraging for all of you who wonder how long it will take to knock back candida and even if our protocols are working. You are wonderful about keeping everyone informed through your website just as you did while we were waiting to be able to take the Sebastian and Kasia home. We were also very impressed that you were so willing to let us come visit and you even encouraged us to do so. We thoroughly appreciate that you allowed us to be a part of the puppies lives even before they were in their new home. Through your attentive behavior to each and every one of your puppies we new the silly things they did, what they liked to play with all the way down to their little itchy spot that they liked to have scratched.
Rick recommended Candex and Nancy told me she loved the product except now they are adding corn to Candex (and it's unknown if it's GMO corn), so she is no longer recommending it. Because of all your love and attention we have two beautiful, healthy puppies that we will get to love for years to come.A A Thank you so much for our beautiful puppies! Adrenal system had a number of markers indicating a lot of stress to the system, very low levels of vitamins C and B's, four different pathogenic bacteria showed up—Helicobacter Pylori was high, Clostridia, E. A  I got hopeful when I found your pages, with your dog Penny, who reminded me so much of our Isis, who was a beautiful, athletic,and loving black and red blanket pattern longcoat.
You DID say on your page that your goal was to find the right dog for people, right down to the color. Kreb cycle needs support. Heavy metals hair test—all toxic metals were down except arsenic which went up with cadmium.
Lead which was extremely high on my first test showed a considerable decrease as well as silver but lots more chelation ahead.
The way you described the parents of different litters, and later the pups themselves, was exactly right.A  Patiently, you discussed all the little characteristics of each pup in a way that just about made up for our never being able to actually see the pups in person or hold them in our arms.
It's been 2 years since I started using supplements to pull the metals out and I think it will take a couple more years of work. The process is slow but steady which is a good thing because I think if the body released too much metal into the system at once there would be negative impact on the health. Pashi learned every trick all of my other dogs know in one 10 minute session at age 11 weeks, and never forgot them.A  She and Itta (9 weeks) both sit at the door automatically now, better than any of our other dogs who have been working on it for ages. Nancy pointed out that lead and cadmium are antagonistic to calcium absorption and bone health, so seeing this rise in cadmium and knowing I still have too high levels of lead makes me think that I might have to give up the painting at some point or switch mediums rather than compromise bone health. The heavy metals test also measures "essential and other elements," (minerals) It seems as a consequence of pulling heavy metals out, the minerals have been compromised. Nancy suggested this organism is a pleomorph moving from bacteria to fungus according to favorable conditions in the body.
This is the third time it's changed. Feb 3, 2013 Just an acknowledgment that I just passed my 3rd anniversary since getting sick with Morgellons. The only time I really have symptoms is when I really mess up on diet (itchiness will start) or when ?very overheated and sweating from physical exertion like dancing, where it sometimes feels like needle pinpricks are sticking my skin from the INSIDE out, accompanied by itchiness. Thieves is a great oil for preventing flu or when one is coming down with illness, but I am unclear if it can damage beneficial bacterias. Stopped taking thieves after a few weeks but do still take lemon and added in lemongrass and grapefruit to my daily capsule.
Itchiness did not return. September 22, 2013 Decided to go on Stephen Buhners herbal protocol for Lyme disease (crafted from his excellent book, Healing Lyme).
Although I tested negative for Lyme and feel fine, I don't trust the traditional testing one gets with their regular MD, and even though I don't think I'm dealing with Lyme, I can't discount the fact that so many Morgellons sufferers also have Borrelia and other co-infections that might be related to our disease which seem to improve with Lyme treatment. Also, his protocol addresses other issues I feel are pertinent to my health (even before Morgellons).
Certainly, I see over time that my immune system is weak, and my gut reaction now to coasting is that it could be an eventual time bomb. I'm taking Cats Claw, Sarsaparilla root (Jamaican—which I grind in my coffee grinder), Eleuthero (Siberian Ginseng), Astragalus, Japanese Knotweed and Andrographis. To his formula I've added in Ashwagandha and Sweet Cinnamon (from Sri Lanka) for the brain, as well as nettles (excellent herb for trace minerals and general support of system) and Pau D'arco (fungal).
I take a quarter level teaspoon of each herb (which is roughly the equivalent of one 00 capsule) added to some water and drink it down.
Surprisingly, I did not feel exhausted, although the protocol was pretty intense and caused a lot of flushing through the digestive system.
This is not a new symptom and usually happens in the first few weeks of starting any new protocol. As these breakouts have always been so minor and short-lived? (an occasional papercut lesion or what looks like a pin prick), I paid them little mind. In this case, the skin continued to break open for the duration of treatment and I had some long "scratch" marks come up as well. It seemed like the last papercut I got was deeper and for the first time I started to worry that perhaps I was giving myself a lesion problem that I might not be able to turn off.
This little spot has bothered me on occasion on and off throughout the years of my Morgellons experience, but during the Buhner protocol, it itched almost constantly. On the plus side, I could tell there was a lot of detoxification going on and all of those bitter herbs were really helpful for quelling sugar cravings. I believe I will revisit this protocol modified in the future, but for now, am taking a rest from it.
Note that when I ceased treatment, the papercut and pinprick lesions stopped, although I recently had a three-inch long "scratch" appear on my leg weeks after stopping his treatment some weeks back. This was a surprise, since problems usually only show up on my hands and 3 inches is rather a statement!For the first time, the scratch resembled images I've seen for Bartonella. There is much about it that I think is helpful, and I encourage people to study these herbs and supplements carefully, and decide for themselves if they want to incorporate them.
This is a very difficult protocol and for any who have detoxification pathway issues, this could impact their health negatively. The release of toxins in a system that cannot remove them properly can be deadly, so it is important to not rush carelessly forward with something this strong. I did feel like the protocol helped me on many levels, but I could not tolerate the heart issues with pressure on the chest, burning, and breathing difficulties. The creator of the protocol feels that Bartonella is at the core of the Morgellons infection, and Bartonella likes to set up shop in the endothelial tissue of the heart. Thinking this was just a severe Herxheimer reaction, I went back on the protocol but was unable to advance more than one drop of each tincture before heart and breathing issues returned with a vengeance. This time, the heart issues did not abate immediately, and it's been some weeks now in which they often come back on a low level.
His original protocol (which he posted on Jenna's blog and which is now removed) did not use MSM, or Silver Sol or various other supplements. It also did not include baking soda, which is not inherently a problem, but at 2 teaspoons a day, might become one.



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