10.12.2013

Number 1 birth defect in us

ThisAbility For Families with Children who have Special Needs - A  Imagine you just gave birth and the Doctor tells you yourA beautiful baby has been diagnosed with a rare medical condition.
Fifteen year old Sachin Kumar sits on his bed with his brother Ravi at his home located in a slum near the site of the deserted Union Carbide factory on November 29, 2009 in Bhopal, India. Cardiac Kids is a volunteer group, established to raise funds for children suffering from congenital heart disease. If you have an event that you would like to make Cardiac Kids the beneficiary of please contact us. If you would like more information about Cardiac Kids, find out how you can become a sponsor, please contact us. New York NYC Crime Bronx Brooklyn Manhattan Queens Education Obituaries Sports Yankees Mets Giants Jets Knicks Nets Rangers Islanders Football Basketball Baseball Hockey Soccer College High School The Score News Crime U.S. Jenna Gassew and Dan Haley were both raised Catholic and dona€™t believe that abortion is an option for them. A Pennsylvania couple is making the most out of the few precious months they have with their unborn baby boy. Jenna Gassew and Dan Haley are expecting their first child on October 12, but doctors dona€™t think little Shane will survive for long after his birth a€” the child was diagnosed with anencephaly. The rare and serious birth defect causes babies to be born without the front parts of their brain. Despite the bleak diagnosis, the devout Catholic couple decided that getting an abortion wasna€™t an option for them.
Shane was diagnosed with anencephaly, a rare condition in which babies are born without parts of their skull or brain.


Every night before going to sleep, the hopeful mom and dad say an a€?Angel of Goda€? prayer. An emergency room doctor warned them that there seemed to be internal bleeding and advised them to see a specialist. Gassew was advised not to search online for pictures of babies with anencephaly, since the photos could be gruesome. Earlier this month, the couple announced that Shane had the hiccups, which suggests that he has the ability to swallow.
Twenty-five years after an explosion causing a mass gas leak, in the Union Carbide factory in Bhopal, killed at least eight thousand people, toxic material from the 'biggest industrial disaster in history' continues to affect Bhopalis.
The remaining parts of the brain may not be covered with bone or skin, according to the CDC. Instead, the parents have tried their best to turn Shanea€™s devastating condition into an opportunity to celebrate his short life, embarking on a bucket list of adventures for the unborn child.
The effects of the disaster on the health of generations to come, both through genetics, transferred from gas victims to their children and through the ongoing severe contamination, caused by the Union Carbide factory, has only started to develop visible forms recently. This number does not include the 1 in every 80 children diagnosed with autism, the older children diagnosed with other conditions, or the children who have tragic accidents that cause permanent disabilities.
Sachin Kumar lives with his parents Suresh and Sangita, his 3 sisters, Jyoti, Arti and Punam and his brother Ravi, in a slum where a number of people affected by either water contamination or poison contamination have been relocated to. An unexpected diagnosisA is very difficult news to hear, and you are likely to experience a range of difficult emotions.
Sachin had been receiving physical therapy treatment and education from the Chingari Trust rehabilitation Centre for victims of the 1984 gas tragedy, for which he has been registered for.


However Sachin's health has turned for the worse and his legs, now covered with open sores, restrict him from travelling to the major road where the Chingari Trust bus can pick him up for daily treatment.
The oldest of four, Sachin spends his days playing board games with his friends and a rare game of cricket, which he sees as the fulfilment of his dreams of becoming a professional cricket player.
I called VCU Genetics and told the Coordinator that I would be going to their ER and requesting a Genetic Consult. The National Institute of Health has also done a case study on him for Medical Journals.A IT HIT ME,If Elijah was ONLY born with Mosaic Trisomy 14 there would not have been any plac for me to get resources. Mosaic Trisomy 14 is very rare, there are only about 29 cases documented in Medical Journals.
All of the resources we became aware of were because of parent's I had met who also had children with DownSyndrome.
He is happy, stubborn, gets into everything, loves music, football, puppies, and chocolate milk.
I have met thousands of people, yes thousands, around the world, through the internet, who also have children with special needs.



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