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Morgellons Disease Awareness -  Artist and Morgellons sufferer, Ayla, journals her experience with the disease   I'd like to introduce myself, I'm Ayla, a 59year old artist and graphic designer who contracted Morgellons in Jan.
For the second year in a row they waited until the last game of the year to let Bearcat fans know their playoff fate. I've been moved to create awareness tools that help educate healthcare practitioners and the public about Morgellons Disease (see Awareness Poster) as well as share what I've learned from this experience.Many of the skin photos in the photo galleries are mine.
Last year, they won their last game but lost out on the playoffs when Granbury snuck in upsetting O.
Wyatt There would be no such drama this year as Aledo rode the hot hand of junior guard Dawson Gates. Like most, I panicked bought a lot of unnecessary products—some toxic, then managed to pull myself back from the brink of actually hurting myself. After beginning the season 4-0, they hit some hard times the second half of district with five of seven games on the road. Always wary of doctors, I tried to stay out of that loop but finally caved when my beloved ones pressured me to seek help.
Aledo had lost four straight and were 1-5 in the second half of district.The Bearcats reached back and did what they needed to turn back a hot South Hills team.
A dermatologist gave me Ivermectin which caused a Herxheimer (die-off) reaction and many of the black particles I'd been seeing with a scope surfaced. It was gut check time for the Bearcats and they fulfilled the promise they showed earlier in the year in tough District 7-4A.
This gave me great relief from the discomfort of what felt like fiberglass embedded in my skin. Carl Williams scored 11 and Luke Bishop was also in double figures with ten points.The Bearcats will face District 8-4A Champion (24-3) Everman Bulldogs Tuesday February 18 at Brewer High School. Everman is currently ranked # 14 in Class 4A.It will be a repeat performance for the Bearcats in the playoffs under Coach Steve Smith. There were NO fibers visible in my skin in the previous months before taking the medication.
Within two days of taking the Ivermectin, I watched in horror as fibers started to rise to the surface of my skin. This year, Aledo is in the driver’s seat and can control their own playoff fate with just one more victory over surging South Hills. Granbury has been eliminated at 5-8 with a 47-45 loss to South Hills last night.
That plus coming off the tail-end of the pharmaceutical seemed to stop all the symptoms of itching, biting and crawling for approximately the next 4 months. The victory for the Scorpions was their third in the last four games and has propelled them into the do-or-die final showdown with Aledo on Tuesday night. Aledo got off to another slow start against Arlington Heights. The only thing that hadn't cleared up was the hyper-sensitivity to my skin which I thought I was stuck with for the rest of my life, an unfortunate consequence of having Morgellons. Had I not been actively using a microscope to look at my skin during this period, I might have presumed I was well. The Bearcats could only manage 19 points by halftime and were down 27-19 at the end of the first half. The Bearcats have been a second half team all season and Friday’s Senior Night home finale was no different.
The skin however, doesn't lie and told a whole other story for under it's surface, fibers and particles were clearly still present—multitudes of them. Early on, I'd heard about the testing that Pam Crane of Morgellons Focus On Health (site no longer active) was championing and felt that it was probably the way to go. My only problem with moving forward was a lack of practitioner, as I felt having the best testing in the world wouldn't mean anything unless someone was up to the task of decoding it's contents into a meaningful protocol, sort of like buying a Cadillac that arrives without the key. I wanted to have a conversation with whatever doctor I was going to see and to hear them speak about their philosophy of healthcare. Arlington Heights pulled away in the fourth quarter to spoil Aledo’s Senior Night with a 52-43 victory. The game was delayed one day due to bad weather Friday night. It was the final home game for Aledo seniors Josh Bell, Sean Church, Chandler Dean, Matt Dunn, Alex Stockdale, and Carl Williams. Leading Bearcats vs.
Just try to get a physician on the phone before actually making an appointment and you will find it is an impossible task (especially the high-end specialists).
She talked about The Great Plains Labs and why the testing used in Functional Medicine is so important for our community.
Southwest (8-5) and Arlington Heights (8-5) are currently tied for second place in the district.
She sounded like she knew how to do her job well and was more than capable, indeed she had impressed me as understanding how to approach the disease in a holistic manner that aligned with my own healthcare philosophies. I believe my first words to her were, "Where do I sign the dotted line?" (While focusonhealth has been taken down, here is another radio show with Nancy speaking with Pam.
The two teams could still tie.For Aledo (6-7), it all comes down to the final game against South Hills (6-7).
Unfortunately for the Bearcats, these are two teams going in opposite  directions in the second half of district play. Since Aledo beat South Hills at home 56-44 on January 17, the Bearcats are 1-5 while South Hills is 4-2. The Bearcats will be playing their fifth road game out of seven in the second half of district.
Let me remind you that I felt fine when I first contacted Nancy, but the emerging fibers showed me I was not. Nancy forewarned me that treatment would kick up all the initial symptoms I had when first ill with Morgellons, such as itching and stinging and that I might experience more fatigue with die-off, possibly even get lesions although I hadn't had many lesions previously. Within a week and a half of beginning this new protocol all the discomforts she mentioned came back. Black particles began coming out from the skin, sand-like crystals were suddenly pushing from the scalp, I was itchy and uncomfortable but this time around it was at a much lower volume then at onset. I have experienced some lesions, in the form of 'papercuts' and blood spots appearing on the skin.
They were tiny and healed quickly. It took close to 3 months for the symptoms of this detox to disappear, lessening with each week. With Williams in the lineup for that game, we would most likely be talking about the Bearcats already clinching a playoff spot. It is what it is and what it is isn’t that bad at all. We added in another few products to my protocol fine-tuning the process. Once all my symptoms had abated I was ready to move on to the next step and do a colon cleanse. I used supplements for one month that gently cleansed the colon (Colon Cleanse by DaVinci Labs??). If you recall last year, the Bearcats had to win their final game on Senior Night to have a chance at the playoffs.
After that, I began with chelation therapy (Chelex by Xymogen) to remove heavy metals. Nancy has taken me through this journey with constant support through email. The fact that she is able to tell me what I can expect and interpret what I am going through is invaluable.
Nick Losos will miss the remainder of the season with a knee injury. The Bearcats are already going through a rough stretch on the schedule playing their third straight road game and four of the last five away from home.
Having gone through the early treatment phases and emerging symptom-free, makes me feel that I did indeed work through something—hopefully clearing biofilm. So where am I right now and what are the changes that happened over these few months of treatment?My skin cleared of many of black particles, although I still have them (my great lament was that I didn't have a camera back when I first got sick, because my skin was so saturated it was alarming!).
On top of the schedule, they had to play undefeated district leader Trimble Tech. This will be the last trip for Aledo to the historic Billingsley Field House in Fort Worth as a member of District 7-4A.
Unfortunately, the Bearcats did not leave on a winning note as the Bulldogs defeated Aledo 64-54. The Bearcats stayed with the quick and athletic Bulldogs in a fast paced first quarter. Carl Williams tipped in the Dunn miss. Moments later, Matt Bishop snaked through the lane and scored on a nice drive through the lane. Actually, I feel spry and 10 years younger than my 55 years of age (at the time this was written), an unexpected and very welcome gift. The Bulldogs scored five more consecutive points giving then an 18-0 run to end the second quarter. The Bearcats have a few games where there have been some offensive lapses, but nothing compared to Wednesday night at Billingsley Field House. Still, they are here and I am monitoring them carefully. I am convinced of the value of the Great Plains and Metametrix testing. It just makes sense that one would want to know the particular weaknesses of their body before embarking on a journey of healing.
Spencer Franklin is a space eater in the lane and an intimidating presence as a shot blocker in the middle.One word this Bearcat team just does not have in their vocabulary is “quit”. Aledo fought back in the second half and solved the relentless full court pressure by the Bulldogs. Braxton McCoy hit three long range bombs in the third quarter and Matt Dunn added another as Aledo won the third quarter 16-14. Getting the labwork done and seeing Nancy are the two smartest things I did throughout my ordeal. Morgellons for me is like that impossible teacher I had in my youth.
In the fourth, Carl Williams came alive with ten points and Dakota Fisher played excellent basketball on both ends of the court.
But it has also left me savoring hard-won battles and set me straight on how to live more in balance.
In the jumbled District 7-4A playoff race, all that has really happened is Aledo dropped from second to fourth in the district. It is a dubious position to be in because two games remain on the schedule and five teams have a shot of getting the last three playoff spots. Therefore, I try not to rail against the unfairness of the experience, but to look at how much I learned and the ways in which it has stretched me as a human being. Trimble Tech has clinched first place. Aledo (6-6) has another huge game at home Friday night against Arlington Heights (7-5). Yes it has been a miserable teacher, but by it's hand I have been become an attentive student.I wish you all full recovery. AylaWhile I am not comfortable sharing my protocol as it is specific to my lab results, I will outline what I feel are the bare-bones minimum I'd look to take if I were building a protocol. This would be a good probiotic (I use 3 different kinds throughout the day as was indicated by the results of my testing). FOS, according to Nancy can promote yeast growth so I'd stay away from a probiotic that includes it. I'd include a biofilm buster which breaks down the cellular matrix in the gut that inhibits absorption of necessary nutrients. I used Interfase Plus and Wobenzym at different times (there are different kinds of Wobenzyme. Emotions stayed in check but some Granbury fans acted like they just don’t get out that often. It was at times a rough and ugly game held in check somewhat by the officials. Aledo was fighting from behind the entire game but kept clawing back to almost win the game.
After Bishop’s basket, Granbury scored six of the next eight points with a Nick Losos basket sandwiched in between. I've used Carlson's liquid D3 which is lipid based, but recently have switched because of assimilation issues with fats to a dry encapsulated D3 (Prothera brand 5,000 I.Us a day).
Granbury led 13-8 and increased the lead to 15-9 at the end of the first quarter. Aledo started a comeback beginning in the second quarter. The Bearcats went to work on the offensive end with two free throws by Stockdale. Granbury scored on a nice finger roll after the two Stockdale free throws.
Nick Losos scored a basket and Carl Williams got his first basket of the game with 4:29 left to play in the first. Certain of the B's can become depleted when the body is fighting infection, so a good B-complex seems necessary. Also, Mr. Braxton McCoy missed the front end of a one-and- one, but Alex Stockdale got an offensive rebound and scored pulling Aledo within one 21-20. Luke Bishop sank two free throws to give Aledo its first lead of the game 21-20. Common Sense and now Clifford Carnicom have written about NAC and it's benefits along with vitamin C in helping quell the symptoms of our condition. I'd look into this as a close friend from the community began taking both high amounts of Vitamin C and NAC and her symptoms disappeared.


She was taking 3,000-5,000 mg of C spread throughout the day and 600 mg 2x's a day of NAC both in the morning and at night. She eventually reduced it to 2,000 mg of vitamin C and 600 mg of NAC because the NAC was giving her headaches. The lesser dosage has been fine for keeping her symptoms of crawling, biting and stinging away. When she went off the protocol symptoms came back and when she again resumed, they went away.
I might mention, that my protocol has always called for 1000 mg of vitamin C, three times a day.
Granbury was already in the one-and-one and hit both ends to go up 43-36. Aledo went on a 7-0 run to tie the game at 43-43.
While I was not on NAC as a separate supplement, it is in another product I take daily ?(Liver Protect by Xymogen). Braxton McCoy followed with a tremendous drive down the lane scooping in a left handed layup. Nancy has stated that the clients she sees that do this first make themselves much worse and take longer to get better. The good crowd helped the atmosphere for the Bearcats. Granbury scored again to go up by two points.
If I am going to do this right, I want to know what my baseline toxic load is so I can measure my progress over time.
The results arrived right after I finished my third week of chelation. My total toxic representation was OFF the chart with high levels of antimony, silver, cadmium, tin and magnesium. I have a host of other metals as well, they just were at lower levels than those mentioned above. The bad news is there are a lot of teams now who can strip Aledo of a playoff spot. Whoever designed the schedule for the second half of district was a mean person. Once Nancy reviewed my test results and knew how I was responding to the treatment she modified my protocol to include a liver support, and the addition of 3-4 new products that would also help balance me out. The Bearcats have to play five road games in the second half and will play their third road game in a row Wednesday night t Billingsley Field House. Aledo has lost five District 7-4A games by a total of 19 points.
I keep an ongoing visual journal using photos which I share with her so she can see any new developments. During chelation I was more tired, needing to take naps and sleep longer on most days. I also had some tiny red spots appear on the skin without breaking through.Red spots appear on the skin. Aledo lost that game by six points without the services of their top scorer and rebounder Carl Williams. The Bearcats have a tough schedule the rest of the way. Based on what was going, on Nancy pulled back on the chelation so that the process is even slower and gentler until my body can adapt. They return home on Friday to play Arlington Heights who defeated Aledo 57-53 in the first half. The final game is against South Hills who have shown some improvement in the second half of the season.
Using shea butter and coconut oil mixture as a moisturizer seems to draw fibers and black particles from my skin if left on for 3-4 hours. Aledo defeated South Hills 56-44 in the first meeting at home. Here are the remaining games for teams either 6-5 or 5-6 in district.
Most are not readily apparent unless you really look for them. Hair The Morgellons has moved into my hair. An acupuncturist, pointed out after looking at my hair photos, that there were multiple "hairs" emerging from one follicle.
They play at Granbury on Friday and stay on the road for a Tuesday night showdown with district leading Trimble Tech (10-0) Tuesday at Billingsley Field House. District 7-4A is like a soap opera. This is probably why my hair feels thicker even though it has been brittle, weak and falling out.
All the teams are so evenly matched the games are close making predictions almost impossible. The loss puts Granbury at 4-6 in district.The game Friday at Granbury is the biggest game of the season for Aledo’s playoff hopes. Helicobacter pylori, the bacteria I had with high levels the first time I was tested, is completely gone. It would clinch a playoff spot for Aledo if the Bearcats are tied with Granbury at the end of the season. Arlington Heights is at 5-4 in district. There was a new bacteria that showed up on this round of testing that wasn't on the previous. Nancy feels that this is something that could have morphed, or, could have been present all along, but like peeling an onion back, was hidden under layers. It was the largest margin of victory so far in district play and the best defensive performance limiting the Cougars to 28 points. Three Bearcats were in double figures scoring led by senior Matthew Dunn with 15 points.
She is adding seven new supplements to my protocol to address adrenal support as sleep has become fitful and I feel somehow too 'plugged in.' Fight or flight mode.
I'll be taking a prebiotic to address the new bacteria as well as some new products from Xymogen to open detox pathways. Point guard Luke Bishop had his best game since coming back from football with 10 points. There are no easy wins in District 7-4A. I'm excited to be moving in a new direction. Every time we do a new test, I see the value of this approach. Even though the Cougars are dragging the bottom of the district, they have played some teams tough this season. Western Hills only lost to Granbury by three and played much better in the first game against Aledo when the Bearcats won 54-50. Friday night, the Bearcats made sure there would be no late game drama outscoring the Cougars 28-15 in the first half. Randomly throwing supplements at the body without being tested, with the hope that something might work, seems a dangerous practice. Al the other teams in district have at least an outside chance at the playoffs. Aledo is currently in second place and control their own destiny at 6-3.
The Bearcats are 1-2 on the road this season in district play. This is a huge week for the Bearcats playing two teams on the road who are still in the thick of the playoff hunt. Not terrible full-blown itchy, just enough to let me know that I was reinfected or maybe this is an allergic flare-up.
This episode might have lasted longer than necessary had I immediately washed all my clothes but I got lazy and didn't wash them for a few days. Aledo would own the tie-breaker over both Southwest and Granbury with two game sweeps of both teams. Arlington Heights was in the state tournament last year and are playing strong again with a 5-4 record and tied with Southwest for third place in district.
Was not constantly itchy, but found I'd get itchy at odd intervals, sometimes once a day, sometimes not for days at a time and sometimes for a mere few seconds or so. I am putting a garden in upstate and often have my hands in the soil (without gloves) and have found that I am fine. The only itching I've got is from the occasional mosquito bite (and yes, these are real mosquitoes). Last year Arlington Heights, third place in district, made it to the state tournament. Despite losing three senior starters, Aledo had reason for optimism entering the 2014 season. All-District players Travis Gough, Alex Riner, and Kyle Gromann all graduated off a team that tied for a playoff spot but then lost out when Granbury upset second place O.D.
Taylor Johnson also led the team in rebounds, steals, and assists. Coach Smith still had some solid players returning from varsity but replacing Johnson left an unexpected big hole to fill.
A high school team does not usually lose their star player before his senior year. Coach Smith already knew he would be without the services of point guard Luke Bishop until football was over. Little did he know Bishop would quarterback the Bearcat football team all the way to the Class 4A State Championship. The Bearcat basketball team also had another setback when senior Alex Stockdale decided to play football during his senior year. It was a heartwarming story about a player who never played football in his life deciding to suit up during his senior year. With Travis Gough and Matthew Ogden gone to graduation, Aledo was already a little “short” in the post position. Stockdale is a physical player who has no problem guarding taller opponents using his strength and creating position on taller players with his wide body. Bishop and Stockdale missed the first 13 games of the season including the first two district games. Now, instead of direct application of GSE I brush my teeth twice, once with toothpaste and once with a clean brush that has two drops of GSE on it.
It takes players a few games to transfer from a football mentality to a basketball regiment. Despite all the adversity, the Bearcats finished the first half of District 7-4A in second place with a 5-2 record.
It was an amazing accomplishment considering all the obstacles. The key player for Aledo during their renaissance this season has been high flying senior Carl Williams.
He leads the team averaging 15 points per game while shooting 64% from the floor and leading the team with a 78.9 free throw percentage. Aledo had to play the first game of the second half of district without their star player. The Bearcats easily defeated the Chaparrals in the first half of district 73-63 with Williams pouring in 31 points. Every game counts in the tough district race. Coach Smith has found a way to make lemonade out of lemons his entire tenure as the Bearcat head basketball coach. Note that I have been letting my supplements run out in the last few months because I needed a break from taking approx. Alex Stockdale is getting his basketball legs back and has averaged 4.7 rebounds per game in six district contests.
I wonder if the return to itchiness had something to do with my letting down my guard and not watching my pH.
Luke Bishop leads the team with four assists per game in district play. Catch the Bearcats at home this Friday at Bearcat Gym against Western Hills. After the first day of swimming, I noticed small circular red blotches appear under the skin of my calves and thought, uh-oh, here comes trouble. Worth, TX—The Aledo Bearcats went on the road and lost their second close district game in a row 57-53 against the Arlington Heights Yellow Jackets. The loss comes on the heels of a heart breaking loss to Trimble Tech 48-46. Aledo started out the season 4-0 and still is in great position for a playoff spot in District 7-4A especially if they can get back to their winning ways against South Hills at home on Friday night. A win would put the Bearcats in a commanding position for the playoffs with a 5-2 record during the first half of district play. Aledo took a 23-33 lead into halftime before being outscored 19-13 in the third quarter. I FINALLY have a microscope again (it was replaced after more than 7 months at the manufacturer!). Aledo’s first basket came on a three-pointer by Matthew Dunn with 4:30 left to play in the first quarter. He made one of two free throws sending Alex Stockdale to the bench with his third foul. Nick Losos came in and crated some excitement for the crowd with a blocked shot and steal.
I had a few breakthrough 'papercut lesions' on the hands which I don't know what to make of. To make matters worse, a horrible charging call on Carl Williams with 5:36 to play waived off a basket for Aledo.
I stopped the Ormus because I wanted to document F-6, which has gotten quite a buzz in the Morgellons community.
I still have 1.5 bottles left and intend to take it in a few months feeling I didn't give it a proper shot. For now, I want to concentrate on doing one therapy at a time, so I can really be sure what each does.


October 17, 2011: Began using F-6 and have started a new link documenting that experience including photos showing what is emerging from the skin. I'm going to take it slow with this product as I don't want to have any major herxheimer episodes.
The Bearcats came up with the ball after a mad scramble and a tie ball with the possession going to the Bearcats. Besides being down by two points, the other problem for the Bearcats was the clock. Caroline Carter, A healthcare worker that has Morgellons and works with ozone therapy (and who made her Morgellons worse with ozone saunas) said she cannot even be around it anymore. I have since talked with another person that had strong outbreaks from doing an ozone sauna. Ozone therapy is typically great for cancer, AIDS and herpes, but for this disease might make us worse. The clock only resets to seconds, not tenths of seconds. In the pandemonium over the clock, fans and some players from Trimble Tech drifted over and would not leave the Aledo bench area. There seems to be improvement to the hair which feels stronger and seems to be falling out less.
Aledo scored seconds later putting the Bearcats up by three.Bearcats Complete Improbable Fourth Quarter Comeback to Defeat Granbury 41-37Behind by six with under three minutes to play, Aledo goes on 9-0 runBig game vs. A lot of "debris" is coming up through the skin, fibers, black particles, granules and many more fibers then ever seen before. Nick Losos kept Aledo in the game with six first quarter points off the bench. Alex Stockdale did the heavy lifting in the third quarter with five points as Aledo’s defense shut down the Pirates allowing only six points.
The basket and free throw not only cut Granbury’s lead to one, the foul was on Granbury’s big man Mitchell may sending him to the bench after fouling out.Aledo made a defensive stop and Coach Smith was able to call a time out retaining possession for Aledo before the referee called a jump ball. A week and a half later I ate some quinoa with my lunch and two hours later had 3 oatmeal cookies (oatmeal, walnuts, carob chips, baking soda, vanilla). Matt Dunn put the game on ice hitting one more free throw to give Aledo a 41-37 win.It was a huge win for Aledo to keep them undefeated this season at 4-0. This forage into complex carbs was unusual for me.While eating the cookies I started to itch. The Bearcats play undefeated Trimble Tech at home Friday night for sole possession of first place in District 7-4A.
By the third cookie, I was having full-blown symptoms of itching, stinging and biting sensations (no crawling, thank God!).
Arlington Heights is also a factor in district play at (3-1) and still have Aledo and Trimble Tech in the first half schedule. Aledo still has Heights, Trimble Tech, and South hills in the first half of District 7-4A. The fact that it came on with such force and was related to food, makes me think that Morgellons counts among it's causes a hyper-allergic reaction to food. In this case, I don't really know what specific ingredient triggered the reaction.By eliminating carbs again, symptoms quieted down. I am noticing flare-ups of the arthritis in my foot which had so improved at the beginning of my treatment (but I kill my feet dancing one night a week, so that could play into this).
The ones I can visually see without a scope are bigger then I've had before but there is no increase in the amount I generally see with my scope in the skin. Will keep you posted of new developments.I've noticed that when it's very hot (93-97 degrees) and my skin is exposed to the air, I have more sensations on my arms.
Trimble Tech Cedar Park- Game 1 Bishop Amat- Game 2 Monterey Tech- Game 3 Joshua- Game 4 Burleson Centennial- Game 5 Everman- Game 6 Crowley- Game 7 Burleson- Game 8 Granbury- Game 9 Cleburne- Game 10 Byron Nelson Scrimmage Tanner Heppel # 3 Sr. It's not unusual to feel a single pin prick sensation on my left upper arm, often I'll feel the same type of prick mirrored in the same spot on right arm sometime later, as if they were somehow linked.The other day on my bike I felt as if I hot poker were being pressed momentarily to my arm.
When I looked down, there were three distinct tract marks in that spot, about a half, to an inch long that hadn't been there before.
Since having Morgellons, it feels like the skin is no longer a reliable friend but is capable of erratic changes suddenly. They took about 5 days to disappear.?September 27, 2012 • Live blood microscopyJust posted a new link with photos of my recent session with Rick Panson, a microbiologist and healthy body coach who did a live blood and dried blood microscopy and gave me additional guidance for my health. It's a bird's eye view into the system, giving a fuller, deeper understanding of what's going on  then just looking at lab results—although lab tests have their place! In the next two weeks I get more testing done so will post those results when in. There were many problems with the blood. We are in a seasonal shift and my fingers have had a few tiny papercut lesions since the change began.Started the protocol Oct.
Boswell Playoff Game # 3- Canyon Playoff Game # 4- Wichita Falls Playoff Game # 5 Ennis Playoff Game # 6- Brenham Denton Guyer Scrimmage 2013 Game 1-Highland Park Game 2- Stephenville Game 3- Prepa Tech Game 4- Arlington Heights Game 5- South Hills Game 6- O.D. Beginning with one pill a day of capyrilic acid with one pill olive leaf extract and 1 tsp. Wyatt Game 7- Western Hills Game 8- Southwest Game 9- Granbury Game 10- Trimble Tech Brock Parker # 1 Sr. The L-glutamine is supposed to strengthen the gut lining and prevent leaky gut syndrome caused by the yeast die-off. Will stay on this for a few days and slowly double the dosage, then determine where to go from there.
16, 2012 Went back to Rick Panson for another live blood analysis and posted the photos under my last blood microscopy. This is encouraging for all of you who wonder how long it will take to knock back candida and even if our protocols are working. Rick recommended Candex and Nancy told me she loved the product except now they are adding corn to Candex (and it's unknown if it's GMO corn), so she is no longer recommending it. Adrenal system had a number of markers indicating a lot of stress to the system, very low levels of vitamins C and B's, four different pathogenic bacteria showed up—Helicobacter Pylori was high, Clostridia, E.
Kreb cycle needs support. Heavy metals hair test—all toxic metals were down except arsenic which went up with cadmium. Lead which was extremely high on my first test showed a considerable decrease as well as silver but lots more chelation ahead. It's been 2 years since I started using supplements to pull the metals out and I think it will take a couple more years of work. The process is slow but steady which is a good thing because I think if the body released too much metal into the system at once there would be negative impact on the health. Nancy pointed out that lead and cadmium are antagonistic to calcium absorption and bone health, so seeing this rise in cadmium and knowing I still have too high levels of lead makes me think that I might have to give up the painting at some point or switch mediums rather than compromise bone health. The heavy metals test also measures "essential and other elements," (minerals) It seems as a consequence of pulling heavy metals out, the minerals have been compromised. Nancy suggested this organism is a pleomorph moving from bacteria to fungus according to favorable conditions in the body.
This is the third time it's changed. Feb 3, 2013 Just an acknowledgment that I just passed my 3rd anniversary since getting sick with Morgellons. The only time I really have symptoms is when I really mess up on diet (itchiness will start) or when ?very overheated and sweating from physical exertion like dancing, where it sometimes feels like needle pinpricks are sticking my skin from the INSIDE out, accompanied by itchiness. Thieves is a great oil for preventing flu or when one is coming down with illness, but I am unclear if it can damage beneficial bacterias. Stopped taking thieves after a few weeks but do still take lemon and added in lemongrass and grapefruit to my daily capsule. Itchiness did not return. September 22, 2013 Decided to go on Stephen Buhners herbal protocol for Lyme disease (crafted from his excellent book, Healing Lyme).
Although I tested negative for Lyme and feel fine, I don't trust the traditional testing one gets with their regular MD, and even though I don't think I'm dealing with Lyme, I can't discount the fact that so many Morgellons sufferers also have Borrelia and other co-infections that might be related to our disease which seem to improve with Lyme treatment. Also, his protocol addresses other issues I feel are pertinent to my health (even before Morgellons). Certainly, I see over time that my immune system is weak, and my gut reaction now to coasting is that it could be an eventual time bomb. I'm taking Cats Claw, Sarsaparilla root (Jamaican—which I grind in my coffee grinder), Eleuthero (Siberian Ginseng), Astragalus, Japanese Knotweed and Andrographis. To his formula I've added in Ashwagandha and Sweet Cinnamon (from Sri Lanka) for the brain, as well as nettles (excellent herb for trace minerals and general support of system) and Pau D'arco (fungal).
I take a quarter level teaspoon of each herb (which is roughly the equivalent of one 00 capsule) added to some water and drink it down. Surprisingly, I did not feel exhausted, although the protocol was pretty intense and caused a lot of flushing through the digestive system. This is not a new symptom and usually happens in the first few weeks of starting any new protocol. As these breakouts have always been so minor and short-lived? (an occasional papercut lesion or what looks like a pin prick), I paid them little mind. In this case, the skin continued to break open for the duration of treatment and I had some long "scratch" marks come up as well.
It seemed like the last papercut I got was deeper and for the first time I started to worry that perhaps I was giving myself a lesion problem that I might not be able to turn off. This little spot has bothered me on occasion on and off throughout the years of my Morgellons experience, but during the Buhner protocol, it itched almost constantly.
On the plus side, I could tell there was a lot of detoxification going on and all of those bitter herbs were really helpful for quelling sugar cravings. I believe I will revisit this protocol modified in the future, but for now, am taking a rest from it. Note that when I ceased treatment, the papercut and pinprick lesions stopped, although I recently had a three-inch long "scratch" appear on my leg weeks after stopping his treatment some weeks back. This was a surprise, since problems usually only show up on my hands and 3 inches is rather a statement!For the first time, the scratch resembled images I've seen for Bartonella.
There is much about it that I think is helpful, and I encourage people to study these herbs and supplements carefully, and decide for themselves if they want to incorporate them. This is a very difficult protocol and for any who have detoxification pathway issues, this could impact their health negatively.
The release of toxins in a system that cannot remove them properly can be deadly, so it is important to not rush carelessly forward with something this strong.
I did feel like the protocol helped me on many levels, but I could not tolerate the heart issues with pressure on the chest, burning, and breathing difficulties. The creator of the protocol feels that Bartonella is at the core of the Morgellons infection, and Bartonella likes to set up shop in the endothelial tissue of the heart. Thinking this was just a severe Herxheimer reaction, I went back on the protocol but was unable to advance more than one drop of each tincture before heart and breathing issues returned with a vengeance. This time, the heart issues did not abate immediately, and it's been some weeks now in which they often come back on a low level. His original protocol (which he posted on Jenna's blog and which is now removed) did not use MSM, or Silver Sol or various other supplements.
It also did not include baking soda, which is not inherently a problem, but at 2 teaspoons a day, might become one.



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Comments

  1. body_love, 11.02.2014
    That she is not resisting chair whenever he or she signals probably be the terrible two double century down and in the beginning he may.
  2. 2OO8, 11.02.2014
    Youngster standing if achievable for the.