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18.04.2014
Apparently I’m going to go deaf in my right ear even faster than I was genetically destined to go deaf in that ear.
And they’ve had over a century to find a Miracle Cure for my brand new malady, which was discovered by a French doc named Prosper Meniere back in 1861. I’ve apparently got a knack for coming down with chronic conditions that the medical profession can’t cure. Plus, there’s only a 10% chance that I’ll experience Meniere’s weirdest symptom — the Drop Attack. Roz Warren, “the world’s funniest librarian,” writes for the New York Times, the Funny Times, the Christian Science Monitor, the Jewish Forward and the Huffington Post.
Well maybe you can use the diagnoses to get some sympathy or a perk every once and a while? You sound just like me…although I have this and that condition, none of them are life threatening. In the research paper “Impact of Meniere’s Disease on Quality of Life” by the University of California at San Diego, researchers found that the quality of life of Meniere’s patients, while not actively experiencing vertigo, was comparable to adults with life-threatening illnesses such as cancer and AIDS.
Additionally, in a 2009 study on post-traumatic stress disorder (PTSD) performed by Kirby, S.E. I have a dear friend I met over 20 years ago and before we connected I had never heard of Meniere’s. Patricia, We who have this disease know how truly difficult it is to function on a daily basis and the treatment options are limited and lacking.
Patricia I am SO reassured to hear that life for you with Menieres is good, particularly since the purpose of at least one response to my essay seems to have been to scare me to death and make sure that I never again crack a smile.
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Metabolic disorders in vertigo, tinnitus, and hearing loss on ResearchGate, the professional network for scientists. Gourmandes et bavardes incorrigibles (inutile de crier au cliche, on le sait !) nos blogueuses ont fait le tour des meilleures adresses parisiennes pour s'offrir une pause gourmande a Paris. Pour beaucoup d'entre nous, avec la rentree, la saison des grandes vacances et des lointaines expeditions est terminee. In his last decade, my father definitely needed his hearing aid  (although he continued to thrive as a psychoanalyst).
My ears have been steadily ringing for close to three decades, and they have yet to come up with a Miracle Cure for Tinnitus. While all of these conditions chip away at my quality of life and are deeply annoying, none of them is life-threatening. Other folks who have (or are thought to have had) Meniere’s include Marilyn Monroe, Mamie Eisenhower, Beethoven, Goya, Broadway star Kristin Chenoweth and Charles Darwin.
They seem fine about it most of the time although I think the biggest complaint is the dizziness.
Many sufferers are reduced to bystanders to their own existence, unable to work, drive, attend family gatherings, or simply play with their kids.
They further discovered that during periods of ‘acute vertigo’ their quality of life dropped to a point that Meniere’s sufferers were on par with non-institutionalized Alzheimer’s, Cancer and AIDS patients six days from death.
MENIERE’S is an orphan disease that most people are completely unaware of how debilitating it really can be. The last thing a newly diagnosed person needs to hear about any disease is YOUR FUTURE SUCKS. I’m sure that anybody with a cancer diagnosis would be happy to trade it in for what ails me. BUT, if there’s anyone great at seeing the BIG PICTURE, it’s you, and you only need your inner eye, not ears, for that!


Meniere’s causes dizziness, severe vertigo, tinnitus, sensitivity to light and sounds and other normal everyday activities.
I really appreciate your pointing out that the bleak future she’s predicted for me may not actually come to pass. And the latest one with fullness of ears along with everything else was Atypical Cochlear Menieres about 7 years ago and then again 2 years ago.
On le sait, on peut desormais s'envoler le temps d'un week-end et parvenir a s'evader sans trop s'eloigner. Meniere’s attacks leave their victims so dizzy and unable to walk or balance, with even the slightest movement bringing hours of nausea and vomiting.
Nearly one in eight people with Meniere’s were found to meet the criteria for full PTSD, compared to the general population where just one in sixty has PTSD. I sincetely hope the author will do a follow up article on the real Meniere’s to help us spread awareness together.
Mais on vous rassure, on ne va pas vous parler de La Nouvelle Star aujourd'hui, mais en revanche d'une etoile montante cote destinations convoitees : Berlin la belle !
If that wasn’t enough, most Meniere’s sufferers develop hearing loss and many go completely deaf. Yet, Meniere’s remains relatively unknown worldwide and dramatically underfunded when it comes to crucial research dollars.



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