Morgellons Disease Awareness -  Artist and Morgellons sufferer, Ayla, journals her experience with the disease   I'd like to introduce myself, I'm Ayla, a 59year old artist and graphic designer who contracted Morgellons in Jan.
Dear User, Please use the drop downs below to locate your city by first selecting the country and then the state.
Very appreciate for your professional service & higher standard quality control,very happy to know you. China Good Quality Aluminum Sliding Windows, Aluminum Casement Windows and Aluminum Tilt And Turn Windows International Trade Site. Normal 0 false false false MicrosoftInternetExplorer4 We offer a wide spectrum of Aluminum Gates Sliding Grills. If you still can not find your city in the list, please CLICK HERE to submit a request for inclusion of your city. Some timbers had been saved and these were able to be used as patterns for the new body and to ensure that, as far as possible, dimensions were correct and allowed the whole body to be assembled and allow the existing doorsA  that had survived intact, to fit the new frame. I've been moved to create awareness tools that help educate healthcare practitioners and the public about Morgellons Disease (see Awareness Poster) as well as share what I've learned from this experience.Many of the skin photos in the photo galleries are mine. As well as the doors, various metal panels remained to be used and allowed measurements to be confirmed during the construction. When undertaking work of this nature on an amateur basis, tools required include band saw, jig saw, work bench with circular saw and a router. The latter is not always as useful as it appears since its use requires templates and guides to be made to enable the router to be operated on the many-angled pieces of timber and hand work is often easier and quicker. Like most, I panicked bought a lot of unnecessary products—some toxic, then managed to pull myself back from the brink of actually hurting myself. The degree of finish depends always upon one's own skills, whether using machinery or hand tools. Similarly, the work bench with circular saw is useful for ripping sheets up or cutting straight sections of timber. Always wary of doctors, I tried to stay out of that loop but finally caved when my beloved ones pressured me to seek help. The curves in the "A" and "B" posts prevent the bench being of much use with the shaping of these pieces.Whilst these notes detail the full body reconstruction, normally only selected areas require repair. A dermatologist gave me Ivermectin which caused a Herxheimer (die-off) reaction and many of the black particles I'd been seeing with a scope surfaced. This gave me great relief from the discomfort of what felt like fiberglass embedded in my skin.
Parts for small repairs can be measured against a similar section on the opposite side of the car whilst a full rebuild will require dimensions to be taken from a similalrly bodied car if possible. Be aware, however, that coachbuilding techniques did not usually allow for interchangeable parts and whilst each side of the car is similar, there may be small differences in measurements from one side to the other. There were NO fibers visible in my skin in the previous months before taking the medication. Coachbuilding techniques usually called for two men to build a body each dealing with one side of the car and assisting each other where that was necessary. Both had to work from drawings and it was expected that dimensions would never be more than one quarter of an inch different between sides. Generally, this meant that, for example, if the distance from the A-post to the C-post was 60 inches, it would be this, within the quarter of an inch plus or minus but the doors might be found, within this dimension, to be slightly different in lengths between sides and this has to be taken into account when doing repairs, of course.
Within two days of taking the Ivermectin, I watched in horror as fibers started to rise to the surface of my skin.
Another aspect of making repairs, rather than building a complete body or part of one is that a new section has to be fitted within the already established metal skin - where the skin is panel-pinned to the timber, these pins have to be pulled out and the metal pulled away from the wood enough for the new repair timber to be fitted when the metal is tapped back into position and pinned into place. Splicing in repairs such as this can seem far more difficult than building the complete body from scratch, except that it is much quicker - and in the long run easier - to repair than rebuild.It is recommended that a full-size drawing be made of the parts or, in the case of a full rebuild, the actual body itself.
That plus coming off the tail-end of the pharmaceutical seemed to stop all the symptoms of itching, biting and crawling for approximately the next 4 months. This latter will require a sheet of drawing paper to be cut measuring ten feet six inches by four feet six inches and pinned to a suitable flat area.
The only thing that hadn't cleared up was the hyper-sensitivity to my skin which I thought I was stuck with for the rest of my life, an unfortunate consequence of having Morgellons. Had I not been actively using a microscope to look at my skin during this period, I might have presumed I was well. The skin however, doesn't lie and told a whole other story for under it's surface, fibers and particles were clearly still present—multitudes of them. Early on, I'd heard about the testing that Pam Crane of Morgellons Focus On Health (site no longer active) was championing and felt that it was probably the way to go.
My only problem with moving forward was a lack of practitioner, as I felt having the best testing in the world wouldn't mean anything unless someone was up to the task of decoding it's contents into a meaningful protocol, sort of like buying a Cadillac that arrives without the key. I wanted to have a conversation with whatever doctor I was going to see and to hear them speak about their philosophy of healthcare.
Individual timbers can also be reproduced from these sheets to the actual shape that will fit correctly with all the appropriate angles and shapes. Where existing parts such as doors are available for fitting, the drawing should include the actual measurements of the doors so that they will fit the body on completion.Joints are generally of the halving joint type that gives a solid joint but allows some flexibility in the structure, this being a design requirement.
Just try to get a physician on the phone before actually making an appointment and you will find it is an impossible task (especially the high-end specialists).
The difficulty in making some of the joints is primarily due to the different planes in which the timbers come together, making measurements difficult to work out. She talked about The Great Plains Labs and why the testing used in Functional Medicine is so important for our community.
She sounded like she knew how to do her job well and was more than capable, indeed she had impressed me as understanding how to approach the disease in a holistic manner that aligned with my own healthcare philosophies. The joint then becomes stronger but flexing of the chassis and body will transfer movement from the glued joint to another and may well cause problems in due course. I believe my first words to her were, "Where do I sign the dotted line?" (While focusonhealth has been taken down, here is another radio show with Nancy speaking with Pam.
Time cost money and time to paint the internal wooden parts was an unaceptable delay in time and added cost. Repairs to a body should well include painint exposed timber sections to reduce the influx of water where appropriate.
Let me remind you that I felt fine when I first contacted Nancy, but the emerging fibers showed me I was not. Nancy forewarned me that treatment would kick up all the initial symptoms I had when first ill with Morgellons, such as itching and stinging and that I might experience more fatigue with die-off, possibly even get lesions although I hadn't had many lesions previously. Within a week and a half of beginning this new protocol all the discomforts she mentioned came back. Black particles began coming out from the skin, sand-like crystals were suddenly pushing from the scalp, I was itchy and uncomfortable but this time around it was at a much lower volume then at onset. I have experienced some lesions, in the form of 'papercuts' and blood spots appearing on the skin.
They were tiny and healed quickly. It took close to 3 months for the symptoms of this detox to disappear, lessening with each week.
We added in another few products to my protocol fine-tuning the process. Once all my symptoms had abated I was ready to move on to the next step and do a colon cleanse. The old glues failed over time and also attracted woodworm!The A-post is generally at a 15 degree angle - this is, therefore, the angle for the windscreen and the front door timbers but should be checked since coachbuilding techniques allowed this angle to vary slightly from car to car.This view shows the car, chassis number 100389 at the stage reached in Feburary 2002.
I used supplements for one month that gently cleansed the colon (Colon Cleanse by DaVinci Labs??). After that, I began with chelation therapy (Chelex by Xymogen) to remove heavy metals. Nancy has taken me through this journey with constant support through email. The vertical member of the sill is bolted withcoachbolts to the three brackets which are located close to the A and B-post brackets and just forward of the base of the rear wheelarch timber.
This latter mounting corresponds to the C-post pillar that is attached to the wheelarch itself near the top of the arch.The A and B-posts themselves are reinforced with solid, half round metal brackets bolted to the top of the chassis outrigger brackets and screwed to the inner faces of the A-posts. The B-posts are attached to the chassis brackets just aft of the bend in the chassis so that the front door rear face, being the hinge pilar for the door, is angled to accept this position.
The fact that she is able to tell me what I can expect and interpret what I am going through is invaluable. The front and rear doors' outer skinsA describe a slight curve in the horizontal plane between the A-post to the C-post , the line starting at the radiator shroud and continuing along the bonnet, through the scuttle area and doors to the rear of the boot surround. Having gone through the early treatment phases and emerging symptom-free, makes me feel that I did indeed work through something—hopefully clearing biofilm. So where am I right now and what are the changes that happened over these few months of treatment?My skin cleared of many of black particles, although I still have them (my great lament was that I didn't have a camera back when I first got sick, because my skin was so saturated it was alarming!).
This is also the line of the swage that is picked out by aluminium beading from front to rear.
A curvature is also apparent in the vertical plane most noticably on the B-post where the doors curve inwards at their bottom edges and again at the top to the top rails of the body. The original Crossley parts were made from solid ash and steam bent to shape before trimming to the curve of the rear side of the car. However, it is likely that only a part of the arch may need repair and this can be done using three millimetre bending plywood (or one eigth of an inch), fitted together in layers using a modern epoxy two-pack adhesive. Making the whole arch is as easy as making a section since the metal edge of the body can be used to provide the curve needed to construct a pattern in plywood.
If only a short section of repair is needed, then only that area needs to be reproduced in the jig.
The wheelarch shape should be marked on a sheet of plywood and two pieces cut to this shape.
These pieces are then joined together with blocks of timber about one inch square and three inches wide. Actually, I feel spry and 10 years younger than my 55 years of age (at the time this was written), an unexpected and very welcome gift. On the inner rim of the connecting block, on one of the plywood sheets, an aperture of about one inch square (or larger, depending on the clamps being used) should be cut to allow the top end of the clamp to grip the block. The clamps will hold the bending plywood in place against the shape of the wheelarch whilst the adhesive is curing. About twelve clamps will be required, at least three being of a suitable size to cover the widest part of the arch - sash clamps being the type- the remaining nine can be "G" clamps. Still, they are here and I am monitoring them carefully. I am convinced of the value of the Great Plains and Metametrix testing. This allows the clamping force to cover the whole length of the arch for a solid unit.The bending plywood sheet needs to be cut into three inch wide lengths from a sheet of about eight feet by four feet, each piece being eight feet long.
It just makes sense that one would want to know the particular weaknesses of their body before embarking on a journey of healing.
Each strip is coated with adhesive and placed against the template and held loosely in the clamps until all eight strips are in place when the clamps are tightened.
Getting the labwork done and seeing Nancy are the two smartest things I did throughout my ordeal. Morgellons for me is like that impossible teacher I had in my youth.
Each strip should be level at the front end of the wheelarch template so that the uneven ends will be at the ear where they will be cut to size on completion.These views show the pattern in the shapes of the wheelarch curve withstrips of bending ply for the wheelarch alongside. In front is the first wheelarch removed from the pattern after the adhesive is fully cured.The lower picture shows the bending ply strips on the pattern and clamped with six"G" clamps and three sash clamps. The sash clamps go across the whole pattern structure and provide a solid base for the new arch.
But it has also left me savoring hard-won battles and set me straight on how to live more in balance. Therefore, I try not to rail against the unfairness of the experience, but to look at how much I learned and the ways in which it has stretched me as a human being.


About 24 hours is usually sufficient to modern two-pack adhesives at reasonable temperatures.
Yes it has been a miserable teacher, but by it's hand I have been become an attentive student.I wish you all full recovery. AylaWhile I am not comfortable sharing my protocol as it is specific to my lab results, I will outline what I feel are the bare-bones minimum I'd look to take if I were building a protocol. If the timbers at each end of the wheelarch are in good condition, then these will be a good guide for cutting to length. This would be a good probiotic (I use 3 different kinds throughout the day as was indicated by the results of my testing). Where there is little to provide this guidance, then the full size drawing will assist at this stage.The wheelarch is about three inches wide at its widest point but will need to be shaped to follow the body curvature in the vertical plane - after it has been cut to length as detailed below.
Fixing will depend on the joints on the remaining existing timbers but there may well be metal brackets to reinforce the joints. FOS, according to Nancy can promote yeast growth so I'd stay away from a probiotic that includes it. On the Crossley Motors body, a block of timber joins the rear of the wheelarch to the boot side frame whilst other builders use a metal bracket in a "horseshoe" shape to join these sections.
The front joint, where the wheelarch meets the rear of the sill is usually a butt joint with screws andA metal brackets to secure the joint. I'd include a biofilm buster which breaks down the cellular matrix in the gut that inhibits absorption of necessary nutrients. With the drawing on a level surface, place the rear door on the drawing in line with the sill and B-post and place the new, un-cut wheelarch in place until it follows the line of the rear metal body behind the C-post and then check that the wheelarch follows the curved line of the rear door.
I used Interfase Plus and Wobenzym at different times (there are different kinds of Wobenzyme. When the wheelarch is in line with these points, both the sill and rear ends of the arch can be marked for cutting.
Here, a section can be spliced into place to cpver the bottom twelve inches - or whatever is required - of the post to the sill.
I've used Carlson's liquid D3 which is lipid based, but recently have switched because of assimilation issues with fats to a dry encapsulated D3 (Prothera brand 5,000 I.Us a day). The A-post has the most complicated shape due to the angle of the sills and the curvature of the body.
On the B-post, the angles on the front and rear faces are similar, being wider on the interior side to accommodate the door tapers.
When setting out the complete rebuild of the body, without other references, care must be taken to ensure that the A-posts are at the correct angle for the door front adges - usually 15 degrees - and the line of the lower windscreen base allows space for the steering wheel to be turned without the drivers' knuckles being too close to the windscreen or sill. Certain of the B's can become depleted when the body is fighting infection, so a good B-complex seems necessary. Also, Mr. The side panels are of metal with folded edges that bolt or screw to the top of the main sills and then screw to the scuttle side frames for added support and strength.
Common Sense and now Clifford Carnicom have written about NAC and it's benefits along with vitamin C in helping quell the symptoms of our condition.
The angled base of the tool box section against the front panel of the scuttle should be cut accurately to ensure a strong unit. I'd look into this as a close friend from the community began taking both high amounts of Vitamin C and NAC and her symptoms disappeared.
She was taking 3,000-5,000 mg of C spread throughout the day and 600 mg 2x's a day of NAC both in the morning and at night.
She eventually reduced it to 2,000 mg of vitamin C and 600 mg of NAC because the NAC was giving her headaches.
The lesser dosage has been fine for keeping her symptoms of crawling, biting and stinging away. Internally, the tool boxes are divided by a vertical panel on top of which is a thin panel fitted between the two lids. The bottom of the tool boxes is a sloping panel, the angle being shown by the line of screws on the side panel - this allows the front passengers' feet to reach the toe board. When she went off the protocol symptoms came back and when she again resumed, they went away.
I might mention, that my protocol has always called for 1000 mg of vitamin C, three times a day. Sliding locks will be fitted to the tool box lids once the car is finished and the panels painted matt black.
While I was not on NAC as a separate supplement, it is in another product I take daily ?(Liver Protect by Xymogen). Nancy has stated that the clients she sees that do this first make themselves much worse and take longer to get better. No lights were left with the car when purchased so these are being sought during the rebuilding period.The lower view shows the lock, door window winder and door handle used by Ruskin Motor Bodies for the Regis. It shows the difference in locking systems, the Crossley body having locks fully recessed into the door frame as opposed to being added to the interior face. Similarly, the Crossley body windows operate on the "balanced" principle that requires no winding handle, the Ruskin type being the normal one requiring a handle. If I am going to do this right, I want to know what my baseline toxic load is so I can measure my progress over time. The results arrived right after I finished my third week of chelation. My total toxic representation was OFF the chart with high levels of antimony, silver, cadmium, tin and magnesium.
The doors and rear metal panels covering the sides of the boot and wheelarches were available so that the timber frame could be made to enable these items to fit into it. This is the reverse of normal bodywork procedures where the frame is first made and the door frames made to fit then all the body is "skinned" - that is, the metal cladding is fitted to the frames of body and doors. I have a host of other metals as well, they just were at lower levels than those mentioned above. During the construction of the body, therefore, it was necessary to consider the position of the rear panels so that the distance from the scuttle to rear was maintained with doors fitting the new frame with appropriate clearance around the door frame and main framework. The rear window frame was made early in the rebuild but was fitted only at a later stage since it was found that the roof panel that covered the rear of the roof (turret) and the side to the windscreen top rail did not reach as far as the windscreen top rail. Once Nancy reviewed my test results and knew how I was responding to the treatment she modified my protocol to include a liver support, and the addition of 3-4 new products that would also help balance me out.
It was realised that the rear window frame was supposed to lean forward at a ten degree angle - it had been fitted vertically - and the C-posts were supposed to lean forward at a four degree angle, not vertically. These small changes made a great difference to the body as did the height of the rear window frame. I keep an ongoing visual journal using photos which I share with her so she can see any new developments. During chelation I was more tired, needing to take naps and sleep longer on most days. I also had some tiny red spots appear on the skin without breaking through.Red spots appear on the skin. Modern straps may be of different thickness from the original part and the slots must be adjusted to accommodate them.
On the front doors, the check strap is anchored on the B-post and slides through the slot in the rear vertical frame of the door with a "stop" on the end of the strap within the door to prevent it from coming free. Based on what was going, on Nancy pulled back on the chelation so that the process is even slower and gentler until my body can adapt. This strap is secured underneath the reinforcing bracket that holds the B-post in place on the chassis outrigger bracket.On the rear doors, the strap is not anchored at either end.
Within the door, the strap has a "stop" or rod through the end to prevent it coming free and slides in the rear frame slop of the door but also slides in the slot of the C-post, again with a "stop" on the end. Using shea butter and coconut oil mixture as a moisturizer seems to draw fibers and black particles from my skin if left on for 3-4 hours. Inside the area behind the C-post is a metal plate between the strap and the outer panel to stop the metal "stop" fro damaging the outer skin should it twist at any stage of its operation.On all the doors, the hinges also provide a backup system since the hinges have a "return" on them that prevents the hinge from opening more than the ninety degree position. This arrangement on the hinges will not, of course, hold the doors that open if the vehicles is in motion since the speed of opening would pull the hinge flap out of its screw fastenings.
Ensure that the doors are positively closed when driving!The boot lid is also held in the open position by long leather straps fastened to the boot lid edges and the top frame of the boot aperture. Wiring connection details are basically the same as the later CJR3 unit as shown in the wiring list on this site. Most are not readily apparent unless you really look for them. Hair The Morgellons has moved into my hair. The CVC unit is mounted o a wooden frame on the tool box front and not directly to the tool box. An acupuncturist, pointed out after looking at my hair photos, that there were multiple "hairs" emerging from one follicle. Areas of aluminium that are missing will have to be replaced with new aluminium and joined to the older panels.A All the wings will be fitted and the bonnet and running boards made by a professional company beforeA the wings and running boards and bonnet are removed for painting. This is probably why my hair feels thicker even though it has been brittle, weak and falling out. Gallery 1 Gallery 2 Gallery 3 Gallery 4 Gallery 5 Chassis List Handbook Instruction Manual Specification.
Helicobacter pylori, the bacteria I had with high levels the first time I was tested, is completely gone. There was a new bacteria that showed up on this round of testing that wasn't on the previous. Nancy feels that this is something that could have morphed, or, could have been present all along, but like peeling an onion back, was hidden under layers. The degree of finish depends always upon one's own skills, whether using machinery or hand tools. She is adding seven new supplements to my protocol to address adrenal support as sleep has become fitful and I feel somehow too 'plugged in.' Fight or flight mode. I'll be taking a prebiotic to address the new bacteria as well as some new products from Xymogen to open detox pathways.
I'm excited to be moving in a new direction. Every time we do a new test, I see the value of this approach. Randomly throwing supplements at the body without being tested, with the hope that something might work, seems a dangerous practice.
Not terrible full-blown itchy, just enough to let me know that I was reinfected or maybe this is an allergic flare-up. This episode might have lasted longer than necessary had I immediately washed all my clothes but I got lazy and didn't wash them for a few days. Was not constantly itchy, but found I'd get itchy at odd intervals, sometimes once a day, sometimes not for days at a time and sometimes for a mere few seconds or so. I am putting a garden in upstate and often have my hands in the soil (without gloves) and have found that I am fine. The only itching I've got is from the occasional mosquito bite (and yes, these are real mosquitoes).
Now, instead of direct application of GSE I brush my teeth twice, once with toothpaste and once with a clean brush that has two drops of GSE on it.


The front and rear doors' outer skinsA describe a slight curve in the horizontal plane between the A-post to the C-post , the line starting at the radiator shroud and continuing along the bonnet, through the scuttle area and doors to the rear of the boot surround. Note that I have been letting my supplements run out in the last few months because I needed a break from taking approx.
I wonder if the return to itchiness had something to do with my letting down my guard and not watching my pH. After the first day of swimming, I noticed small circular red blotches appear under the skin of my calves and thought, uh-oh, here comes trouble.
I FINALLY have a microscope again (it was replaced after more than 7 months at the manufacturer!).
I had a few breakthrough 'papercut lesions' on the hands which I don't know what to make of. I stopped the Ormus because I wanted to document F-6, which has gotten quite a buzz in the Morgellons community. I still have 1.5 bottles left and intend to take it in a few months feeling I didn't give it a proper shot. For now, I want to concentrate on doing one therapy at a time, so I can really be sure what each does.
October 17, 2011: Began using F-6 and have started a new link documenting that experience including photos showing what is emerging from the skin. I'm going to take it slow with this product as I don't want to have any major herxheimer episodes. Caroline Carter, A healthcare worker that has Morgellons and works with ozone therapy (and who made her Morgellons worse with ozone saunas) said she cannot even be around it anymore. I have since talked with another person that had strong outbreaks from doing an ozone sauna. Ozone therapy is typically great for cancer, AIDS and herpes, but for this disease might make us worse.
When setting out the complete rebuild of the body, without other references, care must be taken to ensure that the A-posts are at the correct angle for the door front adges - usually 15 degrees - and the line of the lower windscreen base allows space for the steering wheel to be turned without the drivers' knuckles being too close to the windscreen or sill. There seems to be improvement to the hair which feels stronger and seems to be falling out less. A lot of "debris" is coming up through the skin, fibers, black particles, granules and many more fibers then ever seen before. The bottom of the tool boxes is a sloping panel, the angle being shown by the line of screws on the side panel - this allows the front passengers' feet to reach the toe board. A week and a half later I ate some quinoa with my lunch and two hours later had 3 oatmeal cookies (oatmeal, walnuts, carob chips, baking soda, vanilla). This forage into complex carbs was unusual for me.While eating the cookies I started to itch.
By the third cookie, I was having full-blown symptoms of itching, stinging and biting sensations (no crawling, thank God!).
The fact that it came on with such force and was related to food, makes me think that Morgellons counts among it's causes a hyper-allergic reaction to food. In this case, I don't really know what specific ingredient triggered the reaction.By eliminating carbs again, symptoms quieted down. I am noticing flare-ups of the arthritis in my foot which had so improved at the beginning of my treatment (but I kill my feet dancing one night a week, so that could play into this). The ones I can visually see without a scope are bigger then I've had before but there is no increase in the amount I generally see with my scope in the skin.
Will keep you posted of new developments.I've noticed that when it's very hot (93-97 degrees) and my skin is exposed to the air, I have more sensations on my arms. It's not unusual to feel a single pin prick sensation on my left upper arm, often I'll feel the same type of prick mirrored in the same spot on right arm sometime later, as if they were somehow linked.The other day on my bike I felt as if I hot poker were being pressed momentarily to my arm. When I looked down, there were three distinct tract marks in that spot, about a half, to an inch long that hadn't been there before.
Since having Morgellons, it feels like the skin is no longer a reliable friend but is capable of erratic changes suddenly.
They took about 5 days to disappear.?September 27, 2012 • Live blood microscopyJust posted a new link with photos of my recent session with Rick Panson, a microbiologist and healthy body coach who did a live blood and dried blood microscopy and gave me additional guidance for my health. It's a bird's eye view into the system, giving a fuller, deeper understanding of what's going on  then just looking at lab results—although lab tests have their place! In the next two weeks I get more testing done so will post those results when in. There were many problems with the blood.
Once the paintwork is complete, everything will have to be re-assembled.A At least, the end is in sight!Copyright 2009 Crossley Regis.
We are in a seasonal shift and my fingers have had a few tiny papercut lesions since the change began.Started the protocol Oct.
Beginning with one pill a day of capyrilic acid with one pill olive leaf extract and 1 tsp.
The L-glutamine is supposed to strengthen the gut lining and prevent leaky gut syndrome caused by the yeast die-off. Will stay on this for a few days and slowly double the dosage, then determine where to go from there. 16, 2012 Went back to Rick Panson for another live blood analysis and posted the photos under my last blood microscopy.
This is encouraging for all of you who wonder how long it will take to knock back candida and even if our protocols are working.
Rick recommended Candex and Nancy told me she loved the product except now they are adding corn to Candex (and it's unknown if it's GMO corn), so she is no longer recommending it.
Adrenal system had a number of markers indicating a lot of stress to the system, very low levels of vitamins C and B's, four different pathogenic bacteria showed up—Helicobacter Pylori was high, Clostridia, E.
Kreb cycle needs support. Heavy metals hair test—all toxic metals were down except arsenic which went up with cadmium.
Lead which was extremely high on my first test showed a considerable decrease as well as silver but lots more chelation ahead.
It's been 2 years since I started using supplements to pull the metals out and I think it will take a couple more years of work. The process is slow but steady which is a good thing because I think if the body released too much metal into the system at once there would be negative impact on the health. Nancy pointed out that lead and cadmium are antagonistic to calcium absorption and bone health, so seeing this rise in cadmium and knowing I still have too high levels of lead makes me think that I might have to give up the painting at some point or switch mediums rather than compromise bone health. The heavy metals test also measures "essential and other elements," (minerals) It seems as a consequence of pulling heavy metals out, the minerals have been compromised.
Nancy suggested this organism is a pleomorph moving from bacteria to fungus according to favorable conditions in the body.
This is the third time it's changed. Feb 3, 2013 Just an acknowledgment that I just passed my 3rd anniversary since getting sick with Morgellons. The only time I really have symptoms is when I really mess up on diet (itchiness will start) or when ?very overheated and sweating from physical exertion like dancing, where it sometimes feels like needle pinpricks are sticking my skin from the INSIDE out, accompanied by itchiness.
Thieves is a great oil for preventing flu or when one is coming down with illness, but I am unclear if it can damage beneficial bacterias. Stopped taking thieves after a few weeks but do still take lemon and added in lemongrass and grapefruit to my daily capsule. Itchiness did not return. September 22, 2013 Decided to go on Stephen Buhners herbal protocol for Lyme disease (crafted from his excellent book, Healing Lyme). Although I tested negative for Lyme and feel fine, I don't trust the traditional testing one gets with their regular MD, and even though I don't think I'm dealing with Lyme, I can't discount the fact that so many Morgellons sufferers also have Borrelia and other co-infections that might be related to our disease which seem to improve with Lyme treatment.
Also, his protocol addresses other issues I feel are pertinent to my health (even before Morgellons). Certainly, I see over time that my immune system is weak, and my gut reaction now to coasting is that it could be an eventual time bomb.
I'm taking Cats Claw, Sarsaparilla root (Jamaican—which I grind in my coffee grinder), Eleuthero (Siberian Ginseng), Astragalus, Japanese Knotweed and Andrographis. To his formula I've added in Ashwagandha and Sweet Cinnamon (from Sri Lanka) for the brain, as well as nettles (excellent herb for trace minerals and general support of system) and Pau D'arco (fungal).
I take a quarter level teaspoon of each herb (which is roughly the equivalent of one 00 capsule) added to some water and drink it down. Surprisingly, I did not feel exhausted, although the protocol was pretty intense and caused a lot of flushing through the digestive system.
This is not a new symptom and usually happens in the first few weeks of starting any new protocol.
As these breakouts have always been so minor and short-lived? (an occasional papercut lesion or what looks like a pin prick), I paid them little mind. In this case, the skin continued to break open for the duration of treatment and I had some long "scratch" marks come up as well. It seemed like the last papercut I got was deeper and for the first time I started to worry that perhaps I was giving myself a lesion problem that I might not be able to turn off.
This little spot has bothered me on occasion on and off throughout the years of my Morgellons experience, but during the Buhner protocol, it itched almost constantly. On the plus side, I could tell there was a lot of detoxification going on and all of those bitter herbs were really helpful for quelling sugar cravings. I believe I will revisit this protocol modified in the future, but for now, am taking a rest from it.
Note that when I ceased treatment, the papercut and pinprick lesions stopped, although I recently had a three-inch long "scratch" appear on my leg weeks after stopping his treatment some weeks back.
This was a surprise, since problems usually only show up on my hands and 3 inches is rather a statement!For the first time, the scratch resembled images I've seen for Bartonella. There is much about it that I think is helpful, and I encourage people to study these herbs and supplements carefully, and decide for themselves if they want to incorporate them. This is a very difficult protocol and for any who have detoxification pathway issues, this could impact their health negatively. The release of toxins in a system that cannot remove them properly can be deadly, so it is important to not rush carelessly forward with something this strong.
I did feel like the protocol helped me on many levels, but I could not tolerate the heart issues with pressure on the chest, burning, and breathing difficulties.
The creator of the protocol feels that Bartonella is at the core of the Morgellons infection, and Bartonella likes to set up shop in the endothelial tissue of the heart. Thinking this was just a severe Herxheimer reaction, I went back on the protocol but was unable to advance more than one drop of each tincture before heart and breathing issues returned with a vengeance.
This time, the heart issues did not abate immediately, and it's been some weeks now in which they often come back on a low level. His original protocol (which he posted on Jenna's blog and which is now removed) did not use MSM, or Silver Sol or various other supplements.
It also did not include baking soda, which is not inherently a problem, but at 2 teaspoons a day, might become one.



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