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The adenoid is a single clump of tissue in the back of the nose (nasopharynx). They are located on the back wall of the throat (pharynx) about two centimetres above the uvula (the little teardrop shaped piece of tissue that hangs down in the middle of the soft palate). If an enlarged or infected adenoid keeps bothering your child and are not controlled by medication, the doctor may recommend surgically removing them with an adenoidectomy. There are a number of well-established valid reasons for removal – some patients will have more the one reason.
Tonsillitis is an inflammation of the tonsils in the mouth and will often cause a sore throat and fever – the adenoids are often infected at the same time. Symptoms may also include a sore throat, difficulty with eating and drinking and loss of appetite, bad breath, fever, swollen neck glands, and generally feeling irritable and unwell. During episodes of tonsillitis the tonsils will become swollen and red often with debris on the surface. Most people get tonsillitis at some time – it is common for children to get repeated episodes of tonsillitis with associated tonsil thickening and scarring.
In many cases of tonsillitis, the pain caused by the inflamed tonsils warrants the prescription of topical anaesthetics for temporary relief – Viscous lignocaine (xylocaine) solutions are often prescribed for this purpose. One may consider a burst of steroids to help decrease the swelling and inflammation thereby easing pain and allowing the patient to drink liquids sooner. When tonsillitis is caused by a virus, the length of illness depends on which virus is involved. Usually, a complete recovery is made within one week, however some rare infections may last for up to two weeks. Adenotonsillectomy is the most common children’s ENT operation. The tonsils and adenoid are removed from their sockets and in most cases can be removed with very little bleeding. Surgery, no matter how common or simple the procedure, can be cause for concern for both children and parents.
A white or yellow membrane will form on the throat where the tonsils were removed – this is normal healing tissue and will clear after 5 to 10 days.
If you are unable to return to Sydney for follow-up, it may be for your follow-up to be undertaken by your local doctor – we would need to confirm these arrangements before you leave hospital.
If you have questions about children’s tonsils and adenoid removal contact your local doctor, who will arrange for you to see an ear nose throat specialist.
I took the boys for a walk yesterday morning even though it was a little (ok, a lot) chilly. For the most part, I do a pretty good job of keeping a positive outlook for my life and circumstances. Bean has a number of food intolerances that result in a bad stomach ache even with very limited exposure.
These teeny-tiny feet belong to a little boy, my sweet Bean, who has been putting them to good use. At around 11 months, around the same time he started crawling, Bean started pulling up to a stand.
He hung around at that stage until about three weeks ago when he started getting in to a standing position by himself in the middle of the room and would stay up for a good 30-60 seconds. I had grandiose plans for a post today about my parenting philosophy, specifically my approach to parenting a child with special needs. He's also cutting four (Yes, four!) teeth and it doesn't help that every time he gets sick, his reflux flares. He didn't have a fever yet this morning and seemed relatively happy, so we went ahead with his developmental therapy session.
I have mentioned several times that Bean was recently diagnosed with Williams Syndrome (WS) but I haven't done a great job of defining WS. After learning that Bean has WS, a lot of my friends and family have asked what they can do to help. I have a wonderful, supportive husband that has worked his butt off for the past two years so that I could stay home with our kids for now. As a result, he and I - because of nursing - have been on a hypoallergenic diet since he was three weeks old. Husband found a recipe in the New York Times some time ago and has been making different variations every week so I adapted his recipe for me. He also started taking more supported steps around the house and even started walking short distances with just one hand held.

When we were getting ready for bed time bath, Bean pulled up to a stand on the ottoman in his brother's room.
He has learned to take turns better, play nicely with others, and to sit at circle time among countless other things. I was worried that he would be a monster during therapy but he just chilled on the couch and watched videos and played games on my phone. Our family is participating in the Pittsburgh Walk for Williams on May 21 at 10am in North Park.
We are still the same people we were before we got the diagnosis and WS is not a taboo topic. While we were walking, I was thinking about all we have been through in the past year and a half. This was fine when I was talking about his digestive problems or lack of sleep (I feel sorry for myself over the lack or sleep and yummy foods!) or some other relatively minor symptom. My kids and I have been sick, they don't sleep well, they don't eat well and Bean's delays and sensory issues get me down at times. The link is an article about a young family facing a very challenging time with grace and optimism.
We have the best support network of family and friends and an outstanding team of doctors and therapists. But I appreciate her sharing the Bond family's story and reminding me that we all face challenges, heartbreak and heartache.
He would take a few steps here and there if we were holding both hands and giving lots of support and guidance with our legs. We continued to talk with his physical therapist about ways to get him on his feet more and get him more support. Bean and I get some one-on-one time and I get a few things done with just one of the dudes in tow. But in short, it is a sporadic (spontaneous, random, not inherited) deletion of about 20 genes on the 7th chromosome. Please note that contributions are used to enhance the lives of individuals and families affected by WS and not to an individual family or person. We love and cherish our relationships with our friends and family and value the time we spend with you and we want you to embrace Bean, and everything about him, just as we have. I started thinking about all of the responses I've had from friends, family, perfect strangers - anyone really - about Bean's circumstances. When the time is right, I have the education (thanks, mom!) and experience to find a reasonably paying and satisfying job. He would also let go of  whatever object he was holding on to and arms would go up for 10-30 seconds as if to say, "Look at me, ma.
After two lightly supported steps, I let go fully expecting him to drop to his knees and crawl towards me. It helps that he understands how to blow his nose and he's able to communicate what hurts and what I can do to help him. Individuals affected by WS are blessed with a unique set of strengths as well as several challenges. I get a variety of responses from people and I am surprised at times by my (mostly unspoken) reactions because for the most part, I would probably be saying the same things if the shoe were on the other foot.
I was always stressed about whether or not Bean would grow out of his issues or if they were here to stay.
I'll also list the ingredient brands that I used because other than the almond butter, they are allergy friendly.
In addition to his therapy, we are scheduled to take him to a physiatrist to determine whether he needs ankle foot orthotics (AFOs - aka ankle braces) to give him better support.
We are also blessed weekly with icky toddler germs that often ends in at least one of us getting sick.

Then, he was up all night because he couldn't breathe and he couldn't seem to figure out how to breathe through his mouth. He was even in a good enough mood to bully his brother out of his lounge spot on the chair and pose for a few pictures, imitating Bean - only much happier. WS symptoms include heart conditions, kidney abnormalities, difficulties absorbing calcium, developmental delays, characteristic facial features, small stature, and intellectual disabilities.
However, we appreciate your empathy when he (or Baby J, for that matter) is having a meltdown or just needs some rest and also when we are dealing with countless dr appointments and therapy sessions. I truly appreciate everyone's care and concern and thought it might be interesting, to read what I am feeling about these things.
As a parent, you do anything and everything possible - no matter how extreme – to get or keep your child happy and healthy. I did go through a mourning period - and it will probably continue for some time in some shape or form.
I don't remember the last time that I slept for more than two consecutive hours and I don't remember the last time I was able to eat at a favorite restaurant or enjoy a glass of wine.
You can substitute any of the ingredients for any of your favorite cereals, granolas, nuts, seeds, nut butters, seed butters (sun nut butter is typically allergy friendly), fruits in similar proportions. It has taken a long time and a lot of therapy to get to this point, it may still be a little while before he is truly walking, he will continue to need PT and may need a little more structural support than some other kids but he WILL walk on his own.
After acquiring speech, it becomes a relative strength and people with WS are incredibly friendly and empathetic.
He surprised himself, too but he was very proud of himself after receiving a tremendous round of applause.
He will do it in his own time and in his own way and his baby steps will become big strides. To add even more perspective, the mother that posted this story has a one-month old son with WS. I am so proud of his effort and achievement and excited for him to reach this next stage of independence.
I am simply a mother with a child that has some pretty intense needs and I do everything in my power to meet those needs. And I am grateful for all of the support from family and friends as we work through life's little quirks.
And told me that he will be late getting home from work tonight That means a delayed break for me. I still have occasional moments when I want cry, scream and yell about how unfair life is for me and more importantly, him.
Very important for us because preservatives often contain soy which is still a definite "no" for Bean. I also was able to find a ginormous jar of Maranatha Almond Butter at Costco for $5.85 - one jar that is a third of the size costs $9 at Whole Foods.
It is a blessing to have this sweet boy in my life and to have the opportunity to parent him. I have accepted Bean's diagnosis and everything that goes along with it and I am moving forward with every treatment, therapy, and tool available to make his life as happy, independent and fulfilling as possible. I have accepted that fact that Bean's life is going to be different than what I had hoped for him. Still, just like any other child, he will (continue to) be happy, loved, appreciated, embraced and supported to be everything he wants to be and do everything he wants to do. No one's life course is guaranteed and I just learned this lesson a little early in my parenting experience.

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