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Morgellons Disease Awareness -  Artist and Morgellons sufferer, Ayla, journals her experience with the disease   I'd like to introduce myself, I'm Ayla, a 59year old artist and graphic designer who contracted Morgellons in Jan. Genital Herpes is a sexually transmitted disease caused by two strains of herpes simplex virus. If an individual has had a genital herpes outbreak before, discuss options for preventing further outbreaks with a doctor. Genital Herpes is a sexually transmitted disease (STD) caused by the herpes simplex viruses type 1 (HSV-1) or type 2 (HSV-2). If a person has an STD, he or she can infect others by means of oral, vaginal or anal intercourse, or in the case of some STDs, by means of skin-to-skin contact. There are three major drugs commonly used to treat genital herpes symptoms: acyclovir (Zovirax) , famciclovir (Famvir) , and valacyclovir (Valtrex). This remedy works faster than any of the mainstream treatments, and with fewer side effects. Treatment with antiviral drugs can help people who are bothered by genital herpes outbreaks stay symptom-free longer. On the other hand, herpes can be treated and managed with medication, home care, and simple precautions to prevent outbreaks and transmission. Research shows that honey, one of the best natural wound healers and infection ghters, can treat herpes outbreaks with fewer side effects. Although there is no cure for genital herpes, an infected person can take steps to preventing spreading the disease and can continue to have a normal sex life. While there is no cure for herpes simplex virus (HSV) infections, there are various treatment options available.
As time goes on, the outbreaks happen less often, heal faster, and don’t hurt as much. Even when the symptoms are more severe, they are simple to treat and can usually be very well controlled. Since untreated herpes suffers will have more genital herpes outbreaks and more severe outbreaks, there is increased risks of not only spreading herpes to a partner, but also to other parts of the body. The first question is easier:  there is a very good chance you were shedding virus during the sexual activities you describe, since shedding often starts several hours (up to a day or two) before symptoms start. The bottom line (pun intended) is that maybe your partner didn't cheat and is totally innocent and has been simply victimized by the virus.
Another thing to consider is that your friend may have caught the herpes simplex virus from YOU! The risk of becoming infected with the herpes simplex virus is relatively high when dating within the general population. Do You Have Questions or Want to Share Your Thoughts About Dating Someone With Herpes?Share Them Below! People who have found themselves dating or in a relationship with someone who has been diagnosed with genital herpes often have a lot of questions. Herpes is extremely common: as many as 1 out of every 5 people in the United States is infected with the virus that causes ano-genital herpes, and only about 20 of those who are infected know they have it. During this time, you can have more severe outbreaks of genital herpes, as well as complications. This page gives you information about genital herpes, what you can do if you are worried that you might have the infection and advice on how to protect yourself. This happens even if the person with the virus doesn’t have symptoms or signs of infection. Some pregnant women who have had genital herpes outbreaks may want to have their babies delivered by cesarean section.
If left untreated, HIV can lead to pneumonia, herpes, fungal infections (thrush) , and death.
I plan to confront her again on the Valtrex prescription but I wanted to check with experts and see if this medicine is used commonly for anything else other than Herpes.
It does not cure shingles, cold sores, or genital herpes, but it does help the sores to heal more quickly, and it relieves pain and discomfort.
You can take the pills for two to five days as soon as you notice sores or when you feel an outbreak coming on. When a researcher treated patients with Acyclovir for one herpes outbreak and honey for another, overall healing time with honey was 43 percent better than with Acyclovir for sores on the lips and 59 percent better for genital sores. Episodes of genital herpes can be treated with oral antiviral medications, including valacyclovir (Valtrex) , famciclovir (Famvir) and acyclovir (Zovirax). In its natural state, propolis is resinous material collected from the buds of poplar trees, although it is often harvested from beehives.
Kissing, using the same eating utensils, sharing personal items (such as a razor) , and receiving oral sex from someone who has HSV-1 can cause you to contract the virus.
Antiviral medication is commonly prescribed for patients having a first episode of genital herpes, but they can be used for recurrent episodes as well.
However, there are a number of things that can go wrong if you let herpes run rampant in your body untreated.
Ocular herpes most often happens when an oral HSV-1 infection becomes active and travels a nerve pathway to an eye (typically, only one eye is affected). Because you cannot predict when a herpes outbreak will occur, it can become an inconvenience. If there is an active herpes outbreak or if the virus is present in the blood when labor begins, a cesarean delivery will be planned to protect the baby from being exposed to the herpes virus. Herpes What Causes Genital Herpes Outbreaks Type 2 Herpes Can You Donate Blood If You Have Herpes Over The Counter Herpes Cream What Is Herpes Simplex 1 Herpes Simplex Type 2 meta itempropcaption contentWhat Happens If Genital Herpes Is Left Untreated. If left untreated, chlamydia can lead to continued discomfort, pelvic inflammatory disease (PID) in women, scarring of the fallopian tubes in women, female infertility, and the risk of ectopic pregnancy.
En France, 10 millions de personnes sont touchees par le virus de l’herpes a des degres et des localisations diverses. Once the mother has been infected, subsequent pregnancies should be unaffected as she will have made enough antibodies to keep the virus in check. I've been moved to create awareness tools that help educate healthcare practitioners and the public about Morgellons Disease (see Awareness Poster) as well as share what I've learned from this experience.Many of the skin photos in the photo galleries are mine. If you or your partner has an untreated infection, you can pass it back and forth to each other. Sometimes the symptoms are so mild that people may not notice them or recognize them as a sign of herpes. Your doctor may have suggested this medication for conditions other than those listed in these drug information articles.
Many people choose to treat herpes simplex because treatment can relieve symptoms and shorten an outbreak.
The way that you receive treatment for genital herpes will depend on whether you have the infection for the first time, or whether you are experiencing a recurrent infection. Avoid performing oral sex when you have active herpes lesions on or near your mouth and avoid passive oral sex with someone who has active oral or genital herpes lesions. A number of alternative (also called complementary) therapies can help you deal with outbreaks of genital herpes. Herpes can spread to the genitals from a cold sore if hand washing and other hygiene precautions are not taken. Oral or IV medication does exist for HSV but is not recommended for people with a normal immune system. There are, however, many natural herpes treatment options that have gained popularity over the past few decades. Around 80 of people infected with genital herpes don’t know they have the virus because they have very mild symptoms or none at all. There are risks to untreated herpes so it is best to consult a health care professional and start treatment as soon as possible. HZ can also cause nerve damage and lead to twitching, dizziness, or loss of taste and hearing. Sebuah penelitian lain menemukan bahwa mengobati HSV dapat mengakibatkan penurunan yang bermakna pada viral load HIV. Many of the city hotels appeal to business people, and travelers looking for a different side to Puerto Rico.
However, HSV-1 can also cause genital herpes if the virus is transmitted from sores around the mouth of one person to the genital area of another during oral sex.
Stop taking Valtrex and call your doctor right away if you have any signs of a serious side effect that can harm red blood cells, such as: fever, easy bruising or bleeding, red spots on the skin (not related to herpes or chickenpox) , bloody diarrhea, vomiting, pale or yellowed skin, weakness, fainting, or urinating less than usual or not at all.
However, people with genital herpes can shed the virus from the genital area and infect others even without a blister being present. Before undertaking any course of treatment, the reader must seek the advice of their physician or other health care provider. There is data suggesting acetaminophen may be triggering asthma development in some children so parents should check with their child’s pediatric doctor before using over-the-counter drugs containing acetaminophen. It is used only for people with weakened immune systems, infants younger than 6 weeks of age, or people with severe disease.
The most important thing to keep is mind is that no matter how long you’ve been able to go without an outbreak of sores, you are not cured from the herpes virus, although there is a cure that is being tested right now that is in its third trial phase. If you got past the embarrassment of getting tested for herpes, you can get past the embarrassment of seeing a healthcare professional for treatment to avoid the risks of an untreated herpes infections. Subsequent herpes breakouts, called recurrences, are generally milder and don’t last as long as the first.
Herpes Dating Prevent Genital Herpes Outbreaks What Does Herpes Feel Like Otc Genital Herpes Treatment Herpes Labialis Herpes Simplex Encephalitis How To Date With Herpes Does Abreva Work On Genital Herpes How To Diagnose Genital Herpes History Of Genital Herpes Genital Herpes Curable The Ultimate Herpes Protocol PDF Download How Long Does Herpes Outbreak Last First Signs Of Herpes Herpes Simplex Type 2 Herpes B Herpes Virus. The viruses, if present, will reproduce in the culture but may take 1 – 10 days to do so. If left untreated, visible genital warts can resolve on their own, remain unchanged, or increase in size or number. Like other STDs, if left untreated, herpes can increase a person’s chance of getting or spreading HIV. If you are taking Valtrex to treat genital herpes the chances of passing on the infection to your partner are not reduced even if you use safer sex practices. With a sexually transmitted infection like herpes, you don’t want to rely on self-diagnosis. Avoid having any sexual activity while you are being treated for genital herpes and while you have any symptoms of an outbreak.
Having a sexually transmitted infection (STI) such as genital herpes, increases the risk of getting HIV infection if you are exposed to HIV. For this reason, it is recommended that a pregnant female dog be isolated from other dogs for the last three weeks of pregnancy and the first three weeks after birth.
Like most, I panicked bought a lot of unnecessary products—some toxic, then managed to pull myself back from the brink of actually hurting myself.
If you are pregnant and have genital herpes, it is even more important for you to go to prenatal care visits.
But if a woman had genital herpesbefore getting pregnant, or if she is first infected early in pregnancy, the chance that her baby will be infected is very low – less than 1. The medication is not recommended for HIV-infected persons, immunocompromised persons, or persons with clinical genital herpes because the safety and efficacy of therapy in these settings has not been established.
I use witch hazel to clean it after I pee, then I mix tea tree oil with lysine ointment and apply it with a q tip. Medication can help treat herpes and diminish symptoms, but as of now, there is no cure for herpes. If left untreated, it can lead to death or more severe infections of the nervous system, liver, adrenal glands and lungs. Most of them can’t kill you, but left untreated they can do serious damage to your body, including leaving you infertile. While many people think of Puerto Rico simply in terms of beaches, you’ll find that Old San Juan offers much more and is the heart of the island. Artinya, apabila yang terinfeksi adalah kulit wajah, maka hanya area itu saja yang terserang.
If you have symptoms, get examined as soon as possible to avoid any complications and discuss treatment options. The first outbreak usually happens within 2 weeks of having sexual contact with an infected person, and symptoms can last from 2 to 3 weeks. Sometimes, when you first catch cold sores, you can have ulcers inside the mouth and throat as well as, or instead of, the usual sores on the lip. If your doctor thinks you may have herpes meningoencephalitis, you will probably need to have a lumbar puncture (spinal tap). And, remember, even if you aren’t having an outbreak, you can still pass on herpes to your partner! Damage it can cause if left untreated: Syphilis can progress to patchy hair loss, headaches, weight loss, muscle aches and fatigue. Always wary of doctors, I tried to stay out of that loop but finally caved when my beloved ones pressured me to seek help. Herpes is transmitted through skin-to-skin contact, or unprotected vaginal, anal or oral sex the virus can enter the body through breaks in the skin or mucous membranes. Avoid having any sexual activity while your partner is being treated for a genital herpes outbreak or if your partner has symptoms of an outbreak, such as open sores.
Any tendency for recurrent lesions to form in the early period after healing can be overcome by using a topical antiviral for 7-10 days after dbridement. I have herpes (cold sores, fever blisters) she has only genital herpes, what happens if I oral. You cannot die from herpes, but re-occurring outbreaks can become more painful and frequent without treatment. L’herpes est une maladie contagieuse a recidives dont on peut difficilement se debarrasser definitivement. Une des premieres MST par sa frequence, l’herpes genital est du, le plus souvent, au virus HSV-2 dont les recidives peuvent etre frequentes pendant de nombreuses annees. A dermatologist gave me Ivermectin which caused a Herxheimer (die-off) reaction and many of the black particles I'd been seeing with a scope surfaced. If you have a primary genital herpes infection, and it is not possible for you to see a GUM specialist, your GP may treat you for the condition.
Also, episodic therapy has its best results when treatment begins at the very first sign of prodrome. Small red blisters or open sores on genitals or inner thighs; in women, often occur inside the vagina. If the virus spreads to two particular nerves in your face, then a condition called Ramsay Hunt syndrome can develop.


2 This is because genital herpes will often produce mild symptoms or no symptoms at all (asymptomatic infection). There is also a slight possibility that virus may be transmitted through asymptomatic shedding which can occur between outbreaks. This gave me great relief from the discomfort of what felt like fiberglass embedded in my skin. There are also several things that you may be able to do to help ease your symptoms of genital herpes.
Though transmission of herpes from a mother to her newborn is rare, if it does occur, it can pose a serious risk to the baby. If symptoms do occur, they will usually appear 2 to 7 days after exposure and last 2 to 4 weeks.
A first outbreak of genital herpes may also involve symptoms of meningitis (headache, fever, and light avoidance) lasting for up to one week. If the virus is active on the skin outside the area protected by the condom, transmission may still happen.
You can transmit herpes to your baby during labor and delivery if you’re contagious, or shedding virus, at that time.
Note, however, that while conventional treatments can reduce infectivity and thereby help prevent the spread of the disease, no natural treatment has been shown to do this. If left untreated, the infection can cause damage to a newborn’s internal organs, skin.
The primary episode of genital HSV infection can be associated with a multitude of constitutional symptoms and signs, such as fever, malaise, and headache. There were NO fibers visible in my skin in the previous months before taking the medication.
Of course, if you let herpes run rampant in your body, you have a higher risk of transmitting it to others. If you had your first genital herpes outbreak during pregnancy, or if you have outbreaks often, your provider may treat you with an antiviral medicine called acyclovir (also called Zovirax Injection or acycloguanosine) during the last month of pregnancy. Pregnant women who are not treated may have an increased risk of premature delivery, miscarriage or transmission of the virus to the unborn baby.
In contrast, recurrences of HSV-1 occur much less frequently (approximately once per year).
SEM herpes has the best prognosis of the three, however, if left untreated it may progress to disseminated or CNS herpes with its attendant increases in mortality and morbidity. There are many natural treatments and prescription antivirals which help suppress outbreaks. Unfortunately, both oral and genital herpes viruses can sometimes be transmitted even when the person does not have active lesions. Treating genital herpes will not cure your condition; however, before you decide to skip treatment, there are several factors to consider. If you don’t have signs of an active infection, it may be safe for you to have a vaginal birth.
CNS herpes is an infection of the nervous system and the brain that can lead to encephalitis.
Within two days of taking the Ivermectin, I watched in horror as fibers started to rise to the surface of my skin. Asymptomatic genital HSV-1 has been shown to be more infectious to the neonate, and is more likely to produce neonatal herpes, than HSV-2.
Even if your immune system is strong, the virus may start reproducing again, and you may experience an outbreak. Many have no clue that they have these diseases, but if left untreated, the infections can harm both you and your unborn baby.
Although there is no cure for herpes, certain medications can help prevent or shorten outbreaks. If sunlight or sun-beds trigger your outbreaks, use a good quality sun block, especially on the lips. If you have symptoms of either primary or recurrent HSV infection and you have a weakened immune system (for example, if you have HIVAIDS or are taking medicines that suppress your immune system) , you should visit your GP.
That plus coming off the tail-end of the pharmaceutical seemed to stop all the symptoms of itching, biting and crawling for approximately the next 4 months.
Pregnant women with untreated genital herpes during the first or second trimester appear to have a greater than two-fold risk of preterm delivery compared with women not exposed to herpes, particularly in relation to premature rupture of membrane and early preterm delivery ( 35 wk of gestation).
This problem is rare and usually happens when a woman gets herpes for the first time near delivery. Herpes infection of the eyes, known as ocular herpes, affects about 50, 000 Americans each year and may cause blindness if left untreated. The only thing that hadn't cleared up was the hyper-sensitivity to my skin which I thought I was stuck with for the rest of my life, an unfortunate consequence of having Morgellons. Had I not been actively using a microscope to look at my skin during this period, I might have presumed I was well. However, if left untreated women can develop pelvic inflammatory disease, which can lead to pelvic pain, infertility or an ectopic pregnancy. But contact dermatitis can happen anywhere on the skin and is caused by contact with an irritant or allergen, not by a virus. The skin however, doesn't lie and told a whole other story for under it's surface, fibers and particles were clearly still present—multitudes of them. Early on, I'd heard about the testing that Pam Crane of Morgellons Focus On Health (site no longer active) was championing and felt that it was probably the way to go.
Some effective therapies for herpes zoster do exist, however, and these can reduce the extent and duration of symptoms, and possibly the risk of chronic sequelae (eg, postherpetic neuralgia PHN) as well. Often, you won’t need to make an appointment, but if you do have to, tell them you think it is genital herpes then they may see you sooner because it can only be diagnosed while you have symptoms. If you or your partner is infected, you can catch or spread herpes through vaginal, anal, or oral sex. This can occur either through blood transfusions or tissue transplants, or from a mother carrying the infection to her child during pregnancy and childbirth.
My only problem with moving forward was a lack of practitioner, as I felt having the best testing in the world wouldn't mean anything unless someone was up to the task of decoding it's contents into a meaningful protocol, sort of like buying a Cadillac that arrives without the key. I wanted to have a conversation with whatever doctor I was going to see and to hear them speak about their philosophy of healthcare. While many people with genital herpes experience no symptoms, the first sign of an infection is often an itching or tingling sensation in the genital area, followed by tiny blisters appearing. Surgical care is not generally indicated for the treatment of herpes zoster, though it may be required to treat certain complications (eg, necrotizing fasciitis). The following drugs and medications are in some way related to, or used in the treatment of Herpes Simplex. This service should be used as a supplement to, and NOT a substitute for, the expertise, skill, knowledge and judgment of healthcare practitioners. Just try to get a physician on the phone before actually making an appointment and you will find it is an impossible task (especially the high-end specialists). Overall the symptoms of genital herpes are similar in pregnant and non-pregnant women; Screening and treating pregnant women for STDs is a vital way to prevent serious health complications to both mother and baby that may otherwise happen with infection.
She talked about The Great Plains Labs and why the testing used in Functional Medicine is so important for our community. Herpes is passed on through skin to skin contact with a person who has the virus – this can occur through oral, vaginal or anal sex. She sounded like she knew how to do her job well and was more than capable, indeed she had impressed me as understanding how to approach the disease in a holistic manner that aligned with my own healthcare philosophies. A few things to remember: One of you may have been infected a while ago and may not have realized that you had the virus.
Eye problems: Shingles that involve the eye are called ocular shingles or herpes zoster ophthalmicus.
Even if a person has no symptoms, the virus can continue to damage the liver if it’s left untreated. I believe my first words to her were, "Where do I sign the dotted line?" (While focusonhealth has been taken down, here is another radio show with Nancy speaking with Pam. Genital herpes, genital warts, Hepatitis B and HIV are viral infections that cannot be cured, but the symptoms can be treated and managed. Herpes may affect the mouth (oral herpes or HSV Type 1) or the genitals (genital herpes or HSV Type 2).
Skin to skin contact with the mouth or genitals can spread certain STDs, even if penetration did not occur.
When the first outbreak of genital herpes is mild and another outbreak happens years later, the person can mistake it for a first outbreak.
It’s rare as few people actually enter the fourth stage even when the syphilis is left untreated. Let me remind you that I felt fine when I first contacted Nancy, but the emerging fibers showed me I was not. HSV-2 is commonly found in the genital area, but it can be passed to the mouth through oral sex. This helps both you and your partner stay focused and not get lost in the moment of passion. Also, those concerned about genital herpes infection should discuss their concerns with their health care provider.
Nancy forewarned me that treatment would kick up all the initial symptoms I had when first ill with Morgellons, such as itching and stinging and that I might experience more fatigue with die-off, possibly even get lesions although I hadn't had many lesions previously. Within a week and a half of beginning this new protocol all the discomforts she mentioned came back. Herpes is an infection caused by a virus, either Herpes Simplex Virus Type 1 (HSV-1) or Herpes Simplex Virus Type 2 (HSV-2. STD screening tests are usually done for infections that can have serious outcomes if they are left untreated. Black particles began coming out from the skin, sand-like crystals were suddenly pushing from the scalp, I was itchy and uncomfortable but this time around it was at a much lower volume then at onset.
HSV can be passed even when sores are not visible, although it is less likely to happen during these times.
If you don’t have symptoms your provider can opt to take a sample of blood to test for Herpes, although the results are not always clear-cut. False positive tests can occur with many diagnostic tests, including STD tests, and the chance of a false positive test result increases as the likelihood of the infection decreases in the person being tested. I have experienced some lesions, in the form of 'papercuts' and blood spots appearing on the skin. It is not necessary to treat herpes, but you can talk to your doctor or health care provider if you want more information about this medication. If left untreated, chlamydia can cause increased risk for infection of other STDs, including HIV. They were tiny and healed quickly. It took close to 3 months for the symptoms of this detox to disappear, lessening with each week. If they do occur, warts may appear within weeks or months of having sex with an infected partner.
We added in another few products to my protocol fine-tuning the process. Once all my symptoms had abated I was ready to move on to the next step and do a colon cleanse. The main difference is that if you are infected with HSV-2 in the genital area, you are more likely to have a relapse, or have outbreaks, than you would be if you were infected with HSV-1.
I used supplements for one month that gently cleansed the colon (Colon Cleanse by DaVinci Labs??). Without treatment, these sores last several days to a few weeks before clearing up on their own. It can also be passed through skin-to-skin sexual contact, kissing, and rarely, from mother to child during childbirth.
After that, I began with chelation therapy (Chelex by Xymogen) to remove heavy metals. Nancy has taken me through this journey with constant support through email. Early treatment with antivirals may shorten the course of the painful skin lesions and reduce viral shedding. If you get diagnosed with herpes, talk to your doctor about medical-strength treatment options. Your provider may prescribe a pain reliever if necessary or you can take Tylenol or Ibuprofen. Do not use douches, perfumed soaps, feminine hygiene deodorants or other chemicals in the genital area.
The fact that she is able to tell me what I can expect and interpret what I am going through is invaluable. Having gone through the early treatment phases and emerging symptom-free, makes me feel that I did indeed work through something—hopefully clearing biofilm. So where am I right now and what are the changes that happened over these few months of treatment?My skin cleared of many of black particles, although I still have them (my great lament was that I didn't have a camera back when I first got sick, because my skin was so saturated it was alarming!). Actually, I feel spry and 10 years younger than my 55 years of age (at the time this was written), an unexpected and very welcome gift. Still, they are here and I am monitoring them carefully. I am convinced of the value of the Great Plains and Metametrix testing.
It just makes sense that one would want to know the particular weaknesses of their body before embarking on a journey of healing. Getting the labwork done and seeing Nancy are the two smartest things I did throughout my ordeal. Morgellons for me is like that impossible teacher I had in my youth. But it has also left me savoring hard-won battles and set me straight on how to live more in balance. Therefore, I try not to rail against the unfairness of the experience, but to look at how much I learned and the ways in which it has stretched me as a human being.
Yes it has been a miserable teacher, but by it's hand I have been become an attentive student.I wish you all full recovery.
AylaWhile I am not comfortable sharing my protocol as it is specific to my lab results, I will outline what I feel are the bare-bones minimum I'd look to take if I were building a protocol.
This would be a good probiotic (I use 3 different kinds throughout the day as was indicated by the results of my testing). FOS, according to Nancy can promote yeast growth so I'd stay away from a probiotic that includes it. I'd include a biofilm buster which breaks down the cellular matrix in the gut that inhibits absorption of necessary nutrients. I used Interfase Plus and Wobenzym at different times (there are different kinds of Wobenzyme.
I've used Carlson's liquid D3 which is lipid based, but recently have switched because of assimilation issues with fats to a dry encapsulated D3 (Prothera brand 5,000 I.Us a day).
Certain of the B's can become depleted when the body is fighting infection, so a good B-complex seems necessary. Also, Mr. Common Sense and now Clifford Carnicom have written about NAC and it's benefits along with vitamin C in helping quell the symptoms of our condition. I'd look into this as a close friend from the community began taking both high amounts of Vitamin C and NAC and her symptoms disappeared.
She was taking 3,000-5,000 mg of C spread throughout the day and 600 mg 2x's a day of NAC both in the morning and at night.


She eventually reduced it to 2,000 mg of vitamin C and 600 mg of NAC because the NAC was giving her headaches. The lesser dosage has been fine for keeping her symptoms of crawling, biting and stinging away. When she went off the protocol symptoms came back and when she again resumed, they went away. I might mention, that my protocol has always called for 1000 mg of vitamin C, three times a day.
While I was not on NAC as a separate supplement, it is in another product I take daily ?(Liver Protect by Xymogen). Nancy has stated that the clients she sees that do this first make themselves much worse and take longer to get better. If I am going to do this right, I want to know what my baseline toxic load is so I can measure my progress over time.
The results arrived right after I finished my third week of chelation. My total toxic representation was OFF the chart with high levels of antimony, silver, cadmium, tin and magnesium. I have a host of other metals as well, they just were at lower levels than those mentioned above. Once Nancy reviewed my test results and knew how I was responding to the treatment she modified my protocol to include a liver support, and the addition of 3-4 new products that would also help balance me out. I keep an ongoing visual journal using photos which I share with her so she can see any new developments. During chelation I was more tired, needing to take naps and sleep longer on most days. I also had some tiny red spots appear on the skin without breaking through.Red spots appear on the skin. Based on what was going, on Nancy pulled back on the chelation so that the process is even slower and gentler until my body can adapt. Using shea butter and coconut oil mixture as a moisturizer seems to draw fibers and black particles from my skin if left on for 3-4 hours.
Most are not readily apparent unless you really look for them. Hair The Morgellons has moved into my hair. An acupuncturist, pointed out after looking at my hair photos, that there were multiple "hairs" emerging from one follicle.
This is probably why my hair feels thicker even though it has been brittle, weak and falling out. Helicobacter pylori, the bacteria I had with high levels the first time I was tested, is completely gone. There was a new bacteria that showed up on this round of testing that wasn't on the previous. Nancy feels that this is something that could have morphed, or, could have been present all along, but like peeling an onion back, was hidden under layers.
She is adding seven new supplements to my protocol to address adrenal support as sleep has become fitful and I feel somehow too 'plugged in.' Fight or flight mode. I'll be taking a prebiotic to address the new bacteria as well as some new products from Xymogen to open detox pathways. I'm excited to be moving in a new direction. Every time we do a new test, I see the value of this approach.
Randomly throwing supplements at the body without being tested, with the hope that something might work, seems a dangerous practice. Not terrible full-blown itchy, just enough to let me know that I was reinfected or maybe this is an allergic flare-up. This episode might have lasted longer than necessary had I immediately washed all my clothes but I got lazy and didn't wash them for a few days. Was not constantly itchy, but found I'd get itchy at odd intervals, sometimes once a day, sometimes not for days at a time and sometimes for a mere few seconds or so. I am putting a garden in upstate and often have my hands in the soil (without gloves) and have found that I am fine.
The only itching I've got is from the occasional mosquito bite (and yes, these are real mosquitoes).
Now, instead of direct application of GSE I brush my teeth twice, once with toothpaste and once with a clean brush that has two drops of GSE on it. Note that I have been letting my supplements run out in the last few months because I needed a break from taking approx. I wonder if the return to itchiness had something to do with my letting down my guard and not watching my pH.
After the first day of swimming, I noticed small circular red blotches appear under the skin of my calves and thought, uh-oh, here comes trouble.
I FINALLY have a microscope again (it was replaced after more than 7 months at the manufacturer!). I had a few breakthrough 'papercut lesions' on the hands which I don't know what to make of. I stopped the Ormus because I wanted to document F-6, which has gotten quite a buzz in the Morgellons community. I still have 1.5 bottles left and intend to take it in a few months feeling I didn't give it a proper shot. For now, I want to concentrate on doing one therapy at a time, so I can really be sure what each does. October 17, 2011: Began using F-6 and have started a new link documenting that experience including photos showing what is emerging from the skin.
I'm going to take it slow with this product as I don't want to have any major herxheimer episodes.
Caroline Carter, A healthcare worker that has Morgellons and works with ozone therapy (and who made her Morgellons worse with ozone saunas) said she cannot even be around it anymore. I have since talked with another person that had strong outbreaks from doing an ozone sauna.
Ozone therapy is typically great for cancer, AIDS and herpes, but for this disease might make us worse. There seems to be improvement to the hair which feels stronger and seems to be falling out less. A lot of "debris" is coming up through the skin, fibers, black particles, granules and many more fibers then ever seen before.
A week and a half later I ate some quinoa with my lunch and two hours later had 3 oatmeal cookies (oatmeal, walnuts, carob chips, baking soda, vanilla). This forage into complex carbs was unusual for me.While eating the cookies I started to itch. By the third cookie, I was having full-blown symptoms of itching, stinging and biting sensations (no crawling, thank God!). The fact that it came on with such force and was related to food, makes me think that Morgellons counts among it's causes a hyper-allergic reaction to food. In this case, I don't really know what specific ingredient triggered the reaction.By eliminating carbs again, symptoms quieted down. I am noticing flare-ups of the arthritis in my foot which had so improved at the beginning of my treatment (but I kill my feet dancing one night a week, so that could play into this). The ones I can visually see without a scope are bigger then I've had before but there is no increase in the amount I generally see with my scope in the skin.
Will keep you posted of new developments.I've noticed that when it's very hot (93-97 degrees) and my skin is exposed to the air, I have more sensations on my arms. It's not unusual to feel a single pin prick sensation on my left upper arm, often I'll feel the same type of prick mirrored in the same spot on right arm sometime later, as if they were somehow linked.The other day on my bike I felt as if I hot poker were being pressed momentarily to my arm.
When I looked down, there were three distinct tract marks in that spot, about a half, to an inch long that hadn't been there before. Since having Morgellons, it feels like the skin is no longer a reliable friend but is capable of erratic changes suddenly. They took about 5 days to disappear.?September 27, 2012 • Live blood microscopyJust posted a new link with photos of my recent session with Rick Panson, a microbiologist and healthy body coach who did a live blood and dried blood microscopy and gave me additional guidance for my health. It's a bird's eye view into the system, giving a fuller, deeper understanding of what's going on  then just looking at lab results—although lab tests have their place!
In the next two weeks I get more testing done so will post those results when in. There were many problems with the blood.
We are in a seasonal shift and my fingers have had a few tiny papercut lesions since the change began.Started the protocol Oct. Beginning with one pill a day of capyrilic acid with one pill olive leaf extract and 1 tsp. The L-glutamine is supposed to strengthen the gut lining and prevent leaky gut syndrome caused by the yeast die-off.
Will stay on this for a few days and slowly double the dosage, then determine where to go from there.
16, 2012 Went back to Rick Panson for another live blood analysis and posted the photos under my last blood microscopy. This is encouraging for all of you who wonder how long it will take to knock back candida and even if our protocols are working. Rick recommended Candex and Nancy told me she loved the product except now they are adding corn to Candex (and it's unknown if it's GMO corn), so she is no longer recommending it.
Adrenal system had a number of markers indicating a lot of stress to the system, very low levels of vitamins C and B's, four different pathogenic bacteria showed up—Helicobacter Pylori was high, Clostridia, E. Kreb cycle needs support. Heavy metals hair test—all toxic metals were down except arsenic which went up with cadmium. Lead which was extremely high on my first test showed a considerable decrease as well as silver but lots more chelation ahead.
It's been 2 years since I started using supplements to pull the metals out and I think it will take a couple more years of work. The process is slow but steady which is a good thing because I think if the body released too much metal into the system at once there would be negative impact on the health.
Nancy pointed out that lead and cadmium are antagonistic to calcium absorption and bone health, so seeing this rise in cadmium and knowing I still have too high levels of lead makes me think that I might have to give up the painting at some point or switch mediums rather than compromise bone health. The heavy metals test also measures "essential and other elements," (minerals) It seems as a consequence of pulling heavy metals out, the minerals have been compromised. Nancy suggested this organism is a pleomorph moving from bacteria to fungus according to favorable conditions in the body.
This is the third time it's changed. Feb 3, 2013 Just an acknowledgment that I just passed my 3rd anniversary since getting sick with Morgellons. The only time I really have symptoms is when I really mess up on diet (itchiness will start) or when ?very overheated and sweating from physical exertion like dancing, where it sometimes feels like needle pinpricks are sticking my skin from the INSIDE out, accompanied by itchiness. Thieves is a great oil for preventing flu or when one is coming down with illness, but I am unclear if it can damage beneficial bacterias. Stopped taking thieves after a few weeks but do still take lemon and added in lemongrass and grapefruit to my daily capsule. Itchiness did not return. September 22, 2013 Decided to go on Stephen Buhners herbal protocol for Lyme disease (crafted from his excellent book, Healing Lyme). Although I tested negative for Lyme and feel fine, I don't trust the traditional testing one gets with their regular MD, and even though I don't think I'm dealing with Lyme, I can't discount the fact that so many Morgellons sufferers also have Borrelia and other co-infections that might be related to our disease which seem to improve with Lyme treatment.
Also, his protocol addresses other issues I feel are pertinent to my health (even before Morgellons).
Certainly, I see over time that my immune system is weak, and my gut reaction now to coasting is that it could be an eventual time bomb. I'm taking Cats Claw, Sarsaparilla root (Jamaican—which I grind in my coffee grinder), Eleuthero (Siberian Ginseng), Astragalus, Japanese Knotweed and Andrographis. To his formula I've added in Ashwagandha and Sweet Cinnamon (from Sri Lanka) for the brain, as well as nettles (excellent herb for trace minerals and general support of system) and Pau D'arco (fungal). I take a quarter level teaspoon of each herb (which is roughly the equivalent of one 00 capsule) added to some water and drink it down.
Surprisingly, I did not feel exhausted, although the protocol was pretty intense and caused a lot of flushing through the digestive system. This is not a new symptom and usually happens in the first few weeks of starting any new protocol.
As these breakouts have always been so minor and short-lived? (an occasional papercut lesion or what looks like a pin prick), I paid them little mind.
In this case, the skin continued to break open for the duration of treatment and I had some long "scratch" marks come up as well. It seemed like the last papercut I got was deeper and for the first time I started to worry that perhaps I was giving myself a lesion problem that I might not be able to turn off. This little spot has bothered me on occasion on and off throughout the years of my Morgellons experience, but during the Buhner protocol, it itched almost constantly. On the plus side, I could tell there was a lot of detoxification going on and all of those bitter herbs were really helpful for quelling sugar cravings. I believe I will revisit this protocol modified in the future, but for now, am taking a rest from it. Note that when I ceased treatment, the papercut and pinprick lesions stopped, although I recently had a three-inch long "scratch" appear on my leg weeks after stopping his treatment some weeks back. This was a surprise, since problems usually only show up on my hands and 3 inches is rather a statement!For the first time, the scratch resembled images I've seen for Bartonella. There is much about it that I think is helpful, and I encourage people to study these herbs and supplements carefully, and decide for themselves if they want to incorporate them. This is a very difficult protocol and for any who have detoxification pathway issues, this could impact their health negatively.
The release of toxins in a system that cannot remove them properly can be deadly, so it is important to not rush carelessly forward with something this strong. I did feel like the protocol helped me on many levels, but I could not tolerate the heart issues with pressure on the chest, burning, and breathing difficulties.
The creator of the protocol feels that Bartonella is at the core of the Morgellons infection, and Bartonella likes to set up shop in the endothelial tissue of the heart. Thinking this was just a severe Herxheimer reaction, I went back on the protocol but was unable to advance more than one drop of each tincture before heart and breathing issues returned with a vengeance. This time, the heart issues did not abate immediately, and it's been some weeks now in which they often come back on a low level. His original protocol (which he posted on Jenna's blog and which is now removed) did not use MSM, or Silver Sol or various other supplements. It also did not include baking soda, which is not inherently a problem, but at 2 teaspoons a day, might become one.



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