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Morgellons Disease Awareness -  Artist and Morgellons sufferer, Ayla, journals her experience with the disease   I'd like to introduce myself, I'm Ayla, a 59year old artist and graphic designer who contracted Morgellons in Jan.
I could safely rule out HSV-2, since my blood test was negative and I didn’t get recurrent outbreaks.
Once results were back doctor said very non caring as if it was no big deal that I had genital hsv1 ( not from oral sex). Recently Diagnosed With HSV2, Could Test Results Be Discussing Recently Diagnosed With HSV2, Could Test Results Be Wrong?
For a culture, it’s best to get to the doctor as soon as possible before symptoms start to heal.
A visible herpes infection often starts with an itchy or painful red spot that will develop into small blisters within a few hours which then rapidly become small open wounds (erosions) ; on the skin they later form little crusts. However, not all people who are infected always produce skin blisters, and it is possible for the virus to be produced and spread even when there are no visible sores or blisters. Even if you have no symptoms, or only mild ones, you can still transmit the virus to others. Thus, a decade ago almost half of sexually active females revealed through testing that they had HPV DNA in their vaginas. Hot tub incorporates at least the heater efficiency and pumping energy efficiency features, fibre-cement siding or shingles, concrete blocks, stone, and cement mortar stucco. In newborn babies, infection by herpes viruses (neonatal herpes) can be very serious, resulting in brain damage or even death of the infant. You could have gotten it from your first sexual partner when you were fifteen, and not have a breakout until you are 35. I went to see a doctor about a bad bout of hemorrhoids as well as a small area of rash on my buttocks that the doctor guessed was shingles.
The frequency of the recurrences is variable, but the blisters are always at the same site. It didn’t matter if it was HSV-1 or HSV-2, because once it presents genitally, herpes is herpes. Blisters usually form in a localized area and sometimes will appear as a cluster of bumps or blisters, from a few to many, or they may take the appearance of forming a short irregular row effect.
Herpes simplex infections do not usually spread through the body, and are usually limited to one area. Once people are infected with herpes simplex, the virus stays in the body for the rest of their lives, says Dr. Please make sure that you have read the discussion on the cause of HPV infections and the risks involved with these infections posted on this site.
Individuals with HIV and transplant patients have compromised immune systems, and can develop serious HSV infections such as keratitis or encephalitis.
I've been moved to create awareness tools that help educate healthcare practitioners and the public about Morgellons Disease (see Awareness Poster) as well as share what I've learned from this experience.Many of the skin photos in the photo galleries are mine. Even if the blood test was wrong and I did have it, I almost certainly wasn’t putting anyone at risk. You may go to the doctor and they may not be able to diagnose it as herpes, or may mis-diagnose you. I pointed out another sore spot on my rectum to the doctor which he said was herpes, and suggested I have it tested.
But the conversationthe before we do this, I have to tell you something routinenever got easy. The sores are fewer, smaller, less painful and heal more quickly, and there are no flu-like symptoms. I don’t think you can die from it, but I know that if it spreads to the face it can cause blindness.
Herpes whitlow (herpetic whitlow) is a painful infection that typically manifest itself on fingers or thumbs and occasionally on the toes, or on the nail cuticle, and is caused by HSV-1 or HSV-2. Herpes tests can be wrong, but it is much more common for them to give a false negative (because we are swabbing a herpes sore that is already healing up) , than for the test to give a false positive. However, your results could come back negative if you have been infected within the past few months. The results were a bit confusing but they ruled it as postiive after discussing with another doctor as well. The infectious disease specialist advised me that, since the viral culture was positive, I could be sure I had herpes. These classic lesions of genital herpes often resemble small pimples or blisters that eventually crust over and finally scab like a small cut. Most commonly HSV-1 occurs above the waist, usually as cold sores or lesions in the mouth or on the lips and face (orofacial herpes) ; HSV-2 occurs below the waist, usually as genital sores (genital herpes).
A herpes test will usually involve the following examinations, which are carried out by a doctor or nurse.
Genital herpes is a contagious viral infection that remains permanently in the nerve cells. If you can get shedding below that level at all times you are likely to severely limit or eliminate transmission, says Schiffer. The theory that hot baths (mainly saunas and hot tubs) has any effect on pregnancy is based on a few poorly conducted medical studies. Symptoms of herpetic whitlow include swelling, reddening and tenderness of the the skin of infected finger. Many people find a herpes diagnosis very shocking, and it’s common to have lots of questions and emotions about herpes.
The good news is that the first episode is almost always the worst that HSV throws your way.
Unlike genital herpes, Syphilis does not usually produce a cluster of blisters, and it usually responds well to antibiotics. In the case of a genital infection, sores can appear at the original site of infection or near the base of the spine, the buttocks, or the back of the thighs. Many people are unaware they have it, because they don’t experience symptoms or because they attribute the symptoms to something else.
But some people have herpes infections that don’t respond to acyclovir, and unfortunately there is no effective vaccine. Imagine having to explain to a potential partner that you have the disease and then sharing the dreadful risks before intimacy not exactly foreplay. It is caused by the same virus that causes chicken pox and this virus becomes dormant in nerve ganglions near the spine form where it can reactivate at any time in life, usually the 6th and 7th decade onwards.
So the derm, after 20 minutes of perplexed looks and concern says, Have you been in a Hot Tub? A decade ago, it was a hot topic, the subject of magazine cover stories, bad jokes, gossip, fear and confusion. Tongue what the phone number talk HSV good can you get herpes 2 from herpes 1 treatment plan can last nursing. Like most, I panicked bought a lot of unnecessary products—some toxic, then managed to pull myself back from the brink of actually hurting myself.
I was lucky enough to have a doctor who knows enough about herpes testing to question my diagnosis. The serum herpes simplex antibodies test also allows your physician to differentiate between HSV-1 and HSV-2, which is not always possible through a visual examination of the sores. Symptoms of genital herpes include painful sores or blisters in the genital area or on the buttocks, a skin rash, and a burning sensation when urinating. Recurrent herpes simplex labialis, also known as oral or orolabial herpes, is an infection of the mouth area caused by the herpes simplex virus. Out of 200 people with herpes, those who revealed their diagnosis were able to keep partners free of the disease for about nine months on average, compared to the two months it took when left secret.
So new approaches for suppressing and treating herpes infections are badly needed, and our findings indicate that inhibiting Akt should be a useful therapeutic strategy to pursue. Genital herpes is the herpes simplex two virus, primarily transmitted sexually via genital secretion and involving the genital region; in women, the vesicular stage may give rise to confluent, painful ulcerations and may be accompanied by neurologic symptoms. Herpes may not be making news the way it once did, but it is still surrounded by confusion and fear. Once i have got the problem then i went to my eye specialist, he gave me some eye drop which i used for a month. Leone says about virtually everyone having four to six outbreaks a year is absolutely not my experience. Healthline is for informational purposes and should not be considered medical advice, diagnosis or treatment recommendations.
The blisters can last for 7 to 10 days; they usually break, crust over, and eventually leave behind an area of red skin as they heal. HSV-1 is usually transmitted by touching and kissing but it can also be transmitted by sexual contact.
Once you get past the thousand cock smile, you can practically see the wall staring right back at you.
Always wary of doctors, I tried to stay out of that loop but finally caved when my beloved ones pressured me to seek help. Dr Jen, I would like to ask u is it normal to have re accruing ob, s every week from November 2012 to may 2013 on weekly basis?
The presence of antibodies for HSV-2, the most common cause of genital herpes, almost always indicates genital herpes infection with the type 2 virus.
Genital herpes frequently has no symptoms, so you can be infected and contagious without knowing it. She told me that it came back positive and right then and there diagnosed me with Genital Herpes. Oral herpes, usually caused by the herpes simplex virus type 1 (HSV-1) , shows up as cold sores or fever blisters on the mouth. In women, the sores can be inside the vagina and on the cervix, or on the skin outside the vagina. When Dana, 39, of Brooklyn, NY was diagnosed with genital herpes, she was convinced her dating days were over-she felt completely alone.
By TDG Fri Apr 17, 2015 8: 36 am About 10 per cent of Australians aged 25 to 34, and between 14-16 per cent of people between 35 and 54, have genital herpes caused by the HSV-2 infection, according to the Australian Bureau of Statistics.
Saunas and hot tubs should be avoided because of possible risk of hyperthermia to the fetus. A dermatologist gave me Ivermectin which caused a Herxheimer (die-off) reaction and many of the black particles I'd been seeing with a scope surfaced. I was diagnosed positive in 2009 through a swab and 3 weeks ago swab was taken again and it came back negative, I am so confused, Cld this be something else? It is a very good test, but there are issues with false positive results with one form called the HerpesSelect ELISA. Cell culture or PCR test may give a false-negative result if the sores have begun healing or if you are recently infected.
For example, if the sample became overheated, it could kill the virus and cause a false negative result.
Planned Parenthood answers your questions about what testing and treatment options are available for this STD.
If a doctor has ever diagnosed you with genital herpes, you may remember that conversation as one of them. Casually mentioning it in an unrelated conversation on a first date, as opposed to making it a big, uncomfortable, I have something to tell you reveal after a few dates, makes it a conversation topic instead of a problem.
It is caused by Varicella Zoster virus, the same virus that also causes Shingles in later life.
The bacteria, Slmonella may cause a short-term infection, but long-term infection is usually innocuous.
This gave me great relief from the discomfort of what felt like fiberglass embedded in my skin. He said that those cultures he did came back negative for herpes and positive for streptococcus (like strep throat).
My recommendation on so-called type-specific EIA test blood work, which means any blood testing not discussed on these two pages, is not to do it.
To confirm that a patient has herpes simplex, a dermatologist may take a swab from a sore and send this swab to a laboratory.
Yeah, and if you have had herpes in your blood, this means that it still lives in your nerve clusters, but is being suppressed by your immune system.


Chicken Pox is characterized by fever, itching and skin rash or fluid filled blisters that subside in a week or two.
The most common treatments for shingles pain are tricyclic antidepressants and anti-epileptic drugs. It’s not as bad as my mind has made it seem and to be honest I was very stigmatized to it all until I read this.
If the doctor has the ability to perform PCR DNA testing for herpes simplex, ask for that instead of a viral culture.
Swimming pools and hot tubs should be clean and chlorinated or drained and covered if not in use.
The cornea is a complex structure with five layers; while the cause of Fuchs is not clear (though genetics may play a role) , it seems to cause water to build up in the two inner-most layers. There were NO fibers visible in my skin in the previous months before taking the medication. One in six people have genital herpes, according to the CDC, so why is there so much shame and silence surrounding the disease? This started with on the tip with my finger when I poked this with a computer fan, however reflexively put my finger on my teeth which got me personally inf.
Genital herpes simplex virus (HSV) infection is extremely common throughout the world, with epidemiological surveys demonstrating rising infection rates in most countries (1, 2).
Writer Ella Dawson is trying to break the STD stigma by publicly sharing her personal story. I still didn’t think i had herpes because my partner TESTED negative for herpes and all other stds.
This rash can cause pain, itching, burning sensations, swollen glands, fever, headache, and a run-down feeling. My husband asked him to check for shingles and he did another blood test which was positive for herpes zoster (shingles).
Within two days of taking the Ivermectin, I watched in horror as fibers started to rise to the surface of my skin.
He looked at it and said it looks like herpes around the cyst But also said it could be a infection which looks similar. If you have herpes, you should always use a condom when having sex, unless your partner already has the disease. When I informed my doctor, she told me that I would have to wait at least four to six months before I would be able to retest my blood for herpes antibodies. If you are one of the many people preparing to reveal to a dating or relationship partner that you carry the Herpes virus, it is important to know that you are not alone.
That plus coming off the tail-end of the pharmaceutical seemed to stop all the symptoms of itching, biting and crawling for approximately the next 4 months. Im so confuse on how they can tell you that you have herpes but they barley understand it there self my Partner has been tested an nothing came back postive but my first test was negative then a year later i had sex from the fist scare when the doctor told me with a smile im 100 sure that you have herpes an test come back negative this time they said it dont look like nothing yet my test come back postive i was reading alot of yall articles an i seen sombody said they use yeast infections medcine an it mess with her results i had been taking pencillin an with any antibotics i got a yeast infection so i took medcine for it so i wonder if it mess wit my test i hope my results are wrong casue this is not nothing easily to live with like anotha article i read she got two postive an then all sudden they said she has a fugi infection they feel as though its so common now they can say you have it like its a common cold this is people lifes here. If you had a swabculture done of the sore and it was not done within 24-28hrs of appearing there is a good chance you will get a false negative. The only thing that hadn't cleared up was the hyper-sensitivity to my skin which I thought I was stuck with for the rest of my life, an unfortunate consequence of having Morgellons. Had I not been actively using a microscope to look at my skin during this period, I might have presumed I was well. Every doctor thought it was an infection or something of that short and never imagined it would be an std. Facial herpes is very common and is also known as cold sores, fever blisters, sun blisters, oro-facial herpes, herpes labialis and herpes febrilis. Explain what it means to have it and how, though some people get sores on their genitals occasionally, others have symptoms so mild they don’t even know they are carriers. The skin however, doesn't lie and told a whole other story for under it's surface, fibers and particles were clearly still present—multitudes of them. Early on, I'd heard about the testing that Pam Crane of Morgellons Focus On Health (site no longer active) was championing and felt that it was probably the way to go.
The source does not always have typical facial herpes symptoms at the time of transmission. Sometimes the cause of this type of nerve pain is unknown, but one known culprit is the herpes zoster virus, or shingles. My only problem with moving forward was a lack of practitioner, as I felt having the best testing in the world wouldn't mean anything unless someone was up to the task of decoding it's contents into a meaningful protocol, sort of like buying a Cadillac that arrives without the key. I wanted to have a conversation with whatever doctor I was going to see and to hear them speak about their philosophy of healthcare. Those who do have symptoms during the initial period will usually notice them about 4 to 7 days after being infected.
Every time I tell someone that I have genital herpes, I run the risk of it being the only thing they remember about me. If a mother with genital herpes has sores while giving birth it is possible that the infection is passed on to the baby (see section on pregnancy below). Take cool baths during an outbreak of shingles, or hold a cold compress over the blisters and sores.
Just try to get a physician on the phone before actually making an appointment and you will find it is an impossible task (especially the high-end specialists). Water naturally craves calcium, if it’s not given the water will seek it out and it does this by leeching it from the polymers in the tubs acrylic shell which can cause cracking, blistering and fading. She talked about The Great Plains Labs and why the testing used in Functional Medicine is so important for our community.
She sounded like she knew how to do her job well and was more than capable, indeed she had impressed me as understanding how to approach the disease in a holistic manner that aligned with my own healthcare philosophies. False-positive results can also occur and are common when serologic testing for HSV antibodies is performed in lower-risk populations. Human papillomavirus (also called HPV) causes a common infection that one person can give to another person during sex. I believe my first words to her were, "Where do I sign the dotted line?" (While focusonhealth has been taken down, here is another radio show with Nancy speaking with Pam. Hook presents a thorough and fair analysis of the two primary choices for HSV testing-culture and molecular-he clearly suggests that the latter is the preferable choice for most clinical labs. Let me remind you that I felt fine when I first contacted Nancy, but the emerging fibers showed me I was not.
My advice: ask your doctor to explain the test results in detail, and ask him what heshe feels the false negative rate is for the tests, and ask whether or not it is possible that the serologies you had obtained could be false negatives because you were not having an outbreak.
Nancy forewarned me that treatment would kick up all the initial symptoms I had when first ill with Morgellons, such as itching and stinging and that I might experience more fatigue with die-off, possibly even get lesions although I hadn't had many lesions previously. Within a week and a half of beginning this new protocol all the discomforts she mentioned came back. Herpes blood testing may also be useful for people seeking a full STD evaluation, especially for persons with multiple sex partners. Black particles began coming out from the skin, sand-like crystals were suddenly pushing from the scalp, I was itchy and uncomfortable but this time around it was at a much lower volume then at onset. I have experienced some lesions, in the form of 'papercuts' and blood spots appearing on the skin.
They were tiny and healed quickly. It took close to 3 months for the symptoms of this detox to disappear, lessening with each week. False negatives can occur if there is not enough active virus in the test sample, which can occur if the lesion is cultured more than 48 hours after the symptoms appear. We added in another few products to my protocol fine-tuning the process. Once all my symptoms had abated I was ready to move on to the next step and do a colon cleanse. I used supplements for one month that gently cleansed the colon (Colon Cleanse by DaVinci Labs??). Here are my questions: If he catches herpes from me, can I get it back on other parts of my body? After that, I began with chelation therapy (Chelex by Xymogen) to remove heavy metals. Nancy has taken me through this journey with constant support through email. The fact that she is able to tell me what I can expect and interpret what I am going through is invaluable. If you could answer these questions for me, I will either be able to stop worrying, or deal with it, but at least I will know.
Having gone through the early treatment phases and emerging symptom-free, makes me feel that I did indeed work through something—hopefully clearing biofilm. So where am I right now and what are the changes that happened over these few months of treatment?My skin cleared of many of black particles, although I still have them (my great lament was that I didn't have a camera back when I first got sick, because my skin was so saturated it was alarming!). In all serologic procedures some false positives and some false negatives occur for a variety of reasons. Actually, I feel spry and 10 years younger than my 55 years of age (at the time this was written), an unexpected and very welcome gift.
Still, they are here and I am monitoring them carefully. I am convinced of the value of the Great Plains and Metametrix testing. It just makes sense that one would want to know the particular weaknesses of their body before embarking on a journey of healing. Getting the labwork done and seeing Nancy are the two smartest things I did throughout my ordeal. Morgellons for me is like that impossible teacher I had in my youth.
But it has also left me savoring hard-won battles and set me straight on how to live more in balance. Therefore, I try not to rail against the unfairness of the experience, but to look at how much I learned and the ways in which it has stretched me as a human being. Yes it has been a miserable teacher, but by it's hand I have been become an attentive student.I wish you all full recovery. AylaWhile I am not comfortable sharing my protocol as it is specific to my lab results, I will outline what I feel are the bare-bones minimum I'd look to take if I were building a protocol. This would be a good probiotic (I use 3 different kinds throughout the day as was indicated by the results of my testing). FOS, according to Nancy can promote yeast growth so I'd stay away from a probiotic that includes it.
I'd include a biofilm buster which breaks down the cellular matrix in the gut that inhibits absorption of necessary nutrients. I used Interfase Plus and Wobenzym at different times (there are different kinds of Wobenzyme. I've used Carlson's liquid D3 which is lipid based, but recently have switched because of assimilation issues with fats to a dry encapsulated D3 (Prothera brand 5,000 I.Us a day). Certain of the B's can become depleted when the body is fighting infection, so a good B-complex seems necessary. Also, Mr. Common Sense and now Clifford Carnicom have written about NAC and it's benefits along with vitamin C in helping quell the symptoms of our condition. I'd look into this as a close friend from the community began taking both high amounts of Vitamin C and NAC and her symptoms disappeared.
She was taking 3,000-5,000 mg of C spread throughout the day and 600 mg 2x's a day of NAC both in the morning and at night. She eventually reduced it to 2,000 mg of vitamin C and 600 mg of NAC because the NAC was giving her headaches. The lesser dosage has been fine for keeping her symptoms of crawling, biting and stinging away. When she went off the protocol symptoms came back and when she again resumed, they went away. I might mention, that my protocol has always called for 1000 mg of vitamin C, three times a day. While I was not on NAC as a separate supplement, it is in another product I take daily ?(Liver Protect by Xymogen).
Nancy has stated that the clients she sees that do this first make themselves much worse and take longer to get better. If I am going to do this right, I want to know what my baseline toxic load is so I can measure my progress over time.
The results arrived right after I finished my third week of chelation. My total toxic representation was OFF the chart with high levels of antimony, silver, cadmium, tin and magnesium.
I have a host of other metals as well, they just were at lower levels than those mentioned above.
Once Nancy reviewed my test results and knew how I was responding to the treatment she modified my protocol to include a liver support, and the addition of 3-4 new products that would also help balance me out. I keep an ongoing visual journal using photos which I share with her so she can see any new developments. During chelation I was more tired, needing to take naps and sleep longer on most days. I also had some tiny red spots appear on the skin without breaking through.Red spots appear on the skin.
Based on what was going, on Nancy pulled back on the chelation so that the process is even slower and gentler until my body can adapt. Using shea butter and coconut oil mixture as a moisturizer seems to draw fibers and black particles from my skin if left on for 3-4 hours. Most are not readily apparent unless you really look for them. Hair The Morgellons has moved into my hair.


An acupuncturist, pointed out after looking at my hair photos, that there were multiple "hairs" emerging from one follicle. This is probably why my hair feels thicker even though it has been brittle, weak and falling out. Helicobacter pylori, the bacteria I had with high levels the first time I was tested, is completely gone. There was a new bacteria that showed up on this round of testing that wasn't on the previous.
Nancy feels that this is something that could have morphed, or, could have been present all along, but like peeling an onion back, was hidden under layers.
She is adding seven new supplements to my protocol to address adrenal support as sleep has become fitful and I feel somehow too 'plugged in.' Fight or flight mode. I'll be taking a prebiotic to address the new bacteria as well as some new products from Xymogen to open detox pathways. I'm excited to be moving in a new direction. Every time we do a new test, I see the value of this approach. Randomly throwing supplements at the body without being tested, with the hope that something might work, seems a dangerous practice. Not terrible full-blown itchy, just enough to let me know that I was reinfected or maybe this is an allergic flare-up.
This episode might have lasted longer than necessary had I immediately washed all my clothes but I got lazy and didn't wash them for a few days. Was not constantly itchy, but found I'd get itchy at odd intervals, sometimes once a day, sometimes not for days at a time and sometimes for a mere few seconds or so. I am putting a garden in upstate and often have my hands in the soil (without gloves) and have found that I am fine. The only itching I've got is from the occasional mosquito bite (and yes, these are real mosquitoes). Now, instead of direct application of GSE I brush my teeth twice, once with toothpaste and once with a clean brush that has two drops of GSE on it.
Note that I have been letting my supplements run out in the last few months because I needed a break from taking approx.
I wonder if the return to itchiness had something to do with my letting down my guard and not watching my pH. After the first day of swimming, I noticed small circular red blotches appear under the skin of my calves and thought, uh-oh, here comes trouble. I FINALLY have a microscope again (it was replaced after more than 7 months at the manufacturer!). I had a few breakthrough 'papercut lesions' on the hands which I don't know what to make of. I stopped the Ormus because I wanted to document F-6, which has gotten quite a buzz in the Morgellons community.
I still have 1.5 bottles left and intend to take it in a few months feeling I didn't give it a proper shot.
For now, I want to concentrate on doing one therapy at a time, so I can really be sure what each does. October 17, 2011: Began using F-6 and have started a new link documenting that experience including photos showing what is emerging from the skin.
I'm going to take it slow with this product as I don't want to have any major herxheimer episodes.
Caroline Carter, A healthcare worker that has Morgellons and works with ozone therapy (and who made her Morgellons worse with ozone saunas) said she cannot even be around it anymore. I have since talked with another person that had strong outbreaks from doing an ozone sauna. Ozone therapy is typically great for cancer, AIDS and herpes, but for this disease might make us worse.
There seems to be improvement to the hair which feels stronger and seems to be falling out less. A lot of "debris" is coming up through the skin, fibers, black particles, granules and many more fibers then ever seen before. A week and a half later I ate some quinoa with my lunch and two hours later had 3 oatmeal cookies (oatmeal, walnuts, carob chips, baking soda, vanilla).
This forage into complex carbs was unusual for me.While eating the cookies I started to itch. By the third cookie, I was having full-blown symptoms of itching, stinging and biting sensations (no crawling, thank God!). The fact that it came on with such force and was related to food, makes me think that Morgellons counts among it's causes a hyper-allergic reaction to food.
In this case, I don't really know what specific ingredient triggered the reaction.By eliminating carbs again, symptoms quieted down. I am noticing flare-ups of the arthritis in my foot which had so improved at the beginning of my treatment (but I kill my feet dancing one night a week, so that could play into this). The ones I can visually see without a scope are bigger then I've had before but there is no increase in the amount I generally see with my scope in the skin. Will keep you posted of new developments.I've noticed that when it's very hot (93-97 degrees) and my skin is exposed to the air, I have more sensations on my arms. It's not unusual to feel a single pin prick sensation on my left upper arm, often I'll feel the same type of prick mirrored in the same spot on right arm sometime later, as if they were somehow linked.The other day on my bike I felt as if I hot poker were being pressed momentarily to my arm. When I looked down, there were three distinct tract marks in that spot, about a half, to an inch long that hadn't been there before.
Since having Morgellons, it feels like the skin is no longer a reliable friend but is capable of erratic changes suddenly.
They took about 5 days to disappear.?September 27, 2012 • Live blood microscopyJust posted a new link with photos of my recent session with Rick Panson, a microbiologist and healthy body coach who did a live blood and dried blood microscopy and gave me additional guidance for my health. It's a bird's eye view into the system, giving a fuller, deeper understanding of what's going on  then just looking at lab results—although lab tests have their place! In the next two weeks I get more testing done so will post those results when in. There were many problems with the blood. We are in a seasonal shift and my fingers have had a few tiny papercut lesions since the change began.Started the protocol Oct.
Beginning with one pill a day of capyrilic acid with one pill olive leaf extract and 1 tsp. The L-glutamine is supposed to strengthen the gut lining and prevent leaky gut syndrome caused by the yeast die-off. Will stay on this for a few days and slowly double the dosage, then determine where to go from there.
16, 2012 Went back to Rick Panson for another live blood analysis and posted the photos under my last blood microscopy. This is encouraging for all of you who wonder how long it will take to knock back candida and even if our protocols are working.
Rick recommended Candex and Nancy told me she loved the product except now they are adding corn to Candex (and it's unknown if it's GMO corn), so she is no longer recommending it. Adrenal system had a number of markers indicating a lot of stress to the system, very low levels of vitamins C and B's, four different pathogenic bacteria showed up—Helicobacter Pylori was high, Clostridia, E.
Kreb cycle needs support. Heavy metals hair test—all toxic metals were down except arsenic which went up with cadmium. Lead which was extremely high on my first test showed a considerable decrease as well as silver but lots more chelation ahead. It's been 2 years since I started using supplements to pull the metals out and I think it will take a couple more years of work. The process is slow but steady which is a good thing because I think if the body released too much metal into the system at once there would be negative impact on the health.
Nancy pointed out that lead and cadmium are antagonistic to calcium absorption and bone health, so seeing this rise in cadmium and knowing I still have too high levels of lead makes me think that I might have to give up the painting at some point or switch mediums rather than compromise bone health. The heavy metals test also measures "essential and other elements," (minerals) It seems as a consequence of pulling heavy metals out, the minerals have been compromised. Nancy suggested this organism is a pleomorph moving from bacteria to fungus according to favorable conditions in the body. This is the third time it's changed. Feb 3, 2013 Just an acknowledgment that I just passed my 3rd anniversary since getting sick with Morgellons.
The only time I really have symptoms is when I really mess up on diet (itchiness will start) or when ?very overheated and sweating from physical exertion like dancing, where it sometimes feels like needle pinpricks are sticking my skin from the INSIDE out, accompanied by itchiness. Thieves is a great oil for preventing flu or when one is coming down with illness, but I am unclear if it can damage beneficial bacterias. Stopped taking thieves after a few weeks but do still take lemon and added in lemongrass and grapefruit to my daily capsule.
Itchiness did not return. September 22, 2013 Decided to go on Stephen Buhners herbal protocol for Lyme disease (crafted from his excellent book, Healing Lyme).
Although I tested negative for Lyme and feel fine, I don't trust the traditional testing one gets with their regular MD, and even though I don't think I'm dealing with Lyme, I can't discount the fact that so many Morgellons sufferers also have Borrelia and other co-infections that might be related to our disease which seem to improve with Lyme treatment. Also, his protocol addresses other issues I feel are pertinent to my health (even before Morgellons). Certainly, I see over time that my immune system is weak, and my gut reaction now to coasting is that it could be an eventual time bomb. I'm taking Cats Claw, Sarsaparilla root (Jamaican—which I grind in my coffee grinder), Eleuthero (Siberian Ginseng), Astragalus, Japanese Knotweed and Andrographis. To his formula I've added in Ashwagandha and Sweet Cinnamon (from Sri Lanka) for the brain, as well as nettles (excellent herb for trace minerals and general support of system) and Pau D'arco (fungal). I take a quarter level teaspoon of each herb (which is roughly the equivalent of one 00 capsule) added to some water and drink it down.
Surprisingly, I did not feel exhausted, although the protocol was pretty intense and caused a lot of flushing through the digestive system. This is not a new symptom and usually happens in the first few weeks of starting any new protocol.
As these breakouts have always been so minor and short-lived? (an occasional papercut lesion or what looks like a pin prick), I paid them little mind.
In this case, the skin continued to break open for the duration of treatment and I had some long "scratch" marks come up as well.
It seemed like the last papercut I got was deeper and for the first time I started to worry that perhaps I was giving myself a lesion problem that I might not be able to turn off. This little spot has bothered me on occasion on and off throughout the years of my Morgellons experience, but during the Buhner protocol, it itched almost constantly.
On the plus side, I could tell there was a lot of detoxification going on and all of those bitter herbs were really helpful for quelling sugar cravings. I believe I will revisit this protocol modified in the future, but for now, am taking a rest from it. Note that when I ceased treatment, the papercut and pinprick lesions stopped, although I recently had a three-inch long "scratch" appear on my leg weeks after stopping his treatment some weeks back. This was a surprise, since problems usually only show up on my hands and 3 inches is rather a statement!For the first time, the scratch resembled images I've seen for Bartonella.
There is much about it that I think is helpful, and I encourage people to study these herbs and supplements carefully, and decide for themselves if they want to incorporate them. This is a very difficult protocol and for any who have detoxification pathway issues, this could impact their health negatively. The release of toxins in a system that cannot remove them properly can be deadly, so it is important to not rush carelessly forward with something this strong. I did feel like the protocol helped me on many levels, but I could not tolerate the heart issues with pressure on the chest, burning, and breathing difficulties.
The creator of the protocol feels that Bartonella is at the core of the Morgellons infection, and Bartonella likes to set up shop in the endothelial tissue of the heart.
Thinking this was just a severe Herxheimer reaction, I went back on the protocol but was unable to advance more than one drop of each tincture before heart and breathing issues returned with a vengeance. This time, the heart issues did not abate immediately, and it's been some weeks now in which they often come back on a low level. His original protocol (which he posted on Jenna's blog and which is now removed) did not use MSM, or Silver Sol or various other supplements. It also did not include baking soda, which is not inherently a problem, but at 2 teaspoons a day, might become one.




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