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Morgellons Disease Awareness -  Artist and Morgellons sufferer, Ayla, journals her experience with the disease   I'd like to introduce myself, I'm Ayla, a 59year old artist and graphic designer who contracted Morgellons in Jan. Advantech announced first half 2014 revenues of US$580 million, up 20% from the first half of 2013, with net profit of US$79 million, up 18.9% from the same period last year.
ARBOR Technology suggests powering mobile POS as well as warehousing, transportation and medical applications with their new ARBOR Gladius 5 rugged IoT handheld. Handheld Group announced the compatibility of the Handheld Algiz 10X ultra-rugged tablet computer (see our review) and Spillman Technologies mobile integrated public safety software. Motorola Solutions announced Q2 2014 results with sales of $1.4 billion, down 7% from Q2 2013 primarily due to lower sales in North America, Asia Pacific and the Middle East.
The Unitech PA700 is a rugged industrial handheld with a large 4.7-inch 1280 x 700 pixel high-res capacitive multi-touch display. Though Android dominates the smartphone market and has a very strong position in tablets, until now Google's OS platform was not available for desktops and conventional notebooks (the Chromebook with its limited offline functionality doesn't really count). Winmate's newly posted inventory management application video featuring their rugged M101B tablet. The latest Juniper Systems blog reports how a log scaler in Idaho became instrumental in saving lives in a big-rig accident that also involved a fierce fire, and how the log scaler's old Juniper Allegro CX rugged handheld, running Elecdata log scaling software, became partially melted, but still worked after the event (which had a good ending). Winmate announced that their rugged Panel PCs are now available with Intel "Haswell" 4th generation Core processors. Datalogic announced it is inaugurating its new 23,680-sf manufacturing operation in Brazil, their first in Latin America. The Streetsboro Gateway News reports that the Streetboro police department will get Getac F110 tablets for its police cruisers.
ADLINK Technology, which provides cloud-based services, intelligent gateways, and embedded building blocks for Internet of Things (IoT) projects, announced its sponsorship of the Cornell University Autonomous Underwater Vehicle (CUAUV) team's entry into the 17th Annual International RoboSub Competition held at the Space and Naval Warfare Command Research facility in San Diego, CA. Panasonic's Toughpad FZ-M1 is a fully rugged Intel Core i5-based Windows tablet with a 1280 x 800 pixel 7-inch IPS capacitive multi-touch display that can handle gloves and liquids.
Those nice, friendly people at Juniper Systems in Logan, Utah, can be really mean and twisted when it comes to testing their own rugged handhelds.
Microsoft Global Security (MSGS) officers spent too much time monitoring and enforcing parking policies on Microsoft corporate campuses. Datalogic announced preliminary sales revenues for Q2 2014 of 115.8 million Euro, roughly the same as they were for Q2 of 2013.
Motion Computing announced that Western Farmers Electric Cooperative (WFEC) has improved operational accountability and reporting by extending its Esri geospatial information system (GIS) into the field onto Motion Rugged Tablets with Blue Dot Mobile Field Service Solutions. Winmate announced the addition of several new wide-screen products into their Intel Bay Trail-based Panel PC lineup. With the DLI 9008, Data Ltd offers a remarkably light and handy, yet still rugged, Intel Bay Trail-powered tablet computer primarily intended for retail and hospitality deployment. Datalogic added the Elf Healthcare PDA, which clads the (otherwise mostly unchanged) legacy Elf electronics into a chemically resistant plastic enclosure that won't get harmed by most major cleaning agents. Xplore Technologies announced that it has secured its first purchase order of more than half a million dollars for its Bobcat tablets from a leading U.S. Motorola Solutions reports that Troy Design & Manufacturing, a Ford Motor Company subsidiary, is using Motorola FX9500 fixed RFID readers and AN200 RFID antennas integrated with Lowry Solutions work-in-process manufacturing software, TDM's "hands-off" RFID solution tracks vehicles from the moment they enter their cells and monitors and guides each step of its more than 150 daily vehicle conversions.
In its latest mailing, Curtis-Wright Defense Solutions suggests jump-starting any technology upgrade program with the rugged DuraCOR mission computers from their Parvus division in Salt Lake City, Utah. Mi-Corporation, which is best known for its enterprise-class e-forms, announced that Doyle Security Systems is realizing significant expense control and productivity gains following the first four months using its new digital sales order entry system. Juniper Systems' GetRugged blog usually concentrates on specific applications and how-to posts, as opposed to more general contemplations.
ABI Research estimates that the number of developers involved in Internet of Things (IoT) activities will reach 1.7 million globally by the end of 2014. In their blog, MobileDemand lists Eight Reasons Why Route Sales Personnel Need a Rugged Tablet, and also reports on the rugged PC use by Ben E.
JLT Mobile Computers, developer of rugged computers for demanding environments, is celebrating 20 years of delivering rugged computers by awarding the customer of its 90,000th computer with a specially extended 20-Year Service Agreement. Motorola Solutions introduced the third generation of one of the industry's most successful mid-range rugged mobile computers. The Gammatech Durabook S15H, successor to the company's earlier Durabook S15C, is a 6.6-pound notebook computer designed to be tougher and more durable than standard consumer notebooks, but without the extra size, weight and cost of a fully rugged design.
Panasonic has expanded its relationship with Hendrick Motorsports with a new multi-year agreement that includes primary sponsorship of the No. Even professional users of rugged laptops, tablets and smartphones, are sometimes unsure of what defines a "rugged computer" and how the various tests to validate ruggedness are carried out.
ADLINK Technology has released the NEON-1040 next-gen rugged camera as part of their ADLINK Vision platform.
North Central Emergency Medical Services Cooperative (NCEMSC) has awarded Milwaukee based, TKK Electronics, with a major national contract for providing information technology which includes the Getac line of rugged computers. Every now and then we need to mention some of the truly useful gadgets that come into our lab, that we end up using all the time, and that a lot of our readers out there could probably use, too. Another Advantech industrial board for embedded systems we reviewed is their tiny (95 x 95 mm) SOM-6894 COM Express Compact module that can be used with a variety of Intel 4th generation Core processors and drive up to three independent displays.
Smith Micro announced the release of two new QuickLink Mobility solutions targeted for enterprises and public safety agencies. It's always been our belief that docks should be just as rugged and well-sealed as the devices they are being used for. Panasonic announced an Intel "Bay Trail" Celeron N2807-powered version of the FZ-M1 7-inch rugged Windows tablet as a more affordable alternative to the standard FZ-M1 (see here).
NEXCOM announced it has upgraded its APPC series of rugged industrial panel PCs to the Intel Atom E3800 family of processors. Magellan NAV 1000 shipped in May 1989 and revolutionized marine navigation with its handy size, portability, price and low power consumption.
Juniper Systems' Mesa Rugged Notepad is being used with Turner Industries' MobileOps software solution for preventive maintenance. CipherLab announced it will exhibit at the FMI Connect 2014 show at McCormick Place, Chicago, June 10-13, 2014 at booth 3864. Juniper Systems reports it is headed to ACE14, the American Water Works Association's (AWWA) annual conference and exposition from June 8 a€“ 11.
The Handheld Group's rugged Nautiz X4 is a multi-purpose data collection mobile computer with integrated keypad and industrial-grade scanner options. Motion Computing announced Thames Water Utilities Limited will standardize on the Motion F5 Tablet PC for its above ground asset management, maintenance and field service operations. Hundreds of millions of tablets and smartphones have spoiled users who now want sleek state-of-the-art consumer technology out there in the field as well. Datalogic announced it has deployed more than 600 Datalogic mobile computers for automotive safety systems manufacturer, Autoliv, across their European plants. Motorola Solutions announced the expansion of its portfolio of Android-based enterprise mobile computers with the availability of the TC55 touch computer for the Verizon network, along with new options for Google Mobile Services. If you have employees in the field performing maintenance, inspections, or installation of appliances, equipment, homes, machinery and more, you want a fast and safe way to collect payments once the job is complete without the hassle of paper invoices? Getac announced it has upgraded its flagship X500 ultra rugged notebook and X500 rugged mobile server. Android and Apple's iOS, saw their combined market share swell to 96.4% for the quarter, leaving little space for competitors. Spillman serves more than 70,000 public safety professionals across the United States, including police departments, sheriffa€™s offices, communication centers, fire departments and correctional facilities. Whereas Motorola Solutions used to break down financials into Government and Enterprise segments, the sale of the Enterprise business to Zebra Technologies in a $3.45 billion all-cash transaction means that from now on Motorola Solutions will report sales broken into Products and Services. That has now changed with the new HP SlateBook, a full-function, quad-core Tegra 4-powered notebook with a 14-inch 1920 x 1080 pixel 10-point multi-touch screen, and running Android 4.3.
RhoMobile is a set of application development tools for creating OS- and device-agnostic enterprise-class mobile apps that now offers per-developer subscription pricing in an effort to allows developers to compare plans and use RhoMobilea€™s framework to deliver enterprise-class mobile applications without restrictions. The CS4070, which has a full-shift battery, can easily pair with in-room computers, laptops, tablets and workstations-on-wheels. This article describes the past and current situation of touch in rugged tablet computers, and why the technology employed by Panasonic in the FZ-M1 is so relevant. Located in Jundiai in the state of SA?o Paulo, the plant assembles selected Automatic Data Capture product lines. It's a small deployment, but a spokesman's argument for tablets instead of notebooks is interesting: "There is not much change at this point in how the officers interact with the tablet vs. The CUAUV's Gemini submarine is powered by ADLINK's Express-HL COM Express computer-on-module with a 4th gen quad-core Intel Corea„? i7 processor. And they even document their cruel and unusual treatment of their fine technology that surely deserves better than beaten up, clubbed, stepped on, scratched, tossed and run over.
To address this challenge, MSGS worked with IRSA Video to customize an automated License Plate Recognition solution.
To improve the quality and reduce errors in these systems, Automotive OEMs and suppliers are requiring good diagnostic tools to detect and discover any failures which appear in automotive systems. Motion and WFEC will share details on the successful project at the Esri International Users Conference July 14-18 in San Diego. We examined the cost-efficient Advantech MIO-5271 that comes with a choice of two haswell processors (Celeron 2980U or Core i5-4300U). The Windows Embedded Handheld 6.5-based Elf Healthcare PDA is equipped with the Datalogic patented "Green Spot" and a vibrating alert providing good read feedback while avoiding noisy beeps. They include a move to a quicker 4th gen Intel "Haswell" Core i5, Windows 8.1 Pro, better battery life (up to 10 hours), an optional bridge battery, improved multi-touch that can handle rain and gloves, optional self-encrypting drives, a much higher resolution camera (8mp vs. Plant floor operations are much more fluid with reliable automated data capture, and the system is providing further insights into the facilitya€™s conversion capabilities.
Externally virtually identical but with slightly different electronics, both versions have 14-hour hot-swappable batteries, FIPS 140-2 Level 1 security, and sunlight-readable HD capacitive 1280 x 720 pixel touchscreens that work with gloves. The company stresses how the modular, COTS-based, subsystems eliminate NRE costs and reduce time-to-deployment.
Doyle Security Systems had successfully moved its entire paper-based sales order entry system to a digital system using Mi-Forms mobile forms software on iPads. The latest entry is no exception, explaining Futura Systems' GPSStaker, a new pole staking application. The size of the ecosystem is expected to exceed 3 million developers in 2019, approximately 10% of all software developers. There are various near, far and long-range laser and imager options, a 6-foot drop spec, IP65 sealing, pistol grip, etc., making the 9700 an interesting candidate for all sorts of new and legacy applications. It reflects the quality built into every single PC the company manufactures, with many of the very first models still being used today. The Bobcat, which starts at US$2,199, adds a formerly missing piece that further broadens and expands Xplore's reach in the rugged market. It's a very solid, trust-inspiring machine with a large 15.6-inch wide-format display, good connectivity, and good day-to-day functionality. 24 team of four-time NASCAR Sprint Cup Series champion and current points leader Jeff Gordon. A truly rugged computer is so much more than just a normal computer wrapped in a tough outer case, as Handheld's CEO Jerker Hellström explains in this article. NCEMSC is a group of more than 3,800 emergency medical services (EMS) organizations in 49 states and several international provinces. Our review board came with the low-end (but still part of Haswell) Celeron 2980U and gave us an opportunity to see how its performance compares to both high end Core as well as older Atom configurations. QuickLink Mobile VPN for Android and QuickLink Unified Connection & Security Manager for Windows 8.1 provide flexibility and control to expand mobile security and connectivity to a variety of mobile devices beyond legacy Windows-based platforms. That's what RAM Mounts offers with their new RAM docking station for the Harris RF-3590 rugged Android tablet. The Atom E3800 is part of Intel's Bay Trail lineup and consists of single, dual, and quad core embedded SoCs, based on Ivy Bridge Intel HD graphics. There weren't high-res maps that you could zoom and pan back then; the NAV 1000 just provided the user with an LCD readout of latitude and longitude expressed in degrees and minutes. It's for storage, but the warehouse is also inherently one of the most mobile environments. Ciperlab will show how their dedicated OS handheld can help with Intelligent Order Entry solutions or a Telxon replacement solution.
Held in Boston, Massachusetts, ACE14 (see conference page) is a high-traffic attraction for professionals and vendors in the water industry.
The F5 was chosen as the clear favorite in user testing with 86% preferring the Motion device over two alternatives. As Autoliv aims to reduce traffic accidents and injuries with their products and systems, the company needed to optimize efficiency in production line and warehouse operations with state-of-the-art technology, fast operation, ease of use and robustness. The Standard Configuration comes with GMS, which includes Google Maps, Gmail, the Google Play store, Google Search, Google Talk, and the Chrome browser. By incorporating 4th-generation "Haswell" Intel Core processors and related technology, as well as discrete nVidia graphics options, the new X500 versions now offer state-of-the-art performance, an enormous benefit to the technologically advanced military and industrial customers who rely on speed and efficiency when working in some of the world's harshest and most demanding work environments. Though the case study is primarily about deploying Microsoft Office 365 ProPlus to the 3,400 employees of the San Bernardino County Sheriff's Department, the project also included providing patrol officers with rugged tablet PCs running Windows 8.1. The introduction of Linux to the Yuma 2 tablet enables the mobile use of a wide variety of free and open source applications. I'm 18 years old.When I was born there were only about 100 known cases of Moebius Syndrome in the world.
I've been moved to create awareness tools that help educate healthcare practitioners and the public about Morgellons Disease (see Awareness Poster) as well as share what I've learned from this experience.Many of the skin photos in the photo galleries are mine.
In fact, Android alone accounted for 255 million devices, dwarfing even Apple's 35 million.
Philip Sassower, Chairman and CEO of Xplore, said, "We are extremely pleased with the year-over-year revenue growth of 41%. The IP65-sealed device can handle 4-foot drops, has a wide operating temperature range, and was designed to meld contemporary smartphone functionality and ease of use with industrial-grade data capture and durability. Security officers interact with the system through the Getac B300 Ultra Rugged Notebook that runs IRSA-authored client software on Windows 8.1. Each size screen is available in one of Winmate's three housing options: IP65 front-sealed, chassis or panel mount, or open frame. Note the innovative 5-in-1 module that attaches to the back of the tablet and offers scanning, RFID, MSR, keypad, and smart card reading. With the Core i5, the 5.7 x 4 inch board has performance comparable to a high-end rugged mobile tablet or notebook. The railroad selected the fully-rugged Bobcat to help achieve cost savings and increased mobility in its yard operations by consolidating from a two-device model to a one device operation. This is certain to have a massive impact on the rugged computing and embedded systems markets.
Its PICMG 1.3 compliant design based on half-size SHBs and SHB backplanes offers desktop PC functionality in a passive backplane implementation optimized for more demanding environments such as industrial automation, but also military, medical and telecom applications. Smith Micro said that in many industries where field equipment must be ruggedized, demand for smaller form factors is driving rapid replacement of larger laptops to ruggedized Windows 8.1 and Android tablets and smartphones.
Weighing just 2.5 pounds, the dock carries an IP65 ingress protection rating and can be mounted in numerous ways.
VDC reported that rugged mobile device shipments were US$5.4 billion in 2008, and predicted a bleak 10% decrease for 2009.
In Booth #658, Juniper will show its rugged handheld computers, preferred by water professionals for their ultra-ruggedness and reliability. RuggedPCReview examined the Nautiz X4 in detail and found it to be a small and handy mobile computer well suited for reliable and efficient data capture and data communication tasks in the field, and one that fits right into most enterprise infrastructures. The tablets will be rolled out as part of a phased introduction this summer to replace a fleet of legacy handhelds. In order to achieve this, Autoliv chose to deploy Datalogic Falcon X3, Skorpio X3 and Memor mobile computers to work with the new SAP system. RUGGEDBOOK will show four exciting new rugged Windows tablets based on state-of-the-art Intel Bay Trail and Haswell technology (for sneak previews, see Rugged Tablet PC 358, 751, 760, and 770).
The Professional Configuration does not include GMS and prevents Google data gathering of user location, keypad entries and search activities while providing customers with control of application and OS upgrades.


And those tablets were Getac V110s, prominently featured in the YouTube video accompanying the case study.
Revenue in all major regions grew, with the largest percentage increases in Europe and Asia Pacific. It's not a rugged product, but Android availability on desktops and laptops may change everything. Winmatea€™s next generation 8.4a€? tablet running Windows 7 was the perfect tool for the job. The original FZ-G1 scored some of the best benchmark numbers we'd seen, and these tech upgrades make it even quicker.
The blog post explains how it works, and why Juniper's Archer 2 is the perfect hardware platform to run it on. 24 team in two Sprint Cup races annually and as an associate-level partner in all other events.
We reviewed the Getac PS535F and reported that Getac expected to be the #2 rugged PC vendor by 2012.
The tablet, running Windows 8, will run Thames Watera€™s SAP and ClickSoftware asset and field management systems.
There's USB 3.0, a microSD card reader, mini DisplayPort, and a cover that's also a keyboard. Other Linux distributions or releases are available by request, with volume commitment or engineering payment. Finally I was able to go home, but I had problems feeding and lost a lot of weight, so I had to go back into hospital.A When I was about nine months old I had two operations to correct my crossed eyes. What it all means is that Motorola Solutions will more or less return to its root business of radio and communications products and services, whereas the acquired Symbol and Psion rugged mobile computing operations go to mobile printer maker Zebra.
It will mark the first on-car branding for Panasonic since joining Hendrick Motorsports as a technology partner in 2007. As a result, a rugged PC mounted on a forklift can set you apart, says MobileDemand CEO Matt Miller. The Surface Pro 3, which starts at US$799 (but goes as high as US$1,949 for a loaded model) has a pen which, interestingly, is from N-Trig and not Wacom (N-trig also replaces Atmel for the Surface 3's touch capabilities). Like most, I panicked bought a lot of unnecessary products—some toxic, then managed to pull myself back from the brink of actually hurting myself. This brings to an end Motorola's attempts in mobile computing that included such interesting projects as the mid-1990s Marco and Envoy handhelds and the Forte CommPad rugged tablet. Always wary of doctors, I tried to stay out of that loop but finally caved when my beloved ones pressured me to seek help.
It upset me greatly, as I couldn't understand why people made fun of me and made me feel so different. A dermatologist gave me Ivermectin which caused a Herxheimer (die-off) reaction and many of the black particles I'd been seeing with a scope surfaced. Primary school is meant to be fun, but for me, school was associated with insults, teasing, crying, and my parents' obvious inability to understand - how could they, neither of them have Moebius.A When I was seven years old, I had my third operation, the first attempt of doctors to correct my non-responsive mouth. This gave me great relief from the discomfort of what felt like fiberglass embedded in my skin. It took nine hours for them to cut out a portion of the muscle in my left thigh and transplant it into my cheek.
There were NO fibers visible in my skin in the previous months before taking the medication. It was the first time I could use the left side of my mouth and my smile has so far been the greatest gift I have ever received.I had several operations later on to try and sculpt my lip.
My speech grew worse, as I continued to find it hard to pronounce letters such as 'b' and 'p', even pronouncing my last name, 'Boffa', was difficult.
Within two days of taking the Ivermectin, I watched in horror as fibers started to rise to the surface of my skin. It upset me greatly when people were not able to understand what I was saying, and it still does sometimes.A High school was a completely different experience. That plus coming off the tail-end of the pharmaceutical seemed to stop all the symptoms of itching, biting and crawling for approximately the next 4 months. Even though there were the occasional taunts, I was able to adjust and relax.A When I was 14 I was diagnosed with clinical depression.
The only thing that hadn't cleared up was the hyper-sensitivity to my skin which I thought I was stuck with for the rest of my life, an unfortunate consequence of having Morgellons. Had I not been actively using a microscope to look at my skin during this period, I might have presumed I was well. The skin however, doesn't lie and told a whole other story for under it's surface, fibers and particles were clearly still present—multitudes of them. Early on, I'd heard about the testing that Pam Crane of Morgellons Focus On Health (site no longer active) was championing and felt that it was probably the way to go. My only problem with moving forward was a lack of practitioner, as I felt having the best testing in the world wouldn't mean anything unless someone was up to the task of decoding it's contents into a meaningful protocol, sort of like buying a Cadillac that arrives without the key. I wanted to have a conversation with whatever doctor I was going to see and to hear them speak about their philosophy of healthcare. I felt like an outcast.A I began seeing a psychiatrist every couple of weeks and taking medication. My depression was hard to deal with but now that I have finished school and am starting university I think I have finally beaten it - my dosage has been largely reduced and I see my doctor less and less.A The last operation I had was just over two years ago. Just try to get a physician on the phone before actually making an appointment and you will find it is an impossible task (especially the high-end specialists). My left eye had been bothering me, it was unable to blink and was always getting infected through dust blowing into it.
She talked about The Great Plains Labs and why the testing used in Functional Medicine is so important for our community. Even though my eye still gets heavy and droops sometimes, anything beats having dust in it.A More surgery is a possibility, and my family encourage me to make my own decisions, but for the moment, I am happy and confident. She sounded like she knew how to do her job well and was more than capable, indeed she had impressed me as understanding how to approach the disease in a holistic manner that aligned with my own healthcare philosophies. I believe my first words to her were, "Where do I sign the dotted line?" (While focusonhealth has been taken down, here is another radio show with Nancy speaking with Pam. I have friends and family who love and support me, and a smile which, although crooked and bulky, I use every day.A Having Moebius has been both a challenge and a blessing. Let me remind you that I felt fine when I first contacted Nancy, but the emerging fibers showed me I was not. I feel that through my condition I've been able to understand so much more and to appreciate the simple things.
Nancy forewarned me that treatment would kick up all the initial symptoms I had when first ill with Morgellons, such as itching and stinging and that I might experience more fatigue with die-off, possibly even get lesions although I hadn't had many lesions previously. Within a week and a half of beginning this new protocol all the discomforts she mentioned came back.
Black particles began coming out from the skin, sand-like crystals were suddenly pushing from the scalp, I was itchy and uncomfortable but this time around it was at a much lower volume then at onset.
I have experienced some lesions, in the form of 'papercuts' and blood spots appearing on the skin.
I am proud to live with confidence and be comfortable with myself, cos hey, symmetry is really overrated, and who says a smile has to look 'perfect' or 'normal'. They were tiny and healed quickly. It took close to 3 months for the symptoms of this detox to disappear, lessening with each week. We added in another few products to my protocol fine-tuning the process. Once all my symptoms had abated I was ready to move on to the next step and do a colon cleanse. I used supplements for one month that gently cleansed the colon (Colon Cleanse by DaVinci Labs??). After that, I began with chelation therapy (Chelex by Xymogen) to remove heavy metals. Nancy has taken me through this journey with constant support through email.
The doctors present didna€™t know what was wrong with me, and soon after I was born I was separated from my mother and transferred to another hospital for testing. The fact that she is able to tell me what I can expect and interpret what I am going through is invaluable. My parents were young and I was their first child, and I can only imagine how hard it would be to go through a fairly uneventful pregnancy only to give birth to a child with undetected, unsuspected and undiagnosed problems. Having gone through the early treatment phases and emerging symptom-free, makes me feel that I did indeed work through something—hopefully clearing biofilm. So where am I right now and what are the changes that happened over these few months of treatment?My skin cleared of many of black particles, although I still have them (my great lament was that I didn't have a camera back when I first got sick, because my skin was so saturated it was alarming!). I had difficulties feeding, and my parents told me that I lost a lot of weight as an infant. A diagnosis of Moebius Syndrome finally came when I was about four months old.A About three-quarters of my face is paralysed. While I can move the right side of my face relatively easily, there are limitations in what I can do. I have a crooked smile, a deformed tongue and overlapping toes; problems drinking, eating and cleaning my teeth.
I have been told that in the future, my face may droop because muscles dona€™t work properly or well enough to hold up my features. But at the moment, these are minor difficulties or prospects that I can overcome and work with.A I had my first surgery (to correct my strabismus) when I was around nine months old.
I have worn glasses since I was about one year old, and the surgery helped to straighten my vision. I also wore patches until I was about five to correct my lazy eye.When I was seven, I had my first plastic reconstructive surgery, in which my surgeon transplanted a piece of the gracilis muscle from my left thigh into my left cheek. It was a major operation that took nine hours, and I was in hospital for about two weeks afterwards.
Actually, I feel spry and 10 years younger than my 55 years of age (at the time this was written), an unexpected and very welcome gift. I dona€™t remember very much about the surgery or the time afterwards, but I know it had a significant impact on my life.
I could a€?smilea€?.A Since that operation, I have had several more revisional surgeries on my mouth and left eye. Still, they are here and I am monitoring them carefully. I am convinced of the value of the Great Plains and Metametrix testing.
It just makes sense that one would want to know the particular weaknesses of their body before embarking on a journey of healing.
My speech has improved, as has my ability to eat and drink.A Around the time I had the last operation on my mouth, I also had a gold weight implanted in my left eyelid. Getting the labwork done and seeing Nancy are the two smartest things I did throughout my ordeal. Morgellons for me is like that impossible teacher I had in my youth. My left eye is more affected by Moebius than my right, and could only close about three-quarters of the way. As a result it would get tired and Ia€™d have eye infections and conjunctivitis quite frequently. But it has also left me savoring hard-won battles and set me straight on how to live more in balance. I recently needed to have the weight removed as it was causing me a few problems, and am currently resting my eyes and waiting to recover completely.A A Until I was thirteen, I had no real idea of why I had paralysis and why I couldna€™t do certain things. Therefore, I try not to rail against the unfairness of the experience, but to look at how much I learned and the ways in which it has stretched me as a human being. Ia€™m sure my parents told me about Moebius, but their understanding of it is not extensive. Yes it has been a miserable teacher, but by it's hand I have been become an attentive student.I wish you all full recovery.
AylaWhile I am not comfortable sharing my protocol as it is specific to my lab results, I will outline what I feel are the bare-bones minimum I'd look to take if I were building a protocol.
This would be a good probiotic (I use 3 different kinds throughout the day as was indicated by the results of my testing). When I was little, I even thought that I was adopted and that my biological parents were people who looked exactly like me. FOS, according to Nancy can promote yeast growth so I'd stay away from a probiotic that includes it. I was just different.A Much of the information I found on the Internet was very repetitive.
Each site just gave the same list of the same symptoms, and I got tired of reading them over and over.
Yet even though the information was repetitive, I found myself with more knowledge of Moebius than Ia€™d ever had before.
My interest only increased when in Year 9 I joyfully discovered that my schoola€™s Science textbook had a whole half page dedicated to Moebius Syndrome! I'd include a biofilm buster which breaks down the cellular matrix in the gut that inhibits absorption of necessary nutrients.
My teacher asked me to speak to the class about Moebius, and I felt that in some small way I was really helping people to learn about and to understand facial palsy.A Once I started reading personal stories, I really wanted to write my own. I used Interfase Plus and Wobenzym at different times (there are different kinds of Wobenzyme. Even though I was young, I felt like I had the potential to help parents and people affected by Moebius. With my dada€™s help, I submitted stories to various support websites and had several published, and I got a few responses from people telling me how useful they found my experiences. These responses amazed me, as I was a bit doubtful of how much I could help others.A However, the most significant thing occurred in Year 8, when I was asked to present two speeches on my experiences a€“ one to the entire school, and one to the Year 12 class who would graduate before I spoke to the rest of the students. I was thirteen and very nervous, but even to this day I feel like it was one of the greatest opportunities Ia€™ve had to get Moebius and facial palsy out there.
I've used Carlson's liquid D3 which is lipid based, but recently have switched because of assimilation issues with fats to a dry encapsulated D3 (Prothera brand 5,000 I.Us a day). Several of my fellow students sent me emails and letters telling me how much they appreciated my speeches and how much theya€™d learnt about tolerance and physical difference. They have such an ability to inspire audiences to think and to change, and I truly hope that my small speech was able to do that.A Each person has their own set of challenges.
For much of my childhood and adolescence, I saw Moebius as something awful, something that I a€?suffered froma€?. I couldna€™t see that I am a€?livinga€? with Moebius, and that while it makes up a big part of who I am it does not define me. Certain of the B's can become depleted when the body is fighting infection, so a good B-complex seems necessary. Also, Mr.
For a while, I was only able to see the difficulties that Moebius Syndrome and facial palsy are accompanied by. Common Sense and now Clifford Carnicom have written about NAC and it's benefits along with vitamin C in helping quell the symptoms of our condition. I'd look into this as a close friend from the community began taking both high amounts of Vitamin C and NAC and her symptoms disappeared.
She was taking 3,000-5,000 mg of C spread throughout the day and 600 mg 2x's a day of NAC both in the morning and at night.
She eventually reduced it to 2,000 mg of vitamin C and 600 mg of NAC because the NAC was giving her headaches. When someone asked me what was a€?wronga€? with me or why I had Moebius, all I knew to say was that I was a€?born with ita€? a€“ I never thought to say anything about how I live with it.
The lesser dosage has been fine for keeping her symptoms of crawling, biting and stinging away. I was very sensitive, and not knowing much about Moebius didna€™t really help the situation. I let people get to me very easily, and for a long time I gave in to their insults and stares and saw myself as ugly and different.
When she went off the protocol symptoms came back and when she again resumed, they went away.
I couldna€™t see a€“ and maybe I didna€™t want to see a€“ that Moebius Syndrome is a blessing, not a curse.A I was brought up in a religious family, and ever since I can remember my parents have told me that God gave me Moebius Syndrome because He knew that I was strong enough to handle it. I might mention, that my protocol has always called for 1000 mg of vitamin C, three times a day. While I was not on NAC as a separate supplement, it is in another product I take daily ?(Liver Protect by Xymogen). Of course, I have asked a€?whya€?, but my questions have never turned into angry sentiments.
Nancy has stated that the clients she sees that do this first make themselves much worse and take longer to get better. I put that down to my parentsa€™ influence, and in a way, not resenting God has helped me to grow in faith.A Moebius Syndrome is a blessing to me because I can see that it has given more than it has taken away.


It has provided me with a deepened sense of empathy and understanding, with compassion, with the ability to listen, with the drive to help others and to respect peoplea€™s differences. Ia€™m not denying that there have been difficult times, but they are outweighed by the great beauty and gifts that Moebius can bring. I wanted to stop seeing myself as a victim or a sufferer, and I wanted to show others and show myself that I am not defined by my face. If I am going to do this right, I want to know what my baseline toxic load is so I can measure my progress over time. The results arrived right after I finished my third week of chelation. My total toxic representation was OFF the chart with high levels of antimony, silver, cadmium, tin and magnesium.
I am not defined by peoplea€™s stares or insults.A Moebius Syndrome has given me the opportunity to connect with some of the worlda€™s most beautiful and compassionate souls. I went from knowing of no one else with Moebius to speaking with dozens of people over the internet affected by numerous types of facial palsy.
I have a host of other metals as well, they just were at lower levels than those mentioned above. You can only imagine my joy when I discovered that a Moebius Syndrome Foundation existed and that people with Moebius actually met at conferences.
Once Nancy reviewed my test results and knew how I was responding to the treatment she modified my protocol to include a liver support, and the addition of 3-4 new products that would also help balance me out. I was, for the first time, part of a community.A Prior to my diagnosis, my parents had been told that I would never be able to walk or talk. I keep an ongoing visual journal using photos which I share with her so she can see any new developments. During chelation I was more tired, needing to take naps and sleep longer on most days. I also had some tiny red spots appear on the skin without breaking through.Red spots appear on the skin. These days, much more is known about facial palsy and about Moebius Syndrome, but misdiagnosis still occurs. Last year, I went to a plastic reconstructive surgeon to discuss any potential for future surgery and revision. Based on what was going, on Nancy pulled back on the chelation so that the process is even slower and gentler until my body can adapt.
He seemed surprised when I told him I had Moebius, as hea€™d only heard of it as existing in its classic, bilateral form.
He raised the possibility that I may, in fact, not have Moebius after all.This doubt made me realise that there is a lot that is still unknown about Moebius Syndrome.
Using shea butter and coconut oil mixture as a moisturizer seems to draw fibers and black particles from my skin if left on for 3-4 hours. Right now, there are people living in disadvantaged countries or communities who do not have medical access or support. There are people who, right at this moment, are suffering because of the worlda€™s ignorance and intolerance.A I am proud to have facial palsy. I am proud to have Moebius Syndrome and to be part of such a vibrant and lovely community, because I believe that my having Moebius was meant to be, that without it I would not be myself.A  I believe that in some way, however small or insignificant, I can create awareness and knowledge of something that does not deserve to be overlooked or ignored any longer. Most are not readily apparent unless you really look for them. Hair The Morgellons has moved into my hair.
August 8 2015 Official 2015 Moebius Syndrome Awareness Day Page Our 2014-2015 Moebiuis Syndrome Family Holiday HeroesGallery 2 Moebius Syndrome Awareness Day 2015 Video Gallery Smiling with our Hearts upon the World!
An acupuncturist, pointed out after looking at my hair photos, that there were multiple "hairs" emerging from one follicle. This is probably why my hair feels thicker even though it has been brittle, weak and falling out.
Helicobacter pylori, the bacteria I had with high levels the first time I was tested, is completely gone. There was a new bacteria that showed up on this round of testing that wasn't on the previous. Nancy feels that this is something that could have morphed, or, could have been present all along, but like peeling an onion back, was hidden under layers. It upset me greatly, as I couldn't understand why people made fun of me and made me feel so different.
She is adding seven new supplements to my protocol to address adrenal support as sleep has become fitful and I feel somehow too 'plugged in.' Fight or flight mode. I'll be taking a prebiotic to address the new bacteria as well as some new products from Xymogen to open detox pathways.
I'm excited to be moving in a new direction. Every time we do a new test, I see the value of this approach. Randomly throwing supplements at the body without being tested, with the hope that something might work, seems a dangerous practice. Not terrible full-blown itchy, just enough to let me know that I was reinfected or maybe this is an allergic flare-up. This episode might have lasted longer than necessary had I immediately washed all my clothes but I got lazy and didn't wash them for a few days. Was not constantly itchy, but found I'd get itchy at odd intervals, sometimes once a day, sometimes not for days at a time and sometimes for a mere few seconds or so. I am putting a garden in upstate and often have my hands in the soil (without gloves) and have found that I am fine. The only itching I've got is from the occasional mosquito bite (and yes, these are real mosquitoes). I feel that through my condition I've been able to understand so much more and to appreciate the simple things. Now, instead of direct application of GSE I brush my teeth twice, once with toothpaste and once with a clean brush that has two drops of GSE on it. Note that I have been letting my supplements run out in the last few months because I needed a break from taking approx.
I wonder if the return to itchiness had something to do with my letting down my guard and not watching my pH. After the first day of swimming, I noticed small circular red blotches appear under the skin of my calves and thought, uh-oh, here comes trouble. I FINALLY have a microscope again (it was replaced after more than 7 months at the manufacturer!). I had a few breakthrough 'papercut lesions' on the hands which I don't know what to make of. I stopped the Ormus because I wanted to document F-6, which has gotten quite a buzz in the Morgellons community.
I still have 1.5 bottles left and intend to take it in a few months feeling I didn't give it a proper shot. For now, I want to concentrate on doing one therapy at a time, so I can really be sure what each does.
October 17, 2011: Began using F-6 and have started a new link documenting that experience including photos showing what is emerging from the skin.
I'm going to take it slow with this product as I don't want to have any major herxheimer episodes. Caroline Carter, A healthcare worker that has Morgellons and works with ozone therapy (and who made her Morgellons worse with ozone saunas) said she cannot even be around it anymore. I have since talked with another person that had strong outbreaks from doing an ozone sauna. Ozone therapy is typically great for cancer, AIDS and herpes, but for this disease might make us worse. There seems to be improvement to the hair which feels stronger and seems to be falling out less. A lot of "debris" is coming up through the skin, fibers, black particles, granules and many more fibers then ever seen before.
A week and a half later I ate some quinoa with my lunch and two hours later had 3 oatmeal cookies (oatmeal, walnuts, carob chips, baking soda, vanilla). This forage into complex carbs was unusual for me.While eating the cookies I started to itch. By the third cookie, I was having full-blown symptoms of itching, stinging and biting sensations (no crawling, thank God!). The fact that it came on with such force and was related to food, makes me think that Morgellons counts among it's causes a hyper-allergic reaction to food. In this case, I don't really know what specific ingredient triggered the reaction.By eliminating carbs again, symptoms quieted down. I am noticing flare-ups of the arthritis in my foot which had so improved at the beginning of my treatment (but I kill my feet dancing one night a week, so that could play into this). The ones I can visually see without a scope are bigger then I've had before but there is no increase in the amount I generally see with my scope in the skin.
Will keep you posted of new developments.I've noticed that when it's very hot (93-97 degrees) and my skin is exposed to the air, I have more sensations on my arms. It's not unusual to feel a single pin prick sensation on my left upper arm, often I'll feel the same type of prick mirrored in the same spot on right arm sometime later, as if they were somehow linked.The other day on my bike I felt as if I hot poker were being pressed momentarily to my arm.
When I looked down, there were three distinct tract marks in that spot, about a half, to an inch long that hadn't been there before. Since having Morgellons, it feels like the skin is no longer a reliable friend but is capable of erratic changes suddenly.
They took about 5 days to disappear.?September 27, 2012 • Live blood microscopyJust posted a new link with photos of my recent session with Rick Panson, a microbiologist and healthy body coach who did a live blood and dried blood microscopy and gave me additional guidance for my health. It's a bird's eye view into the system, giving a fuller, deeper understanding of what's going on  then just looking at lab results—although lab tests have their place!
In the next two weeks I get more testing done so will post those results when in. There were many problems with the blood. We are in a seasonal shift and my fingers have had a few tiny papercut lesions since the change began.Started the protocol Oct. Beginning with one pill a day of capyrilic acid with one pill olive leaf extract and 1 tsp. The L-glutamine is supposed to strengthen the gut lining and prevent leaky gut syndrome caused by the yeast die-off. Will stay on this for a few days and slowly double the dosage, then determine where to go from there.
16, 2012 Went back to Rick Panson for another live blood analysis and posted the photos under my last blood microscopy. This is encouraging for all of you who wonder how long it will take to knock back candida and even if our protocols are working.
Rick recommended Candex and Nancy told me she loved the product except now they are adding corn to Candex (and it's unknown if it's GMO corn), so she is no longer recommending it. Adrenal system had a number of markers indicating a lot of stress to the system, very low levels of vitamins C and B's, four different pathogenic bacteria showed up—Helicobacter Pylori was high, Clostridia, E. Kreb cycle needs support. Heavy metals hair test—all toxic metals were down except arsenic which went up with cadmium. Lead which was extremely high on my first test showed a considerable decrease as well as silver but lots more chelation ahead. It's been 2 years since I started using supplements to pull the metals out and I think it will take a couple more years of work. The process is slow but steady which is a good thing because I think if the body released too much metal into the system at once there would be negative impact on the health.
Nancy pointed out that lead and cadmium are antagonistic to calcium absorption and bone health, so seeing this rise in cadmium and knowing I still have too high levels of lead makes me think that I might have to give up the painting at some point or switch mediums rather than compromise bone health. The heavy metals test also measures "essential and other elements," (minerals) It seems as a consequence of pulling heavy metals out, the minerals have been compromised. Nancy suggested this organism is a pleomorph moving from bacteria to fungus according to favorable conditions in the body.
This is the third time it's changed. Feb 3, 2013 Just an acknowledgment that I just passed my 3rd anniversary since getting sick with Morgellons.
The only time I really have symptoms is when I really mess up on diet (itchiness will start) or when ?very overheated and sweating from physical exertion like dancing, where it sometimes feels like needle pinpricks are sticking my skin from the INSIDE out, accompanied by itchiness. Thieves is a great oil for preventing flu or when one is coming down with illness, but I am unclear if it can damage beneficial bacterias.
Stopped taking thieves after a few weeks but do still take lemon and added in lemongrass and grapefruit to my daily capsule.
Itchiness did not return. September 22, 2013 Decided to go on Stephen Buhners herbal protocol for Lyme disease (crafted from his excellent book, Healing Lyme). Although I tested negative for Lyme and feel fine, I don't trust the traditional testing one gets with their regular MD, and even though I don't think I'm dealing with Lyme, I can't discount the fact that so many Morgellons sufferers also have Borrelia and other co-infections that might be related to our disease which seem to improve with Lyme treatment. Also, his protocol addresses other issues I feel are pertinent to my health (even before Morgellons). Certainly, I see over time that my immune system is weak, and my gut reaction now to coasting is that it could be an eventual time bomb.
I'm taking Cats Claw, Sarsaparilla root (Jamaican—which I grind in my coffee grinder), Eleuthero (Siberian Ginseng), Astragalus, Japanese Knotweed and Andrographis. To his formula I've added in Ashwagandha and Sweet Cinnamon (from Sri Lanka) for the brain, as well as nettles (excellent herb for trace minerals and general support of system) and Pau D'arco (fungal). I take a quarter level teaspoon of each herb (which is roughly the equivalent of one 00 capsule) added to some water and drink it down. Surprisingly, I did not feel exhausted, although the protocol was pretty intense and caused a lot of flushing through the digestive system. This is not a new symptom and usually happens in the first few weeks of starting any new protocol. As these breakouts have always been so minor and short-lived? (an occasional papercut lesion or what looks like a pin prick), I paid them little mind.
In this case, the skin continued to break open for the duration of treatment and I had some long "scratch" marks come up as well. It seemed like the last papercut I got was deeper and for the first time I started to worry that perhaps I was giving myself a lesion problem that I might not be able to turn off.
This little spot has bothered me on occasion on and off throughout the years of my Morgellons experience, but during the Buhner protocol, it itched almost constantly.
On the plus side, I could tell there was a lot of detoxification going on and all of those bitter herbs were really helpful for quelling sugar cravings. I believe I will revisit this protocol modified in the future, but for now, am taking a rest from it. Note that when I ceased treatment, the papercut and pinprick lesions stopped, although I recently had a three-inch long "scratch" appear on my leg weeks after stopping his treatment some weeks back. This was a surprise, since problems usually only show up on my hands and 3 inches is rather a statement!For the first time, the scratch resembled images I've seen for Bartonella.
There is much about it that I think is helpful, and I encourage people to study these herbs and supplements carefully, and decide for themselves if they want to incorporate them. This is a very difficult protocol and for any who have detoxification pathway issues, this could impact their health negatively. The release of toxins in a system that cannot remove them properly can be deadly, so it is important to not rush carelessly forward with something this strong. I did feel like the protocol helped me on many levels, but I could not tolerate the heart issues with pressure on the chest, burning, and breathing difficulties. The creator of the protocol feels that Bartonella is at the core of the Morgellons infection, and Bartonella likes to set up shop in the endothelial tissue of the heart.
Thinking this was just a severe Herxheimer reaction, I went back on the protocol but was unable to advance more than one drop of each tincture before heart and breathing issues returned with a vengeance. This time, the heart issues did not abate immediately, and it's been some weeks now in which they often come back on a low level. His original protocol (which he posted on Jenna's blog and which is now removed) did not use MSM, or Silver Sol or various other supplements. It also did not include baking soda, which is not inherently a problem, but at 2 teaspoons a day, might become one.



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