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In September of 1999, I was diagnosed with papillary carcinoma—thyroid cancer.  I want to write up my story so that others can maybe learn from the details and also be reassured that this diagnosis does not mean the end of your athletic dreams. I took the red-eye home in time to get my biopsy the next day.  Luckily, I was able to go through with it after they checked that my blood would still clot despite the Advil I was popping for the collarbone pain. Although it is a one-time treatment, it can knock the body for a loop for a couple of reasons. The second reason the RAI treatment takes a toll is that even though the thyroid is the only tissue to absorb the radiation, the rest of your body is still exposed to it while it passes through the body.  The digestive system in particular can become “stunned” and not function as well for weeks afterward among other side effects.
For these reasons, I discussed the risks of waiting to do my RAI treatment until after the Olympic Trials with Dr.
The Olympic Trials proved to be the perfect vehicle to deliver me through the cancer ordeal.
But when I didn’t make the Olympic team, I had immediately found another goal—I planned to go back to Hawaii for the Ironman in October.  If I had surgery in late August and the RAI treatment afterward, it would seriously impact my preparation for the race. I explained to them about the high absorption of radiation from the scan and my triathlon race just 10 days later—didn’t they think there was a connection?  They only wanted me out of that hospital in case I had an infectious disease.  The surgery was postponed and Dr. The second week post-surgery, I got on the elliptical trainer and indoor bike several times  and managed to fit in a few short, gentle swims (so as not to tug on the incision site), and finally a short run. Michael and I decided that he would take Jenna to visit my parents in Connecticut for a few days because I thought it would be excruciating for both of us to see each another and be unable to hug or cuddle or even have her sit next to me while I read to her.  So, on August 31, I said goodbye to Jenna and Michael and drove myself to MGH to check in that afternoon while he drove off with our blissfully unaware 18-month old in the opposite direction.
I awoke from a pretty good night’s sleep with my left perotid gland sore and swollen like a golf ball—the exact spot that had swelled up after the Cleveland race.  I immediately went back to the lollipops and also got some ice to put on it and did constant massage to keep it flushing. I kept up the lollipops and the massage and ice on my neck and it succeeded in keeping the sore perotid from getting too bad.  I noticed that the inside of my nose was red and sore—it felt like the lining had been singed.  This was powerful stuff!
I reset my sights on the 2001 season and spent extra time with Jenna and Michael and took advantage of the reduced training time to finish my taxes and play other sports like tennis for fun.  Within a couple of months, I was feeling much better and got back to a full training schedule. As a nice confirmation that my post-cancer body was as happy as my pre-cancer body, I won my 7th Pro Nationals in August of 2001.  (It helped that the swim was with the current!) I also went on to finish 5th in the 2001 Hawaiian Ironman at the age of 40.
I have periodic check-ups and so far have always had a clean bill of health.  My endocrinologist (I switched to Dr. Anyway, I decided to reduce all my risk factors.  So the next time I got pregnant, I stopped running until after my 1st trimester and Dr. This seems like a good time to wrap up this novella.  I hope these details might help some of you avoid some side effects and give you the confidence that you can get through this or whatever other hurdles you may be facing. Cancer treatment depends on factors which include the age and gender of the patient, his health record along with the extent to which the illness has spread. Choosing foods that have a low glycemic number cause smaller changes in the blood, causing nausea and weakness. I just had a complete Thyroidectomy on Wednesday Oct 10th, I too am waiting for my results to find out if It was cancer or not ?
KAREN I JUST READ YOUR STORY AND HAD A FEW QUESTIONS BUT FIRST WANT TO THANK YOU FOR SHARING IT. Radioactive iodine (131-I) is a radioactive isotope that is administered orally, in a liquid or capsule form.
Patients taking Cytomel (liothyronine or T3) should stop this medication at least 10 days and preferably two weeks prior to the admission. For women and to a lesser extent men of child bearing age, give some thought, if appropriate, to birth control, as pregnancy should be avoided for the first 6-12 months after radioactive iodine due to the increased risk of miscarriage in women who have been treated with radioactive iodine for thyroid cancer.
For patients who wish to avoid iodine rich foods and Follow a Low Iodine Diet, an overview of Iodine Content in Foods is provided. No randomized controlled studies exist to demonstrate the long term benefits of such a diet, however the available data suggests that iodine depletion may enhance our ability to take up more iodine if it is administered exogenously during the treatment.
Female patients of reproductive age should have a pregnancy test done at the time of admission to make sure they are not pregnant.
It is important to drink reasonable amounts of fluids, and to make sure your bowel habit is regular at the time of, and several days after the radioactive iodine treatment. You will be generally be seen for follow up approximately four to eight weeks after your discharge from the hospital, at which time the blood levels for thyroid hormones, TSH, and thyroglobulin will be drawn to make sure you are on an appropriate dose of L-thyroxine to maintain your TSH in the suppressed range.
As the radioactive iodine may be taken up by the salivary glands, some degree of dryness in the mouth or transient taste impairment may be noted for several weeks to months after the radioactive iodine treatment.
A summary of this information is contained within a PDF file of the UHN patient information sheet for Radioactive Iodine Administration. In order for the radioactive iodine treatment to be effective and destroy any remaining thyroid tissue, the levels of TSH, secreted by the pituitary gland must rise to elevated levels.
I am going to take a vacation in the United States immediately after I finish my treatment. The United States has recently instituted radioactive monitoring devices at some public buildings and transportation venues, which may be activated by patients recently treated with radioactive iodine. One of my friends was prescribed a very low iodine diet for a month prior to her treatment, whereas my physician did not mention this. As small amounts of radioactive iodine in body secretions may contaminate your own clothes, underwear or gowns etc, it is advisable to leave your personal clothes in the room closet and us a hospital gown for the duration of your inpatient treatment.
I have heard there is a drug I can take for my radioactive iodine treatment so I don't have to become hypothyroid. Recombinant TSH, also known as Thyrogen, is approved for diagnostic testing in patients with previously treated thyroid cancer. See Radioiodine ablation of thyroid remnants after preparation with recombinant human thyrotropin.
RADIOIODINE TREATMENT OF METASTATIC THYROID CANCER: RELATIVE EFFICACY AND SIDE EFFECT PROFILE AFTER PREPARATION BY THYROID HORMONE WITHDRAWAL VS. Although extensive long term follow-up data is limited, the available data do not indicate a difference in disease outcome in patients who received Throgen, vs. I needed to have a CT scan before my radioactive treatment-will that affect the effectiveness of the therapy?
The answer depends on the individual response to treatment, your type of work, and how well the associated hypothyroidism is tolerated. All patients are checked prior to discharge from hospital to ensure that the levels of radiation in their neck and body have returned to levels that are considered safe by regulatory authorities. Proper monitoring of patients prior to discharge generally ensures that patients are not overtly radioactive at a reasonable distance, for example, several feet away.
Surprisingly to some, the long term risks of developing second cancers after radioactive iodine are extremely small.
The low risk of secondary cancers after radioactive iodine may be related to the minimal genetic damage that the radioactive causes to normal cells, compared to other treatments used in cancer therapy such as chemotherapy or radiotherapy.
Although conventional wisdom suggests that the risk of developing a second cancer after conventional radioactive iodine therapy is low, and that the risk of leukemia increases only after very high dose radioactive iodine administration, a single study from Israel has documented the development of CML in thyroid cancer patients treated with much lower doses of radioactive iodine, but these findings have not yet been independently confirmed in other populations.
Nevertheless, there is also data which suggests that there is an increased risk of developing a second cancer in thyroid cancer patients, and the risk increases with the cumulative exposure to radioactive iodine, as outlined in Second primary malignancies in thyroid cancer patients. The evidence shows that immediately following high dose administration of radioactive iodine, there is considerable imaging of radioactive iodine in multiple areas of our bodies, as it initially circulates via blood flow in all our organs and blood vessels. My iodine scan is negative, but my physician wants to re-treatment me with radioactive iodine. In some cases, there may be a discordance between the results of the scan, which may not show much and either other radiological imaging studies, the clinical exam, pathology report or results of the thyroglobulin blood test.
My friend had thyroid cancer, and was treated with a single outpatient dose of radioactive iodine.
Although some centers use low dose radioactive iodine treatment protocols for ablation of the thyroid remnant, some evidence demonstrates that a larger dose (more than 30 mCi in Ontario), which generally requires transient hospitalization for safety reasons in Ontario, is more effective in completely ablating any remnant thyroid tissue. For an overview of expected ablation rates using lower doses of radioactive iodine in an outpatient setting, see Radioiodine dose for remnant ablation in differentiated thyroid carcinoma: a randomized clinical trial in 509 patients.
For patients who decide to have outpatient treatment, the issue of local contamination of their room and environment still needs to be seriously considered, as outlined in Iodine-131 contamination from thyroid cancer patients. Outpatient radioiodine therapy for thyroid cancer: a safe nuclear medicine procedure Clin Nucl Med.
I have heard that after a diagnostic outpatient scan, the effectiveness of subsequent inpatient treatment with larger doses of radioactive iodine may be diminished. Analysis of the clinical importance of the potential stunning effect in several hundred patients with thyroud cancer who did, or did not receive a small diagnostic dose of radioactive iodine 6 days prior to a subsequent treatment 'ablation' dose, revealed no evidence for differences in remnant ablation or tumor recurrence after 3 years of follow-up No adverse affect in clinical outcome using low pre-ablation diagnostic 131I activity in differentiated thyroid cancer: refuting thyroid stunning effect J Clin Endocrinol Metab. I want to get pregnant and I have been told to wait for a year after receiving my radioactive iodine treatment for thyroid cancer. Generally, most patients are advised to wait for 6-12 months after their last therapeutic dose of radioactive iodine before becoming pregnant. The experience of most centers has been highly favorable with pregnancy outcomes following thyroid cancer treatment. Patients should also be aware that ovarian function and ovulation may be abnormal within the first year after radioactive iodine administration, particularly in older women. The timing of the treatment depends on the type and stage of your thyroid cancer, and there is no correct fixed answer that suits all patients.
Thousands of women have had successful pregnancies after receiving treatment for thyroid cancer with radioactive iodine. The majority of radioactive iodine is taken up by your thyroid cells, but some uptake may also occur in salivary glands, ovaries and testicles, lactating breast, and the lining of the stomach. Are there any "delayed complications" following radioactive iodine treatment that may occur months to years later? Salivary gland inflammation or dysfunction has been reported, which may occur months to a year or so later.
A decrease in white blood cell counts, predominantly neutrophils and lymphocytes, may occur and persist for several months after radioactive iodine treatment. There is some experimental clinical evidence to suggest that lithium may enhance retention of radioactive iodine in thyroid tissue following administration for the treatment of thyroid cancer.
Patients with well differentiated thyroid cancer often have an excellent response to radioactive iodine, even when the disease has spread to the skeleton. My thyroglobulin level is low but still detectable and my doctor wants to treat me again with radioactive iodine.
Some  patients will have a low thyroglobulin (Tg) level while taking thyroxine, but the level of Tg will increase significantly when thyroxine is withdrawn or a patient is given recombinant TSH. Uptake and accumulation of radioactive iodine in the liver after treatment for thyroid cancer is extremely common, and does not imply the presence of residual cancer in the liver or elsewhere.
There is very little good data that addresses this issue, but some studies have reported a transient decrease in sperm counts in treated subjects, and rare cases of testicular damage in younger males have been reported.


There is some degree of individual variation in how patients will eliminate the radioactive iodine in the urine and stool, but in most patients, the majority of administered radioactive iodine has been excreted after 48 h. The answer is yes, however special attention should be given to the dose of radioactive iodine administered, and the timing and frequency of dialysis after radioactive iodine administration. The points had been accumulating since 1997—I had my work cut out for me since I had missed the first two seasons for the hamstring mishap, pregnancy, and the truck incident. Daniels.  The two Trials races were in April and June, which would mean delaying for an extra three months (typically you wait two months after surgery anyway). I had never meant to take a risk by delaying my treatment and did not want to be perceived as having done so (though some media had decided that fabricated angle made a better story).  I took my health very seriously and would never risk it for a sport, especially with a one-year-old daughter relying on me to be around a while. I knew the cancer treatment came first, but I also knew that it would help me if I continued to have goals to get me through it.  I decided to do my best to train for it despite the treatment and see how I felt as race day drew nearer. William Burtis in Concord for my ongoing care once the RAI treatment was complete) checks that my thyroglobulin levels are undetectable (which means that the thyroid is not producing any), my free T4 is slightly elevated, which will keep my TSH (Thyroid Stimulating Hormone) low. Burtis agreed to reduce my levoxyl to 150 mcg to allow my TSH to rise a bit.  We don’t know if my changed medication made the difference or not, but this time the bun in the oven continued to grow and our son Casey was born in January of 2004. Knowing these are usually very motivated athletes who want to get off the couch and exercising, I was concerned for them and pushed them to tell their doctor the dose was not right despite what the blood work says.  Athletes know their bodies better than most so trust your instincts! I am 55 years of age and was diagnosed with a dead thyroid gland 9 years ago after a sever case of bacterial meningitis. Let me ask, in connection with your parotid gland swelling at the time of the RAI, did you have any residual parotid gland effects POST RAI, ie, any dry mouth, dry eyes, teeth problems? I am a 24 year old female who was diagnosed with papillary thyroid cancer 4 months after having my daughter on Jan 5 2012, but come to find out I had the cancer since 2009.
I AM 40 YEARS OLD AND MAY 14 2012 HAD A TOTAL THYROID REMOVAL THEY FOUND papillary carcinoma SAME THING YOU HAD.
I have a scheduled surgery date with Dr Gaz in October however I am wondering if I shouldn’t move it up some.
Had thyroid biopsy 10 days ago and still haven’t heard from my doctor about my results.
Coaching my Computrainer classes at Fast Splits Multisport new location in Needham starting soon. The majority of radioactive iodine is taken up by your remaining thyroid cells, since the thyroid normally uses iodine to make thyroid hormone.
For an overview of the considerations relevant to outpatient therapy of radioactive iodine, see Treatment of thyroid carcinoma: emphasis on high-dose (131)i outpatient therapy.
A retrospective study of patients who followed either a normal or low iodine diet prior to radioactive iodine administration has been done. The majority of patients can work and function normally during this time, although energy and cognitive function (memory, concentration etc) may be slightly impaired in some individuals) and most patients clearly exhibit reduced quality of life parameters when this is formally assessed by objective testing. Chewing gum, or sucking on hard candies intermittently throughout the admission, starting 24 hrs after the administration of radioactive iodine, will help discharge the radioactive iodine from the salivary glands and lessen this inflammation.
Some patients may experience nausea, stomach upset and rarely vomiting, for which relief in the form of medications such as Gravol can be provided.
The radioactive iodine that is not taken up by thyroid cells must be excreted in the urine and stool before patients can be safely discharged. Patients with a known history of heart disease or who may be at risk for developing heart disease should consult with their physician before combining T3 and T4, even for short periods of time. In some centers, a total body scan is done, from several days to 2 weeks following administration of the radioactive iodine. TSH, also known as thyroid stimulating hormone, stimulates the thyroid cells to take up the radioactive iodine. Others will take Cytomel (T3), which must be stopped ~ 14 days prior to the radioactive iodine treatment. Patients planning on traveling to the US within a month of treatment should take a medical letter from their physician attesting to their diagnosis and treatment. In fact, there is no long term data to support this contention, and the short term data argues against the efficacy of a low iodine diet as a factor in the success of treatment.
Patients will have a telephone and a television in their rooms to maintain contact with the outside world. Similarly, due to the risk of contamination and the fact that sometimes things go missing from the hospital, leaving all jewelry at home may be a prudent strategy.
See Ablation of Thyroid Residues with 30 mCi (131)I: A Comparison in Thyroid Cancer Patients Prepared with Recombinant Human TSH or Thyroid Hormone Withdrawal.
While some centers recommend waiting 3-6 months after receiving contrast before proceeding with radioactive iodine, one study shows that by 1 month, urinary iodine excretion may be very similar to that measured at 6 months. Some patients feel minimal fatigue and no major discomfort, despite having very low levels of thyroid hormone. For otherwise young healthy patients who are self-employed and not in close intimate contact with co-workers, some patients elect to start work immediately, as they feel relatively well and want to keep busy. Using common sense, it seems reasonable to avoid intimate contact for a few days (kissing, hugging, sexual activity, sharing food etc) as there may still be small trace amounts of radioactive iodine in saliva or other body fluids and secretions. For an overview of the type of technical studies that have been done to assess this issue, see Hospital discharge of patients with thyroid carcinoma treated with (131)i.
Nevertheless, hair loss can be associated with changing levels of thyroid hormone, and may be experienced by some patients with hypo or hyperthyroidism. See Chronic myeloid leukemia following 131I treatment for thyroid carcinoma: a report of two cases and review of the literature. Hence it is not unusual for patients to be treated with radioactive iodine, even if an initial diagnostic total body scan shows no significant evidence for abnormal iodine uptake. Outpatient radioactive treatment of thyroid cancer has also been explored in several Canadian Centers, as outlined in Outpatient treatment of thyroid cancer using high doses of iodine 131.
Although there may be occasional patients in which a small outpatient 5 mCi dose may have a small effect on subsequent thyroid uptake of radioactive iodine, this does not seem to be a common problem, as reviewed in Absence of thyroid stunning after diagnostic whole-body scanning with 185 MBq 131I. Although ovulation and menstrual periods may be slightly abnormal in the year immediately following radioactive iodine administration, ovarian failure is extremely rare, and there does not appear to be an increased risk of congenital abnormalities in babies born to this population of women. See Temporary ovarian failure in thyroid cancer patients after thyroid remnant ablation with radioactive iodine.
Additional factors that need to be considered include the importance and benefits of breast feeding, versus the psychological implications of deferring cancer treatment.
Common side effects include stomach upset, and some degree of neck tenderness, and reduced sense of taste for a few weeks if saliva is diminished.
This may manifest as decreased saliva, altered taste sensation, or rarely, gum or teeth problems.
See Nasolacrimal drainage system obstruction from radioactive iodine therapy for thyroid carcinoma. Interestingly, in a small retrospective analysis of patients with thyroid cancr and diabetes, individuals taking metformin had significantly less reduction in their WBC counts after radioactive iodine.
While still experimental, this type of combination therapy may be useful in selected patients. For an overview of one center's results, see Outcome after radioiodine therapy in 107 patients with differentiated thyroid carcinoma and initial bone metastases: side-effects and influence of age. In patients with an abnormal Tg rise, this can indicate the presence of occult thyroid cancer.
To review studies examining this issue, see Association between Residual Thyroid Carcinoma and Diffuse Hepatic Uptake of 131I following Radioiodine Ablation in Postoperative Total Thyroidectomy Patients and Hepatic visualization on iodine-131 whole-body thyroid cancer scans. Nevertheless, analysis of fertility and pregnancy outcomes in the setting where the father had received radioactive iodine treatment for thyroid cancer revealed no significant impairment in fertility, nor any problems with the children. See Iodine-131 treatment of thyroid papillary carcinoma in patients undergoing dialysis for chronic renal failure: a dosimetric method. It may occur in childhood, but is most often seen in adults around the age of 45. The cause of this cancer is unknown.
We scheduled the biopsy for early December, which gave me the opportunity to do one more race for the season, a draft-legal race in Mexico, to boost my ranking.
I was placed on Levothroxine 125 MCG’s and was told I would have to take it for the rest of my life. It has made me feel like I’m not alone and whatever my results are, I will fight and survive! Patients who followed a low iodine diet had greater retention of radioactive iodine in the neck, and a modest but significant increase in objective parameters indicative of thyroid ablation, such as levels of thyroglobulin assessed 6 months later after withdrawal of thyroid hormone. It is not uncommon for patients to notice some dryness of the mouth or decrease in taste sensations for a few weeks after the radioactive iodine, due to its effect on the salivary glands. If you are already feeling queasy or nauseated prior to ingesting the radioactive iodine, consider taking a Gravol before the radioactive iodine pill to minimize the chances of vomiting.
Accordingly, it is a good idea to make sure that your bowels are moving regularly to enhance elimination of the radioactive iodine from your system. As small amounts of radioactive iodine may remain in your body for several weeks after the radioactive iodine treatment, breast feeding should also be discontinued in nursing mothers. For the levels of TSH to rise, the levels of thyroid hormone must have dropped to very low levels. Hence, although many patients are understandably anxious to complete their treatment as soon as possible, it is quite common for radioactive iodine to be administered from 4-8 weeks after surgery has been completed. Hence, it does not seem to be a key factor that affects the success of treatment, and physicians cannot point to any data showing that following a low iodine diet influences survival or disease recurrence.
It is possible for acquaintances to stand outside the door and talk to patients if desired.
Hence, if their is any radioactive contamination of the hospital gown, it can simply be sequestered appropriately upon completion of the treatment and discharge. Five-Year Survival Is Similar in Thyroid Cancer Patients with Distant Metastases Prepared for Radioactive Iodine Therapy with either Thyroid Hormone Withdrawal or Recombinant Human TSH J Clin Endocrinol Metab.
The exact timing of the treatment should be discussed with your health care team The impact of iodinated contrast agent administered during preoperative CT scan on body iodine pool in patients with differentiated thyroid cancer preparing for radioiodine treatment Thyroid. It is not uncommon for some patients, depending on their occupation, to be able to work right up to their time of admission for radioactive iodine treatment.
In other circumstances, such as patients who look after young children, teachers, or persons who work closely with many individuals, or individuals who are quite unwell as a result of the associated hypothyroidism, several additional days or weeks off following discharge from hospital may be prudent.
Accordingly, while there is no reason for patients to remain secluded in separate rooms after discharge from hospital, intimacy and immediate proximity to others should gradually be reintroduced after several days. As radioactive iodine treatments involve withdrawal of thyroid hormone and the development of hypothyroidism, some patients may notice a modest degree of hair loss. For a historical overview, see The beginnings of radioiodine therapy of metastatic thyroid carcinoma: a memoir of Samuel M.


Although inadvertent exposure to radioactive iodine, such as in a nuclear accident, can increase the risk of thyroid cancer in exposed subjects, the medical use of radioactive iodine has not been associated with the same risks, and patients who have had their thyroids removed surgically are clearly not at risk for development of a second thyroid cancer.
It is not uncommon for very small amounts of iodine uptake to be detected in the liver, and if constipation is an issue, iodine may be detected in the bowel. See Prognosis for fertility and ovarian function after treatment with radioiodine for thyroid cancer. Since the majority of well differentiated thyroid cancers are slow growing, and often surgery alone may be highly effective initial treatment, it is not possible to state with 100% certainty that all women should stop breast feeding immediately to have radioactive iodine treatment. To review some of the series of reports that examine this issue, see Outcome of pregnancy after radioactive iodine treatment for well differentiated thyroid carcinomas.
See Multifactorial analysis on the short-term side effects occurring within 96 hours after radioiodine-131 therapy for differentiated thyroid carcinoma. These problems, although mild in most patients, are probably more common than generally appreciated, as outlined in Intermediate and long-term side effects of high-dose radioiodine therapy for thyroid carcinoma. See Lithium as a potential adjuvant to 131I therapy of metastatic, well differentiated thyroid carcinoma. For the results of one study where such patients were treated with radioactive iodine, see Efficacy of high therapeutic doses of iodine-131 in patients with differentiated thyroid cancer and detectable serum thyroglobulin.
A genetic defect may be involved. Radiation increases the risk of developing thyroid cancer. That dose was sufficient for almost 8 years and then it was discovered that my bodies chemistry had changed a bit, so they moved me up to 150, and then up to 175, and then back down to 150, where I have been now for about the passed 4 months.
When I heard the word cancer , I was scared to death and then the thought was okay, what do I do now? 1 suggested I do it and the other one from Mayo clinic in Rochester suggested I don’t because it was only 7mm. I, too, am scared about my energy level post surgery on Synthroid ( I do triathalons, too but NOT NEARLY your level of course). I have had two ultra sounds but due to my anxiety and my heart rate dropping pretty low, I have not had a follow up biopsy. For an overview of this issue, see The role of radioactive iodine in salivary gland dysfunction.
The radiation levels will be checked to ensure your levels are sufficiently low prior to discharge.
As thyroid hormone has a long half life, it takes many weeks for levels to drop and TSH levels to rise. Furthermore, for the vast majority of patients with well-differentiated thyroid cancer, there is no evidence that delaying the radioactive iodine treatment by a few weeks will have any adverse effect on the outcome of treatment. A consensus document from the American Thyroid Association that addresses many safety-related questions regarding radioactive iodine treatment for thyroid disease may be accessed through Radiation Safety in the Treatment of Patients with Thyroid Diseases by Radioiodine ((131)I) Practice Recommendations of the American Thyroid Association. Nevertheless, common sense suggests that individuals with less iodine in their system may take up more of the dose, and perhaps the treatment may be slightly more effective. Furthermore, patients should be reassured that they will not be neglected if they require medical attention during their hospital stay in isolation. In contrast, other patients may experience considerable fatigue, aches and pains, muscle stiffness, fluid retention, changes in mood, and difficulty with memory or concentration, and find the hypothyroid state extremely unpleasant and debilitating.
Some patients, particularly older individuals or patients with co-existing medical problems, may feel extremely tired and unwell as a result of sub-optimal thyroid hormone levels and may not return to work for 3-4 weeks. There are no scientific studies that have examined whether it is safe to kiss someone at 48 versus 24 hours etc, so we empirically suggest waiting an additional 2-3 days after discharge before resuming normal intimate human activities. When hair loss occurs as a result of changing levels of thyroid hormone, it almost always grows back. False positive results have also been observed in patients with skin wounds or scabs, as documented in False-Positive Findings on (131)I Whole-Body Scans Because of Posttraumatic Superficial Scabs. To review the safety of outpatient radioactive iodine treatment for thyroid cancer, with respect to exposure to other individuals and family pets, see Radiation exposure from outpatient radioactive iodine (131I) therapy for thyroid carcinoma. Nevertheless, although long term follow-up data is lacking, some reports have demonstrated the utility of lower dose outpatient radioactive iodine for the ablation of the remaining thyroid lobe after hemi-thyroidectomy and surgical removal of only one lobe of the thyroid. Olympic Team.  I had a small issue of a frozen shoulder to contend with after the collarbone healed but eventually got the arm doing some semblance of a swimming stroke again.
I have experienced a great deal of fatigue over the past 9 years that truly only seems to get worse.
Although my endo has stated that he doesn’t feel that I should have the RAI but to be checked once a year. Having neck issues with swallowing, I went to a major medical center for FNA, wehre teh cancer was found on one side only, but the doctor wants to remove the thyroid in its’ entirety. So I decided not to because I know mayo is very good I have had brain surgery with them before. Considerable emerging evidence suggests patients with low risk disease may benefit from low doses of radioactive iodine, and in some instances, may not need radioactive iodine at all. Accordingly, the earliest time interval that radioactive iodine can be effectively administered is 4 weeks after surgery (complete removal of the thyroid) if the patients has stopped taking all thyroid hormone supplements.
Since radioactive iodine is generally highly effective at destroying any remaining thyroid cells if the proper regimen and dose has been described, patients should no worry excessively if they have been unable to follow a low iodine diet.
Some investigators feel that ongoing thyroxine therapy delivers a daily dose of iodine to the patient, and this reduces the effectiveness of the destruction of remnant thyroid tissue when thyroxine is given with recombinant TSH.
These latter patients may often comment that they had no prior idea how important thyroid hormone was prior to this experience. To review some data that addresses the disappearance of radioactive iodine from our bodies, see Effective half-life of 131I in thyroid cancer patients.
Nevertheless, as hair grows slowly, it can take months to a year or so before reestablishment of normal hair thickness occurs. See Radioiodine lobar ablation as an alternative to completion thyroidectomy in patients with differentiated thyroid cancer. As traces of radioactive can linger for days to weeks in breast milk, the advisability and timing of reinstitution of breast feeding after radioactive iodine treatment should also be discussed with a physician.
I am now taking Wellbutrin XL 300 MG’s to help combat the fatigue which has noticeably raised my energy level but done very little for the overall fatigue. And at the time, I felt reassured that everything would be okay even though he said it was only a tiny dot ,(like the top of the head of a butterfly) and nothing to be to concerned about. Well Just a couple weeks ago I just wasn’t feeling myself and I woke up with a lump in my throat which scares me because that is the same way I had found out about the other cancer I had. My Endocrinologist says that with two suspicious lymph nodes and multiple nodules, I am a candidate for a full thyroid removal.
See Ablation with low-dose radioiodine and thyrotropin alfa in thyroid cancer N Engl J Med.
For individuals who wish to avoid foods rich in iodine content, review our Low Iodine Diet fact sheet.
See Radioiodine treatment with 30 mCi after recombinant human thyrotropin stimulation in thyroid cancer: effectiveness for postsurgical remnants ablation and possible role of iodine content in L-thyroxine in the outcome of ablation.
Short term follow up of thyroid ablation in patients with more extensive thyroid cancer at initial presentation also shows simlar rates of iniitial efficacy (ablation of functioning thyroid cells) in subjects who withdrew from thyroid hormone vs.
In summary, the response of patients to withdrawal of thyroid hormone is variable, but most patients will exhibit some degree of discomfort when withdrawn from their normal levels of thyroid hormone. Similarly, a retrospective analysis of women with differentiated thyroid cancer who have given birth revealed no problems with pregnancy or the health of the children, as described in Pregnancy outcome after diagnosis of differentiated thyroid carcinoma: no deleterious effect after radioactive iodine treatment. I am in rather good overall health today and am hopeful that there is a possibility of someday being able to regenerate my dead thyroid gland.
So I had went in to my endocrinologist and told him everything, and he had said oh I wouldn’t be too worried its probably just scar tissue. I did meet with Dr Gaz and I am confident in his ability however, I am very concerned about my anxiety and the nausea post surgery. Review and Scintigraphic Evaluation of Salivary Gland Dysfunction in Patients with Thyroid Cancer After Radioiodine Treatment. For a scientific assessment of this issue, see Re-evaluation of the impact of a stringent low-iodine diet on ablation rates in radioiodine treatment of thyroid carcinoma. Nevertheless, wherever possible, patients should avoid recent exposure to large amounts of iodine, as may occur in the setting of such tests such as CT scans or other imaging modalities that sometimes involve administration of iodine-containing contrast media. Frequently, the entire gland is taken out. After the surgery, most patients should receive radioactive iodine, which is usually taken by mouth. So I had just suggested him I wanted to do an ultrasound because I know something just isn’t right. Chewing candies or gum during your hospitalization to keep your salivary gland function active may also reduce the amount of radioactivity taken up by the salivary glands. And as you are reading this my thoughts are probably all over the place and this is how it has been since the surgery on June 26,2014.
Importantly, there is some data that suggests that the candies or gum should not be used until 24 hrs after administration of the radioactive iodine. See Does lemon candy decrease salivary gland damage after radioiodine therapy for thyroid cancer?J Nucl Med.
This replaces the hormone that the thyroid would normally make. Most patients who had thyroid cancer need to a blood test every 6 - 12 months to check thyroid levels.
Findings: There is intermediate echogenicity tissue to the right of the trachea appearing to be in the thyroid bed.
In the mid neck there is a 3 mm cystic structure which corresponds with the palpable lump reported by the patient. HAD A FULL HYSTRECTOMY, GALL BLADDER OUT AND APPENDIX THE PAST 10 YEARS THEY WERE ALL BAD PARTS. So now I am just waiting to go back in to my next appointment with my endocrinologist to do another ultrasound.
THEY FOUND THE CANCER IN THE THYROID INSIDENTIALLY I HAVE HASMOTOSTHEY WERE REMOVING IT DUE TO THE BAD SYPMTOMS AND FOUND THE LEFT TO BE COMPLETELY HARD AND DEAD THE RIGHT WAS STILL SOFT BUT HAD TWO SPOTS IN THE SLICE WHERE THEY FOUND IT. I KNOW MY SPELLING IS REALLY BAD PLEASE DONT POST THIS JUST WANTED TO SEE WHAT YOU THOUGHT.



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