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Author: admin | 19.09.2015 | Category: Homeopathic Treatment For Tinnitus

When you have a child in the public school system there might be times where you have to advocate for your child but for the most part the education process works with very little parental involvement. A very common aspect of autism spectrum disorder is obsession as characterized by a strong, repetitive interest in something.
Typically even the highest functioning on the autism spectrum can benefit to some degree from visual communication techniques and strategies.
Every day I think of new signs that would help Kyler function more easily…eventually my walls will be papered in PECS and the family photos will be taking up prime real estate on the ceiling.
Stimming is a term used in the world of developmental disabilities and comes from the word self-stimulation. Data collecting is exhausting and time consuming but it’s an important part of our every day life. Now imagine all these sounds funneled through headphones ALL AT ONCE AT MAXIMUM VOLUME LEVEL. He is always in the back of my mind when I need to make a decision, act a certain way, or even show understanding.
To a person with autism, the spoken word is abstract and a photo, picture or written word is absolute and tangible.
Showering procedures are outlined for Kyler or he gets lost and forgets what he’s supposed to be doing in the shower. This list tells Kyler where everything in his room goes so he can quickly clean his room and keep it clean. This sign means Kyler’s baby sister is sleeping and he is expected to enter the upstairs area quietly and maintain that quiet until the sign comes down.
There are two areas in the house for Kyler to safely spin when he needs the comfort of stimming.
Yes, Kyler also needs a list to keep him on task for something as simple as brushing teeth. Stimming is repetitive body movement that self-stimulates one or more of the senses and is typically soothing to the person who is doing the stimming. Kyler’s ABA therapist uses the data from the data board on the left to record his progress and track his participation in his behavior treatment plan. Kyler is only allowed 1 hour of screen time (computer, Wii or TV in his room) on a weekday and 2 hours of screen time on a weekend day and he has to earn it.
Like many children with autism, Kyler is visually oriented and the Center shows him in an absolute way how he’s doing.
When he was was 6 weeks old my ex-husband was stationed in Japan and the entire family moved with him.
I suffer from an autoimmune disorder and I have done my best to avoid all medications as much as is possible. When Kyler was younger, I used a visual system known as PECS (Picture Exchange Communication System) to schedule his entire day. We do not expect library silence but he is expected to maintain an inside voice and he is not to be excessively loud while the sign is in place. Some children with autism stim by rocking, flapping their hands or repeating words over and over but there are many other ways to stim.
He is responsible for putting tick marks in each block for each behavior or activity, as it occurs. Chae was ten years old when his baby brother was born and he is the best big brother any kid could ask for. I strive to find natural, homeopathic, holistic remedies and relief for myself and for my children. PECS is primarily used to aid those who are non-verbal to communicate quickly and efficiently but it can be helpful to children who are verbal as well. It’s a time when everyone at the table is expected to be social, make eye contact and converse with family.
Kyler is very loud in everything he does so using an inside voice is something we have to work on with him on a regular basis.
Even though he is allowed to spin in those areas we have also provided Kyler with physical outlets to help him control the spinning within the spin zones, if he so chooses. Honking car horns, metal shopping carts banging together, cash registers beeping, coins clanking against each other, the loud speaker shouting overhead, people yelling.
For the next 2 years, Kyler communicated mostly through sign language until he eventually started to form words. Whenever he has trouble communicating with my mom, dad, or step-dad I am always the one who knows exactly what he is saying or what emotion he is conveying.
When I would push his stroller past a rock, he would become agitated and upset if he couldn’t pick up the rock. For Kyler, I used small squares of pictures that represented every activity Kyler would do in a day.
For Kyler, these expectations are difficult enough and then he has to remember to use table manners, as well. On Sunday night, I tally up all the ticks marks and erase them, filling the blocks in with the corresponding number. Next time you are in a grocery store, stand in the middle with your eyes closed and just listen to all the different noises you hear going on around you.
As he progressed with speech therapy, it became obvious that there was more going on than speech issues.
Concrete, literal, factual, rote, routine are absolute terms that bring comfort and security.

I chose the song Fix You by Coldplay as the title today because Kyler tries so hard in every way to be socially acceptable but because of his condition it makes things so much harder.
These squares were attached to a large dry erase board with velcro in two strips, one for the current day and one for the next day so there were no surprises. In a public restaurant with all the noise and stimulation, it’s mentally and emotionally exhausting for Kyler. Kyler hears even the soft crinkle of dollar bills being exchanged but he hears it amplified, directly in his ear…along with every other sound that your brain typically filters and processes for you.
He becomes very attached to things and I feel that everything is basically in reverse for him. In the sunroom Kyler has access to a mini-trampoline, large cardboard building blocks, games and balls.
By looking at Kyler’s chart, I realize that what I felt was a tough week was actually full of successes for Kyler. Think of all the idioms we use in language today…a dime a dozen, a piece of cake, beat a dead horse, over my dead body. The singer in the song seems to be singing to the person in the lyrics…telling them that everything will be alright and that they will help them. I don’t judge or begrudge anyone who decides to walk the medicinal path or go for ride after ride on the med-go-round. Transitioning from one activity to the next was very challenging to Kyler so he would check his board throughout the day to see what activity was coming up.
If he forgets, we merely point to or ask him to refer to a certain rule number and he usually corrects himself.
He sounds like he is beat-boxing and he’s been doing this since well before he began to talk. I can also tell what we are doing each day that might have caused a spike in negative behaviors. We have to think and plan before we go anywhere, we have to try to anticipate how that environment will affect Kyler in an auditory sense. Many with autism, especially children, cannot tell that someone isn’t being literal when they say these things. People in public who see this behavior think Kyler is intentionally being rude or disrespectful. Kyler uses this chart to self-monitor and learn (among other things) how to be responsible for his own actions. The grocery store, the mall, the movies, an air show, a monster truck rally, a car race…even out to dinner. Can you now begin to imagine how insecure it might feel to be a part of an average conversation with someone using idioms?
The hospital was always a nightmare…do you realize how many doors a typical hospital has?? I would also (and still do!) give him verbal warnings that a transition was going to occur. The beat-boxing starts out softly and is usually the very first sign for me that his behavior is about to change, drastically. By the time dinner rolled around, we were stuck in Chinatown…mere steps away from where the DC Nationals were about to play a game of hockey. Due to his age, Kyler was initially diagnosed with Pervasive Developmental Disorder Not Otherwise Specified (PDD-NOS)…which meant that he was developmentally delayed and no one knew why.
All he wants is a friend that will treat him right and the truth is that there just aren’t a whole lot of kids out there who can behave in a way in which Kyler can look up to and reciprocate with.
So I suck up my misgivings and we hop on and off the med-go-round, trying to find that magic pill that will make life a little bit easier for Kyler. Thankfully, the room happened to be empty at the time and no one was up in stirrups having a pelvic exam.
It will eventually reach a frenzied pitch if I don’t change his environment or distract him in time, especially when he is overtired or overstimulated. To Kyler, it’s an incentive to be working for something instead of a disappointment to lose it.
I know how hard it is to be a teacher today and I know how hard it is to be a teacher to a child with a behavioral disability.
He had attended a developmental preschool, play therapy, hippotherapy - all of which had tremendous impact on him. At almost 9 years old, he still has some trouble with transitioning but not nearly as difficult as it was at 4 and 5 years old. The only restaurant that could seat us was Hooters, which is usually ok for Kyler early in the evening on a weeknight. All of these had side effects for Kyler that were worse than what the meds were supposed to help so after giving them a fair shot I pulled the plug.
The pharmacy had a coded lock on the door and Kyler could not open it which promptly brought on a majestic meltdown of epic proportions. If I set the timer for Kyler, he is able to stay focused and the stimming doesn’t get out of control. The second center board also has space for Kyler to write as well as room for Kyler’s chore chart and schedule. He has his moments but I know with the right guidance he is going to be an amazing human being. She counseled me over the phone and she helped me learn exactly how to approach the school admin, gave me the right words to use to ensure they complied with my requests as required legally and she explained what the steps to the process would be, now and once the ball gets rolling on changes I am asking for the school to implement.

Even with his early challenges, Kyler was a happy, sweet, loving boy with a wicked funny sense of humor. I love Kyler so much and to wish a change upon him would be to wish for the end of the world.
I have not crammed so hard for a test or class in over 20 years but this past week I crammed like there was no tomorrow to prepare for this meeting. Strattera is considered fairly benign as far as side effects and this has been true for Kyler. Some of them have become opportunities for learning and understanding, even beyond his age level. I have OCD tendencies as well as a deep rooted craving for perfectionism so having these signs all over my house is not exciting for me but it’s a sacrifice I am willing to make to help my son learn to regulate his behaviors and maintain much needed focus. Last week Kyler told his teacher he had to play Mah-jong and completely threw her for a loop. If the topic interests him, he will zone in on it with unrelenting focus and dogged determination to learn anything and everything about it.
I am exhausted and my brain is protesting the extreme over-usage but I am proud of myself.
I think this is one of the beautiful things about autism, the passion and dedication to subjects of interest.
Patrons around us were cheering on the hockey team and he’s wearing his knit cap at the table because it helps filter some of the noise but not all. Next time you have a conversation with someone try being aware of the idioms and abstract references you use and then try to picture in your head the literal interpretation. Strattera takes time to build up and dosages are very very slowly increased in increments so the jury is still out. You might be surprised to find that your conversation literally sounds like a horror movie. I am proud that I was able to maintain my composure and not back down from what I know Kyler needs to succeed at school.
If I don’t notice any changes for Kyler in a reasonable amount of time then we will stop the Strattera as well. Within Kyler’s obsessions are opportunities to share common interests with others and to engage in social and age appropriate bonding as well as opportunities for learning and educational growth. Sitting in Hooters tonight was painful for Kyler and I should have planned better; however, these spontaneous moments happen in our lives often and we just have to adapt the best we can and so does Kyler. I know now that I have what it takes in me to advocate for Kyler as often as need be, even if it’s every single school year. He gains mastery and therefore a sense of pride and accomplishment when he learns about a topic that interests him. After I snapped this photo, James gave Kyler his iPhone to play with, giving Kyler something to focus on.
He loves to play outside, he loves to play with other children and he really, really wants a friend. The melatonin is supposed to help Kyler with his sleep disturbances but it hasn’t helped at all.
He was able to partially tune out the noise around us long enough for everyone to eat so we could get out of there as quickly as possible. I am now in the process of researching other vitamins and supplements such as cod liver oil. He spent the entire summer watching the NFL draft that year), weather {age 5-6} (he could tell you all about the Fujita scale), Star Wars {age 6-7}, Indiana Jones as well as Mario Bros {7-present}.
When you go to an event, eat out or even just go to the grocery store do you have to have an evacuation plan like I do? He craves interaction with his peers but he doesn’t yet know how to do that effectively. Do you have to think ahead and anticipate what your child’s sensory experience will be? Teaching him the social skills he needs is a work in progress right now but he’ll get there. As a parent in general, we all have to do things from time to time that we don’t necessary like or agree with. For me, having a child with autism means that for his greater good I have to be open-minded and willing to at least try to utilize whatever resources are available to help my son function and manage his autism.
Kyler loves to play Club Penguin in general but the obsession centers mostly around the Puffle characters. I hope you’ll give that parent a sympathetic smile and then move on about your business. Many people with autism just cannot control their desire to engage in the obsession and will become quite disturbed if not permitted to attend to it.
We try to help Kyler control his obsessions by limiting where and when he can engage it tempered with opportunities to indulge when he needs to comfort. Puffles can eat dinner with us but they have to sit behind his back on the chair, not on the table. I think we do a good job most of the time with helping Kyler manage this particular autism trait and ensuring there is some kind of benefit or positive experience from it.

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