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20.08.2015, admin
Morgellons Disease Awareness -  Artist and Morgellons sufferer, Ayla, journals her experience with the disease   I'd like to introduce myself, I'm Ayla, a 59year old artist and graphic designer who contracted Morgellons in Jan.
Morgellons Disease Awareness - Morgellons Disease: Tips for healing lesions, oral care and environment   Information for dealing with Morgellons lesions using topical aids as well as FAR infrared technology. 8, 2012 I had a live blood microscopy with Rick Panson, a microbiologist, at the Live-Live store in NYC.
It gives rise to an internal environment conducive to disease, as opposed to a pH balanced environment which allows normal body function necessary for the body to resist disease. I've been moved to create awareness tools that help educate healthcare practitioners and the public about Morgellons Disease (see Awareness Poster) as well as share what I've learned from this experience.Many of the skin photos in the photo galleries are mine. All information in the lesions section comes from individuals that have dealt with extreme skin problems and have found ways of managing them using non-pharma products. He spent an hour going over what he saw in my blood as well as giving me pointers that would move me into a greater state of health.
When excess acids must be neutralized our alkaline reserves are depleted leaving the body in a weakened condition. A pH balanced diet, according to many experts, is a vital key to health maintenance.                                                        —By permission of Dr. Like most, I panicked bought a lot of unnecessary products—some toxic, then managed to pull myself back from the brink of actually hurting myself. It is one thing to have lab work and testing, and quite another to witness firsthand what is transpiring in your blood. Always wary of doctors, I tried to stay out of that loop but finally caved when my beloved ones pressured me to seek help. Eating a healthy diet and staying alkaline has been known to reduce the itching sensations caused by Morgellons. A dermatologist gave me Ivermectin which caused a Herxheimer (die-off) reaction and many of the black particles I'd been seeing with a scope surfaced. This gave me great relief from the discomfort of what felt like fiberglass embedded in my skin. At the bottom of the page are images that various people suffering with Morgellons graciously contributed to this site.A note on the photos.
There were NO fibers visible in my skin in the previous months before taking the medication.
Rick provided me with photos for this page and I've filled in some of the gaps with screen grabs taken from the video that was taping our session.Nov. If you had a swimming pool, you'd want to raise the pH above 7, otherwise bacteria would thrive in it. The mix will not stop new itch spots or bumps and lumps, but it will get RID of existing ones without leaving a trace. There are several stages of microorganisms? here which include yeast, bacteria and fibrin, fungus and mold. Within two days of taking the Ivermectin, I watched in horror as fibers started to rise to the surface of my skin. Without proper flora the body is open to many different type of skin infections since the flora is our immune defense against invaders. You can also open capsules of probiotics and not just one since you are covering a large area Beware that in the morning the liquid will have absorbed into your skin or evaporated leaving lots of crumbs and it's messy. That plus coming off the tail-end of the pharmaceutical seemed to stop all the symptoms of itching, biting and crawling for approximately the next 4 months. In the background are 'shadow cells' which were healthy red blood cells that 'popped' due to the loss of their phospolipid membranes. The only thing that hadn't cleared up was the hyper-sensitivity to my skin which I thought I was stuck with for the rest of my life, an unfortunate consequence of having Morgellons. Had I not been actively using a microscope to look at my skin during this period, I might have presumed I was well.
This can occur from an acid producing diet, and poor assimilation of nutrients.Rick's comments "Healthy blood cells will be perfectly round, nice and dark with a glowing halo around them. The skin however, doesn't lie and told a whole other story for under it's surface, fibers and particles were clearly still present—multitudes of them. Early on, I'd heard about the testing that Pam Crane of Morgellons Focus On Health (site no longer active) was championing and felt that it was probably the way to go. I also learned and am not surprised that scientists are discovering that humans are missing certain key bacteria from the skin that the human body requires.
Usually, if they have enough moisture inside them they are fully round because there is more pressure inside the cell then outside.""These 'shadow' or ghost cells were once perfectly healthy cells, you can see by their shape and color that they were—and they've now disappeared into the background. My only problem with moving forward was a lack of practitioner, as I felt having the best testing in the world wouldn't mean anything unless someone was up to the task of decoding it's contents into a meaningful protocol, sort of like buying a Cadillac that arrives without the key. I wanted to have a conversation with whatever doctor I was going to see and to hear them speak about their philosophy of healthcare. There is also a clinical trial underway to study the skin of children across USA."??Posted Oct. When the same test was repeated with alkaline urine he saw micro fibers in it, the difference being was that these micro fibers did not grow any further. Every cell in the body has a double membrane of fat made up of phospholipids, a two layer membrane. Having run these tests numerous times and achieving the same results we can deduce that maintaining an alkaline state will slow fiber growth way down. Just try to get a physician on the phone before actually making an appointment and you will find it is an impossible task (especially the high-end specialists). At the store I found Absorbine Jr Cream and although it did burn for about 2-3 minutes after a short amount of time enduring I found it to be soothing and took the itching and pain away.
The acids can disentegrate the cell membrane as well as when your body ferments sugar, alcohol is the byproduct, and alcohol can easily melt the cell membrane.""Whatever is happening in the blood cells is happening to the rest of the body. After a few days of applying 2-3 times per day I found that it actually pulled out alot of all the horrible things that were under the massive very deep crusted lesions on my arm (can be seen before and after photo).After some success I began looking at the ingredients and determined all the natural things that it was made from, one of which was camphor (another good one is wormwood and aloe), and began trying other over the counter camphor based items by looking at the percentage of camphor within each product. He gets into all the specifics needed to understanding pH balance such as the proper proportions of foods to prepare and what happens to a body when it is acidic, as well as how much protein your body needs based on your weight. She talked about The Great Plains Labs and why the testing used in Functional Medicine is so important for our community. She sounded like she knew how to do her job well and was more than capable, indeed she had impressed me as understanding how to approach the disease in a holistic manner that aligned with my own healthcare philosophies. You might be pleased to find out that getting proper Vitamin D and balancing your pH will impact your health in ways you never imagined such as minimizing arthritis, decreasing the risk of diabetes, heart disease and cancer.This from Dr. I believe my first words to her were, "Where do I sign the dotted line?" (While focusonhealth has been taken down, here is another radio show with Nancy speaking with Pam. The ones I currently have now are all microscopic and can no longer be seen with the naked eye.
However I will say that while the camphor I believe is helping to rid my internal system, it also has a price of the purging and expelling (so it has not been an easy pain free task), but I know I am healing. Clotted mass of blood cells due to changes in the cells polarity, loss of natural negative electrical charge.
Let me remind you that I felt fine when I first contacted Nancy, but the emerging fibers showed me I was not. The camphor bottle has a stopper in the top allowing only one drop at a time, and once I did get too many drops which caused a euphoric sensation through my body. Nancy forewarned me that treatment would kick up all the initial symptoms I had when first ill with Morgellons, such as itching and stinging and that I might experience more fatigue with die-off, possibly even get lesions although I hadn't had many lesions previously. Within a week and a half of beginning this new protocol all the discomforts she mentioned came back. Again everything in moderation!!I also use a bottle of Vaposteam in hot baths for soaking that has camphor. A chronically over-acidic pH corrodes body tissue, slowly eating into the 60,000 miles of veins and arteries like acid eating into marble.
Black particles began coming out from the skin, sand-like crystals were suddenly pushing from the scalp, I was itchy and uncomfortable but this time around it was at a much lower volume then at onset. The oil in the camphor and the aroma baths soften the skin, pull the fibers out, clear the sinuses, and help relax for a good nights sleep as well.
When there are this many cells and this little water, we are looking at the hydration level of the body. If left unchecked, it will interrupt all cellular activities and functions, from the beating of your heart to the neural firing of your brain.
I have experienced some lesions, in the form of 'papercuts' and blood spots appearing on the skin. They were tiny and healed quickly. It took close to 3 months for the symptoms of this detox to disappear, lessening with each week. Much to my amazement I actually saw tons of blue fibers pour out of the lesion right before my eyes (I had never seen them come out of my body like that, usually when fiber bundles were present with the naked eye I would wake in the morning to find them there).After several months of taking it internally I had concerns that I may be hurting my blood, kidneys or liver and told my doctor what I was doing and requested referrals for urinalysis and bloodwork. We added in another few products to my protocol fine-tuning the process. Once all my symptoms had abated I was ready to move on to the next step and do a colon cleanse. I used supplements for one month that gently cleansed the colon (Colon Cleanse by DaVinci Labs??). Just as a test I stopped taking it once and within a week the clumps of fibers returned, so I began again which took another week for it to get back in my system to get relief again. These nets act as a defense mechanism for the bacteria so that the white blood cells can't get to them.
There is even a device called a pH meter that one can use with urine.Each kit has its own color chart. After that, I began with chelation therapy (Chelex by Xymogen) to remove heavy metals. Nancy has taken me through this journey with constant support through email.
I sometimes now take a break for a day or two if I am doing good, but don't go more than 2 days without at least a few drops.Disclaimer I am not advising anyone to use any of the items I choose to use for myself, you and you alone are responsible for your own healing and research, I am merely telling what has worked for me!?Posted Oct. By comparing your sample to the color chart, you will be able to determine easily your current state of pH balance.At first, you'll want to do this 4-5 times a day (I try to test with each bathroom run) to get a sense of how fast the body is affected after eating and to correct any shifts so you stay as evenly as possible in an alkaline zone.
She used this formula on the face and on the eyelids with no problem and claims her eyebrows and eyelashes are growing back.
Although we are aiming for an alkaline body, that does not mean that you should eat only alkaline foods. The fact that she is able to tell me what I can expect and interpret what I am going through is invaluable. Her before and after photo shows the improvement, but I am not publishing them as it reveals her face. Having gone through the early treatment phases and emerging symptom-free, makes me feel that I did indeed work through something—hopefully clearing biofilm. So where am I right now and what are the changes that happened over these few months of treatment?My skin cleared of many of black particles, although I still have them (my great lament was that I didn't have a camera back when I first got sick, because my skin was so saturated it was alarming!). Her formula contains DMSO which some feel is controversial, so do your own research and decide if it's the right direction for you.
It's all about finding a balance between the two.Some people have difficulties maintaining proper pH just using diet. There is no doubt that that is not part of normal healthy blood, and it's way bigger then what I think could survive in your cardiovascular system without being filtered out by your filter organs. That's why I don't think it's a fiber, per se, because it's so big compared to everything else. Include high alkaline foods like lemon, apple, kale, watermelon along with other alkaline fruit and veggies.Another way to attain alkalinity is with the 'biofilm buster'.
From a biology point of view, my best guess is that it would be a contaminent that has nothing to do with you.
It will begin fizzing and rising—do not stir, otherwise it will react like warm champagne in a shaken bottle, foaming out of the cup! The red blood cells are fermenting as the yeast eats the cell itself.Above: Neutrophils You go guys!
This is the only thing that ever worked without destroying my skin.I got onto the idea of DMSO.
It is a carrier and contrary to what experts say it is not harmful, you can research it yourself if you haven't already done so. You can see my live blood microscopy page for some of Rick Panson's (health coach and microbiologist) recommendations as well.What foods can I eat?Keep it simple.
Actually, I feel spry and 10 years younger than my 55 years of age (at the time this was written), an unexpected and very welcome gift. The other arrow is free-floating yeast, and you can see there is quite a bit of it in the blood. Many processed foods contain genetically modified (GMO) ingredients and they are not labeled, so you can't know if you're ingesting them.
You'll want to eliminate your exposure to these GMOs as there is enough evidence to show they are bad for one's health. Still, they are here and I am monitoring them carefully. I am convinced of the value of the Great Plains and Metametrix testing.
Sodium bicarbonate (baking soda) is the most important and most effective alkalizer your body makes to try and keep alkaline balance.
Read Jeffrey Smith's "Seeds of Deception" or watch his documentary "Genetic Roulette – The movie." He is pretty much the go to source for current info on genetic modification which little as it's been tested, is being linked to all kinds of health issues.
It just makes sense that one would want to know the particular weaknesses of their body before embarking on a journey of healing. More on GMOs below.If you have Candida or a fungus problem, you might want to monitor how much, if any, fruit you consume.
Getting the labwork done and seeing Nancy are the two smartest things I did throughout my ordeal. Morgellons for me is like that impossible teacher I had in my youth.
I believe the DMSO carries the other oils deep into the skin and  kills the "what ever they are".
In a healthy state you can shift the balance to 70% fruit and vegetables to 30% protein.Eat organic if you can. But it has also left me savoring hard-won battles and set me straight on how to live more in balance. This is not the greatest water filter but what it does is alkaline the water, so instead of drinking water that is pH 5 or 6, one is drinking water with a pH of 8-10 giving the body a running start on staying alkaline. Many Morgellons sufferers are dealing with oxidative stress and trapped toxins in the body that they can't get rid of. Therefore, I try not to rail against the unfairness of the experience, but to look at how much I learned and the ways in which it has stretched me as a human being. You won't be able to get them all out and yes some may die in the skin and cause a breakout, but over time is will subside.
The benefits of this water are it's antioxidant properties which nullify free radical scavengers, plus the extra oxygen in the water is supposed to give energy and boost alertness and memory.Candida detox Next on the plate is to tackle the candida with capyrilic acid and olive leaf extract (for about 2 months). Yes it has been a miserable teacher, but by it's hand I have been become an attentive student.I wish you all full recovery.
It's taken me over a year now as certain section of my face were harder to deal with specifically the chin and cheeks. I'm just going to take the recommended dosages on the bottles adding in one teaspoon of l-glutamine powder per day.
AylaWhile I am not comfortable sharing my protocol as it is specific to my lab results, I will outline what I feel are the bare-bones minimum I'd look to take if I were building a protocol. You don't have to wash your face but rinse it and apply a very thin layer at night before you go to bed. It seems now that I may never be rid of this completely but it is manageable.
The glutamine assists in strengthening the gut wall and helps patch any holes left by the yeast (which could lead to leaky gut syndrome and the problems it leads to, such as food allergies and parasites) Respiration "The biggest acid you make everyday is carbonic acid. While they are good for you if you are not allergic, too much will bring your body into acidity. This would be a good probiotic (I use 3 different kinds throughout the day as was indicated by the results of my testing). Every cell in your body is producing carbon dioxide from the bottom of your feet to the top of your head that is also surrounded by water and the carbon dioxide plus water makes carbonic acid, that's a very simple thing to keep in mind. I was using antibiotics and I'd have to smear it on everyday and still not get rid of this and those antibiotics are not good for you. By looking for acid based balance the amount of acid produced per day must be equal to the amount excreted or nutralized per day. FOS, according to Nancy can promote yeast growth so I'd stay away from a probiotic that includes it.
Make sure if you are buying pre-packaged organic beef that the label includes grass finished, since the animal may have been grass fed, but fattened before going to market with GMO corn. The thing that is happening is, if your body can't neutralize or eliminate the acid you stay at that level, you can't go beyond that level of health. Additionally, it is anti-viral, anti-fungal, anti-bacterial and anti-parasitic, touching on all things Morgellons sufferers are dealing with.
I'd include a biofilm buster which breaks down the cellular matrix in the gut that inhibits absorption of necessary nutrients. Most of my pores are tight like they were when I was young. FAR Infrared Using a FAR infrared sauna suit, Donna Staehr was able to clear up lesions that had been present for two years all over her body. You are taking the chest cavity, ribs and the lungs and trying to get them to be fantastic.
Unlike other oils it tolerates higher heat without causing oxidation and free radicals (which are cancer causing).An added benefit is that coconut oil is converted to energy immediately and is not stored as fat like other oils.
I used Interfase Plus and Wobenzym at different times (there are different kinds of Wobenzyme.
Coconut oil has no cholesterol and is a great source of medium chain fatty acids which helps lower the risk of atherosclerosis and heart disease and one study found it to help with dementia.
With her permission, I'm sharing her "before" and "after" photos as well as her story (in italics). Do 10 deep breaths a day 3x's a day (with long exhalation), in one month you are going to have a respiratory function that is 10%-15% better then you have now. Which means 10%-15% more energy and 10-15% less fermentation because fermentation only takes place where there is no oxygen.
It is also a rich in the antioxidant beta-carotene and the essential fatty acid gamma linolenic acid (GLA) that is found mostly in plant-based oils. I've used Carlson's liquid D3 which is lipid based, but recently have switched because of assimilation issues with fats to a dry encapsulated D3 (Prothera brand 5,000 I.Us a day).


Omega-6 fatty acids play a crucial role in brain function as well as normal growth and development. It's the greatest tool you have and it's free."Alkalizing with baking soda "The methods of getting rid of acidity from the body are respiration, perspiration, defecation and urination. It is high in Chlorophyll which is believed to soothe inflammation and normalize digestion of amino acids.It comes in two forms, powdered and pills.
Seaweed and KelpKelp is a good source of protein along with potassium, iron, B6 and dietary fiber.
Certain of the B's can become depleted when the body is fighting infection, so a good B-complex seems necessary. Also, Mr. Common Sense and now Clifford Carnicom have written about NAC and it's benefits along with vitamin C in helping quell the symptoms of our condition.
Rick gave me a great little tool (from the vet) that allows me to carry the soda in my back pocket making it more convienient to take. I'd look into this as a close friend from the community began taking both high amounts of Vitamin C and NAC and her symptoms disappeared.
She was taking 3,000-5,000 mg of C spread throughout the day and 600 mg 2x's a day of NAC both in the morning and at night.
Mercola pointed out that kelp, like fish, might be carrying heavy metals—a point I hadn't thought of.
She eventually reduced it to 2,000 mg of vitamin C and 600 mg of NAC because the NAC was giving her headaches. The lesser dosage has been fine for keeping her symptoms of crawling, biting and stinging away. I couldn't breath properly, couldn't even walk to my letterbox without puffing and wheezing. When she went off the protocol symptoms came back and when she again resumed, they went away. This is problematic for those of us taking supplements upon rising which are not supposed to be taken with clay. I might mention, that my protocol has always called for 1000 mg of vitamin C, three times a day. However, I'm trying to fit it in somewhere along the line.Magnesium oxide also called Oxy-Mag (NOW makes it).
It contains 18 amino acids, 8 essential amino acids, essential fatty acids, and is high in vitamin C and beta-carotene. While I was not on NAC as a separate supplement, it is in another product I take daily ?(Liver Protect by Xymogen). Nancy has stated that the clients she sees that do this first make themselves much worse and take longer to get better.
The process of oxygenating the bowel breaks down and eliminates solidified waste lodged in the large and small intestines.
In fact, chia seeds have the highest known whole-food source levels of Omega-3 acids, as measured by percent of weight.• ?Rich In Antioxidants. Beware, if you take it (up to one teaspoon at night in water with the juice of 1-2 lemons), you must leave time the next morning to eliminate fully. Chia is a great natural source of antioxidants, including chlorogenic acid, caffeic acid, myricetin, quercetin and flavonols.• Full of Important Nutrients. Chia is an excellent source of calcium, phosphorus, magnesium, potassium, iron, zinc and copper.
Rick says that eventually this watery stool will cease when the body is cleaned of accumulated waste. If I am going to do this right, I want to know what my baseline toxic load is so I can measure my progress over time. The results arrived right after I finished my third week of chelation. My total toxic representation was OFF the chart with high levels of antimony, silver, cadmium, tin and magnesium.
I try and do this once a week.Food During our session together I became increasingly confused about food. I have a host of other metals as well, they just were at lower levels than those mentioned above. All those veggies will eventually turn to sugar so they have to be balanced out with oils and proteins. I'm still not healed, but it's more maintenance now, and these days I'm trying to fix all the damage done to the body—a long road as you know.
I was told by Nancy that each meal should have a carb, oil and protein and have been following that for some time. Once Nancy reviewed my test results and knew how I was responding to the treatment she modified my protocol to include a liver support, and the addition of 3-4 new products that would also help balance me out. Rick has said the same thing and suggested I start the day with a chia smoothie."The perfect breakfast would be 2 tablespoons of chia seeds, ground to be chia meal with 2 tablespoons of chlorophyl, (spirulina, chlorella or grass powders (greener grasses, alkavision greens).
Ground flax seeds can be added." "Chlorophyll is very cleansing and is a blood builder and it has a molecular structure that looks almost identical to red blood cells. I keep an ongoing visual journal using photos which I share with her so she can see any new developments. During chelation I was more tired, needing to take naps and sleep longer on most days.
I also had some tiny red spots appear on the skin without breaking through.Red spots appear on the skin. When you take the chia seed and the flax seeds which are 28% protein 40-50% omega 3 fatty acids, that's very little carbohydrate there. The greens are 100% carbohydrate and when you mix them together, now you have carbs that burn like paper and you've got fats and oils, with proteins that don't really burn. Based on what was going, on Nancy pulled back on the chelation so that the process is even slower and gentler until my body can adapt. The fats and oils are like the charcoal—now you have a sustained burn going on and then you don't ferment the sugars because the coal, the fatty acids, are there.
So that breakfast with the chia seeds or flax seeds, or both, and any of those chlorophyls you are using can be a very beneficial superfood breakfast. Using shea butter and coconut oil mixture as a moisturizer seems to draw fibers and black particles from my skin if left on for 3-4 hours. They time release and give it back to you so you have have nice long sustained energy with oils, proteins and carbs all day. You'd be surprised, you don't need a lot of food, what you need is the right food."Rick suggested the more chia seeds used, the less hungry one will be. Most are not readily apparent unless you really look for them. Hair The Morgellons has moved into my hair. An acupuncturist, pointed out after looking at my hair photos, that there were multiple "hairs" emerging from one follicle. If I had to buy a unit right now, I would not purchase this unit again but would go for a suit or blanket that envelopes the entire body as I think these would be much more effective then having a pad. This is probably why my hair feels thicker even though it has been brittle, weak and falling out. Learn how Infrared Therapy will benefit your healthHow does Far Infrared Therapy really work?The infrared light increases cellular metabolic rates by triggering mitochondria activity. Helicobacter pylori, the bacteria I had with high levels the first time I was tested, is completely gone. There was a new bacteria that showed up on this round of testing that wasn't on the previous.
The build up of toxins in a health body could block the normal blood circulation and impair the cellular energy. Nancy feels that this is something that could have morphed, or, could have been present all along, but like peeling an onion back, was hidden under layers. When FIR waves are applied, the water molecules that encapsulate the toxins get heat up, and start to vibrate. This vibration reduces the ion bonds of the atoms that are holding together the molecules of water.
Scientists in Japan report that in the FIR treatment of clogged capillary vessels, heat expands the capillaries and then initiates the start of a process to dissolve hidden toxins.
Far Infrared thereby promotes elimination of fats, chemicals and toxins from the blood: Poisons, carcinogenic heavy metals - toxic substances from food processing - lactic acid, free fatty acids, and subcutaneous fat associated with aging and fatigue - excess sodium associated with hypertension - and uric acid which causes pain. She is adding seven new supplements to my protocol to address adrenal support as sleep has become fitful and I feel somehow too 'plugged in.' Fight or flight mode. Furthermore, if sebaceous glands are activated, accumulated cosmetics in pores can be eliminated through the skin (sweat and oil glands) rather than by the kidneys.3) Far Infrared stimulates enzyme activity and metabolism - One hour under the Hotouse improves metabolism. I'll be taking a prebiotic to address the new bacteria as well as some new products from Xymogen to open detox pathways.
I'm excited to be moving in a new direction. Every time we do a new test, I see the value of this approach. Furthermore, it increases growth of cells, DNA syntheses, and protein synthesis all necessary during tissue repair and regeneration.
Excellent for healing burns, scar tissue and skin problems.6) Far Infrared relieves nervous tension and relax autoneuro muscles thereby helping the body make the most of its intended healing abilities. Randomly throwing supplements at the body without being tested, with the hope that something might work, seems a dangerous practice. Not terrible full-blown itchy, just enough to let me know that I was reinfected or maybe this is an allergic flare-up. This episode might have lasted longer than necessary had I immediately washed all my clothes but I got lazy and didn't wash them for a few days. I am mentioning this because people with Morgellons know they flair when they sweat and it was like that for me as well but NOT when I sweated from FIR. Was not constantly itchy, but found I'd get itchy at odd intervals, sometimes once a day, sometimes not for days at a time and sometimes for a mere few seconds or so. It is the furthest red on the spectrum and that spectrum of light is a very healing kind of light for humans and animals too.Incidentally the military has used FIR for ages for detoxification purposes. I am putting a garden in upstate and often have my hands in the soil (without gloves) and have found that I am fine.
The only itching I've got is from the occasional mosquito bite (and yes, these are real mosquitoes). I always thought it was normal for me to run low, as I can never remember not running low.It doesn't seem to be normal though, because now that it's up, it stays up, I'm feeling good. None of this is medical advice and all of it is based on only my own VERY un-scientific observations.
Now, instead of direct application of GSE I brush my teeth twice, once with toothpaste and once with a clean brush that has two drops of GSE on it.
His experience is that if lesions ooze onto clothing, you can spread the infection via the fabric. Note that I have been letting my supplements run out in the last few months because I needed a break from taking approx. I wonder if the return to itchiness had something to do with my letting down my guard and not watching my pH.
Sometimes I back the square with another square which is "dry" on the back of the first honey soaked dressing square. After the first day of swimming, I noticed small circular red blotches appear under the skin of my calves and thought, uh-oh, here comes trouble.
I treat new lesions immediatly before they get worse. The manuka honey        One unique advantage is manuka honeys ability to rapidly re-granulate the wound after the expulsion process. I FINALLY have a microscope again (it was replaced after more than 7 months at the manufacturer!). It also has the unique ability to stimulate immune cells at the wound site, something that no over-the-counter or Rx product can do. This works well for me because I do not have to endure pain as previously, because manuka honey is an excellect analgesic. Massage it in and they come to the surface before they can grow laterally in the skin layers. When he tells me he finds something that works, I pay particular attention because he has been hitting this disease hard. I had a few breakthrough 'papercut lesions' on the hands which I don't know what to make of. I stopped the Ormus because I wanted to document F-6, which has gotten quite a buzz in the Morgellons community. I still have 1.5 bottles left and intend to take it in a few months feeling I didn't give it a proper shot.
For now, I want to concentrate on doing one therapy at a time, so I can really be sure what each does. October 17, 2011: Began using F-6 and have started a new link documenting that experience including photos showing what is emerging from the skin. I'm going to take it slow with this product as I don't want to have any major herxheimer episodes.
Tests on the morg bacteria on slides shows that it does kill the bacteria that makes the gels. Had a major breakout of lesions on one side of my face.
Caroline Carter, A healthcare worker that has Morgellons and works with ozone therapy (and who made her Morgellons worse with ozone saunas) said she cannot even be around it anymore.
I have since talked with another person that had strong outbreaks from doing an ozone sauna. Ozone therapy is typically great for cancer, AIDS and herpes, but for this disease might make us worse. There seems to be improvement to the hair which feels stronger and seems to be falling out less. A lot of "debris" is coming up through the skin, fibers, black particles, granules and many more fibers then ever seen before. Sure enough, there are those courageous and marginally insane folks who refuse to succumb to the drill and are healing their own teeth. It was tough, and at times scary but the tooth did heal." I'd like to share my experience with oil pulling using coconut oil. Three or four times in the three years since getting Morgellons, a sore has popped up on the roof of my mouth near the teeth. In the past, it has taken up to two weeks to fully go away because brushing the teeth rips open the sore which bleeds. A week and a half later I ate some quinoa with my lunch and two hours later had 3 oatmeal cookies (oatmeal, walnuts, carob chips, baking soda, vanilla). The last time I got one of these sores I decided (after two days) to begin coconut pulling. This forage into complex carbs was unusual for me.While eating the cookies I started to itch. I swished the oil around 20 minutes? in the morning upon awakening and in the evening before bed. By the third cookie, I was having full-blown symptoms of itching, stinging and biting sensations (no crawling, thank God!). The fact that it came on with such force and was related to food, makes me think that Morgellons counts among it's causes a hyper-allergic reaction to food. In this case, I don't really know what specific ingredient triggered the reaction.By eliminating carbs again, symptoms quieted down.
Since then, I've continued to do coconut pulling at least once in the morning.? I have to admit, I'm pretty obsessive when it comes to my teeth.
Things I have used on my teeth over time. Bentonite clay Rub the gums with it before bed (and leave it in the mouth). It's fine if you end up swallowing it in your sleep as it's very healthy and helps with detoxification. For those that take Bentonite internally as a detoxifier, note that it should be taken away from supplements.Garlic is a natural antibiotic I have experimented with extensively for fighting infection both internally and externally for years and can attest to it's antibiotic properties.
I am noticing flare-ups of the arthritis in my foot which had so improved at the beginning of my treatment (but I kill my feet dancing one night a week, so that could play into this). I've used this method on my teeth before I even had Morgellons with good results. If you feel you've got a serious infection in your tooth, taking garlic internally, might be a secondary support to your system. Make sure there is food in your stomach before ingesting raw garlic as it can burn in the most brutal fashion.
Use only a half clove (or less) at a time to make sure your stomach is okay before taking a whole clove.
The ones I can visually see without a scope are bigger then I've had before but there is no increase in the amount I generally see with my scope in the skin. Also, some cultures like the Chinese, believe too much garlic overstimulates the liver, which can cause fitful sleep.
Will keep you posted of new developments.I've noticed that when it's very hot (93-97 degrees) and my skin is exposed to the air, I have more sensations on my arms. It's not unusual to feel a single pin prick sensation on my left upper arm, often I'll feel the same type of prick mirrored in the same spot on right arm sometime later, as if they were somehow linked.The other day on my bike I felt as if I hot poker were being pressed momentarily to my arm.
When I looked down, there were three distinct tract marks in that spot, about a half, to an inch long that hadn't been there before. Since having Morgellons, it feels like the skin is no longer a reliable friend but is capable of erratic changes suddenly. They took about 5 days to disappear.?September 27, 2012 • Live blood microscopyJust posted a new link with photos of my recent session with Rick Panson, a microbiologist and healthy body coach who did a live blood and dried blood microscopy and gave me additional guidance for my health. If you have a bad abcess in the mouth, and feel the infection has progressed to a serious stage, you will need to determine if antibiotics are the way to go. It's a bird's eye view into the system, giving a fuller, deeper understanding of what's going on  then just looking at lab results—although lab tests have their place! I had a really bad infection (pre-Morgellons) that I took antibiotics for and feel that was the best choice at the time.
In the next two weeks I get more testing done so will post those results when in. There were many problems with the blood.


We are in a seasonal shift and my fingers have had a few tiny papercut lesions since the change began.Started the protocol Oct. Beginning with one pill a day of capyrilic acid with one pill olive leaf extract and 1 tsp. At the time of writing, I believed that I had had some sort of infestation in my apartment. The L-glutamine is supposed to strengthen the gut lining and prevent leaky gut syndrome caused by the yeast die-off. Will stay on this for a few days and slowly double the dosage, then determine where to go from there. However, if you do have a bug problem in your environment, these tips should get rid of it. I've written more about the need to get confirmation that there really is a problem in your environment on the "Reflections" page. 16, 2012 Went back to Rick Panson for another live blood analysis and posted the photos under my last blood microscopy.
Do not breathe in the fumes if you can help it and don't stay in any room you are treating! Make a point of using them in sealed areas or bins and open windows or use an exhaust fan to ventilate afterwards. Some people buy the diffusers that have a candle in them. This is encouraging for all of you who wonder how long it will take to knock back candida and even if our protocols are working. Menthol usage for dirty laundry (do not use menthol crystals in the washing machine) —Clothes are a big reinfection point.
Rick recommended Candex and Nancy told me she loved the product except now they are adding corn to Candex (and it's unknown if it's GMO corn), so she is no longer recommending it. The whole idea behind using the bin with crystals is that you want to kill anything in the laundry BEFORE you put it in the wash so that you are not exposing yourself to re-infection when you handle it at the washer.
Adrenal system had a number of markers indicating a lot of stress to the system, very low levels of vitamins C and B's, four different pathogenic bacteria showed up—Helicobacter Pylori was high, Clostridia, E. Kreb cycle needs support. Heavy metals hair test—all toxic metals were down except arsenic which went up with cadmium. About five percent of this fiber is soluble, which can help reduce cholesterol.•  Builds Endurance. Lead which was extremely high on my first test showed a considerable decrease as well as silver but lots more chelation ahead. Chia builds stamina and endurance because it steadily releases slow-burning glucose into the bloodstream.• ?Gluten-Free. It's been 2 years since I started using supplements to pull the metals out and I think it will take a couple more years of work.
The process is slow but steady which is a good thing because I think if the body released too much metal into the system at once there would be negative impact on the health. You'll get the feel for how much you should use over time. After the clothing has been mentholating for a few hours, you can reach in and turn the laundry ensuring that everything in the bin has been well exposed to the menthol. Nancy pointed out that lead and cadmium are antagonistic to calcium absorption and bone health, so seeing this rise in cadmium and knowing I still have too high levels of lead makes me think that I might have to give up the painting at some point or switch mediums rather than compromise bone health. The heavy metals test also measures "essential and other elements," (minerals) It seems as a consequence of pulling heavy metals out, the minerals have been compromised. Since essential amino acids are not produced by the body, it's important to get amino acids from nutrient-rich sources like chia seeds. When you are ready to turn off the heating element, pull the plug rather than opening the bin. Research suggests leucine may help regulate blood sugar levels and aid in muscle recovery after exercise.• ?Stays Fresh. Chia seeds stay fresh for24-36 months when stored in proper conditions (cool and dry).?  Gut Health?From Dr. Nancy suggested this organism is a pleomorph moving from bacteria to fungus according to favorable conditions in the body.
This works well—especially if you have things like down coats.You can do your shoes this way too or any other items you are unsure of!
Moreover, your gut literally serves as your second brain, and even produces more of the neurotransmitter serotonin—known to have a beneficial influence on your mood—than your brain does, so maintaining a healthy gut will benefit your mind as well as your body.Fermented foods are also some of the best chelators and detox agents available, meaning they can help rid your body of a wide variety of toxins, including heavy metals.
This is the third time it's changed. Feb 3, 2013 Just an acknowledgment that I just passed my 3rd anniversary since getting sick with Morgellons. The only time I really have symptoms is when I really mess up on diet (itchiness will start) or when ?very overheated and sweating from physical exertion like dancing, where it sometimes feels like needle pinpricks are sticking my skin from the INSIDE out, accompanied by itchiness. Using menthol crystals on furniture (such as a couch) —Buy a big plastic drop-cloth from a hardware store with as thick a plastic as is available and 'TENT' your couch. Caroline recommends beginning with very small servings and working your way up to the quarter- to half cup serving size.
The innate intelligence of their bodies tells them to eat more cultured foods because they're in such a state of dysbiosis. Thieves is a great oil for preventing flu or when one is coming down with illness, but I am unclear if it can damage beneficial bacterias.
Stopped taking thieves after a few weeks but do still take lemon and added in lemongrass and grapefruit to my daily capsule.
Itchiness did not return. September 22, 2013 Decided to go on Stephen Buhners herbal protocol for Lyme disease (crafted from his excellent book, Healing Lyme). I wouldn't make a habit of wearing unwashed mentholated clothing as I believe it is unhealthy to inhale the vapors over a long period. Some people have tried to mentholate rooms. Although I tested negative for Lyme and feel fine, I don't trust the traditional testing one gets with their regular MD, and even though I don't think I'm dealing with Lyme, I can't discount the fact that so many Morgellons sufferers also have Borrelia and other co-infections that might be related to our disease which seem to improve with Lyme treatment.
Also, his protocol addresses other issues I feel are pertinent to my health (even before Morgellons). Open dresser draws, closet doors, and try to keep in mind that you want to make sure as much air circulation gets around things as possible.
Certainly, I see over time that my immune system is weak, and my gut reaction now to coasting is that it could be an eventual time bomb. Don't do this if you have fishtanks in the room, and make sure to protect your pets by keeping them out. For those that have limited budgets and can't afford high-end probiotics, this is a great way to get beneficial bacteria into your system.
I'm taking Cats Claw, Sarsaparilla root (Jamaican—which I grind in my coffee grinder), Eleuthero (Siberian Ginseng), Astragalus, Japanese Knotweed and Andrographis.
Computer Equipment —I disassembled all my equipment including cords and put them into a big bin with mothballs. To weight it down, I'm using a ball shaped crystal, but a glass paperweight would work too.
To his formula I've added in Ashwagandha and Sweet Cinnamon (from Sri Lanka) for the brain, as well as nettles (excellent herb for trace minerals and general support of system) and Pau D'arco (fungal). If using a metal screwtop on the jar, make sure that the liquid covering the vegetables stays 1 inch below the lid, otherwise it might corrode the lid.
I take a quarter level teaspoon of each herb (which is roughly the equivalent of one 00 capsule) added to some water and drink it down. Remember, fermenting vegetables give off a gas that needs to escape, so lightly screw on the top which will allow trapped gas to leave. It did the trick.Mothballs are nasty and toxic, this is a last resort solution and I suggest you do your best to limit exposure especially when it comes to inhaling.
Also, note that certain plastic foams will absorb the odor of the mothballs and there is no way to get that smell out. Mercola suggests opening a probiotic pill into the mixture or using juiced celery instead of salt to ferment. Surprisingly, I did not feel exhausted, although the protocol was pretty intense and caused a lot of flushing through the digestive system.
If you have a problem in an isolated area such as a room, I'd put a bin right outside the door with diatomaceous earth? in it, or methol crystals.
These beneficial bacteria produce helpful enzymes as well as antibiotic and anti carcinogenic substances. This is not a new symptom and usually happens in the first few weeks of starting any new protocol.
As these breakouts have always been so minor and short-lived? (an occasional papercut lesion or what looks like a pin prick), I paid them little mind. I encourage those wanting to interact with others in the Morgellons communtiy to join the forum (or the many other Facebook groups). In this case, the skin continued to break open for the duration of treatment and I had some long "scratch" marks come up as well. Most of the processed food in supermarkets contains some derivatives of corn or soy—yet another reason to eat unprocessed food. It seemed like the last papercut I got was deeper and for the first time I started to worry that perhaps I was giving myself a lesion problem that I might not be able to turn off. Gratitude to Rayelta Nayar? for all her hard work preparing these!Note that I am not publishing the below pdfs as recommendations. To learn more about genetically modified seed and why it is so bad for you read, Seeds of Deception or Genetic Roulette, by Jeffrey Smith. I'm not endorsing nor do I follow any of the protocols below, yet, feel the public should have easy access to the information and form their own opinions about them.
Occasionally they run it for free on his site so it pays to get on his mailing list and they will notify you.
This little spot has bothered me on occasion on and off throughout the years of my Morgellons experience, but during the Buhner protocol, it itched almost constantly. On the plus side, I could tell there was a lot of detoxification going on and all of those bitter herbs were really helpful for quelling sugar cravings. I believe I will revisit this protocol modified in the future, but for now, am taking a rest from it. Note that when I ceased treatment, the papercut and pinprick lesions stopped, although I recently had a three-inch long "scratch" appear on my leg weeks after stopping his treatment some weeks back. Reflections Awareness Poster Links Ayla's Art Contact Ayla Morgellons Disease: Tips for healing lesions, oral care and environment   Information for dealing with Morgellons lesions using topical aids as well as FAR infrared technology. This was a surprise, since problems usually only show up on my hands and 3 inches is rather a statement!For the first time, the scratch resembled images I've seen for Bartonella.
Wahl who was crippled and in a wheelchair from Multiple Sclerosis shares what she learned about diet and how she was able to reverse and heal her illness. If she could accomplish such a spectacular feat as this, what might this diet do for the Morgellons sufferer?
There is much about it that I think is helpful, and I encourage people to study these herbs and supplements carefully, and decide for themselves if they want to incorporate them. This is a very difficult protocol and for any who have detoxification pathway issues, this could impact their health negatively. The release of toxins in a system that cannot remove them properly can be deadly, so it is important to not rush carelessly forward with something this strong. I did feel like the protocol helped me on many levels, but I could not tolerate the heart issues with pressure on the chest, burning, and breathing difficulties. The creator of the protocol feels that Bartonella is at the core of the Morgellons infection, and Bartonella likes to set up shop in the endothelial tissue of the heart.
It's not a cure, but it WILL rid each and every lesion if the application is consistent. Thinking this was just a severe Herxheimer reaction, I went back on the protocol but was unable to advance more than one drop of each tincture before heart and breathing issues returned with a vengeance.
You can also open capsules of probiotics and not just one since you are covering a large area Beware that in the morning the liquid will have absorbed into your skin or evaporated leaving lots of crumbs and it's messy. This time, the heart issues did not abate immediately, and it's been some weeks now in which they often come back on a low level. His original protocol (which he posted on Jenna's blog and which is now removed) did not use MSM, or Silver Sol or various other supplements. It also did not include baking soda, which is not inherently a problem, but at 2 teaspoons a day, might become one. Her formula contains DMSO which some feel is controversial, so do your own research and decide if it's the right direction for you. It is a carrier and contrary to what experts say it is not harmful, you can research it yourself if you haven't already done so. You won't be able to get them all out and yes some may die in the skin and cause a breakout, but over time is will subside. It's taken me over a year now as certain section of my face were harder to deal with specifically the chin and cheeks.
I was using antibiotics and I'd have to smear it on everyday and still not get rid of this and those antibiotics are not good for you.
16, 2012 • 2nd Live blood microscopyI saw Rick for a second live blood analysis on November 16, 2012. No ghost cells, no rouleax or sticky blood, the red blood cells are fuller, look stronger and are hydrated.
Candida has been greatly reduced in just 2+ months.?The treatment of olive leaf extract, caprylic acid and l-glutamine powder as per his suggestion for candida is working. I began addressing it by taking one capsule of both the olive leaf and caprylic acid plus one heaping tsp. After I was sure I had no reactions to this, upped the dosage to 2 caps of each with one tsp. That is not to say that the Morgellons has been effected, we saw two fibers in the dried blood samples. There seemed to me to be more bacteria in the blood and the white blood cells although they are strong and were very active were not plentiful.
I attribute the lower level of white blood cell activity to the fact that I was more sedentary these past two months then normally due to a foot problem that kept me off it. Rick suggested that I do lymphatic drainage work using a brush or mitt, followed by getting on a rebounder to jumpstart the lymph moving.
He feels that getting the lymphatics going will produce more white blood cells to remove the bacteria from the blood.The chia seeds in the morning are wonderful. Rick suggests way to activate more white blood cell activity by way of the lymphatic system. Josh AxeStart HereShop for Health Products4 Steps to Heal Leaky Gut and Autoimmune Disease Affiliate Disclosure 0 Comments Leaky gut syndrome is a rapidly growing condition that millions of people are struggling with and don’t even know it.
Partially digested protein and fat can seep through your intestinal lining, making their way into your bloodstream and causing an allergic response.This allergic response doesn’t mean you’ll break out in a rash all over your body, but it can lead to one of the symptoms I’ve mentioned above.
Once your gut is healthy, you can add back in grains that have been fermented and sprouted to eat occasionally.Conventional cows milk is another food that can cause leaky gut. Also, the pasteurization process will destroy vital enzymes, making sugars like lactose very difficult to digest.
For this reason, I only recommend buying dairy that is raw and from A2 cows, goats, sheep, or buffalo.Sugar is another substance that will wreak havoc on your digestive system. For many, this imbalance can begin at birth because of a C-section or because the mother didn’t have a healthy gut herself. The overuse of prescription antibiotic drugs, tap water with chlorine and fluoride, and the lack of probiotic-rich foods contribute to this imbalance of good and bad bacteria.Leaky Gut and the BrainAnother topic I want to quickly discuss is how leaky gut can affect the brain. If you’ve ever seen a child with autism experience a mood swing, this can be caused by intestinal permeability.
Gluten-free and casein-free diets have proven effective for many children with autism because these proteins can leak through the gut and then recirculate and act on the brain similarly to an opioid drug.This is also why leaky gut syndrome has been linked to other psychological disorders such as anxiety, depression and bipolar disorder. So, in many cases, if you can heal the gut, you can heal the brain.The 4-Step Plan to Heal Leaky GutThe good news is there’s a solution to successfully healing leaky gut. The MCFA’s in coconut are easier to digest than other fats so they work well for leaky gut.
I see people all the time only follow part of the protocol in healing their leaky gut syndrome by removing the damaging irritants.
This herb is especially beneficial if someone’s leaky gut is being caused by emotional stress. Take 500 milligrams twice daily.#5 Quercetin has also been shown to improve gut barrier function by sealing the gut because it supports creation of tight junction proteins. It also stabilizes mast cells and reduces the release of histamine, which is common in food intolerance.
902-10.Visser, J (2010) Tight Junctions, Intestinal Permiability and Autoimmunity Celiac Disease and Type 1 Diabetes Paradigms.
When I first started this new way of being healthy, I drank the solution 30 minutes before every meal until I felt better, now I only have to drink it in the morning. I had my gallbladder out in 2009 and in 2010 made a trip to the ER with a LES spasm that I thought was a heart attack.
Long story short, I gradually fell off the diet and then started having migraine headaches.
I’ve gained an enormous amount of weight for my frame and now have noticed swelling in my hands, knees and feet.
They are more likely to cause issues in people than other foods but again, everyone is different!
It is possible that almonds and a diet high in nuts and seeds could cause stomach cramping. Even when I remove those foods, I still get histamine reactions…severe palpitations with every meal. I have had to stop my homemade kefir and fermented veggies and homemade broth due to the histamines.



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