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To understand ourselves it is important to understand our ancestors, and a part of them, and their heritage, lives on in us today. To the world the American Indians seemed like a forgotten people when the English colonists first arrived and began to occupy their lands.
I want to give special thanks to my cousin, Mary Hilliard, for her assistance and encouragement in researching and preparing this book. Wherever possible I have tried to find at least two sources for the genealogical data, but this has not always been possible. I have also found Franklin Elewatum Bearce's history, Who Our Forefathers Really Were, A True Narrative of Our White and Indian Ancestors, to be very helpful. It is certainly possible that such a record may contain errors, but it is also very fortunate that we have access to this record as it presents firsthand knowledge of some of the individuals discussed in this book. 8 Newcomba€? Cpt. Sometime before the colonial period, the Iroquoian tribes began moving from the southern plains eastward across the Mississippi River and then northeasterly between the Appalachians and the Ohio River Valley, into the Great Lakes region, then through New York and down the St.
Though they were neighbors and had similar skin color, these two groups of Indians were as dissimilar as the French and the Germans in Europe.
Federations, as well as the individual tribes, were fluid organizations to the extent that the sachem was supported as long as he had the strength to maintain his position. Belonging to a federation meant that an annual tribute had to be sent to support the great sachem and his household, warriors had to be sent if he called for a given number to go to war, and strictest obedience and fidelity was demanded. Some of these federations had as many as thirty member tribes supporting their Great Sachem, although many of these tribes would be counted by more than one sachem, as any tribe that was forced to pay tribute was considered as part of that Great Sachem's federation. Any member of the society who dishonored himself, in anyway, was no longer worthy of the respect of his people.
When viewing the typical Indians of America, one would describe them as having a dark brown skin. They wore relatively little clothing, especially in summer, although the women were usually somewhat more modest than the men.
The English resented the fact that the Indians wouldn't convert to Christianity as soon as the missionaries came among them.
The various tribes of New England spoke basically the same language and could understand each other well.
There are many words used commonly in our language today that were learned from these New England Indians: Squaw, wigwam, wampum, pow-wow, moccasin, papoose, etc.
Today there is little doubt that prior to Columbus's voyage, the Norsemen sailed to the coast of North America early in the eleventh century. We do not have a record of all of the European contact and influence on the Indians in the early years of exploration because the greatest exposure came from the early European fishermen and trappers who kept no records of their adventures, as opposed to the explorers. In 1524, Giovanni da Verrazano wrote the first known description of a continuous voyage up the eastern coast of North America. As the fur trade became increasingly more important to Europeans, they relied heavily on the Indians to do the trapping for them. Another problem with which the Indians had to contend was the White man's diseases for which they had no tolerance nor immunity. In the spring of 1606, Gorges sent Assacumet and Manida, as guides on a ship with Captain Henry Chalons, to New England to search for a site for a settlement. In 1614, Captain John Smith, who had already been involved in the colony at James Town, Virginia, was again commissioned to take two ships to New England in search of gold, whales or anything else of value. Dermer wanted to trade with the local Indians of the Wampanoag Federation and asked Squanto if he would guide them and be their interpreter. Derner was given safe passage through Wampanoag land by Massasoit and soon returned to his ship. When the Pilgrims left England in the Mayflower, their stated intent was to establish a settlement on the mouth of the Hudson River, at the site of present day New York City. The Pilgrims returned to the Mayflower and, after many days of exploration, found a more suitable location.
On March 16, 1621 the Pilgrims were surprised by a tall Indian who walked boldly into the plantation crying out, "Welcome! The Pilgrims gestured for Massasoit to join them in their fort but, he in turn, gestured for them to come to him.
When the amenities were ended, the English brought out a treaty they had prepared in advance, which specified that the Wampanoags would be allies to the English in the event of war with any other peoples and that they would not harm one-another; and that when any Indians came to visit the plantation they would leave their weapons behind. After the ceremonies were ended, Governor Carver escorted Massasoit to the edge of the settlement and waited there for the safe return of Winslow.
Part of Massasoit's willingness to make an alliance with the English must be credited to his weakened condition after suffering from the recent epidemics which left his followers at about half of the strength of his enemies, the Narragansetts. In June of 1621, about three months after the signing of the treaty, a young boy from the Colony was lost in the woods. When the English could not find the boy, Governor William Bradford, (who replaced John Carver, who died in April) sent to Massasoit for help in locating the boy. That summer Governor Bradford sent Edward Winslow and Stephen Hopkins, with Squanto, to Pokanoket (Massasoit's own tribe, on the peninsula where Bristol, R.I. From this trip of Winslow's, we learn more about the daily life of the Indians in this area. Massasoit urged his guests to stay longer but they insisted they must return to Plymouth before the Sabbath.
Less than a month following this visit, Massasoit sent Hobomock, a high ranking member of the Wampanoag Council, to Plymouth to act as his ambassador and to aid the Pilgrims in whatever way they needed. Hobomock and Squanto were surprised at what they heard, and quietly withdrew from the camp to Squanto's wigwam but were captured there before they could get to Plymouth. Although the Narragansetts and Wampanoags were historical enemies and continually feuding over land, they did not usually put hostages of high rank to death.
Normally, treason was punishable by death and Massasoit would certainly have been justified in executing Corbitant for his part in the plot against him but, for some reason, Massasoit complete forgave him. Their first harvest was not a large one but the Pilgrims were.happy to have anything at all.
During the winter, a rivalry developed between Squanto and Hobomock, the two Indians who now lived continually at Plymouth. According to the treaty he had signed with Plymouth, they were to turn over to him any Indians guilty of offense.
In June and July, three ships arrived at Plymouth with occupants who expected to be taken in and cared for.
In the winter of 1622-23, Governor William Bradford made trips to the various Indian tribes around Cape Cod to buy food to keep the Pilgrims from starvation. Next, Standish went to Cummaquid (Barnstable, MA.) where Iyanough was Sachem of the Mattachee Tribe.
Thinking that Massasoit was dead, they went instead to Pocasset, where they sought Corbitant who, they were sure, would succeed Massasoit as the next Great Sachem.
Winslow describes their arrival, where the Indians had gathered so closely that it took some effort to get through the crowd to the Great Sachem. Since the Pow-wow's medicine had not produced any results, Winslow asked permission to try to help the ailing Sachem.
Their second Thanksgiving was combined with the wedding celebration of Governor Bradford and Alice Southworth. Because of Massasoit's honored position, more was recorded of him than of other Indians of his time. Massasoit most likely became Sachem of the Pokanokets, and Great Sachem of the Wampanoags, between 1605-1615.
The second son of Massasoit was Pometacomet, (alias Pometacom, Metacom, Metacomet, Metacomo or Philip.) Philip was born in 1640, at least 16 years younger than Alexander.
The third son, Sunconewhew, was sent by his Father to learn the white man's ways and to attend school at Harvard. When his two oldest sons were old enough to marry, Massasoit made the arrangements for them to marry the two daughters of the highly regarded Corbitant, Sachem of the Pocasset tribe.
The tribes of Cape Cod, Martha's Vineyard, Nantucket, as well as some of the Nipmuck tribes of central Massachusetts, looked to him for Military defense and leadership. Following the plagues of 1617, which reduced his nation so drastically and left his greatest enemy, the Narragansetts of Rhode Island, so unaffected, Massasoit was in a weakened position. In 1632, following a battle with the Narragansetts in which he regained the Island of Aquidneck, Massasoit changed his name to Ousamequin (Yellow feather) sometimes spelled Wassamegon, Oosamequen, Ussamequen.
In 1637, the English waged an unprovoked war of extermination against the Pequot Federation of Connecticut, which shocked both the Wampanoags and the Narragansetts so much that both Nations wanted to avoid hostilities with the feared English. After hearing of the death of his good friend, Edward Winslow in 1655, Massasoit realized that his generation was passing away. As Massasoit's health began to decline, he turned more and more of the responsibilities over to Alexander who was a very capable leader and who was already leading the warriors on expedition against some of their enemies. Massasoit was succeeded, as Great Sachem, by his son Alexander, assisted by his brother, Philip.


The younger generation saw, in Alexander, a strong, new leader who could see the danger of catering to the English.
Both Philip and Weetamoo were very vocal in their condemnation of the English and word of their accusations soon reached Plymouth.
Together, Philip and Canonchet reasoned that it would take a great deal of preparation for such a war.
At first I was very skeptical of this record as it was a family tradition passed down for many generations. She was very fond of her Grandmother, Freelove, knew all about her and stated on several occasions that Freelove's Mother was Sarah Mauwee, daughter of Joseph Mauwee, Sachem of Choosetown, and not Tabitha Rubbards (Roberts).
Massasoit was the Sachem of this tribe, as well as being the Great Sachem over the entire Wampanoag Federation, which consisted of over 30 tribes in central and southeastern Massachusetts, Cape Cod, Martha's Vineyard and Nantucket.
Welcome, Englishmen!" It was a cold and windy day, yet this Indian, who introduced himself as Samoset, Sachem of a tribe in Monhegan Island, Maine, wore only moccasins and a fringed loin skin. A Moebius Syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. She obtained her copy of Zerviah Newcomb's Chronical from Zerviah's original diary, in the hands of Josiah 3rd himself.
Most people with Moebius Syndrome are born with complete facial paralysis and can't close their eyes or show facial expressions. INDEED FEW THERE ARE OF THE SERVANTS OF ELOHIM WHO HAVE EVER FASTED 1 OR 2 DAYS, LET ALONE A PROPHET-LENGTH FAST OF 21-40 DAYS.A IT SEEMS THE 21ST. Bearce's Great-aunt, Mary Caroline, lived with Josiah III and Freelove Canfield Bearce for several years, listened to their ancestral stories, and made her own personal copy of Zerviah's diary supplement. Lawrence to what is now known as Lake Champlain where his party killed several Mohawks in a show of European strength and musketry. Respiratory problems, speech and swallowing disorders, visual impairments, sensory integration dysfunction, sleep disorders and weak upper body strength may also be present. A People with Moebius Syndrome are of normal intelligence, although their lack of facial expression is often taken to be due to dullness or unfriendliness.It is estimated that there are only between 5,000 to 10,000 cases of Moebius syndrome worldwide. ALMOST EVERYTHING FROM GENES TO GERMOLINE IS BLAMED FOR FAT BELLIES AND BLOCKED INTESTINES !! A "There is no substitute for a loving, supportive family A­ whether that family is biological, or our worldwide Moebius Family.
FOR, AS SOON AS THEY WEAR OUT THE SET OF TEETH NATURE GAVE THEM, BY MUNCHING THROUGH A LIFETIME OF GLUTTONY, THEY ARE QUICKLY OFF TO THEA  DENTIST A TO ACQUIRE AN ARTIFICIAL PAIR TO FINISH OFF THE JOB.
We encourage you to proudly wear purple, and do some of your own research to educate yourself and others about Moebius Syndrome.
He further told them that Massasoit, the Great Sachem of the Wampanoags, was at Nemasket (a distance of about 15 miles) with many of his Counselors. We appreciate your support and look forward to the biggest Moebius Syndrome Awareness day ever!A Click here to download a pdf copy of the press release. THIS FRIEND TOLD ME THAT THE PRAYER MEETING WAS TO BE PRECEDED BY A DAY OF FASTING AND WOULD I LIKE TO JOIN IN THE DAY OF FASTING. Just click here to order directly from Fresh Printz, the official provider of MSAD clothing. I MUST CONFESS THAT I TRULY DID ENJOY THIS `FISH SUPPER`, ALBEIT WITH QUITE A MEASURE OF GUILT.A LATER ON AT THE APOSTOLIC PRAYER MEETING I HEARD THESE DEAR FOLKS PRAYING AND CALLING TO ELOHIM IN SUCH FERVENCY AND FAITH THAT I KNEW THAT THEY HAD AN EXPERIENCE FROM YAHWEH THAT I DID NOT HAVE. 24th, make sure to wear your shirt with pride, telling everyone you know about Moebius and the special day honoring those with the condition. This was the day our lives were put on course -part of the same journey, with Paul Mobius as the Pilot, we the passengers.The realization that word around Moebius Syndrome has spread brings a smile upon my face. The diagnoses were dreadful, parents were sent home without any hope, advice or information. Who could survive against these odds?What was left for parents to hold onto but Prayer, love and a Godly miracle!
A IT WAS DURING MY 6 MONTHS IN THIS PRECIOUS FELLOWSHIP THAT THIS LIFE-CHANGING EXPERIENCE OF MINE TOOK PLACE.A AN OLDER BROTHER IN THE FELLOWSHIP NAMED FRANK CAME TO MY DOOR ONE SATURDAY AFTERNOON IN LATE AUTUMN 1971 AND SAID THAT "GOD HAS ASKED ME TO GIVE YOU THIS LEAFLET AND WANTS YOU TO READ IT" .
With the help of family, friends, and groups connected to the family, you can now raise the awareness around Moebius Syndrome. A FRANK WAS AN EXTREMELY QUIET BROTHER, VERY NERVOUS AND UNSURE OF HIMSELF AT THE BEST OF TIMES, AND ALWAYS DISPLAYED AN INFERIORITY COMPLEX AND I CONSIDERED RIGHT AWAY THAT IT MUST HAVE TAKEN A LOT OUT OF HIM TO OBEY THIS `LEADING OF THE LORD` AND THAT HE MUST BE ABSOLUTELY CONVINCED THAT HE HEARD THE LORD TELLING HIM TO COME AND KNOCK ON MY DOOR AND I KINDLY ACCEPTED THE OFFER OF THE LEAFLET. Put your talents, your compassion, your knowledge, and your experience out there in a way that can benefit others. In hindsight, any challenge or disability to me means loving that person unconditionally, so let us step up and spread the awareness.
Our appeal is simple a€“ in support of those living with Moebius Syndrome, wear purple on 24 January and share your knowledge about this disorder.
24 January is now also a day of Celebration in the Life of those living with Moebius Syndrome. BUT IT DID!!!A THAT SATURDAY AFTERNOON AS I READ THIS AMAZING STORY, I WAS SHOWN BY THE SPIRIT OF THE LORD THAT MY YEARS OF RESISTANCE AND OBJECTIONS TO FASTINGS WERE NOTHING BUT SELFISH AND STINKING PRIDE AND I IMMEDIATELY REPENTED WITH TRUE, DEEP, HEART-FELT SORROW FOR GRIEVING THE LORD IN THIS ATROCIOUS MANNER.
Thank you to all who have made this day possible and for giving our children a new meaning to life.- Kay Von WillinghMoebius Syndrome Awareness Day (MSAD) is important to me for many reasons. DAY OF THE FAST, TUESDAY EVENING, I WAS AT PASTOR BURNETT`S HOUSE ATTENDING THE WEEKLY PRAYER MEETING. DURING PRAYER TIME PASTOR BURNETT RECEIVED AN URGENT CALL TO ATTEND TO ONE OF HIS FLOCK IN MAIDENHEAD (A TOWN A FEW MILES FROM READING) WHO WAS QUITE ILL AND DESPERATELY NEEDED PRAYER. Like many of the other families, we learned of a new syndrome that day that very few had ever heard of.
A AS PASTOR AND SISTER BURNETT AND 2 ELDERS LEFT TO GO, SISTER BURNETT TURNED BACK AND SAID, "BROTHER DENIS, WILL YOU COME WITH US?".
I remember the call from my sister, Stacey, telling me Dakotah was born and that something was wrong. Thankfully, I found the Many Faces of Moebius Syndrome and Moebius Syndrome Foundation websites. The websites have brought many families together through love, support and sharing of personal knowledge and experiences, however, with very little information available to families otherwise this day is important, and much needed, to give a voice to the syndrome and the families who live it each and every day.
A AN AWESOME ENCOUNTERA WE ARRIVED AND ENTERING INTO THE HOME, WERE USHERED UPSTAIRS BY FAMILY MEMBERS AND THERE LYING ON A BED AND WEEPING WAS A LITTLE INDIAN LADY.
My hope is that Moebius Syndrome Awareness Day will bring awareness and understanding every day.
My hope is that Moebius Syndrome Awareness Day will bring awareness and understanding to those around them, and within the medical community as well.- Andrea (Sweetwood) SmithWhen I was asked what MSAD means to me. PASTOR BURNETT AND HIS TEAM PRAYED OVER THE LADY FOR SOME TIME AND THEN SISTER BURNETT TURNED TO ME AND IN A COMMANDING VOICE SAID, A "BROTHER DENIS, PRAY FOR THIS SISTER". I immediately think about Caleb and all the children whom I've been introduced to through Facebook connections. I think of my friend Tim Smith, who has been informing masses of people about Moebius Syndrome for years. I HAD NEVER PRAYED PUBLICLY FOR ANYONE TO BE HEALED BEFORE, AND CERTAINLY NEVER IN THE PRESENCE OF A PASTOR OR SISTER BURNETT WHO AS I SAID WAS VERY STERN.A THIS, REMEMBER, WAS THE EVENING OF THE 2ND. MSAD 2011 meant (to me) that a common goal within the Moebius community had finally been met. I FELT MY WHOLE BODY, FROM THE CROWN OF MY HEAD TO THE SOLES OF MY FEET SHAKING LIKE A LEAF IN A MIGHTY HURRICANE. NEVER BEFORE HAD I EXPERIENCED ANYTHING LIKE THIS.A NEXT MOMENT A GREAT MIST OF DARKNESS ENVELOPED ME, AND ALTHOUGH MY EYES WERE OPEN I DID NOT SEE PASTOR OR SISTER BURNETT OR THE ELDERS.
I WAS ASTONISHED BECAUSE I HAD BEEN TAUGHT IN CHURCH THAT DEMONS CANNOT AFFLICT CHRISTIANS. THIS DEMON WAS ABOUT 2 FEET IN HEIGHT, HAD SHARP FACIAL FEATURES AND WAS MONKEY-LIKE IN APPEARANCE.A IT STRUCK ME THAT THIS DEMON WAS TOTALLY UNAWARE OF THE IMPASSIONED PRAYERS OF PASTOR BURNETT AND HIS TEAM ON BEHALF OF THIS SICK LADY. AS I CONSIDERED THIS THERE AROSE WITHIN ME A DEEPLY RIGHTEOUS ANGER AT THIS DEMON, FOR I CONSIDERED THAT THIS DEMON HAD NO RIGHT TO AFFLICT THIS LADY AS SHE WAS A CHILD OF GOD. I KNOW THAT I VOCALISED THE WORDS BUT IT SEEMS THAT THE VOICE OF ALMIGHTY GOD SPOKE THROUGH MY VOCAL CORDS TO THIS DEMON.A I HEARD THIS AWESOME AND AUTHORATATIVE VOICE ADDRESSING THE DEMON, "THOU FOUL UNCLEAN SPIRIT, YOU HAVE NO AUTHORITY TO PUT YOUR FOUL DISEASE ON THIS WOMAN. God bless!- David MoffittThe media have made a number of illnesses well known to the public such as cancer, mental health illnesses like Bipolar Disorder and Schizophrenia and that is just to name a few.
Though in most cases Moebius Syndrome isn't life threatening it is still a syndrome that affects people all around the world emotionally and physically.Every day people usually have no clue what Moebius Syndrome is, so sufferers with severe facial paralysis sometimes will get looked at strangely while innocently walking down the street, going about their day.
Often teenagers in high school will get bullied because having Moebius Syndrome makes them look different from others.
This can have a serious affect on people, making them feel even more anxious about their appearance. HER VOICE SEEMED QUITE STERN.AS I CAME OUT OF THE TRANCE-LIKE VISION I COULD FEEL SISTER BURNETT TAPPING ME ON THE SHOULDER AND I QUIETLY STOOD UP AND MOVED AWAY FROM THE BED. It is hard when others dona€™t understand the syndrome; they might assume a sufferer is moody or unfriendly by the appearance of their face when this is not the case. A "JESUS HEALED ME, JESUS HEALED ME".A AS I STOOD WATCHING THESE THINGS UNFOLD I REALIZED THAT WHEN I CAME OUT OF THE TRANCE I HAD BEEN KNEELING WITH MY HANDS LAID ON THE LOWER PART OF THE LADY`S STOMACH.


Most of the time it is really hard to let people in because it can be awkward breaking the ice, not knowing quite how to explain yourself to other people so that they can get a better understanding of the syndrome. THIS PUZZLED ME IMMENSELY FOR I KNEW THAT WHEN I WENT TO PRAY OVER HER I HAD BEEN STANDING NEAR THE TOP OF THE BED WITH MY HANDS ON HER HEAD. And when you do explain yourself to someone you have to explain yourself to someone else and this can be tiring.Having a Moebius Syndrome Awareness day will benefit the public so much, its not a common syndrome so putting it out there to the world will just make people with the syndromes life a little easier.
I COULD NOT RECALL MOVING FROM MY STANDING POSITION NEAR HER HEAD TO A KNEELING POSITION NEAR HER STOMACH AND I CONCLUDED THAT THE SPIRIT OF THE LORD MUST HAVE SO MOVED ME DURING THE TRANCE-LIKE EXPERIENCE.A THE NEXT MOMENT A WHITE MAN ENTERS THE ROOM AND LOOKING AT US, REMARKS,"I AM A DOCTOR AND THIS LADY IS MY PATIENT AND I NEED TO EXAMINE HER".
That way the world is educated and familiar with it and hopefully they will be able to recognize someone with Moebius Syndrome. Hopefully they will be able to realize that people with Moebius Syndrome and perfectly intelligent and intellectual, and that they lead normal lives. AFTER A FEW MINUTES THE DOCTOR COMES DOWNSTAIRS, LIFTS A TELEPHONE FROM THE WALL, RINGS THE HOSPITAL TO CANCEL AN AMBULANCE WHICH HAD BEEN ARRANGED TO TAKE THE LADY TO HOSPITAL.
This will also benefit Doctors who will be able to diagnose new born babies and infants quicker.Having an awareness day will also be great for people with the syndrome who are unaware that there is a Moebius Syndrome website and group on Facebook that they can go to if they need some support. HE THEN PICKS UP HIS HAT, DONS IT AND NODDING HIS HEAD TO ME, EXITS THE HOUSE.A DIVINE DELIVERANCEA THE FOLLOWING SUNDAY, THE LITTLE INDIAN LADY ARRIVED AT CHURCH WITH HER FAMILY AND A HUGE BASKETFUL OF FRUITS TO GIVE TO THE CONGREGATION AS A THANKSGIVING TO GOD FOR HER DIVINE DELIVERANCE AND TOTAL HEALING. This can be a very positive experience as they can interact and meet up with others with the syndrome; this can help people feel less isolated.
I WAS THEN TOLD THAT THE SISTER HAD BEEN SUFFERING FROM SEVERE HAEMMORAGING, WAS, UNDERSTANDABLY, VERY WEAK AND HAD BEEN SCHEDULED TO GO INTO HOSPITAL. Finally the more people that know about the syndrome the better it will be to find what causes Moebius Syndrome as this has been yet to be discovered.- Loriana Sofia FirthI was surprised by how much Jasper got out of MSAD. As a confident, bright and outgoing kid I have always felt that he just took the condition in his stride.
Whilst I believe in spreading awareness, i never realized the impact having a MSAD would have on Jasper personally. A NOT LONG AFTER THIS EXPERIENCE I MOVED FROM READING TO SOUTH LONDON.THE NEXT TIME I SAW THAT DEAR LADY WAS ALMOST 12 YEARS LATER (1983) IN SOUTHALL, WEST LONDON, WHERE MY WIFE AND I HAD AT THAT TIME ACCEPTED THE CALL TO THE PASTORATE OF THE SOUTHALL ASSEMBLY OF GOD CHURCH.
The pride in his face from being the MFMS poster boy for the day was incredible- it dawned on me then that MSAD was important for him because it gave him the opportunity to celebrate who he is BECAUSE of Moebius syndrome not despite it. I have always tried to ensure that Jasper never feels as though he is deficient or that he needs 'fixing', MSAD helped to consolidate this.'- Lauren BroadhurstA few months ago I was watching an old episode of ER where a young boy with Down Syndrome is brought into the emergency room. ANOTHER SON, ASHOK WHO WAS INSTANTLY HEALED THROUGH THE MINISTRY OF AMERICAN EVANGELIST REV. Immediately the TV doctor makes a decision on how his patient should be treated after considering a few risk factors involved in having Down Syndrome. It's mostly likely that if the situation were real the doctor wouldn't even know what Moebius Syndrome is, never mind knowing how to treat someone with it.
I believe not only could a Moebius Syndrome Awareness Day teach doctors how to treat those with Moebius medically, it would teach others how to treat those affected by Moebius socially as well.- Gavin FoucheThe 1st Annual Moebius Syndrome Awareness Day was an invaluable day for our family.
I believe that with the HUGE effort of the entire Moebius Syndrome community, MSAD allowed us to educate countless people across the world, including our family and friends that were unaware of exactly what Zaydena€™s diagnosis meant. IMPORTANT NOTICE LITTLE BLOOMS CHILDREN`S ORPHANAGE INDIA MY INDIA MISSIONS TRIP APOSTOLIC BIBLICAL THEOLOGICAL SEMINARY NEW DELHI INDIA NAZARENE ISRAELITE ??? Parents, relatives, friends and fellow Moebians made MSAD 2011 a huge success through their hard work and creativity. INTERESTING VIDEOS OPEN LETTER TO PRESIDENT OBAMA NAZI GENOCIDE PERSECUTION OF THE JEWISH RACE HITLER`S HOLOCAUST BLUEPRINT CHRIST KILLERS??? Leta€™s make January 24, 2012 known throughout the world so parents and health care providers can make informed decisions when a diagnosis of Moebius Syndrome is made.- Holly WilliamsA  What does Moebius Syndrome mean to me? When I was younger, it was no fun to have other kids my age stare at me, or make fun of me (it's really no fun to have that happen to you as an adult either). At the same time, having Moebius Syndrome has allowed me to get to know some wonderful people, people whom I never would have known otherwisea€”of course I speak of the Moebius Community. And I think having to overcome the obstacles that I and all of us face, has made me tougher, a bit more resilient, than I would have been otherwise. We understand achieving despite obstacles, we understand climbing mountains, striving, trying. But the entire Moebius community and what it achieves daily showsa€”life sure is worth living.- Kevin Smant___________________________________________________________________________________________________________A Please consider joining us on Facebook using the icon above.
Each time we get a new "Like" we are spreading awareness about moebius syndrome one step further. As we become better known people start to see us for our commonalities not our differences. More doors are opened for us and we are able to do more towards our mission goal of "Creating a better tomorrow for ourselves and our children through education and public awareness!" We have to keep going and growing. For Moebius Syndrome Awareness Day 2012 we reached out to other rare disease groups and told them about our Awareness Day.
Essentially saying, a€?How can we help?a€?Many Rare Disease Groups have their own Awareness Days. Moebius Syndrome Awareness Day and the Many Faces of Moebius Syndrome would not have become successful without the support and friendship of NORD, Rare Connect, The Global Genes Project, and many other Rare Disease groups around the world.
The Global Genes Project will be working with local businesses schools, sports teams, places of worship, parent advocates, etc. The jean ribbon has become a unifying symbol for hope in the RARE disease community and building awareness is easy!
Project team members are currently building the tools for a much needed program called 'RARE Meet Up's'. We are currently looking for rare disease advocates to contact us if they are interested in participating in a 'RARE Meet Up' group in their local area. We will continue through 2012 with the goal of connecting 7000 RARE families with 7,000 new champions for the cause. And Global Genes Project team members wish The Many Faces of Moebius Syndrome much success on your awareness day on January 24, 2012!
28 in other years) the world celebrates Rare Disease Day, to promote awareness of rare diseases as a public health challenge that cannot be ignored. Rare Disease Day 2011 touched minds, hearts and souls across the nation and 2012 that momentum continues.
Advocacy days, like Rare Disease and the Moebius Syndrome Awareness Day, are key components to spreading messages of awareness, advocacy, and hope both within the community and to the public.
NORD is a unique federation of voluntary health organizations dedicated to helping people with rare a€?orphana€? diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. Since 1983, NORD has worked closely with our patient organization members, which now number over 160.
Senate adopted by unanimous consent a resolution designating February 28, 2011, Rare Disease Day across the U.S.
Thanks to an amazing grassroots campaign, proclamations were obtained in 48 states and similar documents were obtained in the two other states.
Other successes this past year were obtaining more than 860 partners and ambassadors who represent patients and their families, patient organizations, government entities, medical or other professional societies, or companies that support the theme of the day.
These individuals and organizations contributed to a media and social media blitz where stories, pictures, and videos were shared. Rare Disease Day was also an opportunity to promote the Rare Disease Congressional Caucus that will help focus attention on rare diseases and related needs, such as research. Every story that was shared, press release posted, or pin worn was an opportunity to raise awareness and teach others. We will rely on the mobilizing capacity of our advocates and networks across the country as we truly cannot do it alone.
NORD wishes The Many Faces of Moebius Syndrome and it's partners the best of luck on your awareness day; all of us together have an opportunity to unite our voices for the common themes of awareness, education, research, and hope!
August 8 2015 Official 2015 Moebius Syndrome Awareness Day Page Our 2014-2015 Moebiuis Syndrome Family Holiday HeroesGallery 2 Moebius Syndrome Awareness Day 2015 Video Gallery Smiling with our Hearts upon the World! Most people with Moebius Syndrome are born with complete facial paralysis and can't close their eyes or show facial expressions. A "There is no substitute for a loving, supportive family A­ whether that family is biological, or our worldwide Moebius Family. I immediately think about Caleb and all the children whom I've been introduced to through Facebook connections. When I was younger, it was no fun to have other kids my age stare at me, or make fun of me (it's really no fun to have that happen to you as an adult either). If you haven't already done so please click on the image above and like our Facebook page.



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