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There aren't many 19-year-olds with the ambition to start their own business, but Dubuquer Josh Beytien is one of them. Beytien, a graduate of Dubuque Senior High School, has a variety of skills, but his parents, Craig and Alyson Beytien, knew he probably wasn't well-suited for a 9-to-5 working environment. Josh's parents realized that his work skills carried some significance in an increasingly electronic era, and when Web research revealed there was a local niche for electronic document storage and retrieval, the idea for a business was born. When an official business plan had been drafted, a professional at Iowa Vocational Rehabilitation Services served as a business consultant, reviewing the proposal to make sure it was viable. Josh came up with the business title - explaining that the mammoth taps into his interest with prehistoric time - and the fitting motto "Where the Past is Present." Soon it was time to start wooing clients.
The equipment for Mammoth Scanning Company is set up on a desk in Josh's room, under a shelf lined with books and some prehistoric animal figurines keeping a watchful eye. For Josh and his parents, the hope is that the business will be successful enough that he will not need state or federal assistance in the future.
Craig said Josh's family is pleased he has found work that he enjoys and gives him a heightened sense of purpose. As an individual with cerebral palsy, many activities are more exhausting to me than to the average person. The most memorable experience that I encountered as part of my AmeriCorps experience was the service trip in which I participated.
I consider my 300 hours of service, the requirement of the ICAP program, to be not the impetus, but the rock upon which my love for service was built. Ted, an AmeriCorps member now in his second term, serves at the Institute for Human Development at Northern Arizona University promoting public awareness activities. Daniel and Sarah are high school students participating in a Learn and Serve project that combined curriculum and service. Shannon was a VISTA member who served in the College of Public and Community Service community technology lab at the University of Massachusetts in Boston.
Andre is a part-time AmeriCorps member in the Michigan AmeriCorps Partnership at “Southeastern Village”, who has neurological disabilities.
Dawn, who has a hearing disability, strove to create a work environment that was welcoming and understanding to those individuals with disabilities by advocating for community involvement and supporting organizations that supported and helped individuals with disabilities. Jared was a high school student with disabilities who participated fully in a water quality testing initiative though a school-based service-learning project in Western Massachusetts. Early in Gerald’s service, he and I talked about how the program could best provide a reasonable accommodation to assist him so that he could perform all of his essential duties. Morgellons Disease Awareness -  Artist and Morgellons sufferer, Ayla, journals her experience with the disease   I'd like to introduce myself, I'm Ayla, a 59year old artist and graphic designer who contracted Morgellons in Jan.
A video from that impromptu showcase session, taken by Dennis DaCosta, is posted on Youtube and can also be viewed on her website. So, a€?Wowa€? being the operative term, when the opportunity to feature her presented itself, we jumped at it.
Layah grew up in the east end of Toronto in an area called a€?The Beaches,a€? near Lake Ontario. This was the point at which Layah connected with long-time friend, Oliver Johnson, to handle the studio end of making the demo. As Oliver recounts it, he was lucky to have gotten supportive parents in both his father and stepdad.
When he was at his fathera€™s house, theya€™d jam till the wee hours and sometimes the police would come. In order to learn musical theory, Oliver approached a guitarist, Wayne Cass, to show him what he needed to know to get into the Humber jazz program. Toward the end of his first year at Humber, he damaged his hand while moving a heavy table.
At a certain point, the road started to wear Oliver down and he decided to focus on production.
At this point, Layah approached Oliver to produce the demo for which shea€™d gotten a grant.
In the statement that follows, we can see the wheels turning as she weighed her options: a€?I came home knowing that I really wanted to pursue music and I made my first recording. Layah enrolled in and completed a three year program at The Toronto School of Homeopathic Medicine and received a DSHomMed, Homeopathic Certification. While involved with her studies she was pursuing music as well, performing quite a bit with Oliver. Not strictly a purist, she believes that a mixture of alternative and traditional Western medicine, a€?the best of both worlds,a€? according to each patienta€™s needs is the best solution. For two or three years, Layah and Oliver remained friends while they played music together. Layah says that Oliver has influenced her, injecting some jazz, R & B, soul and funk, given that he had gone on tour with some of the better Canadian players in that realm.
Ita€™s easy to see why The Ontario Arts Council, and the Foundation to Assist Canadian Talent on Records (FACTOR) came through with grants at critical moments. Additionally, Acoustic Live will be hosting its own annual guerrilla showcase at the Northeast Regional Folk Alliance and wea€™ll get to watch Layah and Oliver play a set in our own room.
The new CD, Honey, from Layah and Oliver is just about ready for release and wea€™ve gotten to hear a few sample songs. When Oliver was 9, his mother married a Canadian folk artist, a childrena€™s songwriter, and he then split his time between Toronto and New Hampshire. After high school, following her year of touring and playing, the artistic and practical sides of Layah collided.
We here in the Northeast can thank our lucky starsA  for a number of chances to see her live.
He recently launched Mammoth Scanning Company, a business that creates categorized electronic files of documents and photographs, along with storage and retrieval services. Then in his senior year, Josh landed an AmeriCorps position at the Dubuque Center for History at Loras College and discovered a new area of interest and proficiency: scanning and cataloguing images and documents. With funding in hand, Josh was able to purchase the hardware needed, most important of which was a high-quality scanner, and the software for creating an online environment for clients.
Josh prepared a PowerPoint presentation for his first business pitch and his parents came along as guests to watch the presentation, which secured him a contract with Hills & Dales. He is working on scanning and cataloguing playbills dating back to the 1890s for the arts center. The documents and notes for Josh's current project are neatly arranged near the two-sided scanner, and it is at this station Josh can quickly transfer a document or photo from paper to screen. Growing up, I was told that physical therapy and exercise was the number one way to work on building my endurance, mainly so I would be able to be active and productive as I got older. First and foremost it forced me to step it up in terms of seeking out service opportunities. Prior to the ICAP program, I had only cursory experiences with Habitat through Wartburg’s new student orientation service days, but when I considered service possibilities for my 300 hours alongside the rewarding experience I had with Habitat, it became a natural fit.
Although going on a spring break service trip was on my bucket list during my time at Wartburg, I felt much better prepared and ready for full service immersion after nearly six months of training.
I had the desire, but I did not have the knowledge or the will to serve when I began the program. Students produced books that were then sent to Kenyan children receiving aid from the American Red Cross Association. She helped users, including students with and without disabilities from low-income communities, to learn computer skills, other multimedia applications and assistive technologies. In addition, she taught others about the importance of inclusion and facilitates disability awareness and diversity training to AmeriCorps*NCCC members. She said that "If AmeriCorps, had not opened the doors of opportunity to me, I most likely would still be ashamed and embarrassed of who I am and [how] society has labeled me.
During these years Joe, who has a traumatic brain injury, tutored children, built houses, designed and built wheelchair ramps, surveyed and mapped a historical graveyard, blazed trails, worked at a camp for children and adults with disabilities, and much more. During the project, Jared spoke of all that he learned about water quality and the effects on the environment. NSIP partners with the Association on University Centers on Disability, National Council on Independent Living, Association on Higher Education and Disability and National Down Syndrome Congress to build connections between disability organizations and all CNCS grantees, including national directs, to increase the participation of people with disabilities in national service. During the 2009 Northeast Regional Folk Alliance Conference, he said, a€?Youa€™ve got to head over to the DJsa€™ afternoon meeting. He played Bruce Cockburn, Joni Mitchell, Dire Straits, The Pointer Sisters, Bruce Springsteen, The Beach Boys, Cyndi Lauper, Kate Bush a€¦ I never did any rebelling against my parentsa€™ choice of music.
The question concerning what direction to take with her life still hung in the air and she appears to have approached it with a calm deliberation in incremental stages.
Although music was primarily a hobby, he had an array of musical instruments in the living room, including a drum kit. Hea€™d jam with friends at his dada€™s all summer and then spend the school year with his mother and stepdad in Toronto.
Hea€™s still amazed at the way his father would cajole the officers, claiming the sound wasna€™t all that bad.
He never really studied a€¦ until he went to Humber College in Toronto, which has a program similar to Berklee College of Music in Boston.
Cass was a€?a great guitar player and a great teacher,a€? a favorite that Oliver would watch play in clubs. He found a partner and opened up a studio that, today, works predominately on television projects. She got the grant for her first demo and began recording, but decided that she wanted to pursue a degree in homeopathy as well. In addition, some readers might remember the Dove Self Esteem Funda€™s 2006 a€?True Colorsa€? TV Campaign. Each time Layah had any doubts about music as a chosen path, every time she needed it, a grant would come through.
Layah had to put the guitar aside and let Oliver provide the instrumental accompaniment solo.
When I touched on this, Oliver demurred, saying that Layah had brought her own wide range of influences for him to have had all that much effect on her sense of style.
Layah and Oliver will be playing Music on 4 in Manhattan on November 18th and Our Times Coffeehouse on Long Island on November 19th. Theya€™ll also play a formal Tricentric showcase and numerous other showcases (see the performance list below). Layah will always have a keen ear for the vagaries of love and relationships, but she has her eye on the fate of humankind as well. During the 2009 Northeast Regional Folk Alliance Conference, he said, a€?Youa€™ve got to head over to the DJsa€™A  afternoon meeting. TheA  question concerning what direction to take with her life still hung in the air and she appears to have approached it with a calm deliberation in incremental stages. Hea€™d jam with friends at his dada€™s all summer andA  then spend the school year with his mother and stepdad in Toronto.
He never really studiedA  a€¦ until he went to Humber College in Toronto, which has a program similar to Berklee College of Music in Boston.
Her soaring, pitch-perfect vocals and melodic sense are mesmerizing.A  Then, therea€™s the writing. Layah and Oliver will be playing Music on 4 in Manhattan on November 18th and Our Times Coffeehouse on Long Island onA  November 19th.
Mammoth Scanning does not do restoration work, but preserves files and photos electronically in their current condition. Things would not come easy for me, as I was told, so I would need to work all the more diligently to stay up with others, be it physically, academically, or socially. Wartburg’s Habitat student organization would sponsor building days periodically, but periodically became not enough for me. I was on a trip that went down to New Orleans to help clean up after Hurricane Katrina, and I think had it not been for my strengthened service muscles, I might not have made it.
Over the course of one year attending college, however, I went from a flabby dreamer to a well-sculpted doer, and it was because I entrusted AmeriCorps with building my personal service-exercise program. I have witnessed over the past three years, the power of human potential with countless volunteers.
Among peers, staff and the children, Howard, who has a physical disability, is famous for his enthusiasm. Daniel, who does not communicate verbally, helped Sarah to create a book by pointing to written words, which she then added to their collaborative story. Through her VISTA experience, Shannon, who has Muscular Dystrophy, gained an awareness of accessibility issues in community technology centers. In the first, Andre developed a program that conveyed his experiences as a person with a disability to other young people facing a variety of life's challenges. Of his time there he writes, "Throughout my service I met some amazing individuals, traveled to some fascinating locations, and learned a variety of skills, but most importantly my service gave me the opportunity to recover, the ability to experience life with a smile.
His family and teachers were impressed with the project because it provided Jared with a meaningful experience to give back to his community as well as taught him vital life skills. His responsibilities at the program include creating an Accessible Materials workshop for teachers, designing inclusive lesson plans using the arts to build understanding about people with disabilities, supporting volunteer mentors, and leading art classes. I've been moved to create awareness tools that help educate healthcare practitioners and the public about Morgellons Disease (see Awareness Poster) as well as share what I've learned from this experience.Many of the skin photos in the photo galleries are mine.
When I started taking piano lessons at home at 8 years old, I started studying show tunes, so I could sing along with what I was playing, and I got into musicals.


Their families were close friends and theya€™d have various holiday dinners, celebrating a variety of spiritual doctrines together as they saw fit. During those 3 months, he got a job in a computer store that sold software for digital recording. During the first few years of pursuing music, I had some questions about how it would pan out and whether this really was a good spot for me.
The company specializes in web security, providing a system in the Microsoft network cloud where clients can opt to store their information. Each week I would get together with my buddy to watch movies or WWE wrestling, or to go bowling.
I took the initiative to get on the email list of the Habitat chapter from my area, so I could join them at their building sites more often.
The labor that our group put in comparison to the monumental tasks that remained after we departed was enough to turn anyone off to the idea of service. One of my priorities nowadays is to stay service-fit, so I can actively and productively contribute to my community through service and volunteerism. She followed her VISTA service with a year long fellowship at a University Center of Excellence on Developmental Disabilities. His mother spoke of the project as being one of the few opportunities Jared had to mingle with peers outside of special education. We have home videos of me prancing around in my diapers, singing along with the music that he loved. He learned about the software and about producing and, as an employee, was able to purchase the software at an affordable price. The a€?lemonade-from-lemonsa€? character of both accidents might lead one to believe that a certain magic guided them.
Craig said Josh would eventually like to tap into another market, individuals with family photographs they would like in electronic form. I decided to take part in AmeriCorps’ Iowa Campus Compact program primarily because I was feeling a strong call to volunteer and serve others.
From helping to hang dry wall to nailing in hurricane brackets, I found the experience to be deeply gratifying, and once again, if it was not for ICAP, I would not have sought out this opportunity. Risk taking ongoing with mold, mud and smell but no matter the circumstance, words of encouragement and utilization of God given talents were displayed continually.
There she conducted research on accessibility in technology centers in low-income housing projects.
Andre hopes to continue working within diverse communities to benefit young people, especially males, and help them develop leadership skills.
Their style is what might be termed a€?jazzy folk.a€? I asked if shea€™d be singing for the DJs and she responded that it had already taken place.
In 3 months, Oliver learned everything he needed to know to get into Humber, entering at age 22.
When it came time to re-enroll in school, he was tapped to play for a group that toured all over Canada. Stepping off the stage during a pause, she fell when the overturned plastic bin that was placed as a makeshift step collapsed [too late for a lawsuit at this point, I suppose]. The crux was that I did not feel confident in my own ability to follow through with such an important yet challenging call. Volunteers—young and old from all over the USA were all pitching in, using their muscles, heart and soul—were taking care of business in the heartland of Iowa.
Daniel taught me some American Sign Language." The project helped the community understand that service is valuable, not only because everybody can participate, but everyone can also learn. Currently Shannon works as a Peer Guide and as the Information and Database Manager at an Independent Living Center. The AmeriCorps service experience has enabled him to develop the skills needed to be a community role model. Like most, I panicked bought a lot of unnecessary products—some toxic, then managed to pull myself back from the brink of actually hurting myself. He learned a lot of theoretical things that allowed him to communicate ideas, rather than hashing them out by demonstrating on the guitar. He chose that and, between playing on the road and producing when he got home, he never went back to school. Even though Ia€™m primarily pursuing music at this point, it enriched my life in such a great way, in terms of being able to help myself and my family and friends and broadening my understanding of the human body. I knew from past experience that if the going got tough early on, if I felt that I was incapable of serving meaningfully or in a way that suited my capabilities, there was a chance that I might get disgruntled and quit altogether. She credits her VISTA experience with providing a background that developed her interest in creating access to technology for people with disabilities.
A couple of other interested presenters showed up, as I suggested we go to my own guerrilla showcase room. Acknowledging that quitting was not an option, I turned to the Iowa Campus Compact program as a kind of service therapy.
Witnessing the power of positive choice and seeing the power of the human body in mind, spirit consuming endless difficult work is like the best experience one could ever be involved with. Always wary of doctors, I tried to stay out of that loop but finally caved when my beloved ones pressured me to seek help. Thus, about six of us got our very own private Layah Jane showcase performance a€” about 3 songs.
It wasna€™t like one day it occurred to me, a€?Oh, I could do this.a€™ It just naturally grew, I think. I would be able to build up my service muscles with others, sharing our experiences and holding each other accountable.
Risk taking in helping others and taking on the challenges that flood duty entails has shown me the power of human potential when utilized with choice of helping others is what life is all about. A dermatologist gave me Ivermectin which caused a Herxheimer (die-off) reaction and many of the black particles I'd been seeing with a scope surfaced. As a member of the AmeriCorps*VISTA program, I can't help but think how fruitful positiveness and perseverance does not take a backseat to negativity or giving up among those that choose to make a positive difference in people's life when the going gets rough.
This gave me great relief from the discomfort of what felt like fiberglass embedded in my skin. Each of us knows how to make a positive choice and to serve others who need help when the circumstances arise.
In concert, sometimes she sings solo with just Oliver on guitar and on some songs, she and Oliver both play guitar. Personally I have had to deal with Lou Gehrig's disease amidst the risk taking of above work but I would not do anything different because adversity is life but positiveness as displayed overcomes all odds.
There were NO fibers visible in my skin in the previous months before taking the medication.
I wrote in the following montha€™s NERFA wrap-up issue: a€?Shea€™s like Diana Krall with a guitar. What an awesome positive experience that I have seen is like the best medicine anyone could have no matter what personal health concerns are being dealt with.
Layah Jane would be the result.a€? On paper, that might not seem like much, but seen live, it packs quite a wallop. However take note as witnessed with flood recovery work that too many people are in action, facing life's challenges in a grandiose positive demeanor and that is the only way to live personally and collectively. Within two days of taking the Ivermectin, I watched in horror as fibers started to rise to the surface of my skin. Additionally, it happens that Oliver is a brilliant, seasoned guitarist, having toured Canada with top-of-the-line acts. That plus coming off the tail-end of the pharmaceutical seemed to stop all the symptoms of itching, biting and crawling for approximately the next 4 months. The only thing that hadn't cleared up was the hyper-sensitivity to my skin which I thought I was stuck with for the rest of my life, an unfortunate consequence of having Morgellons. Had I not been actively using a microscope to look at my skin during this period, I might have presumed I was well. The skin however, doesn't lie and told a whole other story for under it's surface, fibers and particles were clearly still present—multitudes of them. Early on, I'd heard about the testing that Pam Crane of Morgellons Focus On Health (site no longer active) was championing and felt that it was probably the way to go. My only problem with moving forward was a lack of practitioner, as I felt having the best testing in the world wouldn't mean anything unless someone was up to the task of decoding it's contents into a meaningful protocol, sort of like buying a Cadillac that arrives without the key. I wanted to have a conversation with whatever doctor I was going to see and to hear them speak about their philosophy of healthcare. Just try to get a physician on the phone before actually making an appointment and you will find it is an impossible task (especially the high-end specialists).
She talked about The Great Plains Labs and why the testing used in Functional Medicine is so important for our community. She sounded like she knew how to do her job well and was more than capable, indeed she had impressed me as understanding how to approach the disease in a holistic manner that aligned with my own healthcare philosophies. I believe my first words to her were, "Where do I sign the dotted line?" (While focusonhealth has been taken down, here is another radio show with Nancy speaking with Pam. Let me remind you that I felt fine when I first contacted Nancy, but the emerging fibers showed me I was not.
Nancy forewarned me that treatment would kick up all the initial symptoms I had when first ill with Morgellons, such as itching and stinging and that I might experience more fatigue with die-off, possibly even get lesions although I hadn't had many lesions previously. Within a week and a half of beginning this new protocol all the discomforts she mentioned came back. Black particles began coming out from the skin, sand-like crystals were suddenly pushing from the scalp, I was itchy and uncomfortable but this time around it was at a much lower volume then at onset. I have experienced some lesions, in the form of 'papercuts' and blood spots appearing on the skin. They were tiny and healed quickly. It took close to 3 months for the symptoms of this detox to disappear, lessening with each week. We added in another few products to my protocol fine-tuning the process. Once all my symptoms had abated I was ready to move on to the next step and do a colon cleanse. I used supplements for one month that gently cleansed the colon (Colon Cleanse by DaVinci Labs??). After that, I began with chelation therapy (Chelex by Xymogen) to remove heavy metals. Nancy has taken me through this journey with constant support through email. The fact that she is able to tell me what I can expect and interpret what I am going through is invaluable. Having gone through the early treatment phases and emerging symptom-free, makes me feel that I did indeed work through something—hopefully clearing biofilm. So where am I right now and what are the changes that happened over these few months of treatment?My skin cleared of many of black particles, although I still have them (my great lament was that I didn't have a camera back when I first got sick, because my skin was so saturated it was alarming!).
Actually, I feel spry and 10 years younger than my 55 years of age (at the time this was written), an unexpected and very welcome gift.
Still, they are here and I am monitoring them carefully. I am convinced of the value of the Great Plains and Metametrix testing.
It just makes sense that one would want to know the particular weaknesses of their body before embarking on a journey of healing.
Getting the labwork done and seeing Nancy are the two smartest things I did throughout my ordeal. Morgellons for me is like that impossible teacher I had in my youth.
But it has also left me savoring hard-won battles and set me straight on how to live more in balance. Therefore, I try not to rail against the unfairness of the experience, but to look at how much I learned and the ways in which it has stretched me as a human being.
Yes it has been a miserable teacher, but by it's hand I have been become an attentive student.I wish you all full recovery. AylaWhile I am not comfortable sharing my protocol as it is specific to my lab results, I will outline what I feel are the bare-bones minimum I'd look to take if I were building a protocol. This would be a good probiotic (I use 3 different kinds throughout the day as was indicated by the results of my testing). FOS, according to Nancy can promote yeast growth so I'd stay away from a probiotic that includes it. I'd include a biofilm buster which breaks down the cellular matrix in the gut that inhibits absorption of necessary nutrients. I used Interfase Plus and Wobenzym at different times (there are different kinds of Wobenzyme. I've used Carlson's liquid D3 which is lipid based, but recently have switched because of assimilation issues with fats to a dry encapsulated D3 (Prothera brand 5,000 I.Us a day). Certain of the B's can become depleted when the body is fighting infection, so a good B-complex seems necessary. Also, Mr.
Common Sense and now Clifford Carnicom have written about NAC and it's benefits along with vitamin C in helping quell the symptoms of our condition. I'd look into this as a close friend from the community began taking both high amounts of Vitamin C and NAC and her symptoms disappeared. She was taking 3,000-5,000 mg of C spread throughout the day and 600 mg 2x's a day of NAC both in the morning and at night. She eventually reduced it to 2,000 mg of vitamin C and 600 mg of NAC because the NAC was giving her headaches. The lesser dosage has been fine for keeping her symptoms of crawling, biting and stinging away. When she went off the protocol symptoms came back and when she again resumed, they went away.
I might mention, that my protocol has always called for 1000 mg of vitamin C, three times a day. While I was not on NAC as a separate supplement, it is in another product I take daily ?(Liver Protect by Xymogen). Nancy has stated that the clients she sees that do this first make themselves much worse and take longer to get better. If I am going to do this right, I want to know what my baseline toxic load is so I can measure my progress over time.


The results arrived right after I finished my third week of chelation. My total toxic representation was OFF the chart with high levels of antimony, silver, cadmium, tin and magnesium.
I have a host of other metals as well, they just were at lower levels than those mentioned above. Once Nancy reviewed my test results and knew how I was responding to the treatment she modified my protocol to include a liver support, and the addition of 3-4 new products that would also help balance me out. I keep an ongoing visual journal using photos which I share with her so she can see any new developments. During chelation I was more tired, needing to take naps and sleep longer on most days. I also had some tiny red spots appear on the skin without breaking through.Red spots appear on the skin. Based on what was going, on Nancy pulled back on the chelation so that the process is even slower and gentler until my body can adapt. Using shea butter and coconut oil mixture as a moisturizer seems to draw fibers and black particles from my skin if left on for 3-4 hours. Most are not readily apparent unless you really look for them. Hair The Morgellons has moved into my hair.
An acupuncturist, pointed out after looking at my hair photos, that there were multiple "hairs" emerging from one follicle.
This is probably why my hair feels thicker even though it has been brittle, weak and falling out. Helicobacter pylori, the bacteria I had with high levels the first time I was tested, is completely gone. There was a new bacteria that showed up on this round of testing that wasn't on the previous. Nancy feels that this is something that could have morphed, or, could have been present all along, but like peeling an onion back, was hidden under layers. She is adding seven new supplements to my protocol to address adrenal support as sleep has become fitful and I feel somehow too 'plugged in.' Fight or flight mode.
I'll be taking a prebiotic to address the new bacteria as well as some new products from Xymogen to open detox pathways. I'm excited to be moving in a new direction. Every time we do a new test, I see the value of this approach.
Randomly throwing supplements at the body without being tested, with the hope that something might work, seems a dangerous practice. Not terrible full-blown itchy, just enough to let me know that I was reinfected or maybe this is an allergic flare-up. This episode might have lasted longer than necessary had I immediately washed all my clothes but I got lazy and didn't wash them for a few days.
Was not constantly itchy, but found I'd get itchy at odd intervals, sometimes once a day, sometimes not for days at a time and sometimes for a mere few seconds or so. I am putting a garden in upstate and often have my hands in the soil (without gloves) and have found that I am fine. The only itching I've got is from the occasional mosquito bite (and yes, these are real mosquitoes). Now, instead of direct application of GSE I brush my teeth twice, once with toothpaste and once with a clean brush that has two drops of GSE on it. Note that I have been letting my supplements run out in the last few months because I needed a break from taking approx.
I wonder if the return to itchiness had something to do with my letting down my guard and not watching my pH. After the first day of swimming, I noticed small circular red blotches appear under the skin of my calves and thought, uh-oh, here comes trouble.
I FINALLY have a microscope again (it was replaced after more than 7 months at the manufacturer!). I had a few breakthrough 'papercut lesions' on the hands which I don't know what to make of. I stopped the Ormus because I wanted to document F-6, which has gotten quite a buzz in the Morgellons community. I still have 1.5 bottles left and intend to take it in a few months feeling I didn't give it a proper shot.
For now, I want to concentrate on doing one therapy at a time, so I can really be sure what each does.
October 17, 2011: Began using F-6 and have started a new link documenting that experience including photos showing what is emerging from the skin.
I'm going to take it slow with this product as I don't want to have any major herxheimer episodes. Caroline Carter, A healthcare worker that has Morgellons and works with ozone therapy (and who made her Morgellons worse with ozone saunas) said she cannot even be around it anymore.
I have since talked with another person that had strong outbreaks from doing an ozone sauna. Ozone therapy is typically great for cancer, AIDS and herpes, but for this disease might make us worse.
There seems to be improvement to the hair which feels stronger and seems to be falling out less. A lot of "debris" is coming up through the skin, fibers, black particles, granules and many more fibers then ever seen before. A week and a half later I ate some quinoa with my lunch and two hours later had 3 oatmeal cookies (oatmeal, walnuts, carob chips, baking soda, vanilla). This forage into complex carbs was unusual for me.While eating the cookies I started to itch. By the third cookie, I was having full-blown symptoms of itching, stinging and biting sensations (no crawling, thank God!). The fact that it came on with such force and was related to food, makes me think that Morgellons counts among it's causes a hyper-allergic reaction to food. In this case, I don't really know what specific ingredient triggered the reaction.By eliminating carbs again, symptoms quieted down. I am noticing flare-ups of the arthritis in my foot which had so improved at the beginning of my treatment (but I kill my feet dancing one night a week, so that could play into this). The ones I can visually see without a scope are bigger then I've had before but there is no increase in the amount I generally see with my scope in the skin. Will keep you posted of new developments.I've noticed that when it's very hot (93-97 degrees) and my skin is exposed to the air, I have more sensations on my arms.
It's not unusual to feel a single pin prick sensation on my left upper arm, often I'll feel the same type of prick mirrored in the same spot on right arm sometime later, as if they were somehow linked.The other day on my bike I felt as if I hot poker were being pressed momentarily to my arm. When I looked down, there were three distinct tract marks in that spot, about a half, to an inch long that hadn't been there before. Since having Morgellons, it feels like the skin is no longer a reliable friend but is capable of erratic changes suddenly. They took about 5 days to disappear.?September 27, 2012 • Live blood microscopyJust posted a new link with photos of my recent session with Rick Panson, a microbiologist and healthy body coach who did a live blood and dried blood microscopy and gave me additional guidance for my health. It's a bird's eye view into the system, giving a fuller, deeper understanding of what's going on  then just looking at lab results—although lab tests have their place!
In the next two weeks I get more testing done so will post those results when in. There were many problems with the blood.
We are in a seasonal shift and my fingers have had a few tiny papercut lesions since the change began.Started the protocol Oct.
Beginning with one pill a day of capyrilic acid with one pill olive leaf extract and 1 tsp. The L-glutamine is supposed to strengthen the gut lining and prevent leaky gut syndrome caused by the yeast die-off. Will stay on this for a few days and slowly double the dosage, then determine where to go from there. 16, 2012 Went back to Rick Panson for another live blood analysis and posted the photos under my last blood microscopy. This is encouraging for all of you who wonder how long it will take to knock back candida and even if our protocols are working.
Rick recommended Candex and Nancy told me she loved the product except now they are adding corn to Candex (and it's unknown if it's GMO corn), so she is no longer recommending it. Adrenal system had a number of markers indicating a lot of stress to the system, very low levels of vitamins C and B's, four different pathogenic bacteria showed up—Helicobacter Pylori was high, Clostridia, E. Kreb cycle needs support. Heavy metals hair test—all toxic metals were down except arsenic which went up with cadmium.
Lead which was extremely high on my first test showed a considerable decrease as well as silver but lots more chelation ahead. It's been 2 years since I started using supplements to pull the metals out and I think it will take a couple more years of work.
The process is slow but steady which is a good thing because I think if the body released too much metal into the system at once there would be negative impact on the health. Nancy pointed out that lead and cadmium are antagonistic to calcium absorption and bone health, so seeing this rise in cadmium and knowing I still have too high levels of lead makes me think that I might have to give up the painting at some point or switch mediums rather than compromise bone health. The heavy metals test also measures "essential and other elements," (minerals) It seems as a consequence of pulling heavy metals out, the minerals have been compromised. Nancy suggested this organism is a pleomorph moving from bacteria to fungus according to favorable conditions in the body.
This is the third time it's changed. Feb 3, 2013 Just an acknowledgment that I just passed my 3rd anniversary since getting sick with Morgellons. The only time I really have symptoms is when I really mess up on diet (itchiness will start) or when ?very overheated and sweating from physical exertion like dancing, where it sometimes feels like needle pinpricks are sticking my skin from the INSIDE out, accompanied by itchiness. Thieves is a great oil for preventing flu or when one is coming down with illness, but I am unclear if it can damage beneficial bacterias. Stopped taking thieves after a few weeks but do still take lemon and added in lemongrass and grapefruit to my daily capsule. Itchiness did not return. September 22, 2013 Decided to go on Stephen Buhners herbal protocol for Lyme disease (crafted from his excellent book, Healing Lyme). Although I tested negative for Lyme and feel fine, I don't trust the traditional testing one gets with their regular MD, and even though I don't think I'm dealing with Lyme, I can't discount the fact that so many Morgellons sufferers also have Borrelia and other co-infections that might be related to our disease which seem to improve with Lyme treatment. Also, his protocol addresses other issues I feel are pertinent to my health (even before Morgellons). Certainly, I see over time that my immune system is weak, and my gut reaction now to coasting is that it could be an eventual time bomb.
I'm taking Cats Claw, Sarsaparilla root (Jamaican—which I grind in my coffee grinder), Eleuthero (Siberian Ginseng), Astragalus, Japanese Knotweed and Andrographis.
To his formula I've added in Ashwagandha and Sweet Cinnamon (from Sri Lanka) for the brain, as well as nettles (excellent herb for trace minerals and general support of system) and Pau D'arco (fungal). I take a quarter level teaspoon of each herb (which is roughly the equivalent of one 00 capsule) added to some water and drink it down. Surprisingly, I did not feel exhausted, although the protocol was pretty intense and caused a lot of flushing through the digestive system. This is not a new symptom and usually happens in the first few weeks of starting any new protocol.
As these breakouts have always been so minor and short-lived? (an occasional papercut lesion or what looks like a pin prick), I paid them little mind.
In this case, the skin continued to break open for the duration of treatment and I had some long "scratch" marks come up as well.
It seemed like the last papercut I got was deeper and for the first time I started to worry that perhaps I was giving myself a lesion problem that I might not be able to turn off. This little spot has bothered me on occasion on and off throughout the years of my Morgellons experience, but during the Buhner protocol, it itched almost constantly. On the plus side, I could tell there was a lot of detoxification going on and all of those bitter herbs were really helpful for quelling sugar cravings. I believe I will revisit this protocol modified in the future, but for now, am taking a rest from it.
Note that when I ceased treatment, the papercut and pinprick lesions stopped, although I recently had a three-inch long "scratch" appear on my leg weeks after stopping his treatment some weeks back. This was a surprise, since problems usually only show up on my hands and 3 inches is rather a statement!For the first time, the scratch resembled images I've seen for Bartonella. There is much about it that I think is helpful, and I encourage people to study these herbs and supplements carefully, and decide for themselves if they want to incorporate them. This is a very difficult protocol and for any who have detoxification pathway issues, this could impact their health negatively.
The release of toxins in a system that cannot remove them properly can be deadly, so it is important to not rush carelessly forward with something this strong. I did feel like the protocol helped me on many levels, but I could not tolerate the heart issues with pressure on the chest, burning, and breathing difficulties.
The creator of the protocol feels that Bartonella is at the core of the Morgellons infection, and Bartonella likes to set up shop in the endothelial tissue of the heart. Thinking this was just a severe Herxheimer reaction, I went back on the protocol but was unable to advance more than one drop of each tincture before heart and breathing issues returned with a vengeance. This time, the heart issues did not abate immediately, and it's been some weeks now in which they often come back on a low level. His original protocol (which he posted on Jenna's blog and which is now removed) did not use MSM, or Silver Sol or various other supplements.
It also did not include baking soda, which is not inherently a problem, but at 2 teaspoons a day, might become one.



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