Below are some useful reference and informational material that will assist you in preparing for a natural or man made threat, the unexpected and the unimaginable.
An important facet to Family safety is having a plan and being prepared in case an emergency strikes. It is important so you can increase your personal sense of security and peace of mind and to know you will be ready in case of an emergency.
Below are some useful reference and informational material that will assist you in preparing an Emergency Plan. It's AMAZING what people with disabilities and health challenges can do when there's help!
With all the changes and controversy about the rollout of the federal Affordable Care Act, one thing that sometimes seems lost in the discussion is Medicaid. North Dakota was one of the states that opted to expand its Medicaid program to authorize new coverage options available starting in 2014.
Medicaid Expansion opens the program to childless adults and low-income parents who, in general, were not previously eligible.
If you are eligible, and if you apply, your health coverage can become effective as early as Jan.
Enrollment for both Medicaid Expansion and the Health Insurance Marketplace began this past October. Nine out of 10 caregivers of veterans are female, and 70 percent provide care to their spouse or partner. Charitable nonprofit NDAD’s assistance for people with disabilities and health challenges can include attendant care. High above the Minnesota countryside, headed southeast from Grand Forks on the North Dakota border to the Twin Cities.
An anxious Amanda (Proulx) Richardson looked at her little girl, feverish and in pain, a nasal gastric tube adding to her discomfort. Amanda and Kyle Richardson’s oldest child was an enthusiastic little figure skater and piano player, a fun-loving first-grader at Grand Forks Lake Agassiz Elementary School and playful older sister to two little brothers, Caleb, 1, and Rylan, 4. Life for Peyton since birth has included Hirschsprung’s disease, a condition that contributes to an inability to pass stool. At three months of age, Peyton returned with her parents to the Twin Cities, and the baby girl underwent surgery again to undo the colostomy, pull her intestine down and reconnect it. A clinical visit revealed that she had a stricture, a small intestinal narrowing when her colon had been reconnected almost five years earlier.
Though Peyton had complained of stomach pain at least twice a week, it was not the scream-prompting, doubling-over type. When Kyle, a BNSF engineer, returned home that day, “he took one look and said, ‘I’m bringing her in. When the regular on-duty surgeon declined to operate on Peyton, recommending she be airlifted to pediatric surgeons who had worked with her, “I was actually a little relieved,” Amanda recalled. Eight days after surgery, x-rays revealed that the peritoneum inflammation had begun to subside slightly. Ultimately, the Richardsons learned, the cause of Peyton’s problems was not linked at all to Hirschsprung’s disease, but primary peritonitis – meaning it spread from the lymph nodes and blood. Thanks to Peyton’s history of Hirschsprung’s, she was likely treated more effectively – and more promptly – than she would have been otherwise, the Richardsons were informed. The Richardsons, though, had at least one scare about a week after returning to Grand Forks. Plans remain in the works for a new evaluation of Peyton at the Mayo Clinic in Rochester, Minn. In the meantime, the Richardsons look back at Peyton’s latest ordeal and realize the circumstances could have turned far worse. Peyton has missed about a month of school at Lake Agassiz Elementary, but she’s in a normal routine again.
Peyton making music. Amanda Richardson would welcome spending more time at home with her daughter at that happy place – over and over again. Tagged benefits, charities, charity, children, east grand forks, egf, events, family, features, fundraisers, gf, gf and egf, giving, grand forks, health, helping hands, hospitals, life, lifestyles, medical, minnesota, nd, ndad, North Dakota, pediatrics, st.
GRAND FORKS — Cassie and Bill Marka say they’ve learned a lot about themselves and about life these past five weeks in Rochester, Minn. What the Grand Forks couple, both 27, didn’t at all anticipate: so many of the lessons are coming from their new baby. Willow Marie Marka has shown plenty of heart for an infant born with one so incompletely formed. And about bending when it appears you’ll break — much like the tree for which baby Willow is named.
And lessons about the fragility of life, its sometimes roller-coaster ways – and its potential to produce what some might even venture to call miracles. And there continue to be lessons about the importance of letting go of a need to control circumstances that can’t be controlled anyway. Billy Marka, Cassie’s personal Rock of Gibraltar, has urged that very thing himself, even when he concedes he’s wavered a few times underneath his normally laid-back reserve. The Markas nixed the idea of a benefit when first approached, telling organizers thanks but no thanks. Organizers came back to them a second time and said they were going to hold the benefit anyway. Through the support of community, family and friends, “we’ll be able to get through this, and it’s huge,” Cassie said. Some of the hardest lessons in Willow’s fledgling life journey began several months before her birth, when prenatal tests first hinted at, then revealed the serious scope of her heart woes. Her surgical itinerary was more or less outlined by the time of her birth, starting with open heart surgery just days after her arrival.
The second open heart surgery tentatively is due in about two to five months; the third, in anywhere from two to six years, ideally before Willow has a growth spurt.
After all of that, the Markas know, Willow probably will need a heart transplant; most children born with HLHS do.
Following surgery, Willow has faced life-threatening challenges that so far have prevented her a move from a Mayo cardiac intensive care unit. And each time a new challenge emerges – with a new worry for her already anxious parents, who have seen their baby daughter uncomfortable and in pain. The year 2013 was expected to provide the Markas with a few lifelong memories, even before they knew Willow Marie had been conceived. With Billy Marka working as a carpenter for A&L Siding, Cassie Marka received a juris doctorate in May from the University of North Dakota School of Law. Among the classmates Cassie met during her first year in Owatonna was Billy Marka, a native of nearby Faribault, Minn.
By 11th grade, though, Billy had made bigger priorities of football — as an offensive lineman and middle linebacker, and baseball, as a catcher. By the time they graduated the following school year, Cassie and Billy each had been chosen to be a team captain – Cassie in hockey, Billy in football.
And they also had become a seriously “inseparable” Owatonna High couple, too, having started dating during their junior years. For Billy, he said, his strong attraction for Cassie included her oft-demonstrated love for family and friends, and her strong work ethic, particularly her drive to complete whatever she’s started.
So after graduation, when Cassie Knopp moved to Grand Forks to attend UND with intentions of becoming a lawyer, Billy had no doubts she would fulfill those intentions.

The following year, after Billy had finished school and while Cassie was a UND sophomore, the pair became engaged. The Knopps hoped to begin a family – and tried, for “a good four years,” to conceive, Cassie said. At 19 weeks, thanks to that first ultrasound during an Altru Health System appointment, the Markas learned their baby was a girl. Nonetheless, the Markas said, the four weeks between ultrasounds were among the best of their marriage. Then the 23-week ultrasound provided sobering news: something definitely was abnormal about the fetal heart.
The Markas’ own research during their wait revealed a vast number of possible congenital heart issues – some manageable, some not, some that usually resolved themselves on their own. Cassie’s sister in the Twin Cities was the first to bring the rare hypoplastic left heart syndrome to the Markas’ attention, after her sister’s neighbor, an neonatal intensive care unit nurse, mentioned it. Cassie also recalls an attorney she spoke with, a woman whose own child had open heart surgery at age 2 to deal with a congenital heart defect. The next three months included a trip to Rochester to meet Burkhart and other key members of the medical team that would handle Willow’s birth and surgical care. Meanwhile, Cassie was studying for the North Dakota bar exam, which she took at the end of July.
After Willow’s birth, the couple was able to spend rewarding quiet time with her, holding her during the several days before her scheduled open heart surgery. Billy “stayed with her last night, and he didn’t put her down,” Cassie said more than a week ago.
So, along with lessons from her infant daughter, Cassie is trying to accept the message from friends and family who have sent Willow items that feature images of giraffes. According to the new mom, giraffes are recognized for their grace, and even more for their physical ability to rise above the negative events around them.
Learn more about charitable nonprofit NDAD and the ways it helps people with disabilities and health challenges at or by calling (800) 532-NDAD (-6323). The following guide will help you with information and safety tips on WEATHER hazards in New Mexico.
Emergency tools, including a NOAA Weather Radio, battery-powered radio, flashlight, and extra batteries.
Preppers: What To Do with All that Garbage & Trash After a Post SHTF Apocalyptic Event!
Electronic W-2 FormsIf you have not already signed up for the Electronic W-2 tax form, you may do so through Topnet. WKU Parents Parents, family members, and guardians are an important part of the Hilltopper family. Wear a bicycle or motorcycle helmet to protect your head and neck or cover your head with a thick book. Note: documents in Quicktime Movie format [MOV] require Apple Quicktime, download quicktime. When an emergency strikes, knowing what to do can save time, property and most of all, lives. It plays a hugely important and frequently unsung role in the fabric of contemporary family life. Medicare is an important factor to consider when parents, grandparents, relatives or friends need to make crucial health care decisions.
Respite Care, such as adult day care or other community programs, provides temporary relief to families caring for people with disabilities, chronic or terminal illnesses and the elderly. Caregiver Stress can take many forms such as frustration, guilt, loneliness and exhaustion.
You, or someone you know who really can use help, may qualify. Find out more by calling (800) 532-NDAD.
Usually, the Richardsons could provide Peyton some relief with a doctor-recommended laxative, but it was not a cure. Hirschsprung’s babies are born with missing nerve cells in the muscles of part or all of their large intestine, or colon, which prevents the colon from relaxing enough to pass stool. 26, 2007, was unable to have a bowel movement in her first few days of life in Grand Forks.
Yet, there was a new issue: Peyton was diagnosed with hypotonic or poor muscle tone that’s sometimes called floppy muscle syndrome.
Her muscle tone was treated with physical and occupational therapy at Altru Health System’s infant development program, until she turned 3. 14, which was Caleb’s 1st birthday, Peyton complained “her belly hurts” toward the end of a day of activity and company. It just leaves you wondering, ‘So what is it?’” Peyton’s medical team still was ruling out possible causes. Peyton was brought to Altru Hospital for observation after “she was bent over in pain for about 45 minutes.” Constipation was diagnosed again, and she received a temporary higher dose of Mirilax. 25, the Richardsons learned they’ll have to be on guard for another possible intestinal infection, entercolitis, which is a well-known Hirschsprung’s complication.
13 with a rare congenital heart condition called hypoplastic left heart syndrome (HLHS), there have come lessons about strength. Click this image for more details about the event and how you can donate online or via mail through NDAD, the North Dakota charitable nonprofit which is sponsoring the event. Despite the expected financial burden, Billy and Cassie said they didn’t want to give any impression they were seeking money or handouts.
A pregnancy eluded them – so much so that the couple considered adoption, in-vitro fertilization and other means.
In fact, the Markas concluded they had reason to be more encouraged about their baby’s outlook.
Horner’s high confidence in Mayo Clinic to handle the matter, and his prior working relationship with Mayo’s Dr. The Markas learned more about HLHS, the series of heart surgeries planned and other related expectations.
30, the Markas had become new guests at Rochester’s Ronald McDonald House, the noted “home away from home” for families whose children are receiving medical attention. One item, a giraffe-covered blanket, remains frequently in their baby’s grasp, Cassie said. The National Weather Service (NWS), FEMA, and the American Red Cross encourage families to develop a family disaster plan. Click here for a graph of weather hazards in New Mexico that resulted in injuries or deaths.
The National Weather Service Offices in Albuquerque, El Paso (Santa Teresa) and Midland remind you to always keep an eye to the sky and listen for the latest forecasts and warnings. We invite you to learn more about services offered at WKU and to reach out if we can help along the way. The three main priorities to emergency preparedness are getting an emergency preparedness kit, making a plan, and being informed. You also can submit paper applications by mail, by phone at (877) 543-7669 — TTY users at (800) 366-6888 – or in person at a county social service office. provides several fact sheets for caregivers with questions and answers on topics such as coverage for health services, applying for Medicare and how to submit claims. Read the guide, The ABCs of Respite, to learn about types of respite, how to choose a program or provider and how to pay for the service.

Studies show that long-term caregiving can be physically and emotionally draining and is often associated with an increased risk for illness.
While some states have programs that pay family members to be caregivers, they vary state-to-state, and most have strict eligibility and financial requirements for recipients. Besides attending to the physical and emotional needs of an ill or elderly loved one, caregivers often handle financial responsibilities, as well. There may be times when you need outside professional support to help care for an ill or elderly loved one at home. Conversations about whether your elderly parents are capable of continuing to live independently, drive, care for each other, etc., can be difficult but necessary as they age.
Her nasal gastric tube, removed a few days after surgery, was reinserted with 24 hours when Peyton’s condition worsened. Kyle, “because he felt like she wasn’t getting better and we were scared that maybe it wasn’t working,” made calls to other regional medical facilities, including Mayo Clinic, in case they decided they needed to relocate their daughter, Amanda said. 16’s to-date successful operation marked the first of three planned open heart surgical procedures during the early development years of her life. She faces new surgery to place a gastrostomy tube – also called a “G-tube” – through her abdomen to provide life-sustaining nutrition directly into her stomach.
The second oldest of five siblings, she attended Sacred Heart and then “East Side” public schools before her family moved to Owatonna, Minn., south of the Twin Cities, after she finished the seventh grade. Harold Burkhart, a thoracic and cardiac surgeon, gave the Markas a renewed boost of encouragement about Willow’s prospects, Cassie said. Are you an international student, an adult learner, a military , transfer , or dual credit student? A 2009 survey released by the National Alliance for Caregiving and the American Association of Retired Persons (AARP) found that one in four American families – about 22 million households – care for someone else (age 50 or older). The National Respite Locator Service, provided by the ARCH National Respite Network and Resource Center, helps parents, family caregivers and professionals find respite services in their community. Get answers to frequently asked questions, as well as tips on how to prevent and relieve stress with this Caregiver Stress fact sheet from Your local Medicaid office is a good place to start for information about what is available in your state.
The typical caregiver helps with or arranges bill paying, deposits, insurance and benefit claims, savings and investment decisions, housing, tax preparation and countless other financial duties. Department of Veterans Affairs offers a free six-week online workshop, Building Better Caregivers™, for family caregivers of veterans. The National Association of Professional Geriatric Care Managers has helpful guidelines for hiring in-home caregivers, which include working with a reputable agency, checking references, completing background checks and interviewing potential candidates, among others. However, there are many online resources available for caregivers, such as support groups, educational modules and review sites. Fortunately, there are some helpful publications that offer guidance on making these conversations productive. The Richardsons also learned that Peyton briefly would stop breathing periodically during the night. After some tests, the emergency room medical staff told him what they often had told Amanda during similar visits: Keep an eye on her and give her Miramax. They’re intended to help her survive HLHS, which provided her tiny heart with a severely underdeveloped left ventricle.
Additional information about Medicare and Caregivers is available on the National Institutes of Health Senior Health website. You can also use the Eldercare Locator to view community services for older adults and their families by topic or location. The Alzheimer’s Association’s Caregiver Stress Check tool can help you determine your level of stress and recommend helpful resources. If you are caring for a veteran, you should go to the VA Caregiver Support website to learn about additional assistance for which you may be eligible. The Consumer Financial Protection Bureau recently published four guides entitled, Managing Someone Else’s Money, for powers of attorney, court-appointed guardians, trustees and government fiduciaries.
Participants log on for two hours each week to review lessons, exchange ideas with others and access tools. The AARP article, Hiring a Home Care Worker, contains practical advice on finding candidates, considering applicants and conducting an interview. The Family Caregivers Online website offers 15 free educational modules on topics such as Behavior and Emotions of Aging, Safety and Independence and End of Life Issues.
Easter Seals offers a free publication, Loving Conversations, to help you determine the best choices regarding health care, living arrangements, legal issues and more for your aging loved ones. Instead, the wavelike, propulsive contractions that help pushed stool through the colon and small intestine were not functioning fully. She was under the threat of kidney failure and, for a time, faced the increased likelihood of a brain bleed.
Topics include planning for medical care, managing chronic illness, understanding Medicare billing and terms every caregiver needs to know.
Both sites suggest that caregivers set realistic goals when determining day-to-day priorities, turn to others for help with tasks and set aside time for themselves each day, even if only for an hour or two. Other options to consider are long-term care insurance, caregiver contracts and flexible work arrangements that allow you to work from home while taking care of an ill or elderly loved one. The workshop addresses specific needs of caregivers who help veterans with dementia, memory problems, traumatic brain injury, post-traumatic stress disorder or any other serious injury or illness.
The National Caregivers Library provides a Needs Assessment Worksheet to help you determine the level of support you need when hiring an in-home caregiver. All the proceeds will be used to help the Richardson family offset medical and related expenses created by 6-year-old Peyton’s life-threatening bout with intestinal infection this fall. A surgical team removed a portion of Peyton’s nonworking colon and performed a colostomy, creating a temporary stoma through her abdominal wall to temporary allow feces to be expelled.
Furthermore, Peyton’s peritoneum – the protective membrane lining her abdominal wall and covering the organs inside –  was infected. Visit the Family Caregiver Alliance website for additional information on getting paid as a family caregiver. AARP also offers a planning guide to help families assess the housing, financial, personal care and transportation needs of their loved ones. The program, developed at Stanford University, has been recognized for its ability to reduce stress and depression, as well as increase the overall well-being of caregivers. Subjects covered include caregiver blogs and websites, home monitoring products, medication reminders and pill dispensers and The Alzheimer’s Reading Room.
As a result, Peyton was diagnosed with non-mechanical ileus – but the cause of it still wasn’t clear. You may also enjoy reading the post, Can Full-Time Family Caregivers Get Paid, on Disability.Blog, which contains valuable information and resources.
If you are interested in participating, you should contact a Caregiver Support Coordinator at your local VA Medical Center. Caregivers can sign up for free email alerts on new reviews, products, coupon deals and discounts. I mean, it’s his solid purpose just to make me happy, and he’s been very determined to help me do that for the last 11 years.

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