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Author: admin, 06.04.2016. Category: Buzzing In Ears

Nonetheless, I do want my experience to be as useful to as many people as possible, so I am writing this post in an effort to answer the most common questions and issues I’ve run into related to Lyme and neuroplastic recovery approaches. In this post, I’ll address these questions and others about tick-borne disease (TBD) and neuroplasticity-based therapies.
Also, please note: I am not a doctor and am not making recommendations of treatments for individuals reading this post. The short answer to this is that I have recovered, and I don’t have symptoms anymore, but for a while it mas hard for me to know for sure. To get a sense of the scope of my recovery, I offer a list of the TBD symptoms I used to have which I don’t have anymore. I have some aching and stiffness in the muscles and joints of my legs which goes away with movement and exercise. Because of the questions around aging, medication withdrawal, and deconditioning, it’s really hard to know how this will shake out. Although my mind feels very functional overall, I think I don’t think as fast or as easily as I did before I got sick.
Probably the hardest thing about recovery has been reentering the world of social interactions in meatspace. If a person has an active systemic infection, such as Lyme disease, babesiosis, bartonellosis, etc., I think it is unlikely that DNRS or another neuroplasticity-based treatment will lead to their complete recovery. DNRS requires the person who wants to recover to change their behavior and their thoughts because we can use the conscious mind to change the function and anatomy of the brain, which then affects other organs and systems of the body. Doing DNRS gave me the first big boost of hope, provided me with cognitive tools to approach recovery, and gave me a conceptual scientific and behavioral framework in which to work. If you have an active bacterial infection, I think the best thing to do is kill the microbes that are causing the infection. If you have already killed the infection, and you are still sick, then I think it is very likely that retraining the brain will allow you to recover completely. If you have undertaken thorough antibiotic treatment and you still have Lyme or other TBD symptoms, then in most cases I would say you should try DNRS.
If you have not undergone antibiotic therapy because you think antibiotics are dangerous**, or because you tend to have really severe reactions to medications, I would probably say you should do DNRS first instead. A neuroplastic recovery process requires committed, ongoing practice, including changing your behaviors and thoughts, over many months or sometimes longer. Once you have gone through the DNRS recovery program, you will be better equipped to maintain your brain training practice as you go through antibiotic treatment. If you have trouble with antibiotics because of bad reactions to them, doing DNRS should take care of that so that you will later be able to do them if you choose. In many cases, I think the answer is to do a combination of antibiotics and neuroplastic approaches. They are trying to get their life or schedule in order to support DNRS and want to wait to start until they can devote themselves to it. They are doing a lot of medical treatment that they’re very focused on, and they want to wait to start DNRS after that is more resolved or takes less attention. If you’re in one of these situations,  there are other neuroplastic approaches you can take in the meanwhile.
If you can only add one of these things, my vote would go to yoga, if you like movement, or meditation, if you like stillness. I’ve been doing the DNRS recovery program faithfully for a long time, and I’m still sick! But some situations I hear about are like this: The person has MCS, and they do DNRS, and they recover completely from reactions to fragrances and other smells, but they still have achy joints, vertigo, fatigue, migraines, and fevers. The doctor who diagnosed them with Lyme was a jerk, so they didn’t trust his diagnosis even though they had a positive Lyme test.
Or they had a negative Lyme test, but they know Lyme tests often turn up false negatives, and they did think they had Lyme, but their doctor said they can’t have Lyme if the test is negative. Or they did have Lyme, but they used an alternative treatment they believe in (not antibiotics), so they don’t think they have Lyme anymore even though they have joint pain, fevers, etc. In all these cases, I think it’s pretty likely these people have Lyme disease (active infection), for which I think they should take antibiotics. I was also asked by Annie Hopper to further clarify in this way: I am not a certified DNRS Coach. I know people who have done all of the things that you have done with the exception of considering that they might have TBIs and while those things have helped them, they have been unable to gain the level of recovery you have. Well, having Lyme meant that I was in severe pain, exhausted, crazy, and not thinking well.
Yes, that’s why I included in my possible scenarios people who have Lyme or other TBDs who do not get them treated and try to recover without antibiotics.
She is great, well thought of in the LLMD community, and seems to stay on top of things with TBI research and treatment.
Flu-like symptoms, headaches, aching joints, lethargy, rashes, paralysis, blurred vision, digestive problems, ringing in the ears - the symptoms attributed to Lyme-like disease read like a playlist of misery.
Lyme disease is officially known to occur only in the Northern Hemisphere but, for many decades, people in Australia have been reporting Lyme-like symptoms. However, a team of researchers from Murdoch University, the University of Sydney and Curtin University have found organisms in one tick that could trigger a similar illness to Lyme disease. Lead researcher Professor Peter Irwin, of Murdoch University, said they had tested 196 ticks predominantly sourced from Sydney's northern beaches area and they had discovered a single isolate of Borrelia bacteria that is known to cause relapsing fever.

He said there were several types of Borrelia bacteria, but the ones that caused Lyme disease were referred to as the Borrelia Burgdorferi group.
One person who will be watching the research with interest is Nimbin resident Michael Bienke who has been diagnosed with Lyme disease that he believes he caught from an Australian tick. Mr Bienke believes if Lyme disease was recognised in Australia it would save a lot of people from experiencing the pain he has endured. Bonalbo Show Society's David Whitney says local campdraft has been cancelled due to cattle tick outbreaks. The NSW DPI's Paul Freeman says up to 30 properties are in quarantine around the Bonalbo region.
Labyrinthitis refers to an ear disorder characterized by irritation and inflammation (swelling) of the inner ear, the causes of which are several.
Given that Lyme disease is rampant, that it can be a long and grueling illness, and that I was an example of how bad chronic Lyme can get, I’m not surprised that people are asking me about my recovery. While I have opinions, I definitely don’t think the topic of recovery from tick-borne disease is cut-and-dried. The recent suicide of a friend who had Lyme disease has given this topic a greater sense of urgency for me. When I first joined Lyme communities online, I felt discouraged when I met people who said there is no cure to chronic Lyme, that it wasn’t possible to recover completely. I’m basing my opinions on my personal experience, my study of Lyme and of neuroplasticity, and on the best informed guesses I can make at this time.
I have done coaching sessions with people who wanted to know if I think DNRS or other neuroplastic approaches can help them, and some of these people have had Lyme. My Lyme doctor and I decided that after four-and-a-half years of intravenous antibiotics, I had gotten all the benefit I could from them. Some of these symptoms were things that had improved to some extent from antibiotics before I started neural retraining, and others were things that were still huge problems even after antibiotics. For a very long time, I did extremely little standing or walking (for a few years, I did none), so when I started walking again, it was a really big adjustment for my feet. The most unpleasant effect has usually been anxiety, though sometimes it also affects my sleep or causes mood swings or other symptoms.
I always had some anxiety and confusion around social situations and did not feel like I fit in with other people, and that’s been the biggest challenge of being out-and-about again after 90 percent of my communication being by phone and internet for almost 20 years. It looks like a cure to others, but for people who have gone through it, we know that we were not cured. I’ll say more about this below because there are a number of other questions and wrinkles in this topic, but I believe that the best way to treat infection is to kill the infectious bacteria or parasites with antibiotics or other antimicrobials.
Although I added a lot of other practices to my recovery plan, it is hard for me to imagine any of it would have been possible without the information, guidance, and inspiration I received from watching the DNRS DVDs. So, most people who use neuroplasticity-based treatment approaches experience a gradual improvement over time. When I followed it to the letter and started to have improvements in my MCS, I was then able to think about additional approaches that would complement what I was already doing.
For someone who has simple acute Lyme, recently contracted, they may only need a month or two of antibiotics. While Western medicine does not have the best answer for everything, it has the best answer for some things.
Do you have have MCS, EMFS, anxiety, or depression along with Lyme and cos, OR did you have fibromyalgia or CFIDS before you got Lyme? If you have any Lyme and coinfection symptoms after that, you can then do antibiotics for whatever is left over.
It is much, much easier to stick with a plan that requires big changes in behavior if you are being reinforced by having lots of periods of relief from symptoms.
These are benefits to anyone and can certainly help with the process of recovering from Lyme. This is often the deciding factor for why I recommend doing DNRS first for some people with Lyme.
I think the most challenging part would be not focusing on symptoms and treatment while undergoing aggressive antibiotic therapy. For people with very low incomes, such as people on SSI, it can take several months to save up $250. It is best not to do DNRS when in the midst of a major trauma or when newly recovering from a recent trauma.
There are studies that show that just five minutes a day of meditating, walking, or spending time in nature are good for your brain and your overall health! There are people who have done DNRS, have had MCS symptoms resolve but are not having a complete recovery in some other respects and when I ask them about Lyme, I hear….
My opinions may differ from those who developed the program or who are certified DNRS Coaches. Some people think that because the TBIs dump such a huge amount to toxins in people’s bodies as they die off that it makes people very sensitive to everything else.
I know that these are very complicated illnesses and it is hard to really ever know exactly what helped what and when, but I would love to hear your thinking on what connection, if any, you think there may be between MCS and TBIs. It is very hard to do the kind of thoughtful, clear-headed, intensive cognitive and behavior training that were required when I was that sick, so I definitely think it helped me not to be as horrifically ill as I was to be able to do what I needed to recover.

While I recognize that it might be possible, I think it’s a lot harder to recover from a severe bacterial infection without antibiotics than with antibiotics.
It mostly occurs as a result of an ear infection, an upper respiratory infection, an allergy, cholesteatoma, or intake of certain drugs dangerous to the inner ear. I have also done several coaching sessions with people who are already working on a neuroplasticity recovery program who, along with chronic conditions such as chemical sensitivities or chronic fatigue syndrome, also have Lyme disease. For anyone reading this who has thought the same and is hoping for more encouraging perspectives, I hope this post will help you.
I am more than happy to offer this to anyone who is interested, but this post should not be interpreted as medical advice. Since almost every day for the past year has been the day after a big workout for me, it’s taken some time for this to subside. These symptoms subside within one to four weeks after a reduction in medication, then kick up again after another reduction. Neuroplasticity-based recovery approaches requires practice, just like other types of rehab programs.
If someone with chronic TBDs has undergone an aggressive, comprehensive, long-term antimicrobial treatment regimen and still has symptoms, I think neuroplasticity-based treatment will likely help them achieve complete recovery. I had improvement after my six years of antibiotic treatment for Lyme, babesia, and bartonella, but I was still extremely sick.
Before I watched those DVDs, I believed it was impossible for me to recover from MCS and CFIDS, and I thought I probably would not ever recover completely from Lyme, either. Bypasses for blocked cardiac arteries and antibiotics for bacterial infections are two of the best tools Western medicine has to offer.
If you still have active infection that causes symptoms, it may be challenging to do lots of ongoing brain retraining because you will not be getting as much reinforcement from symptom relief, and you will likely have trouble with the cognitive component of the work. Someone could start on antibiotic therapy and get through a year or two of that, and then continue on them while starting DNRS. I got well at warp speed, and I still was sometimes frustrated and impatient and wanted it to go faster! It was developed by Annie Hopper to treat multiple chemical sensitivity, electromagnetic field sensitivity, chronic fatigue syndrome, and fibromyalgia.
I also know that many people who get so very ill from these illness have bodies that are unable to detox themselves very efficiently.
I wish that more people with MCS would consider that they might have TBIs and go to see a good LLMD at least to get them ruled out. In case of labyrinthitis, the parts of the inner side of the ear become swollen and irritated that disturbs its functionality, including the ability to balance you.
I’m not including the CFIDS and MCS symptoms I had before I moved to the country, although there were several symptoms I had before Lyme that did worsen or take on new aspects after infection with TBDs. For example, when I had a virus last winter and was resting on the couch for several days, doing no swimming, yoga, or hiking, the pain lessened after the third day.
If you were learning how to use a leg again after an injury from a car accident, or if you were learning how to eat or write after a stroke, you’d need to practice a lot. Although I didn’t see it on her website, she says that she also had Lyme and coinfections and did not use antibiotics, and she recovered completely anyway.
I think this would have many of the benefits I listed for doing antibiotics first, as well as some of the benefits for doing DNRS first.
And it’s definitely not unusual for it to take a year or two or more for some people to recover. I would love to be wrong, but I try to do my best to present the information I believe to be most likely to be true. In one case the person had a Lyme rash and in the other they had a Bartonella rash, neither got much if any treatment for the TBIs.
My son also sees a neurologist in NYC for IVIG because he has nerve damage that caused POTS and CIDP. Risk factors include excessive alcoholism, stress, fatigue, allergies, recent viral fever, respiratory or ear infection, smoking, and intake of certain non-prescribed drugs. It was a very happy day when I first noticed that my feet were not in pain all the time anymore. So maybe it is possible to recover from Lyme and other tick-borne infections without antibiotics. I have no affiliation with DNRS and do not make any money from people buying DNRS products. Symptoms of labyrinthitis are abnormal sensation of movement, dizziness, nausea, vomiting, hearing loss in one ear, involuntary eye movements, and ringing in the ears. To me it seems less likely, but here is Lauren’s wonderful recovery story, so you can see for yourself.
A lot of the time, it has to do with needing to do more practice, do things differently or in a more complete way, or other factors. I ask them if they’ve been diagnosed with Lyme, and they say, yes, actually a doctor diagnosed them a few years ago, but there were so many other things to deal with, it got lost in the shuffle.

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