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Morgellons Disease Awareness -  Artist and Morgellons sufferer, Ayla, journals her experience with the disease   I'd like to introduce myself, I'm Ayla, a 59year old artist and graphic designer who contracted Morgellons in Jan.
Morgellons Disease Awareness - Morgellons Disease: Tips for healing lesions, oral care and environment   Information for dealing with Morgellons lesions using topical aids as well as FAR infrared technology. I am the third generation follower of Bhagawan Baba as my grand mother (father's mother) was in Puttaparthi and she spent her old age days in Divine Presence.
I've been moved to create awareness tools that help educate healthcare practitioners and the public about Morgellons Disease (see Awareness Poster) as well as share what I've learned from this experience.Many of the skin photos in the photo galleries are mine. Swami used to call her as 'Palamoor Kistamma'.My mother received the black and white photo shown in the above image from our beloved Bhagawan when I was 5 years old and we have the same in our pooja room in Hyderabad and more actively worked in the Organisation from 1976 onwards when I received one week Sevadal Training (conducted by Shivam-Hyderabad) in my place Kollapur-Mahabubnagar District. All information in the lesions section comes from individuals that have dealt with extreme skin problems and have found ways of managing them using non-pharma products. After one week training in various wings of the Organisation, exams were conducted and I got First Prize in Spirituality and received Three Books from Sri BV Ramana Rao, then State Sevadal Convener of Sri Sathya Sai Seva Organisation-Andhra Pradesh. Like most, I panicked bought a lot of unnecessary products—some toxic, then managed to pull myself back from the brink of actually hurting myself. Always wary of doctors, I tried to stay out of that loop but finally caved when my beloved ones pressured me to seek help. A dermatologist gave me Ivermectin which caused a Herxheimer (die-off) reaction and many of the black particles I'd been seeing with a scope surfaced.
This gave me great relief from the discomfort of what felt like fiberglass embedded in my skin. Maxwell will be deciding upon and after this illness passed we will take a look at producing these scripts into feature films or television productions. There were NO fibers visible in my skin in the previous months before taking the medication. Worked in South Indian Canteen where coffee,Tea & Curd Rice were prepared from 18th to 24th Nov during free meals time. Maxwell is spending this time taking care of his wife, and not in production, he has plenty of time to read scripts.
The mix will not stop new itch spots or bumps and lumps, but it will get RID of existing ones without leaving a trace. Thus, this is a wonderful time to have him take a look at your script.i»?A This page is set aside to give us an opportunity to keep our visitor abreast of what is going on with Maxima Vision Films and our film school. Within two days of taking the Ivermectin, I watched in horror as fibers started to rise to the surface of my skin. Had wonderful Darshan of Bhagawan's Divya Sannidhi and on 1st Sept I had a rare opportunity of offering (placing) a flower at the divine Lotus Feet of Divya Sannidhi. At the same time we encourage our visitor to write us anything they feel may be of interest in film and television to our community. Without proper flora the body is open to many different type of skin infections since the flora is our immune defense against invaders. Many of these articles are written by our own CEO who is serious about keeping our whole community up to date with any breaking news and events we may be involved with. You can also open capsules of probiotics and not just one since you are covering a large area Beware that in the morning the liquid will have absorbed into your skin or evaporated leaving lots of crumbs and it's messy. That plus coming off the tail-end of the pharmaceutical seemed to stop all the symptoms of itching, biting and crawling for approximately the next 4 months.
In the event you write to us a story we find the community may want to know about we will post here on this page. The only thing that hadn't cleared up was the hyper-sensitivity to my skin which I thought I was stuck with for the rest of my life, an unfortunate consequence of having Morgellons. Had I not been actively using a microscope to look at my skin during this period, I might have presumed I was well. These stories may be of any kind pertaining to the film and television industry, from casting calls our community may want to know about, to events in the area, to a new story ideas you come up with you think might make for a good film or television production. The skin however, doesn't lie and told a whole other story for under it's surface, fibers and particles were clearly still present—multitudes of them. Early on, I'd heard about the testing that Pam Crane of Morgellons Focus On Health (site no longer active) was championing and felt that it was probably the way to go.
I also learned and am not surprised that scientists are discovering that humans are missing certain key bacteria from the skin that the human body requires. My only problem with moving forward was a lack of practitioner, as I felt having the best testing in the world wouldn't mean anything unless someone was up to the task of decoding it's contents into a meaningful protocol, sort of like buying a Cadillac that arrives without the key. I wanted to have a conversation with whatever doctor I was going to see and to hear them speak about their philosophy of healthcare. There is also a clinical trial underway to study the skin of children across USA."??Posted Oct.
Randall Maxwell of Maxima Vision Films takes some of the backdrop of that particular White House, fictionalizes the story, orchestrates some look-a-likes and dramatizes a womana€™s lust for power who is willing to do whatever it takes to become the first lady president of the United States, including assassination, sex, love or war. Just try to get a physician on the phone before actually making an appointment and you will find it is an impossible task (especially the high-end specialists).
At the store I found Absorbine Jr Cream and although it did burn for about 2-3 minutes after a short amount of time enduring I found it to be soothing and took the itching and pain away. After a few days of applying 2-3 times per day I found that it actually pulled out alot of all the horrible things that were under the massive very deep crusted lesions on my arm (can be seen before and after photo).After some success I began looking at the ingredients and determined all the natural things that it was made from, one of which was camphor (another good one is wormwood and aloe), and began trying other over the counter camphor based items by looking at the percentage of camphor within each product.
She talked about The Great Plains Labs and why the testing used in Functional Medicine is so important for our community.
She sounded like she knew how to do her job well and was more than capable, indeed she had impressed me as understanding how to approach the disease in a holistic manner that aligned with my own healthcare philosophies. I believe my first words to her were, "Where do I sign the dotted line?" (While focusonhealth has been taken down, here is another radio show with Nancy speaking with Pam. The ones I currently have now are all microscopic and can no longer be seen with the naked eye.
However I will say that while the camphor I believe is helping to rid my internal system, it also has a price of the purging and expelling (so it has not been an easy pain free task), but I know I am healing. Let me remind you that I felt fine when I first contacted Nancy, but the emerging fibers showed me I was not.
The camphor bottle has a stopper in the top allowing only one drop at a time, and once I did get too many drops which caused a euphoric sensation through my body.
Nancy forewarned me that treatment would kick up all the initial symptoms I had when first ill with Morgellons, such as itching and stinging and that I might experience more fatigue with die-off, possibly even get lesions although I hadn't had many lesions previously. Within a week and a half of beginning this new protocol all the discomforts she mentioned came back.
Again everything in moderation!!I also use a bottle of Vaposteam in hot baths for soaking that has camphor.
Black particles began coming out from the skin, sand-like crystals were suddenly pushing from the scalp, I was itchy and uncomfortable but this time around it was at a much lower volume then at onset. The oil in the camphor and the aroma baths soften the skin, pull the fibers out, clear the sinuses, and help relax for a good nights sleep as well.
I have experienced some lesions, in the form of 'papercuts' and blood spots appearing on the skin.
They were tiny and healed quickly. It took close to 3 months for the symptoms of this detox to disappear, lessening with each week. Much to my amazement I actually saw tons of blue fibers pour out of the lesion right before my eyes (I had never seen them come out of my body like that, usually when fiber bundles were present with the naked eye I would wake in the morning to find them there).After several months of taking it internally I had concerns that I may be hurting my blood, kidneys or liver and told my doctor what I was doing and requested referrals for urinalysis and bloodwork. We added in another few products to my protocol fine-tuning the process. Once all my symptoms had abated I was ready to move on to the next step and do a colon cleanse. I used supplements for one month that gently cleansed the colon (Colon Cleanse by DaVinci Labs??).
When three unlikely but well-intentioned groups of mighty people join forces to battle the demon, they face challenges within and without. Just as a test I stopped taking it once and within a week the clumps of fibers returned, so I began again which took another week for it to get back in my system to get relief again.
After that, I began with chelation therapy (Chelex by Xymogen) to remove heavy metals. Nancy has taken me through this journey with constant support through email.
Their variegated backgrounds, including slavery, military, and commoners, must be overlooked if they are to stop Man Burnera€™s evil quest.
I sometimes now take a break for a day or two if I am doing good, but don't go more than 2 days without at least a few drops.Disclaimer I am not advising anyone to use any of the items I choose to use for myself, you and you alone are responsible for your own healing and research, I am merely telling what has worked for me!?Posted Oct. The powerful and precious Atma stones must be kept secret if the world is to be saved.Will Man Burner be able to succeed on his quest to find the Atma stones? She used this formula on the face and on the eyelids with no problem and claims her eyebrows and eyelashes are growing back.
The fact that she is able to tell me what I can expect and interpret what I am going through is invaluable. Her before and after photo shows the improvement, but I am not publishing them as it reveals her face. Having gone through the early treatment phases and emerging symptom-free, makes me feel that I did indeed work through something—hopefully clearing biofilm. So where am I right now and what are the changes that happened over these few months of treatment?My skin cleared of many of black particles, although I still have them (my great lament was that I didn't have a camera back when I first got sick, because my skin was so saturated it was alarming!). Her formula contains DMSO which some feel is controversial, so do your own research and decide if it's the right direction for you. This delay is expected to last a couple of months, postponing production of every film by a couple of months.The reason for this suspension is due largely to the fact of us not yet having our film school, which is attached to our production company at the point where our investment group had wanted it by summer of 2013. Another large factor is not finding a large enough pool of talent here locally who have enough professional film experience or training to allow us to completely cast four feature films per year, let alone finding enough professionally experienced crew.Thus, one of the things we are now awaiting is hiring a casting director in Hollywood to cast any remaining major speaking roles for each film we have been unable to cast thus far.
This is an all out effort to raise the bar in this region of professionally trained actors as well as crew. At this summer feature filmA  consortium; Whether you are an aspiring producer, director, script writer, editor, animator, actor, cinematographer, or just want to learn the ins and outs of the film making industry, you may begin as early as the summer of 2013 building your working resume by participation in our Summer Feature Film Consortium! This is the only thing that ever worked without destroying my skin.I got onto the idea of DMSO.
It is a carrier and contrary to what experts say it is not harmful, you can research it yourself if you haven't already done so.
Well, we have serious investors who share our same passions who are willing to put their money where their mouths are. Let us commit ourselves then together to perfecting our craft of film making and television production by committing to professional training and stop spending money with so-called agencies who are simply in business to sell schools and photos, but have no real connections to even consider making even a feature film. Actually, I feel spry and 10 years younger than my 55 years of age (at the time this was written), an unexpected and very welcome gift. It is a very sad thing that so many have been lured into such scams and have been taken advantage of, but now it is time for change and a part of this change is a must, raising the bar of excellence. It is now time for us to show our investors that we are willing to invest in our future so that very soon they will allow us the opportunity that all of us can make a very good living doing what each of us love doing and that we are extremely passionate about.A This film school has always been and will continue to be always a very specialA  part of our production company and our plans for the future as a means of keeping well trained professionals continuing to come on board with our production offices, from professionally trained actors to crew. This keeps fresh ideas coming through the doors, but more importantly it allows us to always know we have the most highly skilled actors and crew that money can buy. Still, they are here and I am monitoring them carefully. I am convinced of the value of the Great Plains and Metametrix testing.
Our investment group has always made the film school a stipulation on their investing in our feature films and will continue to do so.
It just makes sense that one would want to know the particular weaknesses of their body before embarking on a journey of healing. A One of the biggest concerns of our investment group is to keep from happening here what happened in Louisiana, where their film makers were at least diligent in getting their law makers to raise the incentives to entice major film production companies like Maxima to come into their state to produce films in their state. They were able to do this by quoting statistics which prove, when major film production companies come into your state and begin producing motion pictures, they bring with them literally millions of dollars into the local economy.
Getting the labwork done and seeing Nancy are the two smartest things I did throughout my ordeal. Morgellons for me is like that impossible teacher I had in my youth.
In Louisiana, they experienced tremendous success in enticing these companies into their state.A Unfortunately, these companies came by the droves, however, once there they found there was not enough professionally trained talent already there to produce the number of films they wanted to produce, causing them to have to hire the bulk of their needed talent out of state. Because these incentives are based on hiring local talent, these companies when they were forced to hire outside of state talent, they lost their incentives.
I believe the DMSO carries the other oils deep into the skin and  kills the "what ever they are".
But it has also left me savoring hard-won battles and set me straight on how to live more in balance.
Louisiana has since worked diligently trying to get professional instructors in their public schools and universities to train up a workforce of professionally trained film and television professionals to salvage what they can of the professional production companies who have remained and tried working with them.A At Maxima Vision Films, we have experienced the same thing in this region as far as finding sufficient professionally trained talent to do here what we had planned to do in this region. Therefore, I try not to rail against the unfairness of the experience, but to look at how much I learned and the ways in which it has stretched me as a human being. When I speak of this region, I am speaking of the region of Tennessee, Arkansas, Oklahoma and Louisiana.
You won't be able to get them all out and yes some may die in the skin and cause a breakout, but over time is will subside. Yes it has been a miserable teacher, but by it's hand I have been become an attentive student.I wish you all full recovery. We have two investment groups, one of which has already committed to funding four feature films or television productions per year over the next five years here in this region with Maxima. It's taken me over a year now as certain section of my face were harder to deal with specifically the chin and cheeks. AylaWhile I am not comfortable sharing my protocol as it is specific to my lab results, I will outline what I feel are the bare-bones minimum I'd look to take if I were building a protocol. We want to shoot films that matter, films which can help to shape our culture positively as opposed to negatively.
You don't have to wash your face but rinse it and apply a very thin layer at night before you go to bed. It seems now that I may never be rid of this completely but it is manageable. This would be a good probiotic (I use 3 different kinds throughout the day as was indicated by the results of my testing).
These films will be marketed directly to the Christian community, which when one considers 70% of the USA population are professed Christian, this is an enormous market.
I was using antibiotics and I'd have to smear it on everyday and still not get rid of this and those antibiotics are not good for you.
FOS, according to Nancy can promote yeast growth so I'd stay away from a probiotic that includes it. We are certain if we can keep our production cost down under a million dollars the odds are in our favor of at least breaking even if not making a few dollars, especially considering telling stories that matter.
I'd include a biofilm buster which breaks down the cellular matrix in the gut that inhibits absorption of necessary nutrients.


If we can keep our films under $500,000 the odds go up even further, and we know one film in 6-7 will make a substantial return. Most of my pores are tight like they were when I was young. FAR Infrared Using a FAR infrared sauna suit, Donna Staehr was able to clear up lesions that had been present for two years all over her body.
I used Interfase Plus and Wobenzym at different times (there are different kinds of Wobenzyme. Our main goal though is telling stories that matter, that might help shape our culture positively, and we can all make a decent living while doing what we are all passionate about doing. A To accomplish all of this though, we are going to have to raise the bar here in this Texas region as far as talent goes. With her permission, I'm sharing her "before" and "after" photos as well as her story (in italics).
We are diligently seeking those individuals who have a real passion for film making and television productions, who are driven by this passion to do whatever it takes to one day be able to make a living in a industry that chances are very bleak in anyone getting to a point of making a living. I've used Carlson's liquid D3 which is lipid based, but recently have switched because of assimilation issues with fats to a dry encapsulated D3 (Prothera brand 5,000 I.Us a day).
However, one thing is for certain, to have any chance at all, the more one is willing to do in the industry, whether it be sweeping the floors, taking coffee to the director, or being the lead role, or simply investment of time, energy, and money to keep perfecting their craft, all tends to lead to work, which gives us more exposure, that in turn leads to more work, etc, etc, etca€¦ A The point is this; we have investors, which is something, if not the one and only thing which keeps most from doing what they truly want to do in this industry!
These investors are seeking individuals like yourself who are like minded, those who have a real passion for film making and television productions, but who are also just as passionate about telling stores that matter.
However, the real key is finding these like minded individuals who take this business very serious, as serious as our investors take it, those who are willing to invest into their own future, so as to help them to perfect their individual craft so that they are the very best they can become, so that as a collaborative art form we are able as a group of individuals creating a quality product. State President has conducted meetings with EG and WG teams in Rajahmundry and Kovvur Sathya Sai Mandirs respectively.
Certain of the B's can become depleted when the body is fighting infection, so a good B-complex seems necessary. Also, Mr.
Common Sense and now Clifford Carnicom have written about NAC and it's benefits along with vitamin C in helping quell the symptoms of our condition.
I'd look into this as a close friend from the community began taking both high amounts of Vitamin C and NAC and her symptoms disappeared.
She was taking 3,000-5,000 mg of C spread throughout the day and 600 mg 2x's a day of NAC both in the morning and at night. She eventually reduced it to 2,000 mg of vitamin C and 600 mg of NAC because the NAC was giving her headaches. On the same day evening had a small meeting with BV Group in ESS and witnessed Sri Sairam Iyer songs (Dual Voice).
The lesser dosage has been fine for keeping her symptoms of crawling, biting and stinging away. I couldn't breath properly, couldn't even walk to my letterbox without puffing and wheezing. When she went off the protocol symptoms came back and when she again resumed, they went away.
I might mention, that my protocol has always called for 1000 mg of vitamin C, three times a day.
While I was not on NAC as a separate supplement, it is in another product I take daily ?(Liver Protect by Xymogen).
Nancy has stated that the clients she sees that do this first make themselves much worse and take longer to get better. After he began his own recovery, he helped set up centers to help other addicts."I abandoned my old life to serve the Lord Jesus Christ," he said. If I am going to do this right, I want to know what my baseline toxic load is so I can measure my progress over time. The results arrived right after I finished my third week of chelation. My total toxic representation was OFF the chart with high levels of antimony, silver, cadmium, tin and magnesium. One twin struggles with an addition to prescription drugs, while the other battles doctors whose prescription anti-psychotics are driving her sister to madness and death.a€?One is what I call a€?preachya€™ and more for the church community and affirming faith,a€? Maxwell said. I have a host of other metals as well, they just were at lower levels than those mentioned above. I'm still not healed, but it's more maintenance now, and these days I'm trying to fix all the damage done to the body—a long road as you know.
Once Nancy reviewed my test results and knew how I was responding to the treatment she modified my protocol to include a liver support, and the addition of 3-4 new products that would also help balance me out. I keep an ongoing visual journal using photos which I share with her so she can see any new developments. During chelation I was more tired, needing to take naps and sleep longer on most days.
I also had some tiny red spots appear on the skin without breaking through.Red spots appear on the skin. With the first type of film we will focus on films which are considered preachy and on the nose which will be marketed directly to the Christian community.
Based on what was going, on Nancy pulled back on the chelation so that the process is even slower and gentler until my body can adapt. The second types of films we will focus on are those designed to reach the un-churched with a message of hope for a hurting world, a film with at least a redemptive message.
This investment group is especially interested in getting involved with projects where the project owner has some sort of invested interest in the project themselves or have some avenue to put together a split funded project somehow, thus splitting the risk as well.A A Thus, this investment group funded many trips around the country for Dr.
Using shea butter and coconut oil mixture as a moisturizer seems to draw fibers and black particles from my skin if left on for 3-4 hours. Maxwell to travel and meet with other investment individuals, companies and groups who had expressed interest in partnerships with the films we were already in pre-production stage which were our films a€?Rachela€™s Gracea€? and a€?Sister Surrendereda€?, both of which had an estimated production budget of around $300,000.
We had felt with partnering with others who could double the production budget we could add at least some actors with much experience as well as other talents. Unfortunately, at this point, though we met many such investment groups who had expressed interest in split funding our film projects, most simply had projects themselves who they wanted our investment group to invest in their film projects and did not show us even any interest what so ever in split funding our film projects after our investment group paid travel and lodging expenses for Dr Maxwell to meet with these people. A With this being said, this has been a very expensive summer for our investment group in trying to put together split funded film projects.
Most are not readily apparent unless you really look for them. Hair The Morgellons has moved into my hair.
An acupuncturist, pointed out after looking at my hair photos, that there were multiple "hairs" emerging from one follicle. If I had to buy a unit right now, I would not purchase this unit again but would go for a suit or blanket that envelopes the entire body as I think these would be much more effective then having a pad. This is probably why my hair feels thicker even though it has been brittle, weak and falling out. Learn how Infrared Therapy will benefit your healthHow does Far Infrared Therapy really work?The infrared light increases cellular metabolic rates by triggering mitochondria activity.
Helicobacter pylori, the bacteria I had with high levels the first time I was tested, is completely gone. There was a new bacteria that showed up on this round of testing that wasn't on the previous. The build up of toxins in a health body could block the normal blood circulation and impair the cellular energy. Nancy feels that this is something that could have morphed, or, could have been present all along, but like peeling an onion back, was hidden under layers. When FIR waves are applied, the water molecules that encapsulate the toxins get heat up, and start to vibrate. This vibration reduces the ion bonds of the atoms that are holding together the molecules of water. Scientists in Japan report that in the FIR treatment of clogged capillary vessels, heat expands the capillaries and then initiates the start of a process to dissolve hidden toxins. Far Infrared thereby promotes elimination of fats, chemicals and toxins from the blood: Poisons, carcinogenic heavy metals - toxic substances from food processing - lactic acid, free fatty acids, and subcutaneous fat associated with aging and fatigue - excess sodium associated with hypertension - and uric acid which causes pain. She is adding seven new supplements to my protocol to address adrenal support as sleep has become fitful and I feel somehow too 'plugged in.' Fight or flight mode. Furthermore, if sebaceous glands are activated, accumulated cosmetics in pores can be eliminated through the skin (sweat and oil glands) rather than by the kidneys.3) Far Infrared stimulates enzyme activity and metabolism - One hour under the Hotouse improves metabolism. I'll be taking a prebiotic to address the new bacteria as well as some new products from Xymogen to open detox pathways. I'm excited to be moving in a new direction. Every time we do a new test, I see the value of this approach.
Furthermore, it increases growth of cells, DNA syntheses, and protein synthesis all necessary during tissue repair and regeneration.
Excellent for healing burns, scar tissue and skin problems.6) Far Infrared relieves nervous tension and relax autoneuro muscles thereby helping the body make the most of its intended healing abilities. Randomly throwing supplements at the body without being tested, with the hope that something might work, seems a dangerous practice.
Not terrible full-blown itchy, just enough to let me know that I was reinfected or maybe this is an allergic flare-up. This episode might have lasted longer than necessary had I immediately washed all my clothes but I got lazy and didn't wash them for a few days. I am mentioning this because people with Morgellons know they flair when they sweat and it was like that for me as well but NOT when I sweated from FIR.
Was not constantly itchy, but found I'd get itchy at odd intervals, sometimes once a day, sometimes not for days at a time and sometimes for a mere few seconds or so. It is the furthest red on the spectrum and that spectrum of light is a very healing kind of light for humans and animals too.Incidentally the military has used FIR for ages for detoxification purposes. I am putting a garden in upstate and often have my hands in the soil (without gloves) and have found that I am fine.
The only itching I've got is from the occasional mosquito bite (and yes, these are real mosquitoes). I always thought it was normal for me to run low, as I can never remember not running low.It doesn't seem to be normal though, because now that it's up, it stays up, I'm feeling good.
None of this is medical advice and all of it is based on only my own VERY un-scientific observations. Now, instead of direct application of GSE I brush my teeth twice, once with toothpaste and once with a clean brush that has two drops of GSE on it. His experience is that if lesions ooze onto clothing, you can spread the infection via the fabric. Note that I have been letting my supplements run out in the last few months because I needed a break from taking approx. I wonder if the return to itchiness had something to do with my letting down my guard and not watching my pH.
Sometimes I back the square with another square which is "dry" on the back of the first honey soaked dressing square. After the first day of swimming, I noticed small circular red blotches appear under the skin of my calves and thought, uh-oh, here comes trouble. I treat new lesions immediatly before they get worse. The manuka honey        One unique advantage is manuka honeys ability to rapidly re-granulate the wound after the expulsion process. I FINALLY have a microscope again (it was replaced after more than 7 months at the manufacturer!). It also has the unique ability to stimulate immune cells at the wound site, something that no over-the-counter or Rx product can do. This works well for me because I do not have to endure pain as previously, because manuka honey is an excellect analgesic. Massage it in and they come to the surface before they can grow laterally in the skin layers. When he tells me he finds something that works, I pay particular attention because he has been hitting this disease hard. I had a few breakthrough 'papercut lesions' on the hands which I don't know what to make of. I stopped the Ormus because I wanted to document F-6, which has gotten quite a buzz in the Morgellons community. I still have 1.5 bottles left and intend to take it in a few months feeling I didn't give it a proper shot.
For now, I want to concentrate on doing one therapy at a time, so I can really be sure what each does. October 17, 2011: Began using F-6 and have started a new link documenting that experience including photos showing what is emerging from the skin. I'm going to take it slow with this product as I don't want to have any major herxheimer episodes. Tests on the morg bacteria on slides shows that it does kill the bacteria that makes the gels. Had a major breakout of lesions on one side of my face. Caroline Carter, A healthcare worker that has Morgellons and works with ozone therapy (and who made her Morgellons worse with ozone saunas) said she cannot even be around it anymore. I have since talked with another person that had strong outbreaks from doing an ozone sauna. Ozone therapy is typically great for cancer, AIDS and herpes, but for this disease might make us worse.
There seems to be improvement to the hair which feels stronger and seems to be falling out less.
A lot of "debris" is coming up through the skin, fibers, black particles, granules and many more fibers then ever seen before. Sure enough, there are those courageous and marginally insane folks who refuse to succumb to the drill and are healing their own teeth. It was tough, and at times scary but the tooth did heal." I'd like to share my experience with oil pulling using coconut oil. Three or four times in the three years since getting Morgellons, a sore has popped up on the roof of my mouth near the teeth.
In the past, it has taken up to two weeks to fully go away because brushing the teeth rips open the sore which bleeds.
A week and a half later I ate some quinoa with my lunch and two hours later had 3 oatmeal cookies (oatmeal, walnuts, carob chips, baking soda, vanilla).
The last time I got one of these sores I decided (after two days) to begin coconut pulling.


This forage into complex carbs was unusual for me.While eating the cookies I started to itch. I swished the oil around 20 minutes? in the morning upon awakening and in the evening before bed. By the third cookie, I was having full-blown symptoms of itching, stinging and biting sensations (no crawling, thank God!). The fact that it came on with such force and was related to food, makes me think that Morgellons counts among it's causes a hyper-allergic reaction to food. In this case, I don't really know what specific ingredient triggered the reaction.By eliminating carbs again, symptoms quieted down. Since then, I've continued to do coconut pulling at least once in the morning.? I have to admit, I'm pretty obsessive when it comes to my teeth. Things I have used on my teeth over time. Bentonite clay Rub the gums with it before bed (and leave it in the mouth). It's fine if you end up swallowing it in your sleep as it's very healthy and helps with detoxification.
For those that take Bentonite internally as a detoxifier, note that it should be taken away from supplements.Garlic is a natural antibiotic I have experimented with extensively for fighting infection both internally and externally for years and can attest to it's antibiotic properties.
I am noticing flare-ups of the arthritis in my foot which had so improved at the beginning of my treatment (but I kill my feet dancing one night a week, so that could play into this). I've used this method on my teeth before I even had Morgellons with good results. If you feel you've got a serious infection in your tooth, taking garlic internally, might be a secondary support to your system.
Make sure there is food in your stomach before ingesting raw garlic as it can burn in the most brutal fashion.
Use only a half clove (or less) at a time to make sure your stomach is okay before taking a whole clove.
The ones I can visually see without a scope are bigger then I've had before but there is no increase in the amount I generally see with my scope in the skin.
Also, some cultures like the Chinese, believe too much garlic overstimulates the liver, which can cause fitful sleep. Will keep you posted of new developments.I've noticed that when it's very hot (93-97 degrees) and my skin is exposed to the air, I have more sensations on my arms.
It's not unusual to feel a single pin prick sensation on my left upper arm, often I'll feel the same type of prick mirrored in the same spot on right arm sometime later, as if they were somehow linked.The other day on my bike I felt as if I hot poker were being pressed momentarily to my arm. When I looked down, there were three distinct tract marks in that spot, about a half, to an inch long that hadn't been there before.
Since having Morgellons, it feels like the skin is no longer a reliable friend but is capable of erratic changes suddenly. They took about 5 days to disappear.?September 27, 2012 • Live blood microscopyJust posted a new link with photos of my recent session with Rick Panson, a microbiologist and healthy body coach who did a live blood and dried blood microscopy and gave me additional guidance for my health. If you have a bad abcess in the mouth, and feel the infection has progressed to a serious stage, you will need to determine if antibiotics are the way to go. It's a bird's eye view into the system, giving a fuller, deeper understanding of what's going on  then just looking at lab results—although lab tests have their place! I had a really bad infection (pre-Morgellons) that I took antibiotics for and feel that was the best choice at the time.
In the next two weeks I get more testing done so will post those results when in. There were many problems with the blood. We are in a seasonal shift and my fingers have had a few tiny papercut lesions since the change began.Started the protocol Oct.
Beginning with one pill a day of capyrilic acid with one pill olive leaf extract and 1 tsp. At the time of writing, I believed that I had had some sort of infestation in my apartment. The L-glutamine is supposed to strengthen the gut lining and prevent leaky gut syndrome caused by the yeast die-off.
Will stay on this for a few days and slowly double the dosage, then determine where to go from there. However, if you do have a bug problem in your environment, these tips should get rid of it. I've written more about the need to get confirmation that there really is a problem in your environment on the "Reflections" page. 16, 2012 Went back to Rick Panson for another live blood analysis and posted the photos under my last blood microscopy. Do not breathe in the fumes if you can help it and don't stay in any room you are treating! Make a point of using them in sealed areas or bins and open windows or use an exhaust fan to ventilate afterwards. Some people buy the diffusers that have a candle in them. This is encouraging for all of you who wonder how long it will take to knock back candida and even if our protocols are working. Menthol usage for dirty laundry (do not use menthol crystals in the washing machine) —Clothes are a big reinfection point. Rick recommended Candex and Nancy told me she loved the product except now they are adding corn to Candex (and it's unknown if it's GMO corn), so she is no longer recommending it.
The whole idea behind using the bin with crystals is that you want to kill anything in the laundry BEFORE you put it in the wash so that you are not exposing yourself to re-infection when you handle it at the washer. Adrenal system had a number of markers indicating a lot of stress to the system, very low levels of vitamins C and B's, four different pathogenic bacteria showed up—Helicobacter Pylori was high, Clostridia, E. Kreb cycle needs support. Heavy metals hair test—all toxic metals were down except arsenic which went up with cadmium.
Lead which was extremely high on my first test showed a considerable decrease as well as silver but lots more chelation ahead. It's been 2 years since I started using supplements to pull the metals out and I think it will take a couple more years of work. The process is slow but steady which is a good thing because I think if the body released too much metal into the system at once there would be negative impact on the health.
You'll get the feel for how much you should use over time. After the clothing has been mentholating for a few hours, you can reach in and turn the laundry ensuring that everything in the bin has been well exposed to the menthol. Nancy pointed out that lead and cadmium are antagonistic to calcium absorption and bone health, so seeing this rise in cadmium and knowing I still have too high levels of lead makes me think that I might have to give up the painting at some point or switch mediums rather than compromise bone health. The heavy metals test also measures "essential and other elements," (minerals) It seems as a consequence of pulling heavy metals out, the minerals have been compromised. When you are ready to turn off the heating element, pull the plug rather than opening the bin.
Nancy suggested this organism is a pleomorph moving from bacteria to fungus according to favorable conditions in the body. This works well—especially if you have things like down coats.You can do your shoes this way too or any other items you are unsure of! This is the third time it's changed. Feb 3, 2013 Just an acknowledgment that I just passed my 3rd anniversary since getting sick with Morgellons.
The only time I really have symptoms is when I really mess up on diet (itchiness will start) or when ?very overheated and sweating from physical exertion like dancing, where it sometimes feels like needle pinpricks are sticking my skin from the INSIDE out, accompanied by itchiness.
Using menthol crystals on furniture (such as a couch) —Buy a big plastic drop-cloth from a hardware store with as thick a plastic as is available and 'TENT' your couch. Thieves is a great oil for preventing flu or when one is coming down with illness, but I am unclear if it can damage beneficial bacterias. Stopped taking thieves after a few weeks but do still take lemon and added in lemongrass and grapefruit to my daily capsule. Itchiness did not return. September 22, 2013 Decided to go on Stephen Buhners herbal protocol for Lyme disease (crafted from his excellent book, Healing Lyme). I wouldn't make a habit of wearing unwashed mentholated clothing as I believe it is unhealthy to inhale the vapors over a long period. Some people have tried to mentholate rooms. Although I tested negative for Lyme and feel fine, I don't trust the traditional testing one gets with their regular MD, and even though I don't think I'm dealing with Lyme, I can't discount the fact that so many Morgellons sufferers also have Borrelia and other co-infections that might be related to our disease which seem to improve with Lyme treatment.
Also, his protocol addresses other issues I feel are pertinent to my health (even before Morgellons). Open dresser draws, closet doors, and try to keep in mind that you want to make sure as much air circulation gets around things as possible.
Certainly, I see over time that my immune system is weak, and my gut reaction now to coasting is that it could be an eventual time bomb. Don't do this if you have fishtanks in the room, and make sure to protect your pets by keeping them out. I'm taking Cats Claw, Sarsaparilla root (Jamaican—which I grind in my coffee grinder), Eleuthero (Siberian Ginseng), Astragalus, Japanese Knotweed and Andrographis. Computer Equipment —I disassembled all my equipment including cords and put them into a big bin with mothballs.
To his formula I've added in Ashwagandha and Sweet Cinnamon (from Sri Lanka) for the brain, as well as nettles (excellent herb for trace minerals and general support of system) and Pau D'arco (fungal).
I take a quarter level teaspoon of each herb (which is roughly the equivalent of one 00 capsule) added to some water and drink it down.
It did the trick.Mothballs are nasty and toxic, this is a last resort solution and I suggest you do your best to limit exposure especially when it comes to inhaling. Also, note that certain plastic foams will absorb the odor of the mothballs and there is no way to get that smell out.
Surprisingly, I did not feel exhausted, although the protocol was pretty intense and caused a lot of flushing through the digestive system. If you have a problem in an isolated area such as a room, I'd put a bin right outside the door with diatomaceous earth? in it, or methol crystals. This is not a new symptom and usually happens in the first few weeks of starting any new protocol. As these breakouts have always been so minor and short-lived? (an occasional papercut lesion or what looks like a pin prick), I paid them little mind.
I encourage those wanting to interact with others in the Morgellons communtiy to join the forum (or the many other Facebook groups). In this case, the skin continued to break open for the duration of treatment and I had some long "scratch" marks come up as well. It seemed like the last papercut I got was deeper and for the first time I started to worry that perhaps I was giving myself a lesion problem that I might not be able to turn off. Gratitude to Rayelta Nayar? for all her hard work preparing these!Note that I am not publishing the below pdfs as recommendations. I'm not endorsing nor do I follow any of the protocols below, yet, feel the public should have easy access to the information and form their own opinions about them. This little spot has bothered me on occasion on and off throughout the years of my Morgellons experience, but during the Buhner protocol, it itched almost constantly.
On the plus side, I could tell there was a lot of detoxification going on and all of those bitter herbs were really helpful for quelling sugar cravings. I believe I will revisit this protocol modified in the future, but for now, am taking a rest from it.
Note that when I ceased treatment, the papercut and pinprick lesions stopped, although I recently had a three-inch long "scratch" appear on my leg weeks after stopping his treatment some weeks back. Reflections Awareness Poster Links Ayla's Art Contact Ayla Morgellons Disease: Tips for healing lesions, oral care and environment   Information for dealing with Morgellons lesions using topical aids as well as FAR infrared technology. This was a surprise, since problems usually only show up on my hands and 3 inches is rather a statement!For the first time, the scratch resembled images I've seen for Bartonella. There is much about it that I think is helpful, and I encourage people to study these herbs and supplements carefully, and decide for themselves if they want to incorporate them.
This is a very difficult protocol and for any who have detoxification pathway issues, this could impact their health negatively. The release of toxins in a system that cannot remove them properly can be deadly, so it is important to not rush carelessly forward with something this strong. I did feel like the protocol helped me on many levels, but I could not tolerate the heart issues with pressure on the chest, burning, and breathing difficulties.
The creator of the protocol feels that Bartonella is at the core of the Morgellons infection, and Bartonella likes to set up shop in the endothelial tissue of the heart.
It's not a cure, but it WILL rid each and every lesion if the application is consistent. Thinking this was just a severe Herxheimer reaction, I went back on the protocol but was unable to advance more than one drop of each tincture before heart and breathing issues returned with a vengeance. You can also open capsules of probiotics and not just one since you are covering a large area Beware that in the morning the liquid will have absorbed into your skin or evaporated leaving lots of crumbs and it's messy. This time, the heart issues did not abate immediately, and it's been some weeks now in which they often come back on a low level. His original protocol (which he posted on Jenna's blog and which is now removed) did not use MSM, or Silver Sol or various other supplements. It also did not include baking soda, which is not inherently a problem, but at 2 teaspoons a day, might become one. Her formula contains DMSO which some feel is controversial, so do your own research and decide if it's the right direction for you.
It is a carrier and contrary to what experts say it is not harmful, you can research it yourself if you haven't already done so. You won't be able to get them all out and yes some may die in the skin and cause a breakout, but over time is will subside. It's taken me over a year now as certain section of my face were harder to deal with specifically the chin and cheeks. I was using antibiotics and I'd have to smear it on everyday and still not get rid of this and those antibiotics are not good for you.



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