So I'm posing a question to The Laundress, a glamorous detergent company I've been using for the past year. There are also some really great parties happening throughout the weekend too that attendies are privy to.
Spring is always that time where we clean out and clear away the dust and clutter in our lives. I've been covering technology in fitness, fashion and health over the last 5 months and I really hope you enjoy these trend reports. Like I say in the video, we're picking 3 winners per prize category, so you have an excellent chance of winning.
In all aspects of life, I'm drawn to women who take a stand on issues, don't care about being labeled a freak and just come out and say whatever it is they feel needs to be said. Even when I'm home alone and hungry, I can cook a HelloFresh meal and save the 2nd portion for my lunch or dinner the next day. The concept of the beautifully captured campaign was that an exciting adventure could be as close as your backyard. Every trainer I got was just going through the motions, fully knowing I'd disappear on him or her once my free sessions were up. The day I went to film at KryoLife, owned and operated by Joanna Fryben,  I was actually feeling significant shoulder pain.
Cryotherapy is hailed as a cure-all and people are using it to get rid of all kinds of things like acne, cellulite, unwanted weight, inflammation, depression, libido problems, and body injuries.
To be perfectly honest, the TomTom Spark Cardio + Music frustrated me at first because therea€™s a bit of set up involved. I refer to my life as a juggling act because there are so many facets of what I do that need to be in constant motion. In fact, I have more than a few waist trainers that I've been using for over a year since becoming curious about the waist training trend. As a Latina (my mother is Honduran), I'm feeling the need to spice up Thanksgiving with some Latin peppers. What follows are my favorite photographs from the day I conquered my fears with the Special Olympics of Missouri. You might think that living in downtown Manhattan, I already see it all when it comes to high style.
If you haven't been to any of Serene Social's wellness events yet, you're missing out and should definitely go to the one happening tomorrow in NYC at the launch of New York's Fashion Week. I will be there and looking forward to some heart opening rooftop yoga atop the James Hotel in Soho. So here's my Flat Stanley Skincare Secret: I seek out skincare that's packaged flat and in single servings.
One of the best parts of going on a road trip adventure is everything that you see along your drive. This trip will take us to some pretty amazing places where nature makes you feel empowered and free. Barre classes first came about in a big way in the 1950's on account of ballerina Lotte Berk.
Barre fitness is all about using small movements to work trouble spots and tone every inch of your body by working multiple muscles in unison. It beats being ohm-ing indoors, especially with the cool breeze off the harbor blowing through your hair. Earlier this summer, I spent one of the most amazing and healthiest travel weekends of my life at the Four Seasons Baltimore.
I first saw a pair of Vira Suns on my yoga-instructor-friend, Lauren Imparato, during a yoga class in the middle of Times Square.
What sets this year's event apart from the last few, aside from the bearably cooler weather, was yoga-preneur Lauren Imparato leading the highly publicized morning class. After years of dealing with this issue called a€?sleevage,a€? Ia€™ve concluded that most bras Ia€™ve worn are actually the real culprits. Before you give a listen though, I want to share my thoughts on what Katya Meyers is doing. I got in touch with the designer, Geneva Peschka from SunandDaughtersCo on Etsy, to find out more about the inspiration behind the shirt. Geneva bravely decided to act on the lessons she learned through these books and noticed her life change drastically for the better. The new Lotus Print collection by adidas Originals is urban, striking and feminine in a cool, unapologetic way. If you're a Zumba fanatic, you should know that the cruise doesn't set sail for another 7 months from Fort Lauderdale, Florida but at least you have some time to plan, right? And just in case you stop dancing to see where the hell you're going, the cruise will be sailing to Falmouth, Jamaica with a stop in Labadee, Haiti for a private live concert featuring the hottest Caribbean artists. While the entire Team SCA crew was not on board, 2 of its sailors were there to answer all my questions. Their sail, while impressive in it's own right, represents something far greater for women. From your clothes to accessories and gadgets, don't take a risk by wearing it for the first time on race day! FOR an exclusive womena€™s fitness class combining Surfset Fitness (the NEW surf-fitness trend) and Real Ryder Spinning (35 minutes of each). I picked out some rather loud styles for our shoot but once I got comfortable in them, I had no qualms wearing them "off-set". Short girls are always getting brainwashed into thinking we can't pull off more eccentric looks or fashion trends that taller girls can get away with. Leave a comment below telling me which fitness myth gets under your skin and why it's soooo untrue. If there's something you should know about me it's that I avoid tourist traps at all costs! For the sake of being accurate, let's call these dangerous deodorants what they really are, which is antiperspirants. It's totally blowing my mind but at the same time I keep asking myself: why should this feel surreal? I typically only share my press features on my press page, but today I'm expecially THANKFUL because this issue of People Style Watch marks the 12th time I've been quoted in their magazine.
One of the most classic New Year's resolutions is to start going to the gym more, which is exactly why gyms start hiking up their enrollment fees around this time. Everyday at the Drop-In I witness people who have been forced to give up their independence.
The other day on my way to a meeting downtown, I stopped at a red light on 4th avenue parallel to the Drop-In.
In a recent interview, Edmonton Mayor Stephen Mandel stated, "We need to have a better plan for the homeless than tents." Underlying his comment, and all the planning underway for the coming winter 'homeless crisis' is the premise that homelessness is acceptable. We are very pleased to announce that the Computer Learning Centre is now open on Sunday mornings.
It's sophisticated yet casual because the top flap and straps are made from a beautiful tanned leather while the rest of the bag is a coated canvas. I hiked to secret beaches, jumped into the ocean off rocky cliffs, slid down mud trails, went stand up paddle boarding and pretty much lived in a bikini the entire time.
I rinsed them out with cold water at the end of each day, but when I returned back home to NYC I realized how bad they smelled. The Laundress was actually in my last #MIZ10 Quarterly Box and I trust them completely because they make the best eco-friendly laundry and fabric care. Louis and you're a blogger or content creator who wants to spend a day learning how to market yourself and build a brand and audience, then come join us!
It's called SPRING 'LEAN AND DECLUTTER YOUR FIT ROUTINE and it's set to be delivered around May 20th. I recently cleaned out my clothes and shoe closet and ended up throwing a bunch of stuff away and donating the rest. I'll admit, I didn't start until the last year or two when I realized I was accumulating too much stuff. The reason I find them so relevant is because by 2020, wearable technology alone with generate over 20 billion dollars in revenue. Last night I made HelloFresh's Carmelized Onion Burger but instead of fries, the recipe included a roasted cauliflower side. It was supposed to wet your appetite for personal training and help you ease into your new gym-life. People are investing more of their paycheck in health & wellness, and seem to be more committed to their workouts than ever. But if you want the benefits of the treatment, it's worth enduring the very looooong 3 minutes.
So I was genuinely hoping to reap the benefits of whole body cryo and report back to you on how quickly it worked. Most of the ones Ia€™ve purchased or have been sent to review bite the dust in my gadget drawer at Mizzfit Headquarters.
I have what seems like a billion projects going on at once, and if I ignore one of thema€”well, you know what happensa€”the balls, the chainsaws and flaming sticks come toppling down on you and scatter. Like many of you, I saw Kim Kardashian's selfie that she took in her trainer and wondered what's this? One of my recipes is an appetizer and the other is a side dish to accompany your turkey dinner. Look for them in the canned and jar food aisle where you'd find things like stewed tomatoes, pasta sauces, etc. I'm pretty sure it was a combination of the perm's harsh chemicals (it was the early 90's afterall) and my onset of puberty.
There's an amazing event called Over The Edge that happens nationwide through the Special Olympics, and I decided to do it in St. In addition to raising awareness for this extraordinary event, I raised money to support it. To some extent that's true because of the amazing and innovative fashion sense people have here. Serene Social has teamed up with Lululemon and Suja for this gathering to kick off the calamity of fashion energy that's about to overtake the city.
By the time his photographs started getting noticed through social media, it was already a passion project. I've talked a lot about Haute Athletics this summer and love that they carry stuff you won't find elsewhere. Since there are women rockin' this style and attitude in their everyday clothing, clearly there should be activewear that expresses the same vibe! Her prodigees went on to turn barre fitness into a successful business of popular, packed classes. Quite honestly, I felt like I was hiding out, as if I had taken off for an exotic and faraway retreat.
But the real highlight was scoring my room at the Four Seasons for their celebration of Global Wellness Day, which was served up as a full week of fit & healthy activities. Men don't like to be kept in the dark, because they know whatever you give them they'll have to top when it's time to shop for you. I knew this year for Father's Day I was going to give my dad a travel bag that would help him do this. Here's the link again on Lucy's Blog :)]]>On June 21st, Athleta was the headlining sponsor of Solstice in Times Square put on by Times Square Alliance for it's 13th year.
When Katya first reached out to me and shared a bit of her life with me, I was really impressed with her background and how she left a traditional career path to pursue an endeavor her heart was stuck on (racing). She told me that over the last few years she's been doing a lot of self work and stumbled across Spirit Junkie by Gabrielle Bernstein. During my little photoshoot in NYC's Meatpacking District, locals and tourists alike kept pointing out my gear to their group. She works out with me, attends my events and has modeled for print ads (like the one above which actually never ran) and in magazines with me. After writing about Team SCA and their amazing adventure racing around the world, I was invited on a press trip to sail with them. Just to clarify, the Volvo Ocean Race is ongoing and was in full effect while I was on this press trip, but a few crew members at a time are allowed to come off the boat for a leg of the race and rest up. As I write this, there are some incredibly athletic and brave women sailing around the world as part of Team SCA. It stops in nine countries around the world before finishing in Gothenburg, Sweden this June of 2015. Test everything you plan on wearing for the official half marathon race day during your last few training runs. Now that crazy party church is home to David Barton Gym and LimeLight shops where health and fashion are king and "queen" (it's in Chelsea, so I had to).
And if anyone has ever told you that knee highs only look good on girls with skinny legs, well, that's just NOT TRUE. Personally, I just think it's a matter of choosing a pattern, color or length that best suit your legs. I like to uncover the healthiest and most active things going on in the places I travel to, and I always prefer to go off the beaten path. As I get older, I find I need to do more to preserve the firmness, the lift and glow factor of my skin. I'm feeling really grateful for 2.5 years of working with them to report on the hottest fitness trends happening nation-wide.
People who, through circumstance or happenstance, have lost the independence they cherished before donning the label of 'homeless'. Waiting for the light to change, I looked to my right and saw the busy patio of a downtown restaurant. It is a perjorative term, and one often bandied about in conjunction with issues of homelessness and affordable housing.
Earlier this year he was given the opportunity to return home to spend time with his family. But of course there is always something new!I was taking a break this morning, standing outside and chatting with one of my students. A Moebius Syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. To tell you more about the box (tagged #MIZ11), I've decided to answer questions sent to me by Quarterly Co and Mizzfit readers. I have a chest full of fitness gear and equiptment in my apartment, and OMG, the things I found inside of it had me rolling on the ground.
Yes, it's going through it's "boutique salon" stage right now, but people have been "floating" and even installing floating chambers in their homes for the last 20 years.
But seriously, it's hard to decide which one is my favorite prize because quite frankly, I own them all.


We often take for granted the wonderful parks and historical sights within the region we live in. A few years ago The New York Times reported that some women were studio-hopping, taking more than 1 class a day to get their fix. It wasn't an overnight kind of relief, but the pain did completely go away about a day and half later. I know youa€™ve probably heard of many fitness trackers already but this one is the tracker of all trackers. 8 years ago I left a career in corporate advertising to pursue my dream of reporting on health & fitness.
Ita€™s risky business juggling a lot in your life, but for me personally, I live for the thrill! I reached out to Hourglass Angel (the most well-known waist training seller online) to see if I could try their products and, of course, come to my own conclusion. Again, not complaining as worse things have happened in my life, but as all wavy and curly-haired girls know, learning how to style curls is freakin' hard!
Louis at The Arch so that Special Olympics athletes from my hometown can train, compete and enjoy a lifetime of their own thrills. BUT, I'm never as exposed to the world of fashion and the mind-blowing creations debuting on runways as I am during NYFW. She presented her "Search Don't Rescue" collection, which really appealed to me because I'm a huge fan of monochromatic, flowy dresses and pairings. Graffiti Beasts leggings feature the art of real street artists whose art can be seen on the streets of Lisbon, Barcelona, Milan, New York City and many more cities across the world. Michelle Austin, founder of the Fluidity Barre, was one of her students among others like Exhale founder Fred Devito, who I interviewed HERE. You will most likely discover parts of your body that you never knew were possible to work out or even move. They have a wayfarer style (which is so classic that they're always IN) and they're made with polarized, UV400 protection lenses.
If you set a level of expectation, they will ALWAYS look forward to your gifts and rave about them in conversation. Let me guess, you know how to break a sweat but you also look forward to showing off how well you clean up and glow like a pro.
Check it out because I go into detail about why these skincare products should be in your summer gym bag STAT! This is the yearly event where yogis come together right smack in the middle of Times Square to celebrate the day the sun is at its highest position in the sky for the longest period of time. The tracker itself is a black shiny oval shaped piece that clips into a metal slip-on bracelet. But what you're paying for is great technology, an app that doesn't baffle you but inspires you and a piece of jewelry that looks good with anything you wear. A really astounding young lady and go-getter herself, Katya Meyers, created the interview series to share what happens behind the scenes in the lives of successful health & wellness oriented professionals.
Spirit Junkie and the book A Return To Love by Marianne Williamson really helped open her mind and heart to all the amazing possibilities that can happen when someone chooses love over fear. If you know of a case that shoud be on this list, please add it to the comments section below with a direct link. It's a 5 day adventure and my sources are telling me that there will be 130 of the most famous Zumba instructors onboard including Beto Perez himself. I used to think of her as just my mom without fully worshipping everything she's accomplished. They're competing in the Volvo Ocean Race, which is considered to be the toughest sailing race in the world. It's a long trip (9 months at sea!) and it's a tremendous challenge for these women, requiring massive teamwork and goal-setting.
Of course, you have to train consistently, eat right and get plenty of sleep and hydration.
I teamed up with Chrissy's and my bestie, Michelle from YoGoGirls, to bring you these playful and sporty looks. I'm 5'2" with muscular legs and I loved the way these Polka Dot Socks almost seemed to lengthen my legs. Aging lines, sun damage and sagging are major concerns of mine, and I'd like to do the most I can to prevent the visible aging process from coming on faster than it needs to. Because aluminum prevents our underarms from stinking by blocking sweat from escaping through our pores onto the surface of the skin.
Since May of 2009, I've been on a mission to take everything I learned and experienced from my advertising career and turn into something truly positive that will help women embrace health & wellness. I also wanted to take a moment to tell all of you that I'm always here to answer your questions about health & wellness so feel free to contact me.
For them, defeat, apathy, depression compete with the lack of self-worth driving them further and further from indenpendence as they become reliant upon the one place they never dreamt they'd ever be, a homeless shelter.Like my mother, they once cherished the ability to do what they wanted when they wanted. Surrounded by city skyscrapers and riotous hanging baskets filled with colourful flowers suspended from poles lining the edges of the deck, people were laughing, chatting, sharing a drink and a meal, sharing their lives. Take for example the case of the temporary shelter set up in the former Brick Building on 16th Avenue N.W.
It was a celebration of Thanksgiving.Grandpa Cliff as he was known on the streets was an gentleman who always had a kind word for you. Most people with Moebius Syndrome are born with complete facial paralysis and can't close their eyes or show facial expressions. But I have this problem where I carry around heavy shoulder bags and they end up giving me the worst pains that shoot up into my neck. As a vlogger, digital host and tv host, you could say I know a thing or two about producing video content. The category continues to evolve and expand beyond the fitness tracker we're all familiar with. The prizes I pick for each Booya Fitness challenge are based on my favorite products and gear that I've personally test out for you. I only ate half the bun and the wonderful part about the meal is that the portions are JUST RIGHT. I already have enough gadgets and gizmos in my life that if I'm going to add something to the mix, it better do something spectacular. Let's just say I ended up falling in love with waist training, which is something I really didn't expect.
I made some amazing stopsa€”this one was my favoritea€”and had a lot of time to think along the way. You essentially have to ask yourself whata€™s next in my lifea€¦what road will I take and where do I hope it will lead me? As a fitness trend expert, I never limit myself to just fitness events because EVERYTHING is fusing together these days. But yes, I have a FLAT approach to skincare that I want to share with you today that literally saves my life every time I travel. Fact of my life: my toiletry bag + makeup bag + hair dryer and roundbrushes = most of the weight in my suitcase.
Ia€™m discovering new spots to work out, sharing my favorite places to unwind and scoring face-time with friends. Not only do they keep you from squinting but they'll save those precious eye corners of yours from sun damage. The 2 pieces together are minimal and sleek in away that far out-styles FitBit, UP by Jawbone, Nike+ Fuelband and similar black band trackers.
The 2 metal bracelet finishes--Midnight Purple and Brushed Gold--blend exceptionally well with silver and gold tone jewelry.
I'm honored to be a part of her series and my interview is LIVE and ready to be heard by clicking RIGHT HERE.
My mom and I don't always agree on everything but she's been very supportive of my life choices and has taken great care of me throughout my life. It's going to be a fun springtime evening social, if you will, and a great chance to check out the evolution of LimeLight!
Come join our healthy party with cocktails from SkinnyGirl and Juice Press, and wine sorbet from Frosae Wine Sorbae, which is basically FROZEN WINE!
So I've put a little something together with a posh studio that's new to the area called Core3 Fitness. Hopefully they'll inspire you to get creative with something as simple and inexpensive as a pair of socks. So, I did for a little bit but then over time I became empowered by how great my mid-30's felt. I can't perform magic tricks but I can wear Altchek MD's Daily Moisturizer made with SPF30, Ester C and Vitamin E. The plus side is less sweat and stink but the downside is that antiperspirants prevent the human body from doing it's job, which is to rid itself of toxins. I thought I'd share with you what I've got on my desk today: the March issue of People Style Watch Magazine and my new favorite toy, a Ball Wide Mouth Mason Jar with a fruit infuser lid! So naturally I'm excited when I find a cute bag that works for my lifestyle and doesn't weigh me down. It's drastically changing these industries with more advanced fabrics, lighter and more funtional parts, more accurate tracking and motion sensors, and overall cooler customization. Whether it's my boyfriend coming over to cook with me, my mom visiting from Missouri or my best friend coming to spend the weekend with me to play in New York City, I literally ALWAYS have a meal in the fridge for 2 that only takes 30-45 minutes to whip up. And can you blame them for not caring when they know new members are taking them for joyride? Since I'm the healthy one in my familia, they count on me to contribute an interesting veggie concoction that wows their taste buds. I caught the flu somewhere between rushing to shows and shaking hands with and hugging everyone. I've been to a few of their events, but this year's New York Fashion Week 2015 showcase was one of my favorites. Fashion is going sporty on NYFW catwalks and tech is catering more than ever to wellness conscious users. Ia€™m doing it all in a 2015 Ford Explorer to celebrate Tri-State Forda€™s a€?Where To Now?a€? adventure and summer sweepstakes! My products have to be effective, easy to apply, fast working and light (on my shoulder, not just my face!). It's challenging, modern, music-oriented, and doesn't follow all the yoga rules you're used to. Most people won't even notice you're wearing a tracker because it looks like a fancy bangle.
The lotus flower is now bold, proud and sharp looking, which I personally think translates better to fitness and sport. I learned a lot from them about Team SCA's voyage, race conditions and day to day life at sea during this gorgeous afternoon spent sailing on the Hudson River.
I've been running long distances since highschool and to this day I'm still discovering new tricks for a smoother run. Going to the Big Island this past February was my 3rd time back to the wonderous state and I used a new online travel guide service called Localfu to navigate my way around like a local.
Every day, we witness people who have lost their way find themselves, and we witness individuals struggling to find the way without really knowing where they want to go, except out of here. Community members were pretty unanimous in their support of the need for the shelter but split in their opinions about its location. These days if you do not know how to operate a computer you are going to find the job market a very frustrating place.In fact we were talking about jobs. Respiratory problems, speech and swallowing disorders, visual impairments, sensory integration dysfunction, sleep disorders and weak upper body strength may also be present.
It's really amazing to see all the companies being born out of these kind of technological advancements. It's been a whirlwind of a month but I'm finally back at Mizzfit headquarters blogging about all my exciting Fall adventures.
Ia€™ve worked really hard to get where I am, but if you had asked me years ago whether Ia€™d be in the drivera€™s seat of my own business and reporting on womena€™s health, Ia€™d think you were nuts. I worry that I won't have what I need and as a frugalista, I don't want to buy what I already own while away from home.
Most importantly they have to feel good on and revitalize my skin, whether Ia€™m running to a workout or freshening up right after one. It's simply amazing, so I was thrilled to see her join what has become a yogi cult favorite summer event. But when it comes to fitness--my area of expertise--there's no fooling me or anyone else for that matter. She told me to choose my deodorant wisely because many popular brands pose health risks, especially to women.
Check me out in Lacroix Sparkling Water's new campaign called "Start A Healthy Relationship", which can be seen on the Lacroix website and in several fitness & health publications like Oxygen Magazine.
Out of this place they temporarily call home but which, at the end of the day, they never want to come back to. Heated discussions, in which the 'against' camp's concerns were lumped into the NIMBY basket resulted in shame, guilt, and anger being dumped on the heads of the nay-sayers.
Peter was explaining that the construction business was a young mans game, and at 55 he was not happy working outside in the middle of the winter.
A People with Moebius Syndrome are of normal intelligence, although their lack of facial expression is often taken to be due to dullness or unfriendliness.It is estimated that there are only between 5,000 to 10,000 cases of Moebius syndrome worldwide. I take a lot of criticism for being an outspoken Republican (I'm NOT anti-gay marriage or pro-life though), for wearing waist trainers and even for making a living off of social media. That being said, I was pretty excited to see which brands would be making their debut at TechStyleNYC! If you live on the West Coast, keep reading because I have details on an amazing fit event happening out there as well.
They either burnt out or broke after 1 drop and then it was back to the Apple store for a new one. Find out what's in store for you and please check out this Facebook Invitation (where I'd love for you to RSVP). I want you to be informed on all the possibilities of fitness instead of believing bogus stories that discourage you.
My aunt is no stranger to disease as a survivor of Melanoma tumors and having recently lost her beloved husband to Esophageal cancer, so I decided to take heed and do a little research of my own.
Tucked away at the side of the building, out of sight of the patio, a young man lay sprawled on the grass.
In the end, the shelter was opened, the supporters walked away feeling good about themselves, while those whose concerns had been voiced and shouted down, walked away feeling unheard. He told me that he had applied for a number of jobs in the warehousing industry, and that he had a good deal of experience in the a€?shipping and receivinga€™ world, but because of his age no one was interested in employing him.At that moment a man in a pickup truck pulled up beside us and wound his window down.


Jewish Law and Mitzvot Change in Jewish Law JewU 128 Women's Rights in Judaism JewU 127 What is a mitzvah? Even if it doesn't (and if so, I'm jealous that you've mastered being a sane packer), I think this tip might come in handy. Many thanks to Altchek MD for all the attention and for making my skin look so great at 36 years old. As I get older, I realize how important it is to poke around and get the inside scoop instead of just taking things at face value. People are always judging but that's OK, I enjoy the path less traveled if it sparks my curiosity. Around the time I turned 12, my dad took me to get a "Mariah Carey" perm because I wanted Mariah's exact hair from her music video Someday. You'll eventually find yourself clicking on every square on his instagram profile much like I did.
Ia€™m a sleeveless-outfit-kind-of-girl and my issue is finding a bra that makes the area where my underarm and side boob meet look shapely. A "There is no substitute for a loving, supportive family A­ whether that family is biological, or our worldwide Moebius Family. So I've whipped out a larger magnifying glass (aka camera and corresponding film team) and started doing a lot more poking around than usual. Ita€™s frustrating when you work out as much as I do to maintain an athletic physique, to look in the mirror and spot a bulge protruding from under your arm! I discovered there's a lot out there in the world of iPhone cases, and with a brand new iPhone 6 on my hands, I began to test.
It lifted into the air as if in slow motion, as if an invisible puppeteer from on high was pulling a string. We encourage you to proudly wear purple, and do some of your own research to educate yourself and others about Moebius Syndrome. So I reached out to him to express my fandom and whadayaknow, he's the nicest guy on earth!
We appreciate your support and look forward to the biggest Moebius Syndrome Awareness day ever!A Click here to download a pdf copy of the press release. It hung suspended above his head, the hand forming an arch, its fingers hanging lifelessly towards the ground. I wondered if he was waiting for a basket of flowers to be suspended from his hand so that he could be part of the patio scene. What if we were to look at people who oppose a shelter or a treatment centre or any other social service in their community not as NIMBYs, but rather as caring citizens willing to speak their different points of views in an effort to be heard.
And then, his hand followed his arm in one quick crumbling motion back to the ground beside his inert body. Just click here to order directly from Fresh Printz, the official provider of MSAD clothing. 24th, make sure to wear your shirt with pride, telling everyone you know about Moebius and the special day honoring those with the condition. This was the day our lives were put on course -part of the same journey, with Paul Mobius as the Pilot, we the passengers.The realization that word around Moebius Syndrome has spread brings a smile upon my face.
The diagnoses were dreadful, parents were sent home without any hope, advice or information. Who could survive against these odds?What was left for parents to hold onto but Prayer, love and a Godly miracle!
With the help of family, friends, and groups connected to the family, you can now raise the awareness around Moebius Syndrome.
Put your talents, your compassion, your knowledge, and your experience out there in a way that can benefit others. In hindsight, any challenge or disability to me means loving that person unconditionally, so let us step up and spread the awareness.
Our appeal is simple a€“ in support of those living with Moebius Syndrome, wear purple on 24 January and share your knowledge about this disorder. JewU282 Minyon Prayer quorum: rules and history JewU 140 What are those strange movements in Jewish prayer? 24 January is now also a day of Celebration in the Life of those living with Moebius Syndrome. Thank you to all who have made this day possible and for giving our children a new meaning to life.- Kay Von WillinghMoebius Syndrome Awareness Day (MSAD) is important to me for many reasons. Like many of the other families, we learned of a new syndrome that day that very few had ever heard of. I remember the call from my sister, Stacey, telling me Dakotah was born and that something was wrong. JewU 171 Taste of American Jewish History JewU 214 Jewish history is not so bad Jewu 421 Session 7.
Thankfully, I found the Many Faces of Moebius Syndrome and Moebius Syndrome Foundation websites.
The websites have brought many families together through love, support and sharing of personal knowledge and experiences, however, with very little information available to families otherwise this day is important, and much needed, to give a voice to the syndrome and the families who live it each and every day. My hope is that Moebius Syndrome Awareness Day will bring awareness and understanding every day. My hope is that Moebius Syndrome Awareness Day will bring awareness and understanding to those around them, and within the medical community as well.- Andrea (Sweetwood) SmithWhen I was asked what MSAD means to me. I immediately think about Caleb and all the children whom I've been introduced to through Facebook connections. Whose concern for their community gave them the courage to stand up as they struggled to understand what the shelter meant to their community, to their lives?
I think of my friend Tim Smith, who has been informing masses of people about Moebius Syndrome for years.
What if they turned up to the meetings to learn, but got shouted down and ended up shutting down their minds to the possibilities of change. MSAD 2011 meant (to me) that a common goal within the Moebius community had finally been met.
What if we'd listened without the label of NIMBY at the forefront of our minds and instead walked in with open minds asking questions to understand not to judge; differing points of view, different ideas, differnt perspectives.
God bless!- David MoffittThe media have made a number of illnesses well known to the public such as cancer, mental health illnesses like Bipolar Disorder and Schizophrenia and that is just to name a few. Though in most cases Moebius Syndrome isn't life threatening it is still a syndrome that affects people all around the world emotionally and physically.Every day people usually have no clue what Moebius Syndrome is, so sufferers with severe facial paralysis sometimes will get looked at strangely while innocently walking down the street, going about their day.
Often teenagers in high school will get bullied because having Moebius Syndrome makes them look different from others. This can have a serious affect on people, making them feel even more anxious about their appearance. It is hard when others dona€™t understand the syndrome; they might assume a sufferer is moody or unfriendly by the appearance of their face when this is not the case.
Most of the time it is really hard to let people in because it can be awkward breaking the ice, not knowing quite how to explain yourself to other people so that they can get a better understanding of the syndrome.
And when you do explain yourself to someone you have to explain yourself to someone else and this can be tiring.Having a Moebius Syndrome Awareness day will benefit the public so much, its not a common syndrome so putting it out there to the world will just make people with the syndromes life a little easier.
Thank you for this gift, for which I can never truly repay you.  I will instead repay it learning, living and loving Jewishly everyday. That way the world is educated and familiar with it and hopefully they will be able to recognize someone with Moebius Syndrome.
Hopefully they will be able to realize that people with Moebius Syndrome and perfectly intelligent and intellectual, and that they lead normal lives. This will also benefit Doctors who will be able to diagnose new born babies and infants quicker.Having an awareness day will also be great for people with the syndrome who are unaware that there is a Moebius Syndrome website and group on Facebook that they can go to if they need some support.
This can be a very positive experience as they can interact and meet up with others with the syndrome; this can help people feel less isolated. Finally the more people that know about the syndrome the better it will be to find what causes Moebius Syndrome as this has been yet to be discovered.- Loriana Sofia FirthI was surprised by how much Jasper got out of MSAD.
As a confident, bright and outgoing kid I have always felt that he just took the condition in his stride. Whilst I believe in spreading awareness, i never realized the impact having a MSAD would have on Jasper personally. The pride in his face from being the MFMS poster boy for the day was incredible- it dawned on me then that MSAD was important for him because it gave him the opportunity to celebrate who he is BECAUSE of Moebius syndrome not despite it. I have always tried to ensure that Jasper never feels as though he is deficient or that he needs 'fixing', MSAD helped to consolidate this.'- Lauren BroadhurstA few months ago I was watching an old episode of ER where a young boy with Down Syndrome is brought into the emergency room. Immediately the TV doctor makes a decision on how his patient should be treated after considering a few risk factors involved in having Down Syndrome.
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It's mostly likely that if the situation were real the doctor wouldn't even know what Moebius Syndrome is, never mind knowing how to treat someone with it. I believe not only could a Moebius Syndrome Awareness Day teach doctors how to treat those with Moebius medically, it would teach others how to treat those affected by Moebius socially as well.- Gavin FoucheThe 1st Annual Moebius Syndrome Awareness Day was an invaluable day for our family. I believe that with the HUGE effort of the entire Moebius Syndrome community, MSAD allowed us to educate countless people across the world, including our family and friends that were unaware of exactly what Zaydena€™s diagnosis meant.
Parents, relatives, friends and fellow Moebians made MSAD 2011 a huge success through their hard work and creativity.
Leta€™s make January 24, 2012 known throughout the world so parents and health care providers can make informed decisions when a diagnosis of Moebius Syndrome is made.- Holly WilliamsA  What does Moebius Syndrome mean to me? When I was younger, it was no fun to have other kids my age stare at me, or make fun of me (it's really no fun to have that happen to you as an adult either).
At the same time, having Moebius Syndrome has allowed me to get to know some wonderful people, people whom I never would have known otherwisea€”of course I speak of the Moebius Community.
And I think having to overcome the obstacles that I and all of us face, has made me tougher, a bit more resilient, than I would have been otherwise. We understand achieving despite obstacles, we understand climbing mountains, striving, trying. But the entire Moebius community and what it achieves daily showsa€”life sure is worth living.- Kevin Smant___________________________________________________________________________________________________________A Please consider joining us on Facebook using the icon above. Each time we get a new "Like" we are spreading awareness about moebius syndrome one step further. As we become better known people start to see us for our commonalities not our differences.
More doors are opened for us and we are able to do more towards our mission goal of "Creating a better tomorrow for ourselves and our children through education and public awareness!" We have to keep going and growing. For Moebius Syndrome Awareness Day 2012 we reached out to other rare disease groups and told them about our Awareness Day.
Essentially saying, a€?How can we help?a€?Many Rare Disease Groups have their own Awareness Days. Moebius Syndrome Awareness Day and the Many Faces of Moebius Syndrome would not have become successful without the support and friendship of NORD, Rare Connect, The Global Genes Project, and many other Rare Disease groups around the world. The Global Genes Project will be working with local businesses schools, sports teams, places of worship, parent advocates, etc. The jean ribbon has become a unifying symbol for hope in the RARE disease community and building awareness is easy! Project team members are currently building the tools for a much needed program called 'RARE Meet Up's'. We are currently looking for rare disease advocates to contact us if they are interested in participating in a 'RARE Meet Up' group in their local area. We will continue through 2012 with the goal of connecting 7000 RARE families with 7,000 new champions for the cause. And Global Genes Project team members wish The Many Faces of Moebius Syndrome much success on your awareness day on January 24, 2012! 28 in other years) the world celebrates Rare Disease Day, to promote awareness of rare diseases as a public health challenge that cannot be ignored. Rare Disease Day 2011 touched minds, hearts and souls across the nation and 2012 that momentum continues. Advocacy days, like Rare Disease and the Moebius Syndrome Awareness Day, are key components to spreading messages of awareness, advocacy, and hope both within the community and to the public.
NORD is a unique federation of voluntary health organizations dedicated to helping people with rare a€?orphana€? diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
Since 1983, NORD has worked closely with our patient organization members, which now number over 160. Senate adopted by unanimous consent a resolution designating February 28, 2011, Rare Disease Day across the U.S. Thanks to an amazing grassroots campaign, proclamations were obtained in 48 states and similar documents were obtained in the two other states.
Other successes this past year were obtaining more than 860 partners and ambassadors who represent patients and their families, patient organizations, government entities, medical or other professional societies, or companies that support the theme of the day. These individuals and organizations contributed to a media and social media blitz where stories, pictures, and videos were shared. Rare Disease Day was also an opportunity to promote the Rare Disease Congressional Caucus that will help focus attention on rare diseases and related needs, such as research.
Every story that was shared, press release posted, or pin worn was an opportunity to raise awareness and teach others.
We will rely on the mobilizing capacity of our advocates and networks across the country as we truly cannot do it alone. NORD wishes The Many Faces of Moebius Syndrome and it's partners the best of luck on your awareness day; all of us together have an opportunity to unite our voices for the common themes of awareness, education, research, and hope! August 8 2015 Official 2015 Moebius Syndrome Awareness Day Page Our 2014-2015 Moebiuis Syndrome Family Holiday HeroesGallery 2 Moebius Syndrome Awareness Day 2015 Video Gallery Smiling with our Hearts upon the World! Most people with Moebius Syndrome are born with complete facial paralysis and can't close their eyes or show facial expressions. A "There is no substitute for a loving, supportive family A­ whether that family is biological, or our worldwide Moebius Family. I immediately think about Caleb and all the children whom I've been introduced to through Facebook connections. When I was younger, it was no fun to have other kids my age stare at me, or make fun of me (it's really no fun to have that happen to you as an adult either).
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