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Morgellons Disease Awareness -  Artist and Morgellons sufferer, Ayla, journals her experience with the disease   I'd like to introduce myself, I'm Ayla, a 59year old artist and graphic designer who contracted Morgellons in Jan. Morgellons Disease Awareness - Morgellons Disease: Tips for healing lesions, oral care and environment   Information for dealing with Morgellons lesions using topical aids as well as FAR infrared technology. How to tell if you have a sexually transmitted disease, Worried you might have a sexually transmitted disease? I've been moved to create awareness tools that help educate healthcare practitioners and the public about Morgellons Disease (see Awareness Poster) as well as share what I've learned from this experience.Many of the skin photos in the photo galleries are mine. Asian countries,[18] United States (including Hawaii), Canada ,[19] and Scotland)[20] due to bacterial resistance. All information in the lesions section comes from individuals that have dealt with extreme skin problems and have found ways of managing them using non-pharma products. Physicians might consider that Morgellons and Bartonella are in some way intertwined.??Morgellons sufferers report an array of symptoms happening just under the skin, such as the emergence of fibers and filament clusters, specks, particles and sand shaped granules, yet physicians are unaware of this phenomena because they are not using enlargement devices. Dumping hundreds of gallons of Waste water to the ground each dayA In Fact: Most States and Countries have already outlawed this practice with heavy fines, due to the impact to our water sheds. An unaided visual exam using the naked eye is no longer appropriate to an emerging illness involving so many artifacts. No one trusts the judgment of a mechanic who refuses to look under the hood of a car. A more thorough approach needs to be taken using equipment such as dermascopes and microscopes, as this is the only way to identify the microscopic fibers that are the defining symptom of Morgellons, and which separates it from all other diseases. Like most, I panicked bought a lot of unnecessary products—some toxic, then managed to pull myself back from the brink of actually hurting myself.
Using a dermascope can also prevent misdiagnosing diseases that have some similar symptoms, such as Lyme (although some patients may have both). Microscopic enlargement needs to be at minimum 60x-200x in order to see the fibers clearly. As evidenced in the photos in our galleries, there is something clearly wrong with the skin of Morgellons sufferers.
Always wary of doctors, I tried to stay out of that loop but finally caved when my beloved ones pressured me to seek help. A Bring a qualified Leather cleaning quote (in our Area) from another cleaner and well beat it hands down. A dermatologist gave me Ivermectin which caused a Herxheimer (die-off) reaction and many of the black particles I'd been seeing with a scope surfaced. Most doctors currently believe that the fibers patients come to see them about are 'textile' in nature.
This gave me great relief from the discomfort of what felt like fiberglass embedded in my skin.
If you take a look at the galleries of fibers in urine, stool, blood, skin, and hair, you will see that these filaments are invading the body systemically and cannot possibly be textile. There were NO fibers visible in my skin in the previous months before taking the medication. Recent tests conducted by an independent testing facility reveal that HydraMasters Rotary Drimaster Power Tool leaves 85% less moisture in carpets after cleaning. The tests were completed in laboratory controlled conditions using scientific soiling, cleaning and measuring procedures. The mix will not stop new itch spots or bumps and lumps, but it will get RID of existing ones without leaving a trace. Click here to view other particles in the skin as well as other unidentified artifacts.?• ?Randy Wymore, Director of OSU-CHS Center for the Investigation of Morgellons Disease and Associate Professor of Pharmacology and Physiology had the fibers analyzed at the Tulsa police department's forensic laboratory. The Morgellons particles didn't match any of the 800 fibers on their database, nor the 85,000 known organic compounds. Within two days of taking the Ivermectin, I watched in horror as fibers started to rise to the surface of my skin. This indicated that the RDM left only 15% as much moisture as a wand and confirmed the RDMs amazing ability to recover moisture and achieve significantly faster dry-time results.
Without proper flora the body is open to many different type of skin infections since the flora is our immune defense against invaders. You can also open capsules of probiotics and not just one since you are covering a large area Beware that in the morning the liquid will have absorbed into your skin or evaporated leaving lots of crumbs and it's messy. For those insisting the CDC study of Morgellons laid down the law for definitive answers about Morgellons, I'd suggest you listen to Doctor Randy Wymore speak more in depth about the study and its inherent flaws and bias. That plus coming off the tail-end of the pharmaceutical seemed to stop all the symptoms of itching, biting and crawling for approximately the next 4 months. The only thing that hadn't cleared up was the hyper-sensitivity to my skin which I thought I was stuck with for the rest of my life, an unfortunate consequence of having Morgellons. Had I not been actively using a microscope to look at my skin during this period, I might have presumed I was well. Many clinicians refer to this condition as delusional parasitosis or delusional infestation and consider the filaments to be introduced textile fibers. The skin however, doesn't lie and told a whole other story for under it's surface, fibers and particles were clearly still present—multitudes of them. Early on, I'd heard about the testing that Pam Crane of Morgellons Focus On Health (site no longer active) was championing and felt that it was probably the way to go.
I also learned and am not surprised that scientists are discovering that humans are missing certain key bacteria from the skin that the human body requires. In contrast, recent studies indicate that MD is a true somatic illness associated with tickborne infection, that the filaments are keratin and collagen in composition and that they result from proliferation and activation of keratinocytes and fibroblasts in the skin.
My only problem with moving forward was a lack of practitioner, as I felt having the best testing in the world wouldn't mean anything unless someone was up to the task of decoding it's contents into a meaningful protocol, sort of like buying a Cadillac that arrives without the key. I wanted to have a conversation with whatever doctor I was going to see and to hear them speak about their philosophy of healthcare. There is also a clinical trial underway to study the skin of children across USA."??Posted Oct. Previously, spirochetes have been detected in the dermatological specimens from four MD patients, thus providing evidence of an infectious process. (2013) has revealed the presence of Borrelia in Morgellons lesions in everyone tested. Just try to get a physician on the phone before actually making an appointment and you will find it is an impossible task (especially the high-end specialists).
At the store I found Absorbine Jr Cream and although it did burn for about 2-3 minutes after a short amount of time enduring I found it to be soothing and took the itching and pain away. It is the subject of considerable debate within the medical profession and is often labeled as delusions of parasitosis or dermatitis artefacta.
After a few days of applying 2-3 times per day I found that it actually pulled out alot of all the horrible things that were under the massive very deep crusted lesions on my arm (can be seen before and after photo).After some success I began looking at the ingredients and determined all the natural things that it was made from, one of which was camphor (another good one is wormwood and aloe), and began trying other over the counter camphor based items by looking at the percentage of camphor within each product. This view is challenged by recent published scientific data put forward between 2011-2013 identifying the filaments found in MD as keratin and collagen based and furthermore associated with spirochetal infection. She talked about The Great Plains Labs and why the testing used in Functional Medicine is so important for our community. The novel model of the dermopathy put forward by those authors is further described and, in particular, presented as a dermal manifestation of the multi-system disease complex borreliosis otherwise called Lyme disease.
She sounded like she knew how to do her job well and was more than capable, indeed she had impressed me as understanding how to approach the disease in a holistic manner that aligned with my own healthcare philosophies.
I believe my first words to her were, "Where do I sign the dotted line?" (While focusonhealth has been taken down, here is another radio show with Nancy speaking with Pam.
The requirements for a diagnosis of delusional disorder from a psychiatric perspective are clarified and the psychological or psychiatric co-morbidity that can be found with MD cases is presented.
The ones I currently have now are all microscopic and can no longer be seen with the naked eye. However I will say that while the camphor I believe is helping to rid my internal system, it also has a price of the purging and expelling (so it has not been an easy pain free task), but I know I am healing. Management of the multisytem disease complex is discussed both in general and from a dermatological perspective. Let me remind you that I felt fine when I first contacted Nancy, but the emerging fibers showed me I was not. The camphor bottle has a stopper in the top allowing only one drop at a time, and once I did get too many drops which caused a euphoric sensation through my body.
Nancy forewarned me that treatment would kick up all the initial symptoms I had when first ill with Morgellons, such as itching and stinging and that I might experience more fatigue with die-off, possibly even get lesions although I hadn't had many lesions previously. Within a week and a half of beginning this new protocol all the discomforts she mentioned came back. Again everything in moderation!!I also use a bottle of Vaposteam in hot baths for soaking that has camphor.
Black particles began coming out from the skin, sand-like crystals were suddenly pushing from the scalp, I was itchy and uncomfortable but this time around it was at a much lower volume then at onset.
The oil in the camphor and the aroma baths soften the skin, pull the fibers out, clear the sinuses, and help relax for a good nights sleep as well.
I have experienced some lesions, in the form of 'papercuts' and blood spots appearing on the skin. They were tiny and healed quickly. It took close to 3 months for the symptoms of this detox to disappear, lessening with each week.
Much to my amazement I actually saw tons of blue fibers pour out of the lesion right before my eyes (I had never seen them come out of my body like that, usually when fiber bundles were present with the naked eye I would wake in the morning to find them there).After several months of taking it internally I had concerns that I may be hurting my blood, kidneys or liver and told my doctor what I was doing and requested referrals for urinalysis and bloodwork. We added in another few products to my protocol fine-tuning the process. Once all my symptoms had abated I was ready to move on to the next step and do a colon cleanse. I used supplements for one month that gently cleansed the colon (Colon Cleanse by DaVinci Labs??). Just as a test I stopped taking it once and within a week the clumps of fibers returned, so I began again which took another week for it to get back in my system to get relief again. After that, I began with chelation therapy (Chelex by Xymogen) to remove heavy metals. Nancy has taken me through this journey with constant support through email. I sometimes now take a break for a day or two if I am doing good, but don't go more than 2 days without at least a few drops.Disclaimer I am not advising anyone to use any of the items I choose to use for myself, you and you alone are responsible for your own healing and research, I am merely telling what has worked for me!?Posted Oct. She used this formula on the face and on the eyelids with no problem and claims her eyebrows and eyelashes are growing back.
Despite evidence demonstrating that an infectious process is involved and that lesions are not self-inflicted, many medical practitioners continue to claim that this illness is delusional. The fact that she is able to tell me what I can expect and interpret what I am going through is invaluable. Her before and after photo shows the improvement, but I am not publishing them as it reveals her face. We present relevant clinical observations combined with chemical and light microscopic studies of material collected from three patients with Morgellons disease.
Having gone through the early treatment phases and emerging symptom-free, makes me feel that I did indeed work through something—hopefully clearing biofilm. So where am I right now and what are the changes that happened over these few months of treatment?My skin cleared of many of black particles, although I still have them (my great lament was that I didn't have a camera back when I first got sick, because my skin was so saturated it was alarming!). Her formula contains DMSO which some feel is controversial, so do your own research and decide if it's the right direction for you. Our study demonstrates that Morgellons disease is not delusional and that skin lesions with unusual fibers are not self-inflicted or psychogenic.
Proliferative stages of bovine digital dermatitis demonstrate keratin filament formation in skin above the hooves in affected animals. The multifactorial etiology of digital dermatitis is not well understood, but spirochetes and other coinfecting microorganisms have been implicated in the pathogenesis of this veterinary illness.
Morgellons disease is an emerging human dermopathy characterized by the presence of filamentous fibers of undetermined composition, both in lesions and subdermally. While the etiology of Morgellons disease is unknown, there is serological and clinical evidence linking this phenomenon to Lyme borreliosis and coinfecting tick-borne agents. Although the microscopy of Morgellons filaments has been described in the medical literature, the structure and pathogenesis of these fibers is poorly understood. This is the only thing that ever worked without destroying my skin.I got onto the idea of DMSO.
In contrast, most microscopy of digital dermatitis has focused on associated pathogens and histology rather than the morphology of late-stage filamentous fibers. It is a carrier and contrary to what experts say it is not harmful, you can research it yourself if you haven't already done so.
The most effective antibiotics have included tetracyclines (doxycycline, minocycline), macrolides (Zithromax, Biaxin), Septra DS, and quinolone drugs (Cipro, Levaquin, Avelox, and Factive).
Often the skin lesions and associated symptoms resolve once the above antibiotics are used in a comprehensive treatment plan" ??Horowitz, Richard (2013-11-12). Actually, I feel spry and 10 years younger than my 55 years of age (at the time this was written), an unexpected and very welcome gift.
Why Can't I Get Better?: Solving the Mystery of Lyme and Chronic Disease (Kindle Locations 2662-2666). Still, they are here and I am monitoring them carefully. I am convinced of the value of the Great Plains and Metametrix testing. It just makes sense that one would want to know the particular weaknesses of their body before embarking on a journey of healing.
Still, 100% of the patients, that were felt to genuinely haveMorgellons Disease, have large microscopic-to small macroscopic fibersvisible under their outer layer of skin. These fibers are not associated withscabs or open lesions, nor are they under scarred tissue. Getting the labwork done and seeing Nancy are the two smartest things I did throughout my ordeal. Morgellons for me is like that impossible teacher I had in my youth. The idea thatMorgellons fibers are mere fuzz and lint, simply sticking to the lesions andscabs, is not possible based on the observations that were just described.These fibers are under "normal-appearing" areas of skin. I believe the DMSO carries the other oils deep into the skin and  kills the "what ever they are". The photographs indicate that the particles are very active, and are growing "tendrils," fibers," "ruffles," protrusions," and are creating connections between themselves. But it has also left me savoring hard-won battles and set me straight on how to live more in balance. These connecting "fibers" appear to be creating translucent "crystal clear" objects that give the appearance of "crystal fibers."                                                                              —Fungihomeworld. Therefore, I try not to rail against the unfairness of the experience, but to look at how much I learned and the ways in which it has stretched me as a human being. You won't be able to get them all out and yes some may die in the skin and cause a breakout, but over time is will subside.
5mar2010                 ?                   ?        Although Morgellons has no known "cure" at this time, we believe recognizing and identifying the disease gives a patient something to go on so they can start becoming proactive with their health. Yes it has been a miserable teacher, but by it's hand I have been become an attentive student.I wish you all full recovery.
It's taken me over a year now as certain section of my face were harder to deal with specifically the chin and cheeks.
AylaWhile I am not comfortable sharing my protocol as it is specific to my lab results, I will outline what I feel are the bare-bones minimum I'd look to take if I were building a protocol. You don't have to wash your face but rinse it and apply a very thin layer at night before you go to bed. It seems now that I may never be rid of this completely but it is manageable.
Often these visits are out-of-pocket expenditures as patients escalate up the food chain to specialists not within their health plans, bankrupting themselves unnecessarily.


This would be a good probiotic (I use 3 different kinds throughout the day as was indicated by the results of my testing). Having a diagnosis will allow sufferers to make informed decisions about their next healthcare choices. There is no silver bullet when it comes to Morgellons.
I was using antibiotics and I'd have to smear it on everyday and still not get rid of this and those antibiotics are not good for you. A holistic approach working with diet and pH, plus supplements to rebuild the body's systems is one avenue towards proactive change and symptom reduction. Fibers and particles in various states of emergence from the skin. FOS, according to Nancy can promote yeast growth so I'd stay away from a probiotic that includes it. This mass exodus happens after coconut oil has been applied to my skin and usually takes 3-4 hours after application to see these kind of results. Fibers under the skin can clearly be seen in these photos as well as in urine and stool, plus the lab doing DNA testing has noted that they are seeing fibers in stool samples. I truly do not understand how this could be misconstrued as a mental illness—and anti-depressants and anti-psychotics are not a fix. I'd include a biofilm buster which breaks down the cellular matrix in the gut that inhibits absorption of necessary nutrients.
Most of my pores are tight like they were when I was young. FAR Infrared Using a FAR infrared sauna suit, Donna Staehr was able to clear up lesions that had been present for two years all over her body. This community is looking for a way to repair the health of the body.  A quick Google search revealed that only a quarter of the dermatologists in the United States even own a dermascope.
I used Interfase Plus and Wobenzym at different times (there are different kinds of Wobenzyme.
Plus, a scope that only enlarges 10 or 15 times, is not going to be appropriate for diagnosis of Morgellons. The fact that our doctors are supposedly experts and authorities, and considered the last word in the eyes of most of the public, yet are clearly not equipped to diagnose a new disease such as Morgellons, reflects poorly on the medical profession.?You have power to move the Morgellons cause along, if only you will participate.
With her permission, I'm sharing her "before" and "after" photos as well as her story (in italics).
We need your support and input as health "authorities" to bring credibility to the phenomenon? happening. If you think there are not enough people sick with this disease to warrant your time, think again and heed a call from those of us who are looking at the skin of our friends and families and are finding fibers in them.
I've used Carlson's liquid D3 which is lipid based, but recently have switched because of assimilation issues with fats to a dry encapsulated D3 (Prothera brand 5,000 I.Us a day).
As of yet, this "healthy" population is asymptomatic, but we believe they are carrying the seeds of this disease in their systems. Imagine a world in which every patient going for a physical with their GP or dermatologist had 3 minutes devoted to examination of the skin with a scope—and what kind of data could be gathered from this! Certain of the B's can become depleted when the body is fighting infection, so a good B-complex seems necessary. Also, Mr.
That's the kind of world I would like to live in. One final note before I step off my soapbox is to reinforce the oath you took on becoming a doctor. Common Sense and now Clifford Carnicom have written about NAC and it's benefits along with vitamin C in helping quell the symptoms of our condition.
I'd look into this as a close friend from the community began taking both high amounts of Vitamin C and NAC and her symptoms disappeared. DOP in patients records have led to loss of their legal rights, hospitalization against their will and in some cases children being removed from their parents. She was taking 3,000-5,000 mg of C spread throughout the day and 600 mg 2x's a day of NAC both in the morning and at night.
She eventually reduced it to 2,000 mg of vitamin C and 600 mg of NAC because the NAC was giving her headaches. The lesser dosage has been fine for keeping her symptoms of crawling, biting and stinging away. I couldn't breath properly, couldn't even walk to my letterbox without puffing and wheezing. When she went off the protocol symptoms came back and when she again resumed, they went away.
Also, be cautious as to how you phase things as in "I'm having crawling sensations on my skin." instead of "I'm infested with bugs!" I'd refrain from using the term "Morgellons" until you sense you can trust your practitioner. I might mention, that my protocol has always called for 1000 mg of vitamin C, three times a day.
While I was not on NAC as a separate supplement, it is in another product I take daily ?(Liver Protect by Xymogen). Click the links to see extensive documentation of Morgellons fibers in Urine, Stool, Blood, Skin, Hair Above: Fiber is magnified 200x. Nancy has stated that the clients she sees that do this first make themselves much worse and take longer to get better.
At the time this was taken, my urine pH was very low (acidic) and I was having a hard time bringing it up to alkaline for two days. When I checked my skin I saw many more fibers then usual and many were still under the skin.
I asked myself what would cause such fiber growth, and made the connection to an acidic system. If I am going to do this right, I want to know what my baseline toxic load is so I can measure my progress over time. The results arrived right after I finished my third week of chelation. My total toxic representation was OFF the chart with high levels of antimony, silver, cadmium, tin and magnesium. It it my personal wish to see physicians actually begin to use magnification so that they may understand the phenomena their patients are experiencing. I have a host of other metals as well, they just were at lower levels than those mentioned above. I'm still not healed, but it's more maintenance now, and these days I'm trying to fix all the damage done to the body—a long road as you know.
Once Nancy reviewed my test results and knew how I was responding to the treatment she modified my protocol to include a liver support, and the addition of 3-4 new products that would also help balance me out.
Photo submitted courtesy of oddiyfuqoro NA will? Above: This particle is one of the classic forms I find being expelled from the body. I keep an ongoing visual journal using photos which I share with her so she can see any new developments. During chelation I was more tired, needing to take naps and sleep longer on most days.
I also had some tiny red spots appear on the skin without breaking through.Red spots appear on the skin. Based on what was going, on Nancy pulled back on the chelation so that the process is even slower and gentler until my body can adapt. Using shea butter and coconut oil mixture as a moisturizer seems to draw fibers and black particles from my skin if left on for 3-4 hours. Most are not readily apparent unless you really look for them. Hair The Morgellons has moved into my hair. An acupuncturist, pointed out after looking at my hair photos, that there were multiple "hairs" emerging from one follicle. If I had to buy a unit right now, I would not purchase this unit again but would go for a suit or blanket that envelopes the entire body as I think these would be much more effective then having a pad.
This is probably why my hair feels thicker even though it has been brittle, weak and falling out.
Learn how Infrared Therapy will benefit your healthHow does Far Infrared Therapy really work?The infrared light increases cellular metabolic rates by triggering mitochondria activity.
The Morgellons particles didn't match any of the 800 fibers on their database, nor the 85,000 known organic compounds. For those insisting the CDC study of Morgellons laid down the law for definitive answers about Morgellons, I'd suggest you listen to Doctor Randy Wymore speak more in depth about the study and its inherent flaws and bias.
Helicobacter pylori, the bacteria I had with high levels the first time I was tested, is completely gone. There was a new bacteria that showed up on this round of testing that wasn't on the previous. The build up of toxins in a health body could block the normal blood circulation and impair the cellular energy. Nancy feels that this is something that could have morphed, or, could have been present all along, but like peeling an onion back, was hidden under layers.
When FIR waves are applied, the water molecules that encapsulate the toxins get heat up, and start to vibrate. This vibration reduces the ion bonds of the atoms that are holding together the molecules of water.
Scientists in Japan report that in the FIR treatment of clogged capillary vessels, heat expands the capillaries and then initiates the start of a process to dissolve hidden toxins. Far Infrared thereby promotes elimination of fats, chemicals and toxins from the blood: Poisons, carcinogenic heavy metals - toxic substances from food processing - lactic acid, free fatty acids, and subcutaneous fat associated with aging and fatigue - excess sodium associated with hypertension - and uric acid which causes pain.
She is adding seven new supplements to my protocol to address adrenal support as sleep has become fitful and I feel somehow too 'plugged in.' Fight or flight mode. Furthermore, if sebaceous glands are activated, accumulated cosmetics in pores can be eliminated through the skin (sweat and oil glands) rather than by the kidneys.3) Far Infrared stimulates enzyme activity and metabolism - One hour under the Hotouse improves metabolism.
I'll be taking a prebiotic to address the new bacteria as well as some new products from Xymogen to open detox pathways.
I'm excited to be moving in a new direction. Every time we do a new test, I see the value of this approach. Furthermore, it increases growth of cells, DNA syntheses, and protein synthesis all necessary during tissue repair and regeneration.
Excellent for healing burns, scar tissue and skin problems.6) Far Infrared relieves nervous tension and relax autoneuro muscles thereby helping the body make the most of its intended healing abilities. Randomly throwing supplements at the body without being tested, with the hope that something might work, seems a dangerous practice. Not terrible full-blown itchy, just enough to let me know that I was reinfected or maybe this is an allergic flare-up. This episode might have lasted longer than necessary had I immediately washed all my clothes but I got lazy and didn't wash them for a few days. I am mentioning this because people with Morgellons know they flair when they sweat and it was like that for me as well but NOT when I sweated from FIR.
Was not constantly itchy, but found I'd get itchy at odd intervals, sometimes once a day, sometimes not for days at a time and sometimes for a mere few seconds or so.
It is the furthest red on the spectrum and that spectrum of light is a very healing kind of light for humans and animals too.Incidentally the military has used FIR for ages for detoxification purposes.
I am putting a garden in upstate and often have my hands in the soil (without gloves) and have found that I am fine. The only itching I've got is from the occasional mosquito bite (and yes, these are real mosquitoes). I always thought it was normal for me to run low, as I can never remember not running low.It doesn't seem to be normal though, because now that it's up, it stays up, I'm feeling good. None of this is medical advice and all of it is based on only my own VERY un-scientific observations. Often the skin lesions and associated symptoms resolve once the above antibiotics are used in a comprehensive treatment plan" ??Horowitz, Richard (2013-11-12).
Now, instead of direct application of GSE I brush my teeth twice, once with toothpaste and once with a clean brush that has two drops of GSE on it. His experience is that if lesions ooze onto clothing, you can spread the infection via the fabric.
Note that I have been letting my supplements run out in the last few months because I needed a break from taking approx. I wonder if the return to itchiness had something to do with my letting down my guard and not watching my pH. Sometimes I back the square with another square which is "dry" on the back of the first honey soaked dressing square. After the first day of swimming, I noticed small circular red blotches appear under the skin of my calves and thought, uh-oh, here comes trouble. I treat new lesions immediatly before they get worse. The manuka honey        One unique advantage is manuka honeys ability to rapidly re-granulate the wound after the expulsion process. I FINALLY have a microscope again (it was replaced after more than 7 months at the manufacturer!).
It also has the unique ability to stimulate immune cells at the wound site, something that no over-the-counter or Rx product can do. This works well for me because I do not have to endure pain as previously, because manuka honey is an excellect analgesic. Massage it in and they come to the surface before they can grow laterally in the skin layers. When he tells me he finds something that works, I pay particular attention because he has been hitting this disease hard. I had a few breakthrough 'papercut lesions' on the hands which I don't know what to make of. I stopped the Ormus because I wanted to document F-6, which has gotten quite a buzz in the Morgellons community. I still have 1.5 bottles left and intend to take it in a few months feeling I didn't give it a proper shot.
For now, I want to concentrate on doing one therapy at a time, so I can really be sure what each does.
October 17, 2011: Began using F-6 and have started a new link documenting that experience including photos showing what is emerging from the skin.
I'm going to take it slow with this product as I don't want to have any major herxheimer episodes. Tests on the morg bacteria on slides shows that it does kill the bacteria that makes the gels. Had a major breakout of lesions on one side of my face. Caroline Carter, A healthcare worker that has Morgellons and works with ozone therapy (and who made her Morgellons worse with ozone saunas) said she cannot even be around it anymore.
I have since talked with another person that had strong outbreaks from doing an ozone sauna.
Ozone therapy is typically great for cancer, AIDS and herpes, but for this disease might make us worse.
There seems to be improvement to the hair which feels stronger and seems to be falling out less.
A lot of "debris" is coming up through the skin, fibers, black particles, granules and many more fibers then ever seen before.


Sure enough, there are those courageous and marginally insane folks who refuse to succumb to the drill and are healing their own teeth. It was tough, and at times scary but the tooth did heal." I'd like to share my experience with oil pulling using coconut oil. Three or four times in the three years since getting Morgellons, a sore has popped up on the roof of my mouth near the teeth. In the past, it has taken up to two weeks to fully go away because brushing the teeth rips open the sore which bleeds. A week and a half later I ate some quinoa with my lunch and two hours later had 3 oatmeal cookies (oatmeal, walnuts, carob chips, baking soda, vanilla). The last time I got one of these sores I decided (after two days) to begin coconut pulling. This forage into complex carbs was unusual for me.While eating the cookies I started to itch. I swished the oil around 20 minutes? in the morning upon awakening and in the evening before bed.
By the third cookie, I was having full-blown symptoms of itching, stinging and biting sensations (no crawling, thank God!). The fact that it came on with such force and was related to food, makes me think that Morgellons counts among it's causes a hyper-allergic reaction to food. In this case, I don't really know what specific ingredient triggered the reaction.By eliminating carbs again, symptoms quieted down. Since then, I've continued to do coconut pulling at least once in the morning.? I have to admit, I'm pretty obsessive when it comes to my teeth.
Things I have used on my teeth over time. Bentonite clay Rub the gums with it before bed (and leave it in the mouth).
It's fine if you end up swallowing it in your sleep as it's very healthy and helps with detoxification. For those that take Bentonite internally as a detoxifier, note that it should be taken away from supplements.Garlic is a natural antibiotic I have experimented with extensively for fighting infection both internally and externally for years and can attest to it's antibiotic properties. I am noticing flare-ups of the arthritis in my foot which had so improved at the beginning of my treatment (but I kill my feet dancing one night a week, so that could play into this).
I've used this method on my teeth before I even had Morgellons with good results. If you feel you've got a serious infection in your tooth, taking garlic internally, might be a secondary support to your system. Make sure there is food in your stomach before ingesting raw garlic as it can burn in the most brutal fashion.
Use only a half clove (or less) at a time to make sure your stomach is okay before taking a whole clove. The ones I can visually see without a scope are bigger then I've had before but there is no increase in the amount I generally see with my scope in the skin.
Also, some cultures like the Chinese, believe too much garlic overstimulates the liver, which can cause fitful sleep.
Will keep you posted of new developments.I've noticed that when it's very hot (93-97 degrees) and my skin is exposed to the air, I have more sensations on my arms. It's not unusual to feel a single pin prick sensation on my left upper arm, often I'll feel the same type of prick mirrored in the same spot on right arm sometime later, as if they were somehow linked.The other day on my bike I felt as if I hot poker were being pressed momentarily to my arm. When I looked down, there were three distinct tract marks in that spot, about a half, to an inch long that hadn't been there before. Since having Morgellons, it feels like the skin is no longer a reliable friend but is capable of erratic changes suddenly.
They took about 5 days to disappear.?September 27, 2012 • Live blood microscopyJust posted a new link with photos of my recent session with Rick Panson, a microbiologist and healthy body coach who did a live blood and dried blood microscopy and gave me additional guidance for my health. If you have a bad abcess in the mouth, and feel the infection has progressed to a serious stage, you will need to determine if antibiotics are the way to go. It's a bird's eye view into the system, giving a fuller, deeper understanding of what's going on  then just looking at lab results—although lab tests have their place!
I had a really bad infection (pre-Morgellons) that I took antibiotics for and feel that was the best choice at the time.
In the next two weeks I get more testing done so will post those results when in. There were many problems with the blood.
We are in a seasonal shift and my fingers have had a few tiny papercut lesions since the change began.Started the protocol Oct. Beginning with one pill a day of capyrilic acid with one pill olive leaf extract and 1 tsp. At the time of writing, I believed that I had had some sort of infestation in my apartment.
The L-glutamine is supposed to strengthen the gut lining and prevent leaky gut syndrome caused by the yeast die-off. Will stay on this for a few days and slowly double the dosage, then determine where to go from there.
However, if you do have a bug problem in your environment, these tips should get rid of it. I've written more about the need to get confirmation that there really is a problem in your environment on the "Reflections" page.
16, 2012 Went back to Rick Panson for another live blood analysis and posted the photos under my last blood microscopy.
Do not breathe in the fumes if you can help it and don't stay in any room you are treating!
Make a point of using them in sealed areas or bins and open windows or use an exhaust fan to ventilate afterwards. Some people buy the diffusers that have a candle in them.
This is encouraging for all of you who wonder how long it will take to knock back candida and even if our protocols are working.
Menthol usage for dirty laundry (do not use menthol crystals in the washing machine) —Clothes are a big reinfection point. Rick recommended Candex and Nancy told me she loved the product except now they are adding corn to Candex (and it's unknown if it's GMO corn), so she is no longer recommending it. The whole idea behind using the bin with crystals is that you want to kill anything in the laundry BEFORE you put it in the wash so that you are not exposing yourself to re-infection when you handle it at the washer. Adrenal system had a number of markers indicating a lot of stress to the system, very low levels of vitamins C and B's, four different pathogenic bacteria showed up—Helicobacter Pylori was high, Clostridia, E. Kreb cycle needs support. Heavy metals hair test—all toxic metals were down except arsenic which went up with cadmium. Lead which was extremely high on my first test showed a considerable decrease as well as silver but lots more chelation ahead.
It's been 2 years since I started using supplements to pull the metals out and I think it will take a couple more years of work. The process is slow but steady which is a good thing because I think if the body released too much metal into the system at once there would be negative impact on the health. You'll get the feel for how much you should use over time. After the clothing has been mentholating for a few hours, you can reach in and turn the laundry ensuring that everything in the bin has been well exposed to the menthol.
Nancy pointed out that lead and cadmium are antagonistic to calcium absorption and bone health, so seeing this rise in cadmium and knowing I still have too high levels of lead makes me think that I might have to give up the painting at some point or switch mediums rather than compromise bone health. The heavy metals test also measures "essential and other elements," (minerals) It seems as a consequence of pulling heavy metals out, the minerals have been compromised.
When you are ready to turn off the heating element, pull the plug rather than opening the bin.
Nancy suggested this organism is a pleomorph moving from bacteria to fungus according to favorable conditions in the body. This works well—especially if you have things like down coats.You can do your shoes this way too or any other items you are unsure of!
This is the third time it's changed. Feb 3, 2013 Just an acknowledgment that I just passed my 3rd anniversary since getting sick with Morgellons.
The only time I really have symptoms is when I really mess up on diet (itchiness will start) or when ?very overheated and sweating from physical exertion like dancing, where it sometimes feels like needle pinpricks are sticking my skin from the INSIDE out, accompanied by itchiness. Using menthol crystals on furniture (such as a couch) —Buy a big plastic drop-cloth from a hardware store with as thick a plastic as is available and 'TENT' your couch. Thieves is a great oil for preventing flu or when one is coming down with illness, but I am unclear if it can damage beneficial bacterias. Stopped taking thieves after a few weeks but do still take lemon and added in lemongrass and grapefruit to my daily capsule. Itchiness did not return. September 22, 2013 Decided to go on Stephen Buhners herbal protocol for Lyme disease (crafted from his excellent book, Healing Lyme).
I wouldn't make a habit of wearing unwashed mentholated clothing as I believe it is unhealthy to inhale the vapors over a long period. Some people have tried to mentholate rooms.
Although I tested negative for Lyme and feel fine, I don't trust the traditional testing one gets with their regular MD, and even though I don't think I'm dealing with Lyme, I can't discount the fact that so many Morgellons sufferers also have Borrelia and other co-infections that might be related to our disease which seem to improve with Lyme treatment. Also, his protocol addresses other issues I feel are pertinent to my health (even before Morgellons).
Open dresser draws, closet doors, and try to keep in mind that you want to make sure as much air circulation gets around things as possible. Certainly, I see over time that my immune system is weak, and my gut reaction now to coasting is that it could be an eventual time bomb. Don't do this if you have fishtanks in the room, and make sure to protect your pets by keeping them out. I'm taking Cats Claw, Sarsaparilla root (Jamaican—which I grind in my coffee grinder), Eleuthero (Siberian Ginseng), Astragalus, Japanese Knotweed and Andrographis. Computer Equipment —I disassembled all my equipment including cords and put them into a big bin with mothballs. To his formula I've added in Ashwagandha and Sweet Cinnamon (from Sri Lanka) for the brain, as well as nettles (excellent herb for trace minerals and general support of system) and Pau D'arco (fungal). I take a quarter level teaspoon of each herb (which is roughly the equivalent of one 00 capsule) added to some water and drink it down. It did the trick.Mothballs are nasty and toxic, this is a last resort solution and I suggest you do your best to limit exposure especially when it comes to inhaling.
Also, note that certain plastic foams will absorb the odor of the mothballs and there is no way to get that smell out.
Surprisingly, I did not feel exhausted, although the protocol was pretty intense and caused a lot of flushing through the digestive system.
If you have a problem in an isolated area such as a room, I'd put a bin right outside the door with diatomaceous earth? in it, or methol crystals.
This is not a new symptom and usually happens in the first few weeks of starting any new protocol.
As these breakouts have always been so minor and short-lived? (an occasional papercut lesion or what looks like a pin prick), I paid them little mind. I encourage those wanting to interact with others in the Morgellons communtiy to join the forum (or the many other Facebook groups). In this case, the skin continued to break open for the duration of treatment and I had some long "scratch" marks come up as well. It seemed like the last papercut I got was deeper and for the first time I started to worry that perhaps I was giving myself a lesion problem that I might not be able to turn off.
Gratitude to Rayelta Nayar? for all her hard work preparing these!Note that I am not publishing the below pdfs as recommendations. I'm not endorsing nor do I follow any of the protocols below, yet, feel the public should have easy access to the information and form their own opinions about them. This little spot has bothered me on occasion on and off throughout the years of my Morgellons experience, but during the Buhner protocol, it itched almost constantly. On the plus side, I could tell there was a lot of detoxification going on and all of those bitter herbs were really helpful for quelling sugar cravings. I believe I will revisit this protocol modified in the future, but for now, am taking a rest from it.
Note that when I ceased treatment, the papercut and pinprick lesions stopped, although I recently had a three-inch long "scratch" appear on my leg weeks after stopping his treatment some weeks back. Reflections Awareness Poster Links Ayla's Art Contact Ayla Morgellons Disease: Tips for healing lesions, oral care and environment   Information for dealing with Morgellons lesions using topical aids as well as FAR infrared technology. This was a surprise, since problems usually only show up on my hands and 3 inches is rather a statement!For the first time, the scratch resembled images I've seen for Bartonella. There is much about it that I think is helpful, and I encourage people to study these herbs and supplements carefully, and decide for themselves if they want to incorporate them.
This is a very difficult protocol and for any who have detoxification pathway issues, this could impact their health negatively. The release of toxins in a system that cannot remove them properly can be deadly, so it is important to not rush carelessly forward with something this strong. I did feel like the protocol helped me on many levels, but I could not tolerate the heart issues with pressure on the chest, burning, and breathing difficulties. The creator of the protocol feels that Bartonella is at the core of the Morgellons infection, and Bartonella likes to set up shop in the endothelial tissue of the heart. It's not a cure, but it WILL rid each and every lesion if the application is consistent.
Thinking this was just a severe Herxheimer reaction, I went back on the protocol but was unable to advance more than one drop of each tincture before heart and breathing issues returned with a vengeance. You can also open capsules of probiotics and not just one since you are covering a large area Beware that in the morning the liquid will have absorbed into your skin or evaporated leaving lots of crumbs and it's messy.
This time, the heart issues did not abate immediately, and it's been some weeks now in which they often come back on a low level. His original protocol (which he posted on Jenna's blog and which is now removed) did not use MSM, or Silver Sol or various other supplements. It also did not include baking soda, which is not inherently a problem, but at 2 teaspoons a day, might become one.
Her formula contains DMSO which some feel is controversial, so do your own research and decide if it's the right direction for you. It is a carrier and contrary to what experts say it is not harmful, you can research it yourself if you haven't already done so. You won't be able to get them all out and yes some may die in the skin and cause a breakout, but over time is will subside.
It's taken me over a year now as certain section of my face were harder to deal with specifically the chin and cheeks. I was using antibiotics and I'd have to smear it on everyday and still not get rid of this and those antibiotics are not good for you.



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