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My dear friend, Aaron Fullerton, is a cancer survivor who wrote this guest blog for you all. A few years ago, when the doctor informed me I had three on my midbrain, an inoperable spot smack dab in the middle of my head, I remembered Fernando. When fellow podcaster Bryan Bishop (known as Bald Bryan from the Adam Carolla Show) reached out to me about our similarities in life, which included brain tumors, I couldn’t have been more excited to hear about the work he was doing with the American Brain Tumor Society. The Los Angeles Brian Tumor Walk is on August 24th at Exposition Park here in LA, and we’re raising money for awareness and research. When your body delivers an unwelcome surprise, like cancer, it’s easy to feel betrayed. I’ll continue to embrace good diet and exercise for the rest of my life, but I understand that true control is a facade.
This week marks the one-year anniversary of my final chemotherapy session and I’ve been thinking a lot about my personal timeline.
Every run I take, with the wind on my face or The View on the gym TV, isn’t a step away from cancer. I’m eager to celebrate, especially since December 31, 2012 was marked by a car crash and a lengthy chemotherapy session. You know how on the internet, people tend to have civil, thoughtful conversations that articulately express varying opinions? Earlier, I spotted a tweet from a charity organization that focuses on cancer among young adults.


I know, personally, of young testicular cancer patients who are ashamed of their diagnosis. I tried, in 140 characters or less, to express all these thoughts to the person behind the organization’s twitter account. I have no doubt that good-hearted, smart, sensitive people run the organization’s account and I commend them for the good work they do.
Acoustic neuroma - Benign tumor of the eighth cranial nerve (balance nerve) that can causehearing impairment, balance problems, and deafness. Schwannoma(s) - A moderately firm, benign, nonencapsulated tumor that results from the disorderly proliferation of Schwann cells and that includes portions of nerve fibers.
Lisch nodule - Small spots of pigment on the iris of the eye that has no affect of vision.
Optic Glioma(s) - Gliomas are tumors that can be found in a range of parts of the brain. To customize it, please navigate to Admin Panel -> Appearance -> Widgets and add widgets to Footer Column #1.
To customize it, please navigate to Admin Panel -> Appearance -> Widgets and add widgets to Footer Column #2. To customize it, please navigate to Admin Panel -> Appearance -> Widgets and add widgets to Footer Column #3. Parks & Rec premiered right around the same time Sarah and I started dating and it was quickly a constant in our relationship. That is a really fun sentence to write, especially considering what the content of this blog often is. A version you didn’t realize was right there the whole time, underneath the surface, ready to be revealed by the right person. He was named after the superstar Los Angeles Dodger pitcher of Hispanic descent, Fernando Valenzuela, one of my favorite baseball players at the time.
I knew I had more of an immune system than my little flying friend, but I only knew this diagnosis as a death sentence because of him.
I had a ringing in my ear that wouldn’t go away, so I visited a doctor after hours searching WebMD and deciding I was going to die. His experiences with the affliction has been more intense than mine, and has turned his story into a NY Times best-seller.
Surgeons had split me down the middle and gently removed some vitals in order to scrape out the cancerous lymph nodes still in my abdomen post-chemotherapy. That successful surgery is 365 days in my past and I’ve officially lived one full year as a survivor. But I also bristle at the question, too, because sometimes people are looking for a specific answer. Let yourself be affected by others’ hurt, try to understand their choices, and be an active player in the world around you. I joined a gym, I got more selective with my diet, I tried to do weights and cardio everyday.
And the only way I knew how to exert dominion over this mess of cells was to live as healthfully as I could.
2013 offered a much more uplifting narrative, punctuated by successful surgery, my first episode of television, and an engagement.
It’s hard to look back on the space between November 14ths and not see the major challenges, especially the moments of that first night. The experience left me with only a few physical reminders: a wicked abdominal scar, a low white blood cell count, and some carefully placed silicone.
There was, of course, the distraction of professional storytelling: this was the year that included the writing and airing of my first television episode.
Removing the stigma from testicular cancer, though, is a topic about which I’m very passionate. I wanted to share memories and thoughts, personal anecdotes that I found humorous and lofty ideas about paradigm shifts in cancer culture.
Meaning, you only need one copy of the mutated gene from one parent, to inherit the disease. Her exciting office romance is just beginning to take off; I was thinking about engagement ring shopping. The characters are incredibly specific but never afraid of the broad joke and the plots often pit them against institutionalized bureaucracy or that all-American brand of uninformed mob mentality. I got the pet from my Grandfather, a large man from Iowa, burly in size and muscle, who in the most endearing, almost Tuesdays With Morrie way, raised these fragile birds in his work room. I also noticed he had some sort of growth on his head, and it seemed to be getting larger by the day. I assumed eventually a growth would appear on top of my noggin, like a built in dunce cap, and then I would die.


I get them checked every few months, because if anything scary is detected, I’ll be sent in for chemotherapy and radiation, then my blog would get REAL exciting.
We’re supposedly disaffected by tragedy and success, unless we can spin it into an ironic meme.
And 10,000 of them earn me a smiley face which, worthless as it may be, feels like a monumental reward. I realized how debilitating it can be, and how rarely we take the time to understand it in others. Pain became confusion, confusion became cancer, cancer became treatment, treatment became surgery.
But there was also this very blog, an outlet I used to process my feelings on whatever the struggle of the week was. Getting wheeled into the operating room while the anesthesiologist blasted the new Rihanna album.
Right now i’m conducting a study of NF1, looking at Self esteem, and school in teens(14-17) with NF1. Caused by schwann cells proliferating inside the nerve sheath to create a distorted and bulky tumor. It always has something to say about the relationship between the government and the individual, but it always said it through pratfalls, pop culture references, and unbridled goofiness. I hand picked Fernando, a white petite parakeet who made the cutest noise when I was choosing. I’ve learned a whole lot about brain tumors, symptoms to look for and steps to take to get checked - and I try and share them as much as I can with people.
So many things you should know about, especially since everyone has someone in their life who has battled, or is battling, brain tumors. And now I’m surrounded by an amazing support system of doctors, friends, and now this charity filled other patients and caregivers.
I understand the perception that Americans live inside a bubble of entitlement, but I think it takes a particularly sociopathic kind of blindness to be eternally and wide-rangingly ungrateful. If I walk five miles and 10,000 steps in a day, a very approving smiley face shows up in the display. I never want to see the co-worker again, but I’m also grateful for how he let me see the world. The experience was humbling and, more than anything, made me much more aware of - and empathetic to - the hurt that we ignore.
I remember the distressed faces in the waiting room, the uncomfortable contours of the hard plastic chair, and the soundless Dancing With the Stars results flashing across the wall-mounted TVs. Each phase jerked sloppily into the next; cancer provides no smooth transitions or organic moments.
But since my doctor knew I couldn’t say no to deal, he set me up with an MRI, because the ringing would allow insurance to pay for it. With the way the world is going, with air pollution and burning hot cell phones placed directly on your brain, we should probably learn more.
If any of you, especially other cancer survivors, have good suggestions for ways you’ve given back, please let me know. We can’t keep enforcing the idea that losing a ball is some deeply painful, emasculating process. I cried and cried, but my Mom agreed and that was the last time I saw Fernando, but sadly, not the last time I saw brain tumors. He explained that it’s important to have your brain scanned, so we can have the results for any future issues, god forbid they appear. Sure, on the surface, it seems like a particularly millennial therapy: understanding through oversharing.
Over the course of this blog, I’ve written about my cancer in (too?) intimate detail.
We - testicular cancer patients and our loved ones - should feel lucky that it’s so easy. I already knew Sarah was the one at that point, but it showed me just how deep her reservoir of strength was. When he called me 5 days later in a somber tone saying I had to go in, I immediately regretted using that coupon. Writing for Chasing Life, though, gave me the opportunity to approach cancer from a sideways angle.



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