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As Blake Papsin, MD, otolaryngologist-in-chief at The Hospital for Sick Children in Toronto, was covering for a colleague on the ward one day, he walked into a room and saw a device he had never seen before—an infant sleep machine (ISM).
Some parents use the machines to cover ambient noise and help babies sleep; however, a new study by Dr. To conduct the study, the researchers used 14 ISMs widely available in the United States and Canada. Maximum volume sound levels at 30 cm were greater than 50 dBA for all 14 devices, and three machines had output higher than 85 dBA.
Olivia was 3 and this was the first time that I knew of that she noticed that her right ear didn’t match the left. On January 28th, 2013 we finally held our gorgeous girl in our arms and one of the first things we fell in love with was her crooked little smile. We have learned a lot about Microtia and unilateral hearing loss in the almost 3 years since we received our little girl’s referral. Microtia is a congenital deformity affecting the outer ear (pinna) where the ear does not fully develop during the first trimester of pregnancy. When we saw the craniofacial surgeon, he took measurements of Olivia’s Microtia ear, jaw and facial structures. With this new Hemifacial Microsomia diagnosis we were referred to a pediatric dentist and orthodontist. Just before Olivia turned three we decided to take her to a well-known craniofacial team about 3 hours from our home. The content found on the No Hands But Ours website is not approved, endorsed, curated or edited by medical professionals.
Papsin and colleagues, published in the April issue of Pediatrics, is raising some concerns about the machines’ long-term effects on infant hearing (Pediatrics. Each machine produced between one and 10 different sounds such as white noise, nature sounds, mechanical sounds, and heartbeats. Readings were taken at 30 cm to mimic placement on a crib rail or within the crib, 100 cm to simulate placement on a nearby table, and 300 cm to see what levels might be found if the machine was placed across the room. So, if we exceed these dose-response curves in an infant, it is possible that we may be inducing some hearing loss.
Thankfully, the pediatric dentist my older children have seen for years has experience with Hemifacial Microsomia so we did not have to find a new dentist. We had been taking her to multiple physicians and wanted to take her somewhere where all members of the team could collaborate.
Within the first 10 days of having her in China she had between 10 -15 English words and was gaining new words daily.


Yes, be thankful that he or she is not medically fragile, chronically sick, or facing multiple hospital visits. Using the meter, he measured a sound level of 85 A-weighted dB (dBA), which is higher than exposures allowed in industrial work environments without hearing protection.
Even at 200 cm, all but one of the ISMs still produced sounds at levels higher than 50 dBA.
At two and a half she asked to have her ears pierced to match her big sister and we gladly obliged. Like all parents, I never wanted my daughter to feel hurt, shame, disappointment or that she is anything less than God’s perfect beautiful creation.
The audiologist did an ABR (Auditory Brainstem Response) test to check the hearing on her (right) Microtia side. This occurs when the jaw bone on the Microtia side is smaller than the jaw bone other side.
This was the best decision we could have made and I would encourage that all families of a child with several diagnoses seek out this type of collaborative approach. Shortly after coming home we decided to have her evaluated by our local early intervention program.
I regret that it took us almost 2 years to find Olivia a team that truly understood her needs.
Early on when we were working on building attachment, we made sure to always let Olivia know what room we were in. The meter’s microphone was fitted with a 2-mL coupler to simulate the location of the tympanic membrane in an infant. Most days she wears her hair in two cute little pigtails that stick out just right and like most little girls she spends hours spinning and twirling in front of the mirror while wearing princess dress up clothes while admiring herself.
I didn’t remember checking any of those things on the dreaded special needs checklist that all adoptive parents have to fill out. Olivia now has a craniofacial surgeon, an ENT, two speech therapists and an audiologist all under one roof. The speech therapist noted that she had slight language and articulation delays and because English was not her first language and she had hearing loss, we decided to begin therapy.
We spent too many hours seeing doctors with poor bedside manners that didn’t understand her diagnoses. I always thought he would notice it and talk about it when he was ready (as you so beautifully describe above). I am a pediatric occupational therapist so I have worked with children with many special needs but, hearing loss is one that I have little to no experience with.


The audiologist also did booth testing to be sure that Olivia had average hearing in her left, unaffected side. We found out at that appointment that Olivia is missing a lower tooth, apparently something common with Hemifacial Microsomia.
When we went to that initial appointment Olivia gained an additional diagnosis of Velopharyngeal Insufficiency (VPI). Yes, once a week we go to speech therapy and a couple of times a year we trek a few hours to see her team. Her pre-school teachers know to sit on her left side during one-on-one instruction time and that she may not hear them on the noisy playground when it’s time to line up.
But now I’m starting to have anxiety about a child pointing it out at school and not being there for the first conversation about it. The malformation of the middle ear bones may be affected including the narrowing of the ear canal, known as canal stenosis.
But, most days we function like many other families and Olivia’s hearing loss has become our new normal. These are all simple accommodations that have truly just become our norm and we don’t think about them much on a daily basis anymore.
If you’re willing to have a conversation with me about your experience and share any insights you might have, I would be very grateful. She works on activities to strengthen her palate in hopes of avoiding surgical intervention later. The palate on that side does not contract during non-nasal sounds so air escapes through her nose.
I would suggest that if you are considering any type of special needs adoption you seek out a support person or support group specific to the need with which you are matched.
We will have photos and x-rays repeated yearly to accurately track her growth and development. We discussed these issues with the audiologist and as a team we decided to do a trial with a hearing amplification device called at Bone Anchored Hearing Aide (BAHA).
Within the first few days, Olivia’s nasality was improving and she no longer was mis-hearing our words.
In our case this is not covered by insurance but, many insurance plans do cover hearing devices.



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Comments to «Unilateral hearing loss what parents should know why»

  1. qedesh writes:
    World's Loudest Band' and their concerts have been recorded at 130 falling asleep, as it provides.
  2. eden writes:
    Subjective tinnitus played also starting my tinnitus was fairly serious and sleep was anything that.